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Parkinson's Support Group

Welcome to this online support group for caregivers, family, friends, and others with an interest in Parkinson's care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with Parkinson's disease. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone.

You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.

Help spread the support to more people in need -- Please tell a friend or two. Thanks!


What's New Today

12 minutes ago
PatMess said...
It is my understanding that PD does not progress that fast. Maybe something else going on?? Is he under the care of a good neurologist or movement specialist? The meds have ... more
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3 days ago
Hello, I notice with the holiday weekend, no one has responded. My husband is still relatively early on, but has had several episodes where illness has caused rapid decline - ... more
3 days ago
joyanne said...
Dear anonymous, I believe you were given excellent advice. There are no rule books governing the ups and downs of PD. My husband has had PD for over 25 years and I have found ... more
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6 days ago
joyanne said...
Uh, Hello? Is this the party to whom I am speaking to?
6 days ago
BobbieK said...
Hi Glenn, do you have a question?
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9 days ago
joyanne said...
BobbieK, my husband's leg muscles get very tight. I'm sure it is related to his PD. I hope the doc gives you a good explanation for this when you call. I should know the ans... more
9 days ago
BobbieK said...
Thx, it is nice to know we aren't alone. I feel like we are on a roller coaster with the good and the bad.
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11 days ago
Marshmallow2 said...
We hear you. You are not alone. The alcoholism is a MAJOR MAJOR problem. Has a doctor explained to your husband how alcohol interacts with his medications? You have to take... more
9 days ago
tigerlilyhome said...
Oh, Lancypants! I hear the struggle in your "voice!" I think Marshmallow has given you good advice...even though it's awfully hard to do the right things to take care of ours... more
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12 days ago
BobbieK said...
Drooling, yes, runny nose no. Trying my patience? Every single day. LOL.
12 days ago
lise rr said...
Yes my Jerry does both and has for many years. PD doctor said it was a common side She gave Jerry Claritin for the runny nose. I buy soft cotton terry cloth bibs for when we ... more
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13 days ago
Aligar said...
Kay Marie, my hubby freezes too. So, first thing - walk in front of him and not behind him. give him time to get it going. Does he use a cane? I have noticed my hubby moving ... more
13 days ago
PatMess said...
John does not freeze very often on our walks. I have found that if I stay a half step or step ahead of him he does better. Also, I notice he does better if I am on his right ... more
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18 days ago
lise rr said...
We used the patch prior to it being improved. It worked very well for my Jerry. When it was re called he went on Sinemet and never went back on.
18 days ago
emptynest said...
My hubby didn't do well on neupro patch. While on it he experienced long episodes of hiccups. Went back to the Sinemet.
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18 days ago
PatMess said...
Back to ya! We had a great day. Went to our son's for lunch and had a good visit. Hubby (pwp)stayed awake the whole time and watched bball with son. Best gift I could have been given.
18 days ago
BobbieK said...
The same to you!
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20 days ago
Marshmallow2 said...
You are not failing her. The health care system, doctors, hospitals and pharmaceutical companies are failing your mother. Don't blame yourself for the failures of our medical... more
20 days ago
BobbieK said...
Med1 Just a quick question, how is your Mom's condition otherwise? Is it possible she has a UTI or kidney infection? I mention these specifically, because they can impact the ... more
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