How can I get my aunt who has dementia to leave her house...

A fellow caregiver asked...

How can I get my aunt who has dementia to leave her house for appointments, family visits, entertainment, social activities, etc.? She often refuses. My aunt used to be very active.

Expert Answer

Beth Spencer is a social worker in Ann Arbor, Michigan, with more than 25 years of experience with families who have a member with dementia. She is coauthor of Understanding Difficult Behaviors and Moving a Relative with Memory Loss: A Family Caregiver's Guide. Previously, she directed Silver Club, early-stage and adult day programs serving individuals with Alzheimer's disease and related illnesses.

Many people with dementia become uncomfortable going out, even when they have been social people in the past. There are many possible reasons: Feeling discomfort in larger groups because they can no longer keep track of what is going on or follow conversations; feeling safe in their familiar environment and unsafe when they are out of it; being afraid of failing or making a fool of oneself; not remembering how to behave or negotiate particular situations.

Most often I think people refuse to go places because they are afraid. My suggestion is that you prioritize where your aunt needs to be. Figure out what's most important and what brings her pleasure. Most likely she will be most comfortable if one or two people visit her in her space instead of expecting her to go out and be part of large groups. For appointments, make sure someone she trusts is taking her. Think about how to make her feel safe and secure. If she becomes extremely anxious, don't tell her until the last minute that she'll be going somewhere, and then make the outing low key and as comfortable for her as possible.