Parkinson's Support Group
Welcome to this online support group for caregivers, family, friends, and others with an interest in Parkinson's care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with Parkinson's disease. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone.
You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.
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What's New Today
1 day ago
I am sure I am NOT the first...but my mom started acting weird yesterday - she is usually really nice to everyone - I mean reallly nice [I am the not so nice one- I am extremely real and realistic}...but I came home after a pain mgmt. doctor visit and her mood was completely different. She was actually mean - like super mean and then very tired. I texted my sister and asked her to "check-in" but not to tell mom why. She "snapped" out of it within a few hours. All I can think of is I have NOT seen her grieve my dad's death (June 2015) for more than one week after his death, and then everything was happy like nothing had ever happened - the fantasy world where dad never died. It is coming upon the first year anniversary on June 15.
3 days ago
Just a quick note. I know a lot of us deal with dementia and hallucinations. I received an email from the Michael Fox foundation that the FDA just approved a drug specific to this symptom.
I don't know if it will help anyone, but after our tales of reading napkins and Kleenex, I thought a few might want to keep the new option in mind.
10 days ago
I'm totally frustrated. Every morning, Gary gets up, and gets dressed (with help) and walks about 20 feet. By dinner, Gary can't even transfer from his chair to the wheelchair. He can't even sit up straight and falls over. And, he seems to be missing part of his cognitive ability.
The few times he has stood up around midnight, he is actually better than earlier in the evening.
He has stopped trying to get into bed, and is sleeping in his recliner. I have requested the doctor start paperwork on a hospital bed.
It isn't down time, since he takes his last Sinamet at 5:00, and he is much better in the morning. He takes his midrodine at 7 am and noon, which is the only difference in his day pills.
Since he is sleeping in the chair, his ankles are swelling again, making putting his compression socks a huge nightmare.
I just don't understand the origin of the weakness.
13 days ago
This is really off-topic but I don't really have anyone else to talk about this kind of thing with. My Mom is currently in rehab after a major setback. My brother passed away very unexpectedly on Feb. 19 and a few days later Mom froze in place and wound up in the hospital. She lives in an assisted living facility. She can't go back until she's able to climb the stairs if there were to be an emergency and the elevator isn't working. Anyway, this is a TAX QUESTION. Last year, both my Mom and my stepfather wound up basically unable to care for themselves at the same time. My stepfather is now in a nursing home and refusing my calls. My Mom doesn't remember much. My stepfather's brother forced the issue of selling their house (which was in a total shambles because my stepfather wouldn't allow anyone in the house to help with the cleaning and upkeep, and both of them were in poor health. I don't have access to most of my Mom's financial info and NONE of my stepfathers. I haven't done my Mom's taxes because I honestly don't know where to start and what to do. I feel overwhelmed and don't know what to do first. Has anyone else had to step into a situation for a parent/relative who needed their taxes done but not had access to their financial information? ANY help would be appreciated. Thanks.
13 days ago
I need thoughts/opinions on returning to work after 20 years of staying at home AND in the beginning of coming out of denial about my husband's Parkinson's disease. We are 2 1/2 years into his initial diagnosis and today I believe he loses his right to drive. (Long story told elsewhere). While I am encouraged by all who know me well (family) to return to my highly skilled field in CAD drafting and design, I can't help wonder if it is idiotic to embark on this journey right now. My husband and Mom JUST invested in appropriate interview clothes and I've already invested in taking a CAD class to refresh my skills and update my resume a skosch. Today, after what I hope is my husband's last driving accident, I'm not so sure I'm going the right way.... I am tremendously conflicted...
26 days ago
Well, we are home from our trip. Made it safely until we headed for our car. I was busy with luggage and didn't watch Gary. Instead of taking the wheelchair ramp, he took the direct route, off the curb and face first! Just bruised, no brain bleeds. He is safely home.
Now that he is home, suddenly he can do everything he was afraid of doing on the trip. Seriously! It is like a miracle! Couldn't even stand up using his walker from his wheel chair at my Dad's house! Now he is zipping around better than before he left.
Don't know whether to be mad or relieved.
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