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ALS/ Lou Gehrig's Disease
Caring for someone with ALS has its own challenges and blessings. Come get help with ALS-related matters and be part of a community that cares about you.
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I just found out a friend of mine from college (we are in our 50's now) has been diagnosed very recently with ALS. Here's my question, she is not married, and has no kids. She has no relatives other than a distant great uncle. She has health insurance and I am sure has some savings, but what happens to people when they get ALS (or another debilitating disease) and they have no family? When my dad was in the hospital last y... more
My ex-husband was diagnosed in late 2014. We have an 11 year old daughter who is struggling to understand what is happening to her father. He has not disclosed his disease to her and I don't feel it's my place to do it. I am hiding a painful secret from her and it is eating me up inside. I don't have anyone to talk to and at times I just feel like screaming to let out some of my emotions. Anyone else know what I am going through?
My mom was just diagnosed with ALS. She have a feeding tube, she can't speak, she gets tired very fast and walks very slow. She was a very active person and is just breaking my heart. Sometimes I feel like I can't breathe...I love her so much!! This not easy ????
Need help coping
Looking for someone in my corner to talk to. I work a full tine job abd am soke caregiver for my mom. How do I deal with this. I do nithing for my self. Have no time
My als client is suffering from severe itchiness, over the past few months we are now scratching him up to 2.5+hrs in a 10 hour shift. We have tried hydrocortisone cream, witch hazel, coconut oil, amlactin lotion along with a few of his daily meds for other symptoms have been said to also help with itchiness. Gaba, Effexor, Nortriptyline, Rilutek. He is in a recliner 24 hours a day, we wash down his back and put on a n... more
I notice that there is no place to talk about PSP ..its compared to als but in my opinion far worse ...anyone in here share that?
my husband has als, ,he is currently last stage, . I live near emporia ks, any other people have same situation near this area? thank you jet
My sister lives in colorado I live in hawaii. Can you suggest anything I can do to offer support. Letters, phone. Email??
If you have received the diagnosis of ALS, you are a friend. In the few short months since my brother and best friend was given the dreadful news, I have found that this disease touches only the finest people. It is, by far, the worst thing that can happen, and personally, my feeling is that even if there were a god or gods, I would never want to spend eternity in the presence of such a criminal who cuts down the gentlest ... more