ALS/ Lou Gehrig's Disease
Caring for someone with ALS has its own challenges and blessings. Come get help with ALS-related matters and be part of a community that cares about you.
Help spread the support to more people in need -- Please tell a friend or two. Thanks!
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Sad and tired said...
3 days ago
May God be with any loved ones watching someone dye from this horrible disease. The road here is bad enough for both of you. But sitting in a hospital for 6 days alone 80 miles away from home watching your husband slowly slip away unable to really communicate is unbearable. I don't want him to leave me but I can't bear to see him is so much pain anymore!!!
5 days ago
Hi there. I'm new to this group. My husband who is 33 was diagnosed 3 years ago with ALS. We have 3 small children. I have been feeling burnt out lately and unable to relate to any of my friends or family anymore. I hurt needed to talk to people who understand what this is like. Nice to meet you all!!
14 days ago
Two days ago my husband my husband did the electrical test and was told by the neurologist that he has MND. Next week he gets a CTscan because he also has a pacemaker from a heart attack 8 years ago. (Hereditary) He's only 47 and our daughters are 10 & 7 years old. I feel lost right now and don't know where to start. We believe the Lord has a plan I just don't know what he wants me to do.
Michelle N said...
25 days ago
I have a friend that is 15 months into her ALS diagnosis. She is bedridden and cannot speak already. she was the sole provider of her family as her husband is severe bi polar and wont medicate himself, her main caretaker daughter is also bipolar but does have it under control. no insurance, living on disability and cannot get a break. she cannot afford the supplies they say will help her and the go fund me that has been set up pays the house payments. that is it in a nutshell, i am looking for a place to vent, but look for ways to help her and her family as they let me. can this be done here?
26 days ago
My sister has ataxia of the cerebellum, which is a combination of MS, Parkinson, and ALS, mostly ALS . She was diagnosed about 8 years ago. Today she is unable to do anything. This is the most cruelest disease I have ever heard of. My sister is just trapped in her body. She was always such a active and fun loving Mother and Grandmother now she cant even talk to or hold them. It so painful to witness.
about 1 month ago
My husband was diagnosed two years ago with ALS. We are noticing significant behavioral changes and wondering if others are experiencing it. Although the research is there on paper, it's not talked about at the clinic. It took me a while to attribute chances to the disease and not just to a mood.
about 1 month ago
A friend told me that her husband has ALS and is terminal. I need help in how to support her at this time. I don't want to say the wrong thing and would like help in what to say and not to say to my friend and be as supportive as I can during this difficult time. I want to be up-beat and positive however I lost my husband 5 years ago and having some difficulty living alone and just came back from out-of-state to help arrange for my 91 year old mother to be placed in a nursing home after being independent and living on her own until about 6 weeks ago. Any suggestions would be greatly appreciated, and thank you for being here to help others in similar situations.
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