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Caring for a Spouse

Welcome to this online support group for spousal caregivers! Please introduce yourself - Ask for advice - Share your experiences caring for your husband, wife or partner. Talk about ailments and treatments, caregiving and relationship challenges, daily life, your tips for others. Vent, laugh, and come back to this online support group as often as you need to feel less alone. Some featured conversations to help you get started...

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Signslady said...

4 days

Several modifications need to be made to our house in order for hubby to come home. No discharge date yet but I've been told that Medicare only has to give 2 days notice. I want him to be able to die at home; I don't want him to have to be in long-term. Even with help, can I do this? I'm scared (terrified?), upset, depressed. You name it. So much emotional pain for both of us. I feel so alone.

OnePotato said...

1 day

Signslady said...

about 21 hours

ekjk4ever said...

5 days

Diagnosis mild cognitive impairment brain is shrinking and white matter disease. He thought it was funny for first 24 hours. Now he doesn’t want to go back to the doctor because they said they can’t fix him only slow it down and that’s not worth it to him. Ugh told him we will cross that bridge in March when they want to see him again. He said you don’t get it!! When will I learn to say okay and fight it later???

Sheila1944 said...

4 days

TiredCindy said...

4 days

Scaredwife said...

6 days

What do I say to my very Ill husband when he says that he's dying .

OnePotato said...

4 days

TiredCindy said...

4 days

seekingsupport said...

7 days

You know what bothers me and makes me sad? I feel happy during a day, then I remember that I'm going to have to change my husband's "pull up" for the rest of my life. Others who are in the same boat, please tell me your opinion..

Signslady said...

4 days

62lost said...

3 days

OnePotato said...

9 days

I need some opinions. The question is, how do you respond to well intentioned people that ask how your spouse is doing? Though my wife has been "sick" with one thing or another for most of our marriage, it's only this year that her health has taken a turn... she's been on disability most of the year now and most likely will never be gainfully employed outside the home again. She frequently sleeps till noon, then stays up most of the night repeating the process. It's hard to want to continually cover for her, and I'm getting fed up with people asking how she is when the answer is going to be "not good" to "worse".

shescrabby said...

8 days

seekingsupport said...

8 days

ekjk4ever said...

10 days

Been quiet on here lately. Hope my emails are not hitting spam. Monday is the day. We have done cognitive testing blood work and mri with global rendering. Can’t wait for an answer.

KrisinCO said...

9 days

Beyond Tired said...

9 days

Beyond Tired said...

11 days

Yet another article saying we (caregivers)should exercise

https://www.guideposts.org/friends-and-family/caregiving/caregiver-burnout/avoid-caregiver-burnout-by-exercising-just-three?

Not sure if I should feel inspired or grumble about the lack of that kind of time. lol

Signslady said...

9 days

Devineone said...

14 days

My fiancé knows he's dying he has an incurable disease plus ESRD we do peritoneal dialysis at home, he is very uncomfortable almost all the time he groans and moans but doesn't want me to do anything, he is not ready to die and I do not know what to do or say, the person he was is no longer, he used to love to eat, cook, go for walks go to restaurants movies he was full of life, now he just sits all day and sleeps, hardly eats, we still have friends in as he loves to have people over and loves to talk to them..His mind is sharp. How do I handle this, it has been 4 months since this diagnosis and everyday is worse, he was on hemodialysis for 3 years before this.and was doing quite well on 3 transplant lists. I know a lot of people have it worse, but I still wish I could do or say something to make his life better.. Thanks for any insight

Devineone said...

11 days

Signslady said...

10 days

seekingsupport said...

16 days

Happy Birthday Blue Crab Girl!!! Have a nice one. Hugs and wishes. Thanks to you, for wishing happy birthday s.

NeedHisStrength said...

15 days

TiredCindy said...

14 days

TiredCindy said...

19 days

Well - the holidays are upon us and I want to wish everyone a good holiday season and to take some time for themselves. I have been up and down - but am going out to a friend's to visit for Thanksgiving. I have been feeling a wee bit down and resentful and ran across this article - which made me laugh because I am basically doing almost all the "don'ts" in this article: https://www.psychologytoday.com/us/blog/turning-straw-gold/201401/not-do-list-caregivers-the-chronically-ill - called a Not-To-Do List for Caregivers written by a person being cared for. I am two out of six on this list of doing things "right". But then again, as most things easier said than done. Let me know how you rate on the list of don'ts: 1. Don't shy away from telling others you are a caregiver (I don't typically do that); 2. Do not pretend things are as they used to be ( as if you could); 3. Do not attempt to be Super Caregiver; 4. Do not be reluctant to share you difficulties with the person your caring for (that always ends up in a fight); 5. Do not become isolated (total fail); and 6. Don't neglect your own health (double fail). How did you do? It is actually a good article.....

Chgogal said...

15 days

Beyond Tired said...

14 days

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