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Parkinson's Support Group

Welcome to this online support group for caregivers, family, friends, and others with an interest in Parkinson's care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with Parkinson's disease. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone.

You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.

Help spread the support to more people in need -- Please tell a friend or two. Thanks!


What's New Today

4 days ago
PatMess said...
Hmmm.... John takes his meds at 7pm and he pretty much sleeps the evening away until bedtime most nights. Never thought much about it. Just figured he was exhausted from the day. Am curious to see what others might be experiencing.
4 days ago
Marshmallow2 said...
My husband is sleepiest shortly after he takes his Sinemet, which makes no sense, but that's how it is. His mental condition deteriorates by the evening. He becomes paranoid ... more
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7 days ago
PatMess said...
My husband became very self-centered. He no longer thinks to ask how I am doing, how I slept, etc. I know he cares, just does not think to ask. He was losing all his kind man... more
7 days ago
Marshmallow2 said...
Empathy is the first thing to go.
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10 days ago
Marshmallow2 said...
Tremor of the head is a common motor symptom. Speak with your husband's doctor if it's a new symptom. My prayers are with you.
10 days ago
PatMess said...
Don't have that one. My hubby does the "pill roll" finger only it looks more like he is picking at his thumb nail. Drives me nutty, lol. John sits with his eyes closed most of the time...even when he is eating. Anyone else experiencing this?
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13 days ago
LoriNannette said...
We never had that problem with my dad, so not sure it's a PD thing, but I have friends with elderly parents that don't have PD that have the same problem. Maybe it's more to do with age?
13 days ago
PatMess said...
I have not had this particular problem...yet. But I have read so many others say they battle with this. Don't know if it is PD or not. Has she been checked for signs of Park... more
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14 days ago
Aggielyn said...
I meant pull up or access
13 days ago
BobbieK said...
Which browser are you using? I have it bookmarked, and can help you if I know more. Getting my husband down, so I can respond better in the daytime once I know.
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14 days ago
AimeyB said...
Amina- Good morning! I had to laugh a little bit when you said you were going to blame a dead woman for the budget!! I discuss issues that we argue over with the nurse who co... more
13 days ago
Amina92040 said...
I'm glad you laughed! Yeah I use his specialists as the bad guys too as often as I can. Dad being ex law endorsement helped when it came to him not driving. We don't have a on... more
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14 days ago
BobbieK said...
Hi Gerry, you didn't mention how long your husband has been diagnosed, so I'm not sure how urgent this is. What some people use is a diary or calendar to track things, includi... more
14 days ago
Marshmallow2 said...
What if you're not feeling right? Take care of yourself. That being said, don't panic, just reassure your husband that everything is okay. PD must be scary for the sufferer... more
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16 days ago
soogate said...
Welcome Aimey. There is tremendous wisdom and compassion on this site. It takes courage to reach out! Good for you!
16 days ago
PatMess said...
Hello Aimey. Welcome to "the family." Caregiving IS overwhelming but can also be rewarding. I wish you well on this journey and hope to hear from you often. We all learn fr... more
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14 days ago
Amina92040 said...
Hi Aggielyn, Yeah same with dad. Our lives seem to revolve around his overactive bladder and IBS... Hygiene is also an ongoing issue...getting him to wash up, put on clean clo... more
14 days ago
Aggielyn said...
a nursing instructor once told us regarding the smells that make us weak in the stomach, to take a big deep breath and hold it while you are taking care of the problem. Also we... more
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19 days ago
PatMess said...
Tough call there! Hope SON knows what he is in for. Yiu have to have eyes in the back of your head with pwp. There are so many things we can no longer do that we (hubby and ... more
19 days ago
BobbieK said...
OMG. It takes me a week to pack to go to the grocery store. Does your husband want to go? Is he even continent? Can he safely travel in a plane and get to the toilet? To sup... more
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