I think she needs more care, they say no. Help?

Sunshine28 asked...

Three weeks ago I went to see my mother at the Nursing Home. She was completely out of it. Could not stand, totally depressed, among other things. I immediately called an ambulance and had her whisked off to the hospital where they said she had been over medicated. They got her back on track with her meds and then they sent her to a rehab facility in Austin. A week before her release they told me that she would be going to Skilled Nursing, then two days before her release (after I had everything set up) they said she was too high functioning for Skilled Nursing and she needed to come home with me. THEY WERE WRONG. Since then (one week ago) she has fallen four times, she is definitely not able to be in a home environment. She needed skilled nursing and then back to a better long term facility. How do I get her the help she needs now? She is approved through Medicaid for long term RSDI?

Expert Answer

Maria Basso Lipani writes a popular website on geriatric care topics, where she puts her expertise as a Licensed Clinical Social Worker to good use answering care planning questions. Maria is a graduate of Columbia University School of Social Work and is licensed in California and New York.

What an ordeal! I'm so sorry that you and your mother are going through this and it does sound like "home" was the wrong discharge plan. There are a few ways to go about getting some help and I would suggest that you start down both paths simultaneously to see which one brings help first.

Path #1: If your mother is known to a physician in her community, call him or her a.s.a.p. and ask for assistance. The physician will be able to get the wheels in motion for a) transfer to another nursing home; b) transfer back to the rehab; c) physical rehabilitation at home - however, if you don't feel that rehab at home would help, say so.

Path #2: If you have any contact names from the rehab facility where your mom was before she came home with you, I would call those individuals a.s.a.p. Explain the situation and tell them that this feels to you like an "unsafe discharge" - she had skilled needs prior to the hospital admission and based on the past week, she has skilled needs now which you are not able to manage. Show them that you mean business and keep going up the line until you reach someone who seems to "get it" or better yet, start at the top with the rehab administrator.

If neither of the above pans out and you are concerned for her well-being and safety, I would suggest taking her back to the emergency room. This should be a plan of last resort though because it is the usually the most traumatic option for you both and because hospitals are not meant to be used as a "reset" button. However, falls at any age are a big deal, so for that reason alone it might be necessary.

If you do go with Path #3 and she is readmitted, stand firm and know that your understanding of your mom's needs is much better than anyone's there. Use your voice and tell them the way you see it.

Best of luck.

Maria