Parkinson's Support Group
Welcome to this online support group for caregivers, family, friends, and others with an interest in Parkinson's care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with Parkinson's disease. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone.
You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.
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What's New Today
2 days ago
Hi, My husband has had PD for the last 15 years or so. The last few months were very difficult as he had two strokes. He has recuperated very well with memory and everything. However, his Parkinson seems to keep on getting worse and now he is falling. His doctor has changed his medication but he is not quite sure about his falling. Any suggestions? Do I get another opinion? His doctor wants to add a blood pressure medicine, as his blood pressure is low, however, we didn't accept this approach as he has congestive heart failure and atrial fibrillation and takes Metrapolol for the blood pressure. Thank you so much and God bless all of you
2 days ago
Incontinence help...PLEASE! My grandmother is 85 years old and has been diagnosed with Parkinson's Disease and Alzheimer's Disease. We have been relentlessly trying to get her to wear night-time underwear during the day because the pads she uses are not absorbing enough and her underwear are absolutely soiled. She hides dirty panties all over because she wants to wear them 2 days in a row. I have been fighting this battle for YEARS, and she is too stubborn, in denial, or just doesn't grasp the health risk she is putting herself in even though I have gone over it time and time again with more patience and compassion I ever thought I had. So now, in the past 3 days, I have found puddles of urine around and underneath her chair. She called me in the first time because she had gone so much and needed help changing. I had to throw out her slippers because they were full of urine. She blamed her underwear and pad not being securely in place that time. Today, I got home and saw another puddle. I went into her trash can in her bathroom and there was a pair of urine soaked socks and pair of underwear she had thrown away. I asked her what the puddle was and she said she spilled water. I wiped it up and it was BRIGHT yellow and had a very strong odor. I showed it to her and she became angry and denied anything had happened so I let it go. I have NO idea how to approach this problem any more, I've tried EVERYTHING, but my biggest concern is whether or not this is the beginning of a health problem such as a UTI or other infection. It just came on very suddenly and has happened 2x in 3 days. Should I consult the doctor, or just accept that she just may be completely incontinent now? I know how to choose my battles, but I may have to put my consideration for her feelings and dignity on the line because this may become a medical issue. She hates me either way and no matter what I do is right, so I'm wondering if it's time for tough love. I am at my wits end with this. Thank you all for reading and any responses are greatly appreciated.
5 days ago
Anyone know any tricks to cope with incontinence, constipation, laxatives and diarrhea? I didn't mind changing baby diapers, but this gets to be too much. One tip a friend gave me is to use puppy training pads to protect the bedsheets. That really cuts down on loads of washing.
8 days ago
Sitting here in tears after visiting Dad in MC earlier this evening. He's having such a rough time lately that I'm going mornings and evenings now. I found an old pair of dentures that he tried today, because he still can't keep the newer ones in place. I asked him and a few of the aides how well he ate today and was told not much. I really think he's lost the ability to chew much of anything. My husband rarely goes to visit, and he noticed how Dad now purses his lips and his face just seems to have taken on a different shape. My nephew hadn't seen him in a month, and he wondered if Dad had had a stroke. I've seen the change in him, but to me it's been gradual. I asked the nurse about a possible stroke anyway, and she said he has not displayed any symptoms at all. I guess I will call tomorrow about palliative care. I hate the fear I see in his eyes, and I hate leaving him there.
11 days ago
Hi, I am new to this group. Husband has had parkinson for 16 years and I am caregiver. My dad also had it but he lived in Fla and my sisters and I would visit when we could. We were all working and had 3kids each.
The other group online I follow is mainly for the patient and not a good place to vent. My husbands wakes me 3times a night and has terrible anxiety. He is on klopin but does not help much he can start on Zoloft but is afraid of side effects. Thanks for any support.
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