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ALS/ Lou Gehrig's Disease
Caring for someone with ALS has its own challenges and blessings. Come get help with ALS-related matters and be part of a community that cares about you.
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I'm scared I'm so afraid what's going to happen to him. Sometimes I can't breath. I come from a very bad childhood he always was the strong one. Also I been a stay at home mom and have health issues myself. I'm just scared. Thinking of life without him makes me not be able to breath. I try not to cry because I get horrible migraines when I do I feel like taking a ball bat and busting up everything. Is it wrong for me to a... more
I spent over a year living in Michigan caring for my sister who died of ALS in April of this year. I recently moved back to my home here in Albuquerque where I have lived for 38 years. I am feeling so depressed and sad at the loss of my sister. Do you have any support groups for people in my situation. I really think being in a support group to help people deal with their grief over the loss of a loved one will not meet my... more
How do I know.
I am being diagnosed with ALS at 65 and I still work and live alone. I am looking for a PATIENT support group.
my wife just got diagnosed with Lou Gehrig's disease I need to talk to somebody
I just found out a friend of mine from college (we are in our 50's now) has been diagnosed very recently with ALS. Here's my question, she is not married, and has no kids. She has no relatives other than a distant great uncle. She has health insurance and I am sure has some savings, but what happens to people when they get ALS (or another debilitating disease) and they have no family? When my dad was in the hospital last y... more
My ex-husband was diagnosed in late 2014. We have an 11 year old daughter who is struggling to understand what is happening to her father. He has not disclosed his disease to her and I don't feel it's my place to do it. I am hiding a painful secret from her and it is eating me up inside. I don't have anyone to talk to and at times I just feel like screaming to let out some of my emotions. Anyone else know what I am going through?
My mom was just diagnosed with ALS. She have a feeding tube, she can't speak, she gets tired very fast and walks very slow. She was a very active person and is just breaking my heart. Sometimes I feel like I can't breathe...I love her so much!! This not easy ????
Need help coping
Looking for someone in my corner to talk to. I work a full tine job abd am soke caregiver for my mom. How do I deal with this. I do nithing for my self. Have no time