Parkinson's Support Group
Welcome to this online support group for caregivers, family, friends, and others with an interest in Parkinson's care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with Parkinson's disease. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone.
You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.
Help spread the support to more people in need -- Please tell a friend or two. Thanks!
What's New Today
3 days ago
My husband age 72, has Parkinson and was diagnosed in 2013. Sometimes he can be wonderful, but sometimes like today he is very angry and even mean to me. He says I say things that I do not say. Oh me. We just returned from a long trip. I drove him to PA from Alabama and back again so he could attend a reunion. We just got home and he is very angry. Oh me.!
8 days ago
Good afternoon, I was hoping someone would have suggestions on where to begin to help get my 84 year old dad some in home help. I am trying to get his VA pension papers filed and I am so stressed...anyone else need help caring for a family member with Parkinsons?
14 days ago
Thank you to all who prayed last week. Ron's bladder biopsies came back negative. What a relief. The stress of waiting on those results combined with the effects he suffered just from having a light anthesia for the cystoscope made it a very difficult week.
14 days ago
Well, today was a not so good day. Husband had primary doctor appt today to get results from MRI of his spine to check the amount of arthritis was present. Well.... He has stenosis from L3 to L5. And the seen a mass on his right kidney. Of course have to have yet another test for that. His short term memory is no better but no worse. Something to be thankful for. But I have a question that just came to mind.... Does PD affect hearing or eye sight?
Hope everyone is doing OK. Glad this group is here.
14 days ago
My husband was diagnosed at age 31 thirteen years ago. Fortunately it's been a slow progression with long plateaus. He just started a new job (deputy director) and still drives around and sails. He had DBS operation 1 1/2 years ago. So, there are some happy PD stories and things to be grateful for. My concern is that he is refusing to use a walking stick even though he clearly needs one when is in off mode. I get scared when he is falling from one door frame, table or sofa to another and this seems to be a step. Any advice?
19 days ago
Thank you to all for the help you give me. It is incredible how much support there is with this group and at the same time it is very informative about Parkinson.
My husband is falling every day. His body is getting very rigid as he has Parkinson with rigidity and not shakes. I read at the web of Parkinson that there are 5 stages and the last one is when the person is almost bed ridden. Unfortunately, I think he is getting there. Coordination is not good. My question is: Hospice assistance is something that a doctor indicates? He is still swallowing fine and blood pressure is fine also. Thank you all. I am a strong believer in God and pray a lot. His son and daughter (they are not mine they are from the first marriage) hardly talks with them. His daughter has a husband with brain cancer,, and I can understand, but his son doesn't have a wife, no kids, a good job and he is 50+++ Last month he called one time. Thank you for listening, please pray for the entire group. Any suggestions are always appreciated..
20 days ago
Hi everyone. Asking for prayers for my husband's second attempt at Deep Brain Stimulation surgery next week (September 11th of all days). After the MRSA infection required emergency surgery to remove the DBS system, he was on infusion antibiotics for 5 weeks. Because of the MRSA, he had to delay getting glaucoma surgery and has lost most of the peripheral vision in his right eye. We are eating through our savings to pay the monthly bills and I am now the chief source of transportation (except for an occasional Uber) On top of all that, we have 2 elderly cats who have been alternating being on their "last legs".
I am praying this surgery goes smoothly and we can get back to some minor semblance of our lives. We both know the benefits of the DBS outweigh the risks (in his case) so we are hopeful for a successful outcome.
20 days ago
Hi I am new to a support group. Have questions and concerns. I am not sure if anyone can help but it simply would be nice to talk about what is going on with my husband. He Is 55 and was told he has PD in april. we were chasing this thing around for about a 1 1/2 until april. we saw the Dr. last week. He said that my husband is in stage 2. But lately he seems to be getting worse. His meds were kept the same but they added a time release. Today he had a lot of trouble walking. His hips and lower back ached. He was bent over. He tried to get work done around the house but could not. This seems to be getting to the norm. I am worried about him having psp. He still drives but not as well as he used to. Most of his time is spent in our home. I feel bad . I mean really bad. I an do things but he cannot. He is fading away.
21 days ago
So we found out that hubby has PD+....meds are not working after 3 increases ..over 1 1/2 year .....going to slowly decrease ...10 days...to see if any difference....Dr. said there is nothing to do for PD+.....Dr. thinks it is MSA......feeling pretty helpless right now.....Any suggestions or idea's???
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