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Parkinson's Support Group

Welcome to this online support group for caregivers, family, friends, and others with an interest in Parkinson's care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with Parkinson's disease. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone.

You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.

Help spread the support to more people in need -- Please tell a friend or two. Thanks!


What's New Today

about 11 hours ago
BobbieK said...
Dearest Juststu1, Some ideas we used at hospice were to use milkshakes with straws, but we also stirred in instant breakfast. People liked that better than ensure. Do you kno... more
about 11 hours ago
Juststu1 said...
Thanks a lot. That helps. I think that her closing her mouth is due to the fact she wants something else, and right now, she can't articulate what. Before her speech started go... more
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2 days ago
PatMess said...
Widwin, there are many different approaches to a treatment plan. I have read of many different varieties and combinations of drugs used, especially at the early beginnings of ... more
2 days ago
BobbieK said...
Widwin, welcome. A great place to keep up on current treatments is the National Parkinson's Foundation. http://www.parkinson.org Since Parkinson's Disease and the medication... more
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7 days ago
soogate said...
Local mental health counseling centers. Living with a spouse with Parkinson's is tough enough without having a fractured marriage. The more you can do to strengthen yourself ... more
7 days ago
joyanne said...
I want to welcome you to this support group, Anonymous. There is no simple answer to your question. I am so sorry to hear of your husband's dx. I think the best thing for yo... more
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8 days ago
Marshmallow2 said...
The dopamine enhancing medications increase appetite. My husband eats and eats and eats.
8 days ago
PatMess said...
Oh yeah..they do!! My hubby NEVER at sweets and now it is rediculous. And he eats all day long and never gains weight. Been trying to get some weight on him for a couple of years (he lost 12 lbs over the past couple years) but nothing works.
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9 days ago
soogate said...
Nice!
8 days ago
Marshmallow2 said...
I am very happy for you. Treasure the moments.
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10 days ago
Marshmallow2 said...
I hear you. PD is hell for the patient and the caregiver. I have to give my husband his glaucoma drops and he gets the "crazies" really bad sometimes, so bad that I've called... more
10 days ago
BobbieK said...
Dear Second Hand Lion, I hear you. My husband has become totally dependent on me within the first year since diagnosis. He isn't incontinent, but he has trouble using the urina... more
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11 days ago
BobbieK said...
Dearest Sunshine, my heart is with you. You made me remember the preciousness of my grandmother. Hospice (and I assume they are involved) is there for you as well as her, and ... more
11 days ago
PatMess said...
Sunshine, my thoughts and prayers go out to you this morning as I sit here and read this with tears for you and your grandma....and for all of us who will have to face thus one... more
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9 days ago
joyanne said...
Hi, Karen. I am sorry I haven't responded to your post. I noticed it was 5 days ago! That is a very wise quote and will certainly apply to all us caregivers. My daughter enj... more
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14 days ago
BobbieK said...
No immunity. Think two year old. Right is always right, wrong is always wrong. But some behaviors are caused by medication, too. If something is a problem, be sure to talk to doctor.
14 days ago
PatMess said...
My hubby has PD DEMENTIA and certainly knows right from wrong. However, he still tries to get away with 2 year old behavior occassionally, lol. Mostly stubborness and contra... more
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17 days ago
BobbieK said...
Hi, most of us here are caregivers of people with Parkinson's, so we can only convey second hand information. My husband joined a couple of forums himself, including a very goo... more
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17 days ago
Thank you for responding I will look into those forums Take Care!
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