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ALS/ Lou Gehrig's Disease

Caring for someone with ALS has its own challenges and blessings. Come get help with ALS-related matters and be part of a community that cares about you.

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Student07 said...

1 day ago

My Mom (54) was diagnosed almost 3 weeks ago.. Initially, she was very sad (to be expected) but after about 4 days her spirits seemed to slightly lift. She is continuing to work as an Administrator; a very stressful job. She has my Dad at home for support; we are very lucky that he is able to stay home with her whenever he wants and as much as he wants. The 4 of us kids are all in college or living on our own. We are a very close family and see our parents at least each weekend. It seemed like Mom was doing well emotionally up until about 2 weeks after her diagnosis then she became very depressed again (to be expected). She is not ready to talk openly about anything so we aren't bringing it up. How can I help her during the times that she is feeling extremely sad? My Dad is wonderful and lives to be by her side but I worry that he will start to feel sad as well.

Tamara Lee said...

2 days ago

My husband was diagnosed with ALS just over a year ago. Some days are good, a few more are just OK but the mass majority of the days are overwhelmingly sad. I am wondering what all you caregivers nod to combat this darkness and rise above it.

IHavethis said...

14 days ago

I was diagnosed with ALS today. I'm 63. I don't know how to tell my kids about this. The youngest is 18. Should I tell them or just spend more time with them and wait until I don't have a choice? My voice is very bad and they know I've been to 8 doctors, had all kinds of tests and they're just waiting to see what they can do for me. But now I know they can't do anything. The Dr. today did give me Riluzole. But it sounds like the side effects are bad. Does anyone here take it?

Sister67 said...

13 days ago

1 day ago

Looking4hope said...

17 days ago

Hello, My name is Russ, and my brother George has ALS which affected his speech. My brother won't let anyone show him any support at all.It's as if he just wants to be left alone.How can we reach him?The first thing that took place was this speech!Any suggestions for this crisis.

oxbase said...

17 days ago

Percy P said...

26 days ago

I have recently been diagnosed with ALS and am looking for others,with the same,to communicate with.I am an R.N.,73 years of age.

Percy P said...

26 days ago

Bob Pope said...

28 days ago

My oldest son who is 42 yrs. old was recently diagnosed with PLS. He's at the onset stages he's having trouble walking and talking, he's still working full time.

He's an adult he's, I think he's making a mistake working 50 - 60 hrs a week. Will working these hours make the PLS move quicker, we've noticed that his walking is getting worse.

MaryjayS said...

about 1 month ago

Getting pregnant again, with my fiance having ALS

MaryjayS said...

about 1 month ago

AngieTaylor said...

about 1 month ago

My sister-in law has ALS. My brother is staying home to help her. They are on a tight budget. Is it possible to get some discounted internet service for them? I would like to help them to be connected for vital communication. Angle Taylor

MaryjayS said...

about 1 month ago

about 16 hours ago

Bob e. said...

about 1 month ago

For some months now I have had bowel problems constipation small pasty bowel movements constant feeling of needing to go and urinating problems frequency urgency etc what to do?

MaryjayS said...

about 1 month ago

Yvette Cordova said...

about 1 month ago

It is so very hard dealing with someone 28th ALS that refuses treatment. As a caregiver I'm very concerned

MaryjayS said...

about 1 month ago

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