Where can I find out more information about Castleman's disease?

1 answer | Last updated: Jun 16, 2009
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An anonymous caregiver asked...
My father has been diagnosed with Castleman's disease - its a lymphnode "pre"-cancer. I know it's rare- any insight would be helpful as far as treatment, general care.
 

Caring.com User - Bonnie Bajorek Daneker
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Bonnie Bajorek Daneker is author and creator of the The Compassionate Caregiver's Series, which includes "The Compassionate Caregiver's Guide to Caring for Someone...
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In your search for information about castleman's disease, have you tried the American Institute for Cancer Research? They have an amazing amount of credible information at their disposal, and often will mail you information for free. Their web site is www.aicr.org, and phone is 1-800- 843-8114. Good luck.

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