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Alzheimer's Support Groups

Get practical tips and support from other caregivers in online Stage Groups.

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Alzheimer's Support: Featured Caregiver Conversations

Participate in Stage Group conversations like these when you join Steps & Stages...

In-Home Care: How to Keep My House from Smelling Like a Nursing Home?

An anonymous caregiver said...
My mother is moving in with me in a few weeks. She is bedridden... I feel horrible asking this but does anyone have any recommendations for products to keep my house from smelling like a nursing home? Sharper Image or some other air purifier? Candles would be difficult because chemicals seem to aggravate our allergies. I'm open to trying anything though.
from the Caregiving at Home Stage Support Group
CaringDenise said...

Hi anonymous, Thanks for asking the group for suggestions. Here is some information on Caring.com that you may find helpful...

What Causes That "Old-Person Smell"?

6 Ways to Make Your House Smell Better

What's the best way to control odor from urinary incontinence?

As you begin to care for your mom, you may find that you need to involve professional caregivers, to give you some respite and/or to provide home health care. Here's how to find elder companions, in-home caregivers and home health aides in your area: https://www.caring.com/local/in-home-care or https://www.caring.com/local/home-health-agencies

If you don't already have experience in bathing your mom in bed, here are some tips to help you with that: https://www.caring.com/articles/how-to-give-a-bed-bath

I hope these suggestions are helpful to you.

pleasann3 said...
I also agree with the person before me....take out HER bathroom trash every day. I use Clorox wipes everywhere. .
pleasann3 said...
Get some lil bottles of essential oils and about 3 spay bottles. Fill bottles with water and add as much of your favorite sent...Lavender at nite, lemongrass during the day...I am a massage therapist caring for my mom with Alzhiemers, at home now for 7 years...I have used insence too...Chompa or Chi...is sweet. Are u in coachella valley...i dont know how this site works...
An anonymous caregiver said...
I have found Febreeze or Renuzit spray work the best. They erase the odor while things like the orange oil spray or Lysol mix with the odor. We wash sheets towels and clothing daily and after each brief change or bed chuck change we remove the trash to the trash room in the basement --we are in a large condo. We use to take out the trash daily and used those odor shield trash bags but that was not good enough to remove odor. I wipe her bed down with Clorox wipes then spray with Lysol as soon as I remove the sheets to put in the wash. I use bounty dryer sheets as well. Occasionally I sprinkle my grandmother's sheets with lavender and peppermint oil. All these things keep her room and the house smelling nice. I'm particular about odors and so was she, she is I'm sure delighted to be in a fresh inviting home.
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Alzheimer's Caregiving: How to Keep Him Busy and Oriented at Home?

rpebbles said...
I just started taking care of my father-in-law who has the beginnings of severe alzheimers. I have tried color coding his drinking glasses for him, and I have put labels on the doors so he knows where his bathroom and bedroom are, but he still gets very confused as to which way to go in the house. He is also very bored. I give him chores or tasks to do during the day, but if I am not there with him, he can't follow through with them, and just stops and either just sits down or walks around not knowing what to do with himself. He has lost interest in reading and watching tv. I am not sure what to do to occupy some of his time, giving me a little rest period also!! We want to enroll him in day care for a couple days a week, but we are trying to get the money together for it. In the meantime, any suggestions would be wonderful..
from the Severe Stage Support Group
CaringDenise said...

Thank you rpebbles for posting your questions and sharing about your caregiving experience, and thanks to all who shared such supportive and helpful comments! Here are some additional informational resources on Caring.com that may likewise be useful to you...

The Home Care Safety solution center has a variety of articles and tips on this subject, including this one about home care safety for loved ones with Alzheimer's or dementia: https://www.caring.com/articles/home-safety-for-alzheimers

The local directory on Caring.com has information and providers for adult day care, including a step-by-step guide for adult day care for those with Alzheimer's: https://www.caring.com/articles/alzheimers-adult-daycare Your community's Area Agency on Aging may also be able to assist with referral to offline programs and services for caregivers and their loved ones: https://www.caring.com/local/area-agency-on-aging We also have some suggestions for how to pay for adult day care: https://www.caring.com/articles/how-to-pay-for-adult-daycare

Here are some ideas for activities you and your father-in-law may enjoy: https://www.caring.com/articles/activities-for-dementia-alzheimers-patients or https://www.caring.com/partners/mild-moderate-alzheimers-activities/plant-an-herb-garden.html or https://www.caring.com/articles/activities-for-alzheimers-and-dementia

Regarding telling your father-in-law about a death in the family, here is some expert guidance on that topic: https://www.caring.com/questions/tell-alzheimers-patient-about-death-in-the-family and https://www.caring.com/questions/alzheimers-asking-dead-relatives-answer

I hope these resources are helpful to you and your family!

dear one of Mort said...
agree
alz2011 said...

Sorry about the loss of your MIL. If your FIL can't remember her passing it is best to come up with a "lie of compassion". She went shopping, went to visit a friend or relative, went on a trip, whatever will calm him. Also telling him that you will let her know about xyz, whatever is troubling him at the time, the next time you see her is also a good one to have. There really is no point in trying to get him to remember that she died and he will relive that pain as though it just happened everytime you tell him she died. I know with my Mom I could initially say something like "Well Dad passed 2 years ago" and she would say "Oh yes I knew that". Then one time I tried it and she just broke down in tears with the most scared look on her face. She wanted to know if she had gone to the funeral, was it nice, did she have the right clothes on, did she have food for folks that came back to the house, etc....she was so upset so I never told her that again. Lies of compassion are very useful (but hard to deliver to a parent).

rpebbles said...
Thank you for all your help and suggestions, I look forward to trying some of the idea's. How do any of you handle the question about death of a spouse. His wife died a couple of weeks ago and he doesn't remember, he constantly ask's where she is and we are not sure how to answer his question.
MaryAnnDodge said...
Never thought of asking the church; only thought of it since you mentioned it if i qualify for redi wheels etc.
Sun lover said...
Is there christain church near u they should be able to give you rides. I wish my mom could do walks still. I can take her to the beach which she loves. Just trying to get her settled so go there a lot! Beach time is here this week again so I can't wait.
MaryAnnDodge said...

My mom cannot do crafts but she humms, sings, walks and smiles. She loves to go out with me shopping, parks, mcdonalds everything! She plays with soft toddler toys. She just likes to hold them but she doesn't do it for long. I bought her a soft baby doll. Theory has it that having a baby doll is therapeutic for the elderly and/or AD. When I go to the NH I bring hand held pom poms and pass them out to the residents as we play music and they love it, including mom. I want to be with mom right now but my car is gone as it is being serviced. There is no bus service to the NH. :(

Sun lover said...

I went through this at home with mom. It's so heart breaking but exhausting to you. When I moved her into her new place I was and am amazed at the things she can do. Symplest of crafts,bingo puzzles. Online school ideas have free down loads for painting and coloring. Paint by numbers you still can get online or at school supply places. It's just amazing the things mom does. I donated all my old school supplies and crafting stuff I don't use and both men and women are enjoying them. Mom has sever dementia doesn't know how to talk barely walks anymore can't shower herself no concept of most things but all this she does there. I posted in the beginning of this journey placing mom how I wished I would have known. My last months with her was so nuts b/c she wanted to help but couldn't. Everything broke or misplaced all the time. Dishes in garbage garbage in dishwasher etc. To see her engage in all of these things is just the most beautiful sight I have ever seen.

Tersiab said...
Getting lost in his home and even in his room is part of AD. Is he really bored or just lost? It will net get better. No matter what activity he partakes in within minutes he would forget what he was doing. I took my Dad to a Game reserve and we saw elephants, lions etc and within 30 minutes of leaving the Kruger park he had forgotten that we had been there. Music is good though.
kathy50 said...

If you are able to send him to daycare, that would be really good for both of you. I felt like I was "shirking my duties" when Mom started daycare, but soon realized that she is MUCH happier being there with activities and other people. I'm a writer and need lots of quiet time, which makes me a very boring person to spend the day with.

We tried labeling with pictures and words, but for the most part that didn't work. She still gets lost and needs directions every single day. As for activities, sometimes we do little crafty kits from the store, the ones for kids --- painting magnets, stepping stones from plaster, picture frames. She can sometimes snap beans, shell peas, wash veggies and fruits, sweep, look at picture books. I have several people sending her cards, which she likes to carry around and sometimes read out loud to me. We have one window at the kitchen table where there is a tree with lots of bird feeders --- she spends a lot of time talking to the birds, describing them, counting them --- it's a daily bird show!

Mom's Sweetie said...
If possible, keep all doors closed except the bathroom door. Keep the bathroom light on at all times so it's easier to find. I agree with the other comments that often they lose the capacity to understand tv or what they read. Music is great. Try head phones or just play music that they loved. It's amazing how much it stays in the memory. I heard a report recently of a study of how music thru headphones really helped some dementia patients reconnect with the world.
dear one of Mort said...
Have you reached out to the Alzheimer's association. There may be ways to help you with the daycare expense. And in Alzheimer's, you can't expect him to remember that the green color is him. Recent memories haven't registered. Maybe he would recognize his name.
hugsandprayers from Becky, in OH said...
My mom sits and sleeps and sometimes will watch TV. She has been this way for the last 3-4 years, where she won't read or do any of the things she used to.
MaryAnnDodge said...
my mom lost interest in reading and tv but i think it was more that she could no longer understand either one; once in a while she will read a sign when we are driving and she'll read outloud the sign. Mom can't really focus on either. Try music from his youth possibly with earphones or any music he liked in adulthood. If he liked working with his hands; i bought toddler toys for my mom; sometimes she ignores them and sometimes she just moves them around. I don't know your FIL abilities so it really depends. sometimes the walking around could be anxiety and restlessness. maybe your doctor can prescribe something for that. What medication is he taking fr the AD. God Bless him and you for helping him in this way. does he like puzzles at the children's level.
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Long-Term Care: Visiting Dad Created "Joy to Put in Your Bucket"

jds said...
I traveled to see my dad this afternoon. He was very angry about not being able to leave the NH in the morning and it took a long time for staff to help him calm down. This was not apparent to me when I visited. One staff member used a pictured story about our family to distract him. They also had dad read a stack of greeting cards I sent him. A nurse told me dad sat for an hour reading and rereading the cards. I have been feeling lost in trying to reframe my role in his care. Their compliments warmed my heart and I felt useful again. I am reluctant to tell my siblings as I don't want them to think I am bragging. I appreciate being able to share this good news with my OWA friends. We worked on an art project and dad matched go-together puzzles. He needed some assistance but was excited when he was successful. These accompliments made him proud! It is the first time I have seen him confident in his new setting. I am learning tips for leaving--do not say "I am going home. Good-bye. or I am leaving." I waited until dad was eating dinner, kissed him and said, "I love you." As I was walking away, he asked if I was leaving. I responded and he went back to eating. Today was exactly what I needed. I hope each of you found some "joy to put in your bucket" today! If not today....tomorrow. Hugs!!!
from the Moderate Stage Support Group
maryjangel said...
We have found that if we just make ourselves scarce after a bit, and leave she doesn't remember we were there at all. Yesterday, she was determined that we were going out, so we had to get one of the employees to let us out and I apologized to her b/c I saw mom get up from her chair and come after us, so I knew she would not be happy, because when we got there she was not happy. we are going to try to go earlier on the weekends to see if we just keep happening on her sundowning self. on anther note, her hair is cute cut short although I hear tell she gave the girl grief and wouldn't let her finish...ah well.
Tizzy said...
What a great positive story! Made my day jds to know that something was going right in one of the OWA's world! Sending you hugs! Tizzy
gilwayw said...
Good news is always uplifting on this site. :-)
Gatfly said...
and the right thing one day, may not work the next - it's in constant flux!
Sabz said...
I guess knowing the right thing to do is part of the learning experience. You are doing great Jds. Hurray for you! For me I am still struggling to do the right thing. I shall get there one of these days.
lharper2006 said...
Thank you for that post another lil piece of knowledge in the event I have to move Mom to a facility. That is why I love this site - such wonderful caring & knowledgable angels!!
Jayne Hannah said...

Hi Jds, you are wonderful. What a beautiful post. Thank you for sharing.

LaurSavvy said...
The family story is a wonderful idea. The other thing I found helpful grounding and distracting residents when I worked at the NH was pictures and co-loges helpful to the staff too. It really helped me get to know the residents if you knew something of family history and the residents life. We had a podiatrist as a resident and we found out he loved the New Eng. Patriots and tennis and classical music. If he had a meltdown (which became violent and frequent) we put on any of the above and he would just settle right down. So jds, any thing you do like your book really helps.
Gatfly said...
I loved reading your post! Such a positive one and even though it took a while for the staff to settle your Dad down, they were able to do it and in a very positive manner! Yay!! I know what you mean about sharing it with your siblings.Now, if they were to ask you what they should do when they visit Dad, then it would be easier to give a few hints and say, here - this is what worked for me, why not try a variation of that? My O/S just cannot seem to get past marching in and Telling the folks what she is going to do for them - take them to dinner, take them for a drive, etc. When I call them up to arrange some time together, I will say something like - Are you free this afternoon? Would you like to _____? Pretty much like you would with a friend. I do offer suggestions though, because otherwise I will get answers like - I want to go home. I wish I could _____. It's a matter of respect, I think.♥ I am so glad that your Dad enjoyed your time together - gives you a warm, fuzzy feeling, doesn't it? Hugs!! ♥
nac said...
jds, glad to hear everything is going good for your dad. HUGS
Piver said...
jjds: happy report. Thanks for keeping us in the loop.
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Managing Finances: How to Convince Loved One to Turn Over the Checkbook?

An anonymous caregiver said...
When your loved one reaches the point they can no longer keep the checkbook, what are successful techniques you can use to get them to turn it over to someone else if they are reluctant to do so.
from the Severe Stage Support Group
CaringDenise said...
Great question anonymous, and thanks to all who offered their tips! Here are some additional suggestions on Caring.com... > [3 Ways to Handle Someone With Dementia Who Can No Longer Manage Finances](https://www.caring.com/articles/indulge-money-manager-with-dementia) > > [Power of Attorney for Finances: A Step-By-Step Guide](https://www.caring.com/articles/how-to-set-up-power-of-attorney-for-finances) -- an elder law attorney can also assist with helping you sort through a maze of tricky financial and legal choices: [https://www.caring.com/local/elder-law-attorneys](https://www.caring.com/articles/caregivers-guide-to-elder-law-attorneys) > > [Wallet Smarts That Preserve an Older Adult's Dignity and Security](https://www.caring.com/articles/wallets-preserve-older-adults-dignity) I hope these suggestions are helpful.
dear one of Mort said...
I simply diverted the mail and handled it. I also alerted the bank and took the necessary steps to limit credit card spending. This stage is very difficult.
DeSings said...
Great ideas!
Sun lover said...
Well if she doesn't get to write checks without you being present then if you have old checking account books with her name give that to her. Or go to the bank and cancel a block of checks and give that to her. I don't think if you cancel a whole book of them there would be much of a fee. If you explained why probably no fee. Many people have so much compassion for what we are doing to care for family with this awful monster.
volleyball5 said...
I use to sit with hubby when he would do check book I would see him getting frustrated and would ask him if he wants help? He usually said yes He would read the bills off and I would write the checks he would check them to be sure they were okay. This went on for maybe three months and then he would say you handle the bills I would just say okay if that's what you want. That has been over two years ago now he rarely asks about the bills but once in awhile will ask how is our money? I will try to reassure him all is okay. He handled the money for over 40+years. Hope this helps, everyone is different so you may have to try different approaches. Good Luck, Hugs to you.
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Caring for a Spouse: Helping Him Through the Decline

gr8grma said...
My husband was very confused yesterday when he got up and thought he was in the wrong house. I quickly went to him and got him settled for the morning and got his coffee. He said something is happening in his brain and he feels it that he is getting worse. He said he is only going to get worse and feels in a year he will be nothing. He asked if I would be here to take care of him. I assured him I would.
from the Mild Stage Support Group
cindyoh said...
Just want to say thanks to you all for being here, I learn a lot just by reading your postings, helps to know what might happen and how to deal with things that may come up. Yep, every day can be different. I thought Mom had pretty well gotten over not driving but was I wrong. She called me the other day, teary, telling me I'd "taken her life away" because we had to take her car keys (it's been well over a year now, and I actually drive her somewhere daily, 7 days a week). The trouble is we had to replace her driver license with a state ID that says in big letters NONDRIVER, and apparently she sits some evenings ruminating over this and other cards she carries in her billfold. I really don't want to take her billfold away from her yet though; she's very much still "with it" in many ways and still won't hear of moving in with me. She suddenly also has decided she has no money and has to sell her house (I get that call maybe three times a week and can't figure how she came up with that one but at least that provokes a giggle, thank God). Oh, you do get worn out from having to constantly reassure them that all will be okay. Sigh. Anyway, thanks folks, have a good day today with your loved one
gr8grma said...
My husband was much better after he was up for awhile and did good yesterday. We had company and he remembers them just fine. We all went to breakfast. He likes to go out to eat. Seems to be the thing he gets the most pleasure from. @wanterback your posts sound so positive about your mother. I am happy for her that she is doing so much better by moving her because change is so hard on ALZ patients.
BJGARRY said...
wantherback, what encouraging news! I'm so happy for you and your mom. Just goes to show what positive, pro-active management by a loving caregiver can do for a situation that many times feels hopeless. Great Job! BJ
Marjie59 said...
yep-- it is the "little" things they cant remember that kills us inside. Seems like all we can do is take it minute by minute and hope for the best. :)
wantherback said...
My mother has had a slow decline for the last 10 years and I know what you are going through. There definitely are good and bad days. Enjoy the good ones and handle the bad ones exactly as you have been, you are doing a great job. Just to let everyone know her current situation, My mother was in a hospice facility April 1, 2011. She didn't decline further and entered a nursing facility. She had lost an extraordinary amount of weight, had many urinary tract infections, in a geri-char, couldn't use the bathroom on her own or bathe. She entered the facility late April. She didn't get any better and seemed to get worse. She aspirated on May. The first of this year I changed facilities. She gained her weight back, was able to eat on her own. As she improved significantly, she was taken off of hospice care. Once she was taken off of hospice the facility put her on physical therapy and placed her in a wheelchair. I posted on this site that I was very much against her being in a wheelchair as I was afraid she would fall and didn't see a point to therapy Was I wrong!. Her memory and thought process is poor but she wheels herself all over the facility, you never know where you will find her. Her smile is back, something that really makes me feel good. She complains a lot, but she has always been a complainer. As she is 90 years old, I don't expect this to last for long, but I am so happy that she is happy. Thanks to everyone for commenting on my post, especially BJ Garry who is always there for those of us who need her.
BelleW said...
Your husband is very lucky to have you to take care of him. As a caregiver you adapt to a certain level of memory loss and then when something suddenly changes for the worse it kind of knocks you off balance. Hopefully this is just a temporary set back and he will wake up tomorrow remembering his home (even if it is only for a short while). I think that is what is so disorienting for the caregiver. The not knowing from one day to the next what the conditions are going to be. My husband can have really bad memory days and then there will be days that he almost seems like his old self. I was excited yesterday that a newspaper we had bought had the NY Times crossword puzzle in it. He asked me what that thing was with the black boxes and the white boxes. I explained to him how the puzzle worked and he said that he had never done one of those - and of course he had done many of them....before the dementia. We had just had several really good days and now this "loss". Each new little "loss" is something to grieve over. They are coming faster now so I spend less time grieving over the little losses and I am trying to really enjoy the good days. Take care of yourself too!
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