I was a caretaker for my mother for almost three years, seven hours a day, seven days a week IN REGENTS PARK NURSING HOME in Boca. For years, as most devoted caregivers do, I literally gave up my personal life and did everything I could for my mother, and don't regret one day of it.
In fact, when she died, I received calls from many people who had seen me caring for my mom, telling me what a great daughter I was.
When she became a nursing home resident at Regent's Park my mother had suffered a massive stroke and was on a feeding tube. At one point the PA assigned to my mother brought in a female doctor, Caraballo, from Trustbridge to assess my mother. The doctor took took her on as a patient on a Thursday (dead on Monday) and told me my mother could go either way. Although I made it very clear when I met the Trustbridge doctor that I was all alone, even with two shifts of nurses by her side, no one from Trustbridge, no pallative nurse or anyone, called to offer any support services and inform me of the gravity of the situation so I could make arrangements to have my mother moved to their facility where she would have died with some dignity in a peaceful environment instead of in a nursing home bed, then wrapped up with white tape and wheeled out on a guerny in plain sight.
The Trustbridge doctor who I met on a Thursday NEGLECTED TO TELL ME SHE WAS GOING ON VACATION THE FOLLOWING DAY. She offered no backup anything -- what I should do if I needed anything, what they could offer.
The nurse thought it was a good idea to turn the feeding tube off, but I didn't understand why. I thought she needed nourishment and was going to pull through. Instead, she choked on the fluids as she passed away. Despite a Trustbridge nurse being by my mother's side, and my being beside myself the Trustbridge nurse apologized to me that I had to see her go like that. But yet at no time did shecall the facility to help me out to understand what was going on and get someone to help me. The nursing home PA and the doctor were off the case. And the staff in the nursing home did nothing and offered nothing because to them she was no longer their problem because she was on hospice.
Up to a few days before that, at 83 years of age, if she arm wrestled me, I had no chance of winning.
She put up a very good fight for over three years, but this time she lost.
I called and spoke with a Trustbridge supervisor a few months later after she passed and was very upset. I inquired speaking to a supervisor about how they handled the care of my mother and was told me they do not monitor or call family members of patients who are dying. More than once I called and left a message asking to speak with the doctor who had gone on vacation. No one ever called from Trustbridge. THEY ADDRESSED NONE OF MY CONCERNS. They told me to move on. That was it. "No, we'll look into it and get back to you," even though I requested that they please call me back. The person I spoke with said he would speak with the physician. I never heard a word. No empathy. Female doctor didn't care. Stayed away.
It's been two years and I am still haunted by memories of those four days as she deteriorated and lost her life. All my mother could say after she experienced her massive stroke was "I want to go home." She said it 50 times a day for three years. A person lives a life of dignity and has loving family members, but when they get sick and have to rely on the good graces of others, in this case Trustbridge, they are shockingly treated like they never had ANY DIGNITY and are reduced to a worthless human.
Thank you, Dr. Caraballo for your kind attention to this matter, which your supervisor told me he would bring to your attention.
I will remember you always.