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Parkinson's Support Group

Welcome to this online support group for caregivers, family, friends, and others with an interest in Parkinson's care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with Parkinson's disease. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone.

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What's New Today

about 3 hours ago
Marshmallow2 said...
Welcome srmuszy. I haven't found a diaper that lasts well enough overnight. We have a plastic mattress cover and some vinyl-backed pads to p... more
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3 days ago
joyanne said...
Wow, Concerned. I am sure that was a shocking revelation for you. It sounds to me your mom needs some counseling to help her deal with the e... more
3 days ago
BobbieK said...
Dear Concerned, Obviously this must be addressed. But getting mad at your Mother might not be the best response. Like Joyanne, I think counse... more
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4 days ago
Diwiyana said...
Dear Marshmallow2, I think when you have to lock yourself in a separate room from your beloved to be safe, it is time to check into assisted living or a nursing home. My thoughts and prayers are with you in this difficult time.
4 days ago
Marshmallow2 said...
Thank you for your kind thoughts and prayers Diwiyana.
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4 days ago
lise rr said...
Blessedlady, PD is a difficult disease, there are no rules because once you set one everything changes. It is good if she does things for her... more
4 days ago
emptynest said...
Blessedlady, I took care of my M-I-L with PD & I now care for my hubby with PD. As Lisa rr said, circumstances change from day to day. I n... more
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8 days ago
lise rr said...
Welcome marnio23, I think we all can relate to you. My husband has had PD for over 32 years, we have run the gauntlet of problems. He went f... more
8 days ago
Aligar said...
marnio23, is there an adult day center nearby? my husband goes once per week and I get alot done or just visit, window shop, or have no deman... more
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9 days ago
Marshmallow2 said...
Does your mother live in a house, coop or condominium that she owns. If so, she can transfer the title to the property to you if you live wit... more
9 days ago
gypsysoul said...
Yes, she owns her home. Though we would probably sell and buy something on one level. Thank you for the advice. It is appreciated.
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9 days ago
Marshmallow2 said...
Yes. We have problems like this. You are not alone. Is your wife using your regular land line telephone or a cell phone? Do you have a cel... more
9 days ago
PatMess said...
Aero, sorry to read about your troubles. I am amazed at the wide gamut of stuff we all have to deal with daily. You always have an ear here.... more
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10 days ago
Marshmallow2 said...
God bless you. Your day of rest was well-deserved. Your husband is fortunate to have such a kind caring wife.
10 days ago
BobbieK said...
I'm so glad you got a day off. But even more, I'm glad you are able to see Jerry so often. I know the trip is difficult. Being there is diffic... more
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11 days ago
soogate said...
Aligar - My husband was diagnosed January 23, 2014. He has been on Azilect since February 2014. He is not, however, on Sinemet. At his last ap... more
11 days ago
Marshmallow2 said...
Azilect is the only one of the myriad of medications for PD that is referred to as "neuroprotective". My husband does better when he is taking Azilect.
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12 days ago
PatMess said...
Marshmallow2, yes, dementia is the worse part of this disease for some. I could tell you some stories, haha. I started a log of the worse of... more
12 days ago
BobbieK said...
When Mom was on hospice for end stage dementia, she, too, wanted to go home, while sitting in her own living room. When Dad had to have her st... more
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