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ALS/ Lou Gehrig's Disease
Caring for someone with ALS has its own challenges and blessings. Come get help with ALS-related matters and be part of a community that cares about you.
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my husband has als, ,he is currently last stage, . I live near emporia ks, any other people have same situation near this area? thank you jet
My sister lives in colorado I live in hawaii. Can you suggest anything I can do to offer support. Letters, phone. Email??
If you have received the diagnosis of ALS, you are a friend. In the few short months since my brother and best friend was given the dreadful news, I have found that this disease touches only the finest people. It is, by far, the worst thing that can happen, and personally, my feeling is that even if there were a god or gods, I would never want to spend eternity in the presence... more
Hello all. I am 41 and have been having twitching randomly throughout my body. I also have joint stiffness and some aches in fingers wrists and knees toes and ankles. I sometimes feel like my right foot and hand are gonna give out but hasn't yet and it switches sides sometimes. I am very worried its als. I did go to the nuero two months ago and he said it was nothing but it ha... more
Hi. This is the first time I am on this site. My father was diagnosed with ALS in July of this year. I do mostly everything for him as his health begins to deteriorate. He was able to walk and drive and work up until a few months ago. Now he needs help to walk and eat and do anything. Is it normal for this disease to take over so quickly? Also, I am a 34 year old ... more
When a loved one becomes hateful and scornful towards the caretaker, is it appropriate to call them on it? Are they aware they are being hateful?
my husband is already on a ventilator at night what haens rom here he is 67years old with ALS just diagnosed
I just got diagnosed with ALS 10/13/2014. I had been having symptoms for 6 months prior to this. I finally got to August Ga and saw Dr. Rivner. He spent 3 hours with me doing test and he determined that it is ALS. I go on Oct 28 for muscle biopsy and already started on meds for this. I am still in shock over this and I just wanted to know if there is others on this site with this to. Thanks and God bless.
I recently published my article on newly researched natural medicinal plants and their potential for treatment of ALS and other neurodegenerative diseases. It can be found at: http://ayahuascatreatment.wordpress.com/2014/09/01/ayahuasca-ethnobotanical-medicine-for-treatment-of-als/ It is the culmination of several years work, having studied ethnobotanical medicine in the sea... more
My husband was diagnosed with ALS in March. In May, he received a secondary diagnosis of frontal lobe dementia. I have been searching for other caregivers who are dealing with both ALS and dementia, or even a support for this combination together.