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ALS/ Lou Gehrig's Disease

Caring for someone with ALS has its own challenges and blessings. Come get help with ALS-related matters and be part of a community that cares about you.

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about 1 month ago
clbrancart said...
I wish I could help you. My husband never experienced this. The only thing I can think of is an aloe lotion. Good luck. I hope you are able to find something to soothe your client.
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24 days ago
ginalove said...
What do you mean by his last stage? It really hurts to see so many people suffering from a disease yhat doesnt have cure. My dad was diagnosed last week and its hard not knowing where or whats to do for help.
23 days ago
jetnurse said...
Hi he had also for three years. I took care of him with hospice help for lift equipment,wheelchair and oxygen. Last stage was last 6 months for us. Bedridden,unable to eat or b... more
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3 months ago
rdp said...
https://www.facebook.com/carrytheloadstrengthformark....please watch my husbands video about having (BULBAR ALS). we just found out Sep 2014. If there is anyone out there that ... more
3 months ago
at78rpm said...
Sandra...my brother is also named Mark. This is a terrible, terrible disease. He has gone from diagnosis on Sept. 14 2014 to hospice today, unable to move at all. I truly ho... more
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6 months ago
missmisha said...
I'm not a doctor, but i would look into it further. Those are all signs my mother was getting at the beginning stages of als. She was also having slurred speech. Good luck. I hope it's nothing like the doctor said.
5 months ago
Treceporrata said...
Continue to look for a Neurologist that will listen and do a THOROUGH EMG. That is VERY important. It was not until my 3rd EMG (and Neurologist) that I was diagnosed. It took 2... more
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5 months ago
at78rpm said...
Anonymous caregiver: ALS has its own timetable with every victim. Some are diagnosed and deceaced in six weeks; some live 50 years, like Stephen Hawking. Personally, I am aston... more
3 months ago
Just a note said...
My husband will have his 75th birthday in April and this disease is causing him so much difficulty. One day, he will talk and the next day, he won't say a word at all. I know... more
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