Parkinson's Support Group
Welcome to this online support group for caregivers, family, friends, and others with an interest in Parkinson's care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with Parkinson's disease. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone.
You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.
Help spread the support to more people in need -- Please tell a friend or two. Thanks!
What's New Today
2 days ago
Last fall my husband was in the hospital for observation. Apparently he had lost about 10 pounds in a short period of time. I was advised to put him on a high calorie, high protein diet. I used the diet sheet given to me. He has gained about 20 pounds but now it is all in his abdominal area. He is uncomfortable and had difficulty getting dressed. He want to loose some of this weight around his middle. I have cut back on some of the high fat items in his diet. He still eats cookies and fruit for snacks. Any ideas. He is a Parkinson's patient.
5 days ago
John has been having problems with coughing when he eats...aspirating, I reckon. So I talked to his neuro doc about speech therapy as that is supposed to help with swallowing too. She put in a referal for him but is not too optimistic since John has dementia and may not be able to learn something new. We decided we will give it a shot. Worse that can happen is they say there is no point to it. Unfortunately, we have to drive almost an hour to get to the Kaiser location that has an adult speech therapist. ( That is my biggest poo-poo about Kaiser. They have so many medical locations but not all locations offer all services. His neuro doc is downtown Denver and we drive over an hour to get there.)
9 days ago
Hi everyone, I am very new to all of this as my husband was just diagnosed two days before Christmas (some Christmas present, huh!). He has always been a very strong person but this seems to have changed him so much. He seems to have just decided to give up in that he doesn't want to do anything for his self. What I am struggling with right now is am I becoming an enabler because I want so badly to help him. What should I do?
15 days ago
Today is a beautiful day in Arkansas. I have plans to work outside on my yard. I know I am crazy, but I love to mow my yard, of course I do it on a riding mower. I turn my music up so I can hear it over the sound of the mower and that shuts the whole world out. Weedeating is not so enjoyable! haha
I am not doing a vegetable garden this year; instead I am going to concentrate on making a new flower bed. Maybe if I get out side and move more I will be able to loose a little of this spare tire I have around my waist.
What I want to do needs to get done today because we are headed into another rainy spell. Our weather here in the state has been really crazy this year.
I just had a sad, sad thought. If all I can think of to talk about today that doesn't involve a certain person is the weather, then I have truly lost myself. I've got to work on this.
Let me get back with you ladies when I can think of something more interesting to talk about. haha
17 days ago
I'm not sure how to deal with the rapid progression of Gary's disease. He was diagnosed less than two years ago, although he was exhibiting some changes before that. He is now wheelchair bound and spending 14 hours a day in bed.
He is still on a very low level of dopamine, no other PD meds. No tremors. He already has difficulty swallowing, slurred speech, and is having difficulty transferring. It is almost like I can see him getting worse. By the time we get one problem solved, I am facing a new one. B
I can't help but wonder about MSA. Life feels very much out of control.
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