When my husband's Medicare ran out at the skilled nursing facility, I got a call from Roze Room out of the blue. The salesman said "okay" to everything I asked for (which included what I thought my husband would need to get better, NOT to die gracefully), and of course most of it was not approvable by hospice, He was completely a slick operator and dishonest, promising to help me move my husband's bed and not showing up, promising to have help for us to get him into the house and no one was there.
The nurse treated me like I knew how to make decisions for this new situation when I was heartbroken, confused, and out of my mind with fatigue. The social worker was unsupportive and unresponsive, believing I was not in their camp of hospice beliefs (because I hadn't accept their help for dying but because I couldn't take care of him by myself!). The spiritual counselor never asked any questions but just said Do you want spiritual counseling? How would I know what that means? Terrible at his job. The music therapist was amusing and help pass some time, but he kept trying to play John Denver songs, which my husband dislikes. They would not approve swallowing or voice therapy, they would not approve the physical therapy that my husband not only needed but responded to, which frustrated the PT person, too!
A doctor only saw my husband ONE time in five months. No phone calls, no video chats.
The secondary nurse was the only one who treated my husband with kindness and compassion, but she made several mistakes, including being unable to recath him (sending him by ambulance to the ER!!!) and missing the blockage that led to his death. We received no clarity on his cause of death, no legitimate cause on the death certificate (which took forever to arrive, i guess because they had no idea what to put that made any sense -- Parkinson's and Cardiac Failure are not legal causes).
The biggest thing that blew me away was that none of his caregivers (three came parts of every week for five months) signed the condolence card to me and my daughter after he died. NONE! The card had no names on it, no personal memories, nothing that would indicate it was meant for me. I received a generic letter from their bereavement counselor and emailed him about this, so they had a meeting, but he refused to tell them that they could still make it up to me only two months after the death. Two months is nothing! Of course I'm still grieving! Also, I got zero from them on the one-year anniversary of his passing.
Roze Room of the Valley is a sucky organization. I knew it after the first week but was too exhausted and frightened to make a change (fearing I'd have to find another bed for my husband while new furniture came in and knowing they would not help me. A caregiver should never have to feel STUCK with a hospice company but only loved and supported. I feel traumatized by my experience with them and have to work hard in my grief journey to avoid taking in all that pain, anger, and disappointment every time I think about it.