Do we have any other caregiving option for my mom outside of a nursing care facility?

A fellow caregiver asked...

Hoping you can help or direct me to someone that can. Brief Hx: Mom suffered a major stoke 17 year ago, partial left sided paralysis, vision effected etc. over the years her condition has worsened, as one would expect. Mom has been in a few asissted living care facilities, over the past few year her level of care has risen. We just moved her less than a year ago, as the prior faciity dropped her on several occassions, barely spoke english, very expensive, very unresponsive when paged, to take mom to use toilet. The new facility required Mom to spend a few days there during day care program, Once that was done, a few other stipulations were required: 1)We have pt for Mom thru the asissted living facility to help strenghten her legs, we did this, it took several months before they began her sessions, and the sessions have already reduced in time and effort on the therapist part. Also we were required to have someone at Kaiser come out twice to teach Mom on using the slideboard, as this is what the caregivers use, to transfer patients to commode, or wheelchairs etc. My mother participated and completed this requirment also. Although the caregivers have never used this method of transferring my mother. My mom used to be very nice and patient person. She obsesseses on every little negative thing now, and paging a caregiver and it taking various times for a response, her anger builds and she can be quite "flippant" and am sure she has made some very unpleasant remark to the caregivers, We have just been notified that we need to fing my mother another facility, for reason, she needs much more care then they can provide. (my mother does take up to one hour of assistance from a caregiver in the am and in the evening. Can they do this even though we satisfied there every request, and trial so that they knew exactly what it was my mother would need in the way of care. Do we have any other option outside of a nursing care facility? other than the physical restrictions, my mother has retained her mind and other than some age related deterioration, she remains fairly sharp, although wonder if this is working againt her at times. part 2 of my question is, my mothers "outbursts" while to me the reaons seem somewhat justified, although very minor, her means of expresion are totally unacceptable. once she has made her nasty comment or yelled at the caregiver, she is done, and though usually she remembers getting upset she doesnt view it as a big ordeal. (her and i used to have problems in this area, I followed my sisters way of handling it andmy mom and i are fine now) but i do understand their side of it as well. Could thi be signs of some underlying problem, ie medications, chemical imbalance, or early stages of dementia? or just plain crothity old age syndrome? If these questions cannot be answered by you, could you please point me in a direction where i might find some anwers or assistance. (btw my mother is in northern california area. thank you

Expert Answer

James Castle, M.D. is a neurologist at NorthShore University HealthSystem (affiliated with The University of Chicago) and an expert on strokes.

Very sorry to hear about this.

It sounds like the relationship you have with her current living facility has broken down, and you need to consider moving her to a different location. I would check with her therapists about what level of care they would recommend (24 hour assistance at home, full nursing home coverage, assisted living, etc.) and take that information to the social worker either at her current living facility or at the hospital associated with her primary medical physician. Then, you should look for a better place for her to live. Sometimes this means having her move in with you (or another family member) with 24 hour nursing help, and sometimes it means upgrading to a nicer facility.

Second, it sounds like she should be screened by a Neurologist for dementia and/or depression. I would take her to a Neurologist and ask that she have both a "Mini-Mental Status Exam" and a "Geriatric Depression Scale" performed. This would help diagnose her problem, and tailor therapy. If she has dementia, a cognitive enhancing medication such as donepezil or Namenda would be helpful. If she is depressed, an anti-depressant such as sertraline or fluoxetine would be great. If her mood is chronically unstable, a mood stabilizer such as lamotrigine or valproic acid would also be a consideration.

I hope that helps.