ALS/ Lou Gehrig's Disease
Caring for someone with ALS has its own challenges and blessings. Come get help with ALS-related matters and be part of a community that cares about you.
Help spread the support to more people in need -- Please tell a friend or two. Thanks!
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26 days ago
I am trying to help a friend who's son has ALS. She is stuck emotionally and I want to help. She is frustrated. She is now at home with him full time and he is sometimes not in a good place mentally. Any suggestions? She says support groups can be depressing and there's no one his age. He is 26
about 1 month ago
Hey everyone my name is holly and my mom died from the disease about 4 years ago. One thing they don't mention is how it completely disrupts the families life. I live by myself and my sister and dad have each other. Most days I don't even want to get out of bed... It's an ongoing battle for me. I think there should be treatment groups in every big city. Someone to talk to that knows what I've been through... I pray for each and everyone of you in hopes that you find happiness after such tragedy. Thank you.
Sad and tired said...
3 months ago
May God be with any loved ones watching someone dye from this horrible disease. The road here is bad enough for both of you. But sitting in a hospital for 6 days alone 80 miles away from home watching your husband slowly slip away unable to really communicate is unbearable. I don't want him to leave me but I can't bear to see him is so much pain anymore!!!
3 months ago
Hi there. I'm new to this group. My husband who is 33 was diagnosed 3 years ago with ALS. We have 3 small children. I have been feeling burnt out lately and unable to relate to any of my friends or family anymore. I hurt needed to talk to people who understand what this is like. Nice to meet you all!!
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