It has now been 9 months since
I first wrote here...and, 9 months since my dear mother-in-law passed. I read the article completely again and saw so many things in it that still attribute to me and my grieving process. As her sole caregiver for so many months, we had grown very attached to each other. Betty had had Alzheimer's for many years, most unrecognized by those who knew her. She was so good at covering up! ;) By the time we stepped in and had her move in with us, we had no real clues as to how far along the disease had progressed. I did all the research, asked all the right questions...wanted to learn all I could so that we would be prepared on what to look for and how to help her the best we could. It wasn't enough. We didn't see the end coming as quickly as it did. We thought we had more years with her...not just the months that we had. Her and I had talked about her passing, many times, with me promising to honor her wishes, when the time came. No heroics were to be given...she was ready to go and be with those she loved who had passed long before her. I also promised that I would be with her throughout and do all I could for her. The last two weeks of her life came quickly. She seemed to be okay (for her and her condition)...maybe slowing down a bit, but, we really weren't that concerned yet. When I put her in a hospital bed on the main floor here, I still thought it was temporary. That she was just exhausted from having her daughter visit for a week. It quickly became apparent that was not the case and so I went into "do what you have to to make her comfortable" phase. I might add that I had some wonderful help from a local hospice during the last 6 or 7 months. They were able to guide me...and assure me that we were doing the right thing for her. I called all the family in, from near and far away. Even the couple that were not able to get here in person were able to spend time talking to her through the computer. Everyone got to say their good-byes, and she got to tell them all that she loved them. By that point, that was pretty much all she could say. After 5 days of being bedridden, she slipped into a deep sleep and hung in there for a week and a half. She had long stopped eating anything or drinking (no I.V.'s were to be used because these were life sustaining methods that she did not want). We had to put her on morphine for extreme pain (her regular pain meds no longer worked once her defenses came down), along with an additional med for severe body spasms. We could not understand how she was hanging in there...let alone, why. All of us had told her over and over that it was okay for her to go, that we didn't want her to suffer anymore and it was time to go and be with God and her loved ones. She was never alone. I kept questioning why...why is she hanging on?? Then, one sleepless night (her daughter covered the late night shift that night), I found myself questioning (as I had been since this all started), what had happened to her...could I have done anything differently to prolong her life...should I have done anything differently...was I doing the right thing for her by not giving her the liquids..was she okay with the decisions I had made for her, even though I was questioned by family members about some of it?? I stood my grounds with them (she had made me her medical director) and continued my course with her wishes. Anyway, about 5 that morning, such a clarity came over me. None of the questions no longer mattered...this was how it was going to be and that I shouldn't question myself. I had loved her to the utmost and taken care of her as well as I could have. It was almost as if she were talking to me. I felt so relieved! I went down to relieve my sister-in-law. I talked with Betty about what had occurred while I was going through my questioning. I told her again how much I loved her and that it really was okay for her to go. My sister-in-law came back to the room about 8. We talked for a bit and I excused myself from the room to do a couple of things real quick while she bathed her mother. I was out of the room for about 10 minutes when my step-daughter came running in crying...saying she was gone. I rushed in...felt for pulses...felt her chest...she was gone. Very peacefully...no gasping, no last breath...she just stopped. At first, I couldn't believe that she had gone that quickly. I expected there to be some slowing of breathing...things like that. Signs. There were none. I had wanted to be there beside her, holding her hand and helping her to cross. Eventually, I realized that she went on her own time...and that she had probably been waiting for me to come to terms with all of it. And, that she had wanted me to be out of the room when she went. She knew that I was going to take it hard, and I did. Even knowing what the outcome was going to be, I took it extremely hard. However, we called in the local family and made all of our other calls. The hospice nurse came out and pronounced her. We called the funeral place to come get her. I never left her side. I stayed with her, and helped, move her to their gurney. While the other family members waited in another room, I walked with her out to their van, holding her hand the entire way. Before we lifted her into the van, I gave her one last kiss. It was over. I had fulfilled my duties to her...I stayed with her and made sure she did not leave my house alone. Can we say hard?? Yes...very! But, definitely something I had to do. I spoke at her funeral, along with many family members. I started out by saying, "Good Morning, Sunshine!" This was what I said to her every morning and she would just smile! The whole process is kind of blurry to me. I went into a deep depression afterward. As a caregiver who had centered my life around her needs and spent every day making sure that her care came first, I had lost all of that, not to mention my close companion and dear, dear friend. The grieving process has not been easy for me. Probably much harder on me then the rest, due to how close we had become. In the beginning, she sent me definite signs that she was okay...that she was happy and where she wanted to be....especially with birds (both real and not real, they would just show up in strange ways). She was trying to comfort me. As the months have gone by, still very hard. I still experience the "Betty would have loved this" and it pains me so much. However, in saying that, it is lessening a bit. Not quite as quick to cry now. But, I do still cry. I miss her so much at times. For so many reasons. Grief is such an odd thing...sometimes you think you are getting through it and then, out of nowhere, something will trigger you and you are crying again. Everything I/we do this first year is always a first without her. The holidays were so hard...she so loved Christmas and how much I decorated my entire house every year!! I've gotten through them (you don't really have a choice on that), but, with sadness. I have no clue how long it will be before I stop crying completely and only look back at her life in celebration, but, until then, I continue to come on this site and be comforted by knowing I am not alone in all of this. God bless all of us who are going or will be going through such hard times.