Caring for a Spouse
Welcome to this online support group for spousal caregivers! Please introduce yourself - Ask for advice - Share your experiences caring for your husband, wife or partner. Talk about ailments and treatments, caregiving and relationship challenges, daily life, your tips for others. Vent, laugh, and come back to this online support group as often as you need to feel less alone. Some featured conversations to help you get started...
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What's New Today
about 6 hours ago
My husband caught my cold. Understandably, he's scared about it developing into pneumonia. He said if he's not feeling better tomorrow he wants to go to emergency. I think it's too soon. It's only been 2 days. But I understand the precaution. I wish he were on hospice so we could call someone to us.
I called his pulmonologist twice today and still haven't gotten a call back. His doctors are an hour away. So going to emergency by our home we'll have to get thru all the medical history. Maybe this will open the door for hospice care.
1 day ago
So my husband is trying to not smoke. This is great but now he's going to bed when I do which is not good for my sleep. I'm so used to him being up when I'm going to bed. It won't look good for me not to sleep in the bed now that he's in there but I can't function well tired. If it's not one thing it's another. Lord help me.
3 days ago
Watching one of my fav programs, This is Us. It's hard seeing the characters, Randall's dad wearing the oxygen while going thru stage 4 cancer. He's dying and the canula on his face makes me think of my husband and how his end could be coming. Is that what needing oxygen 24/7 means? I try not to give it this too much thought. Wish I could stop these thoughts from entering my mind.
5 days ago
I know it's very common, but my husband won't shower, or change clothes. He has mild dementia and is completely capable of managing the whole process, he simply won't. He claims he doesn't need a shower. All of the info I can find that addresses the issue is directed toward someone with much more advanced dementia. Any suggestions?
5 days ago
So the doctor has cleared Bill to travel and we are planning a small trip this summer back home to Chicago for 4th of July weekend. The kids and their husband and or boyfriend are all coming. We are really looking forward to this trip as it has been a long time since we have been able to travel more than a few hours away. I think this will be a really fun trip since we still have lots of friends and family in Chicago and I am happy the kids will make the trip with us as well.
However this trip is going to take a lot of planning as although Bill has improved a lot he will still need assistance in the airport getting to the terminal, which should not be a problem, but what I am trying to figure out is after we get to the hotel, we will most likely need the use of a wheelchair in case we go somewhere that requires a lot of walking. I am trying to figure out how we would be able to get a wheelchair for use during our time there. Does anyone have any ideas?
7 days ago
I'm a mess tonight. I just got my husband home from the hospital from his 4th back surgery. He has an alter ego that only emerges when he is in the hospital and it makes it very hard to like him - he has no patience, is extremely self centered, short tempered, very low pain tolerance and overall just not nice,
Anyway he is in a lot of pain from the bone graft site at his hip - not complaining to much about his back. He's a really big man - almost 300 lbs. No one asked me if I could or wanted to take care of him - they just take it for granted and send him home. It's not that I don't want to but I'm exhausted and there is so much to do and he's not doing much to help. I know I'm rambling..
We didn't get home from his discharge until 9pm and it's already been a long day at the hospital.
Thanks for listening - I just needed someone to talk to.
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