A Caregiver's Guide to Hospice Care

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What Does Hopsice Do

Hospice services offer physical, emotional, spiritual, and practical comfort and support to patients and families who are facing death -- at home, in the hospital, or other settings. The goal of hospice is to keep pain and suffering at a minimum, rather than to cure an underlying condition or illness. To qualify for care, most hospice services follow the general guideline that a patient must be diagnosed with a medical condition likely to cause death within six months or less. However, hospice care need not be continuous; patients are free to begin and end it as their condition improves or deteriorates.

The specific type of care and service hospice provides differs depending on individual needs and preferences, but it may include the following:

  • Medical care that involves monitoring the patient and administering medication, controlling pain, and providing other medical support
  • Social services, including counseling and referrals or coordination with other community resources to help the patient and his or her family
  • Spiritual services in keeping with the patient's religious or spiritual beliefs
  • Help with household chores, meals, and basic personal needs such as getting out of bed, walking, bathing, and dressing
  • Physical, occupational, and speech therapy to help maintain or regain lost functioning
  • Respite care to provide breaks for the usual caregivers
  • Bereavement support to help survivors cope and grieve after a death

How Does Hospice Help

Hospice care is for people who can no longer benefit from regular medical treatment and want to live their remaining time in a way they perceive will afford as much comfort, dignity, and privacy and as little pain as possible. For caregivers, hospice can also provide essential respite from the stress and constancy of daily duties, as well as grief counseling if needed.

What Does Hospice Cost

Hospice care costs less than most other types of end-of-life care because it usually involves less technical equipment and fewer medical procedures; the patient is most often cared for at home instead of in a hospital; patients need only pay for the services they require; and there's no charge for care and services that family members, friends, or volunteers can provide.

Medicare, Medicaid or Medi-Cal, and some forms of private insurance cover nearly all costs of hospice care. And many hospice services offer care free or based on a sliding scale to those with low incomes. A typical range for cost paid out of pocket is about $150 per day for care at home to $650 daily for constant care in a facility.

How To Get Started

To qualify to begin hospice care, a doctor must diagnose a patient with a terminal illness -- that is, a medical condition that may cause death within six months or less. You may find that you need to use some steely persistence to get the mechanics of hospice care initiated, both in dealing with attending physicians and in finding a hospice organization willing and available to provide the needed care.

Then you'll need to locate local hospice providers. For that, go to Caring.com's Senior Living Directory and search for hospice services by city or zip code -- and to see ratings and reviews of individual providers.

Barbara Kate Repa

Barbara Kate Repa, a lawyer and journalist, has devoted her career to editing and writing about legal issues for consumers. See full bio

about 4 years, said...

My father is already receiving round the clock care at home since 3 days ago I m heading down as fast as I can but have to take care oft daughters first. He was eating up til yesterday and now he's not taking fluid. Howuch time does he have? I can'tiss being with him but I've been going through a bad divorce. I'm exhausted He sounded so strong just two weeks ago I don't understand what happened so suddenly.

about 5 years, said...

The lady who has helped me to raise my two little girls for 6 years was diagnosed with Pancreatic Cancer that had already spread to her liver about 3 weeks ago. She was released from the hospital into Hospice. She is at home, and the Hospice nurse comes when she is paged. She has a hard time keeping any food down, and has thrown up so much that I am concerned about dehydration. I have got her to drink pedialyte, but paged the nurse to inquire about intavenous rehydration in case. The nurse said that would not be an option, unless she signed out of the program. Can someone help me understand why?

over 5 years, said...

How to get started is very helpful information, but it also sounds like doing so may prove to be difficult, and I am curious to know why this might be so. "Steely persistence" should not be necessary if I am dealing with a caring and compassionate organization who's sole purpose is to provide care to the dying. Just asking.

almost 6 years, said...

The articles are very good. My husband died of brain cancer and we did have Hospice. The staff and couselors and nurses were so caring, they. made it easy for me to be the main caretaker. All the medicines were provided for palliative care. Questions answered, support given . All I can say is, thank you