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Parkinson's Support Group

Welcome to this online support group for caregivers, family, friends, and others with an interest in Parkinson's care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with Parkinson's disease. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone.

You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.

Help spread the support to more people in need -- Please tell a friend or two. Thanks!


What's New Today

2 days ago
soogate said...
Can I ask about the particulars of the research program?
2 days ago
soogate said...
our husbands sound similar in age and symptoms
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2 days ago
Marshmallow2 said...
Wow, Judith. You are fortunate that you were a candidate for DBS. There are many recent advances in connection with DBS procedures. Does the caregiver provide care for you? You sound very strong and courageous.
about 9 hours ago
Kay Marie said...
We also have access to caregivers at the retirement community where we live. I cannot always count on them, but they area usually here within a short amount of time when we ca... more
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3 days ago
BobbieK said...
Grace, It is hard. I don't have the expectations (we live far from family), but I can share something I try for. When I need something specific, I ask. It doesn't always mean p... more
3 days ago
emptynest said...
I agree with BobbieK. Be specific & ask for help. Not everyone is comfortable being a personal caregiver. If that is outsider their comfort zone, let them do other things t... more
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4 days ago
soogate said...
I understand...wish I could help.
4 days ago
lise rr said...
Here is a start, MoMedTrans.com, (Senior Services) Mohawk Mobility 623-738-1367 Star Med. Transport 602-253-8993 Quality Transport 602-371-1000 You could also call Barrows Neuro Institute and see if they have transportation or volunteers.
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5 days ago
lise rr said...
Check with the local care facilities to see if they do respite care. You have to have her tested for TB, Checked by her doctor and get a clearance for care. Most of the Care F... more
5 days ago
Sammy13 said...
Thank you! Will do
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6 days ago
PatMess said...
Same situation here. My hubby was never a complainer and does not understand that he needs to keep me aware of what is going on. He shuts down completely and I cannot get anything out of him. Frustrating, to say the least.
6 days ago
thebaby said...
Sorry to hear about your situation. I'm certainly no expert when it comes to the male species, but I feel that perhaps his emotional detachment is an attempt to keep you from w... more
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6 days ago
BobbieK said...
When my husband started on medication, they told me it could take up to 30 days to take effect. BUT, if you are seeing some side effects, you should contact the doctor to ensure that he isn't having a bad reaction.
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1 day ago
HI..,my dad just hid how he was for so long and was living with a woman who had dementia and they both always said everything was good! "its a long story" but if you dont mi... more
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8 days ago
joyanne said...
Welcome, izmarie. Your story sounds a lot like mine. My husband has had 8 walkers because of his falls, You'd think the companies that make these things would make them mor... more
7 days ago
Marshmallow2 said...
Please take it one day at a time (sometimes one hour at a time). There is no predicting the future of PD and treatments. It is only right now in the present moment that PD is... more
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