We chose Beaumont Hospice for my dad because he was at Beaumont Hospital when hospice services were recommended. There weren't many reviews at the time but most of them were positive and the doctors told us that if we chose Beaumont the transition would be easier so we took a chance. Unfortunately I now feel that this was a mistake. I would never recommend them. They sold us on hospice talking about all the wonderful benefits of social work visits, counseling both for my father and the caregivers/family, chaplain visits, twice a week visits from an aide to bath him, everything we would need to care for him would be supplied and how hospice focuses on "the whole person" body, mind, spirit and help improve quality of life. That was not our experience. Hospice was great for the first two days while my father was still hospitalized. He saw the chaplain, a social worker, various nurses and a physician. The day he was discharged was when they abandoned us. In the morning I received report from my brother who had stayed with my father throughout the night that dad had frequent episodes of break through pain and had required more PRN doses of Roxanol. I asked them if the Fentanyl patch could be increased before discharge so he didn't suffer as much break through pain and was told "I don't know how many PRNs he had but I don't think it was that much". That night was the most miserable night that my father had, we had to call the hospice nurse twice to adjust his medications because we couldn't control his pain and anxiety and we were up all night trying to comfort him. Again, I asked if the fentanyl could be increased and was told that they don't generally do that because it takes x amount of hours to get into the system and my father was "active" and probably didn't have that long. We had to wake up every two hours to medicate him because if he didn't get his medication he was in terrible pain. Every hospice nurse who came to the house knew that we were doing this to control his pain but nobody offered any solution other than "just keep doing what you are doing because he seems comfortable". We did this for 8 days before the nurse finally got an order to increase the fentanyl patch, he passed away two days later. My father also had symptoms of a UTI, complaining of burning with urination, difficulty urinating and his urine was a pinkish color and had an odor. This started the first day he was home. We were told that they do not give antibiotics "at this point" because by the time it got into his system and provided any relief he would have already died. He lived for 10 days at home. He did not have a bowel movement while he was home. When we mentioned this to the nurses they would indicate that "at this point" we shouldn't expect a bowel movement and again we were told that he didn't have long to live. Yet in their literature we were instructed to notify the nurse if he hadn't had a BM in 3 days. I feel like the general attitude was that he wasn't eating and was going to die anyway so what is the point. Maybe they were right but nobody checked his bowels for the entirety of his time in hospice services. My father was home for 5 days and we hadn't heard from anyone unless we called for a nurse. There was no "caregiver education". I had to call them to get him a bath. We never saw a social worker until the day he died and they were there simply to file paperwork, paperwork that a good social worker would have started with us before my father died. My father was afraid to die and my brother and I were losing our minds as his caregivers. We all could have benefited from from some sort of counseling but never heard from anyone until my father had already passed. The social worker in my opinion should have been there on day one to assess the situation and help guide us and provide that counseling that they kept talking about in the hospital. We were constantly on the brink of running out of medications. A nurse would come to the house and tell us she was ordering medication then when we called the next day when we have only a couple of doses left, medications had not been ordered. I am certain that my father would have suffered greatly if we had not been constantly calling to check. I did not bring my father home to die, I brought him home to LIVE his last days. We were constantly being told that he was "active" and didn't have much time so there is no point in doing this or that. I wonder what my father's last days would have been like if we had kept him in ICU. I now battle with my own guilt over our decision to bring him home because we didn't receive the services we were promised and I have to wonder if his quality of life would have been better had they better controlled his pain in the beginning, if they had treated his UTI & constipation and he had received the counseling he needed to cope with the knowledge that he was going to die.