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ALS/ Lou Gehrig's Disease

Caring for someone with ALS has its own challenges and blessings. Come get help with ALS-related matters and be part of a community that cares about you.

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norjean said...

3 days ago

My husband is 78yrs. old. Diagnosed with als in October. Speech badly affected and choking and coughing episodes. Did not give him medication because one of the side effects was lung problems and he already has emphesema. Have no family near so its just him and I. I try to get out as much as possible but I am discouraged and he is in denial so he does not want to know what lies ahead. I have a lot of faith but this has just knocked me down. All of our children live far away except my daughter about 75miles away comes on wkend when she can. He has so much mucous. Is this part of the disease.

24 days ago

Yesterday my husband of 50 years was diagnosed with ALS. His symptoms presently are, shortness of breathe, loss of appetite and weight,weakness in his arms and hands, and extreme fatigue.He doesn't ask any questions. I feel he doesn't fully understand the seriousness of this disease. He was right next to me when the doctor explained about the breathing issues and feeding tube. It breaks my heart to look at him. What should I do, wait until he asks questions or go over what is going to happen to him in the very near future.

Eeyore031370 said...

about 1 month ago

My mother was diagnosed on October 26th. She is 68 years old. The doctor says she has had it for at least two years. It is affecting her speech, ability to swallow and her breathing. She has asked my sister and I to plan her funeral as she and my dad do not want to do it.

Student07 said...

2 months ago

My Mom (54) was diagnosed almost 3 weeks ago.. Initially, she was very sad (to be expected) but after about 4 days her spirits seemed to slightly lift. She is continuing to work as an Administrator; a very stressful job. She has my Dad at home for support; we are very lucky that he is able to stay home with her whenever he wants and as much as he wants. The 4 of us kids are all in college or living on our own. We are a very close family and see our parents at least each weekend. It seemed like Mom was doing well emotionally up until about 2 weeks after her diagnosis then she became very depressed again (to be expected). She is not ready to talk openly about anything so we aren't bringing it up. How can I help her during the times that she is feeling extremely sad? My Dad is wonderful and lives to be by her side but I worry that he will start to feel sad as well.

24 days ago

Tamara Lee said...

2 months ago

My husband was diagnosed with ALS just over a year ago. Some days are good, a few more are just OK but the mass majority of the days are overwhelmingly sad. I am wondering what all you caregivers nod to combat this darkness and rise above it.

Catlee said...

about 1 month ago

IHavethis said...

3 months ago

I was diagnosed with ALS today. I'm 63. I don't know how to tell my kids about this. The youngest is 18. Should I tell them or just spend more time with them and wait until I don't have a choice? My voice is very bad and they know I've been to 8 doctors, had all kinds of tests and they're just waiting to see what they can do for me. But now I know they can't do anything. The Dr. today did give me Riluzole. But it sounds like the side effects are bad. Does anyone here take it?

Sister67 said...

3 months ago

2 months ago

Looking4hope said...

3 months ago

Hello, My name is Russ, and my brother George has ALS which affected his speech. My brother won't let anyone show him any support at all.It's as if he just wants to be left alone.How can we reach him?The first thing that took place was this speech!Any suggestions for this crisis.

oxbase said...

3 months ago

Percy P said...

3 months ago

I have recently been diagnosed with ALS and am looking for others,with the same,to communicate with.I am an R.N.,73 years of age.

Percy P said...

3 months ago

Bob Pope said...

3 months ago

My oldest son who is 42 yrs. old was recently diagnosed with PLS. He's at the onset stages he's having trouble walking and talking, he's still working full time.

He's an adult he's, I think he's making a mistake working 50 - 60 hrs a week. Will working these hours make the PLS move quicker, we've noticed that his walking is getting worse.

MaryjayS said...

4 months ago

Getting pregnant again, with my fiance having ALS

MaryjayS said...

4 months ago

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