Where can I find out more information about Castleman's disease?

1 answer | Last updated: Nov 13, 2016
A fellow caregiver asked...

My father has been diagnosed with Castleman's disease - its a lymphnode "pre"-cancer. I know it's rare- any insight would be helpful as far as treatment, general care.


Expert Answers

Bonnie Bajorek Daneker is author and creator of the The Compassionate Caregiver's Series, which includes "The Compassionate Caregiver's Guide to Caring for Someone with Cancer," "The Journey of Grief," "Handbook on Hospice and Palliative Care," and other titles on cancer diagnosis and end of life. She speaks regularly at cancer research and support functions, including PANCAN and Cancer Survivor's Network. She is a former member of the Executive Committee of the CSN at St. Joseph's Hospital of Atlanta and the Georgia Chapter of the Lymphoma Research Foundation.

In your search for information about castleman's disease, have you tried the American Institute for Cancer Research? They have an amazing amount of credible information at their disposal, and often will mail you information for free. Their web site is www.aicr.org, and phone is 1-800- 843-8114. Good luck.