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ALS/ Lou Gehrig's Disease
Caring for someone with ALS has its own challenges and blessings. Come get help with ALS-related matters and be part of a community that cares about you.
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I really need someone to talk to that understands this disease and what the caregiver feels and thinks and everything. Please help...
My husband was diagnosed in July 2015 with als. He has bulbar onset which means he has lost the ability to talk and great difficulty with swallowing food and drink but is refusing a feeding that doctors very strongly recommend now. He has lost around 50 lbs I the last five months. I as his caregiver a and wife is lost in what to do. The protein drinks are. It helping to keep his weight on and I am at a loss as to what to d... more
Good Morning, I am really in need of some advice. My mother was recently diagnosed with ALS that is attacking her Cranial Nerve and it is really aggressive. My mother was misdiagnosed for 8 months and is declining fast, but she is in complete denial. She has lost her ability to talk, her nerves in her chin, tongue, throat, lost 50% of her lung function, and has now developed a drop in her leg. My fear is that she will stay... more
Hello, My mother was diagnosed in September of this year. We are in need of a handicap accessible van and are finding it difficult to pay a monthly payment if we purchase one. Any ideas who can help us? Thanks
Dearly love someone with ALS. We reconnected after 35 years! He told me he has loved me since the first day he saw me 35 years ago in high school. We are now both 50! How can your heart be so happy and broken at the same time?!?!
I'm fairly new to this but my dad was diagnosed this past summer and my family and I are going through a lot of things and I really just need someone to talk to who will understand what is happening and someone to guide me.
I don't know what to do, my sister has ALS. She had a doctor come to her home last week, an End of LIFE SPECIALIST, she liked him. What does this mean, they are dealing with so much and are angry, so I am lost right now we live so far away, I'm not sure what when the right time is to go to see her, tears falling.
I'm scared I'm so afraid what's going to happen to him. Sometimes I can't breath. I come from a very bad childhood he always was the strong one. Also I been a stay at home mom and have health issues myself. I'm just scared. Thinking of life without him makes me not be able to breath. I try not to cry because I get horrible migraines when I do I feel like taking a ball bat and busting up everything. Is it wrong for me to a... more
I spent over a year living in Michigan caring for my sister who died of ALS in April of this year. I recently moved back to my home here in Albuquerque where I have lived for 38 years. I am feeling so depressed and sad at the loss of my sister. Do you have any support groups for people in my situation. I really think being in a support group to help people deal with their grief over the loss of a loved one will not meet my... more
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