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Parkinson's Support Group

Welcome to this online support group for caregivers, family, friends, and others with an interest in Parkinson's care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with Parkinson's disease. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone.

You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.

Help spread the support to more people in need -- Please tell a friend or two. Thanks!


What's New Today

about 12 hours ago
soogate said...
well said Marshmallow2 - hope things are going better so far this week for you:)
about 8 hours ago
Marshmallow2 said...
Thank you Soogate. Husband is doing a little better this week.
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about 12 hours ago
soogate said...
I understand so much where you are - as my husband was diagnosed just over a year ago. Significant tremor - stiffness and immobility of his ri... more
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2 days ago
BobbieK said...
I understand. It is so very hard to see our loved ones no longer able to control the parts of their life that others take for granted. And the... more
2 days ago
thebaby said...
We all know how your heart aches, but if you can find some moments to just make each other smile and accept that this is where you both are now, it may help. Hang in there.
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7 days ago
emptynest said...
Lschrunk, How compassionate of you to reach out on behalf of your mom. My husband has had PD for 15+ years & remains positive & cheerf... more
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8 days ago
BobbieK said...
Fay, is there a reason why she wants to stay in bed? Does she feel safe from falling? Is she depressed? Are her medications making her feel tired? If she can't explain it, be sure to talk to her doctor. Hugs.
8 days ago
Diwiyana said...
I talked my husband -- who has PD -- into getting a lift chair. It has a controller with two buttons, one to make it recline and one to bring ... more
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12 days ago
Diwiyana said...
my hubby, who also has Parkinson's, sometimes does something similar -- he'll seem particularly foggy, ask me a question that seems really pec... more
12 days ago
Marshmallow2 said...
Ouch. It's hard to say what's worse, if our husbands were really experiencing hallucinations/fogginess or if they are pretending to. My gues... more
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20 days ago
emptynest said...
soogate, This is one situation where silence is not golden. I think you need to determine why your husband struggles with a task: is he physi... more
18 days ago
joyanne said...
soogate, I am so sorry for your struggles today. Did you think to ask him if he was confused or if his fingers were too stiff to punch the but... more
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20 days ago
soogate said...
tigerlily...My mother has late stage dementia ( no parkinson) but vascular in nature. She is now in memory care, pretty well cared for, and in... more
20 days ago
soogate said...
and yes - ice cream is the solution to MANY things!!!
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20 days ago
undecided4now said...
Here's my situation. My husband and I have been married for 24 plus years. I have been traumatized by him on a number of occasions for which... more
20 days ago
tigerlilyhome said...
Wow, Lisa---what a terrible predicament. A good friend of mine was I the middle of divorce, when his soon-to-be ex was given a terminal cance... more
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21 days ago
soogate said...
I know how you feel. Everyone ages differently and faces the difficulty of aging differently. You ABSOLUTELY did the right thing - and deep in... more
21 days ago
lise rr said...
You let her "get to" you because you love her, and want everything to be back to the normal that you know. It is really easy to take on guilt... more
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