ALS/ Lou Gehrig's Disease
Caring for someone with ALS has its own challenges and blessings. Come get help with ALS-related matters and be part of a community that cares about you.
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1 day ago
My Mom (54) was diagnosed almost 3 weeks ago.. Initially, she was very sad (to be expected) but after about 4 days her spirits seemed to slightly lift. She is continuing to work as an Administrator; a very stressful job. She has my Dad at home for support; we are very lucky that he is able to stay home with her whenever he wants and as much as he wants. The 4 of us kids are all in college or living on our own. We are a very close family and see our parents at least each weekend. It seemed like Mom was doing well emotionally up until about 2 weeks after her diagnosis then she became very depressed again (to be expected). She is not ready to talk openly about anything so we aren't bringing it up. How can I help her during the times that she is feeling extremely sad? My Dad is wonderful and lives to be by her side but I worry that he will start to feel sad as well.
14 days ago
I was diagnosed with ALS today. I'm 63. I don't know how to tell my kids about this. The youngest is 18. Should I tell them or just spend more time with them and wait until I don't have a choice? My voice is very bad and they know I've been to 8 doctors, had all kinds of tests and they're just waiting to see what they can do for me. But now I know they can't do anything. The Dr. today did give me Riluzole. But it sounds like the side effects are bad. Does anyone here take it?
17 days ago
Hello, My name is Russ, and my brother George has ALS which affected his speech. My brother won't let anyone show him any support at all.It's as if he just wants to be left alone.How can we reach him?The first thing that took place was this speech!Any suggestions for this crisis.
Bob Pope said...
28 days ago
My oldest son who is 42 yrs. old was recently diagnosed with PLS. He's at the onset stages he's having trouble walking and talking, he's still working full time.
He's an adult he's, I think he's making a mistake working 50 - 60 hrs a week. Will working these hours make the PLS move quicker, we've noticed that his walking is getting worse.
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