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ALS/ Lou Gehrig's Disease
Caring for someone with ALS has its own challenges and blessings. Come get help with ALS-related matters and be part of a community that cares about you.
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If you have received the diagnosis of ALS, you are a friend. In the few short months since my brother and best friend was given the dreadful news, I have found that this disease touches only the finest people. It is, by far, the worst thing that can happen, and personally, my feeling is that even if there were a god or gods, I would never want to spend eternity in the presence... more
Hello all. I am 41 and have been having twitching randomly throughout my body. I also have joint stiffness and some aches in fingers wrists and knees toes and ankles. I sometimes feel like my right foot and hand are gonna give out but hasn't yet and it switches sides sometimes. I am very worried its als. I did go to the nuero two months ago and he said it was nothing but it ha... more
Hi. This is the first time I am on this site. My father was diagnosed with ALS in July of this year. I do mostly everything for him as his health begins to deteriorate. He was able to walk and drive and work up until a few months ago. Now he needs help to walk and eat and do anything. Is it normal for this disease to take over so quickly? Also, I am a 34 year old ... more
When a loved one becomes hateful and scornful towards the caretaker, is it appropriate to call them on it? Are they aware they are being hateful?
my husband is already on a ventilator at night what haens rom here he is 67years old with ALS just diagnosed
I just got diagnosed with ALS 10/13/2014. I had been having symptoms for 6 months prior to this. I finally got to August Ga and saw Dr. Rivner. He spent 3 hours with me doing test and he determined that it is ALS. I go on Oct 28 for muscle biopsy and already started on meds for this. I am still in shock over this and I just wanted to know if there is others on this site with this to. Thanks and God bless.
I recently published my article on newly researched natural medicinal plants and their potential for treatment of ALS and other neurodegenerative diseases. It can be found at: http://ayahuascatreatment.wordpress.com/2014/09/01/ayahuasca-ethnobotanical-medicine-for-treatment-of-als/ It is the culmination of several years work, having studied ethnobotanical medicine in the sea... more
My husband was diagnosed with ALS in March. In May, he received a secondary diagnosis of frontal lobe dementia. I have been searching for other caregivers who are dealing with both ALS and dementia, or even a support for this combination together.
I dont know how to cope or handle this. My precious mother, the only person I have in my life was diagnosed with ALS today. We have been fighting for a year with doctors trying to find out what was wrong. Today we got the diagnosis. I dont know what to do from this point or how to help her. She is 76. He is in poor health and I am crippled.I am her only child(adult) and she ke... more
The momentum of Ice Bucket Challenge continues and 94.3 million dollars have been raised. We would like to hear your thoughts, experiences, and stories on this phenomenon that is sweeping the nation.