My father had been diagnosed with Lewy Body Dementia in April of 2018 although my Mother and I believe he started going away 10 yrs prior. Dad started having some falls from severe hypostatic hypotension but otherwise knew where he was and was was able to do all his ADLs.
Two weeks ago (1/25th) he had started to hiccup and spit up, We (Mom and I) of course brought him to the hospital but after 2 weeks of intensive treatment- (NG) tubes-ICU visits-antibiotics-CTScans-Sitters...it was time to bring Daddy Home.
I was a Hospice RN for the largest organization in Denver and just knew that I didn't want a giant, competitive, overworked team of individuals to take care of Dad and to work side by side with me. Agape Hospice was right there. Agape's patient load at the time of his admission was around 100 people.
All I had to do was make a phone call. They arranged equipment to be delivered, transport for Dad via ambulance (Medicare only pays if its a stretcher ride), and had a nurse meet us at home to assist in transfers and assessment of Dad.
Agape has taken the time to really work with their vendors, State Serv Medical Equipment and the company who delivered all medicines related to Dads comfort were all SPOT ON!
We brought Dad home on Friday: we met Kelly MNP, on Friday and we got Dad into his lift Recliner (please consider buying one if you can). Victor CNA, came Saturday and gave Dad a wonderful shave, trim, nail, treatment and then Nancy RN who helped me get Dads hiccups resolved on Saturday. We had a hellish two nights with Dad but they were there when I called just to talk to on the phone. Dad was really batteling spitting up and thick secretions in the back of his throat. But, Agape held my hand and walked me through it. For Nursing visits plan on about 30-60 minutes a per staff, depending on needs.
##REMEMBER THIS IS A MEDICARE/MEDICAID/VA and PRIVATE INSURANCE BENEFIT 3 mentioned above NO COST TO YOU! Most private insurances have this benefit, check for eligibility.
Sunday Morning, Dad woke enough to tell my Mom I love You, then he slipped intoa deep sleep. We recived a second visit from Nancy as she helped me to change dads shirt and prop him up, Then she encouraged a visit from one of their wonderful Chaplians, Lauren. Lauren came into the room and was amazingling empathatic, guiding my brother, my mother and I in prayer and song. She sang two of Dads favorite hymns and an hour later, Dad passed.
Agape was called and they came and were with us until Dad was taken away.
I know every death is different, some fast like ours and others a marathon. I only wish, selfishly, that Dad would have hung on a little longer so I could have met more of these Angels walking amongst us.
Its NEVER to early to call in Agape, and its NEVER to late. (they offer berveament counseling as well) They were a central part in caring for Dad and we could'nt have done it with out them.
My Best to YOU!