
In honor of Valentine's Day -- and all those couples in the caregiving trenches -- Caring.com decided to find out how caregiving affects a caregiver’s relationship with a spouse or partner. While we knew that this was a charged issue, we weren't expecting such an extraordinary response.
It turns out that of the 300-plus respondents to the survey, caregivers have strong feelings -- both positive and negative -- about the challenges of balancing the demands of their caregiving role alongside the intimate relationship they have with a spouse or partner. They also weighed in on the toll that caring for an older adult can take on everything from family finances to sexual relations to leisure time.
On the negative side, some respondents say that caregiving pressures had alienated them from their partner, while others said it caused, or at least contributed to, their separation or divorce. But we were reassured to learn that, despite caregiving's pressures and demands, many of you have figured out how to find a balance. Many caregivers expressed deep gratitude and a measure of awe for their spouse's support and understanding; some even said that sharing the experience of caring for older relatives ultimately strengthened their relationship.
Key findings from Caring.com's Marriage Survey:
- 80 percent of respondents said that caregiving put a strain on their relationship or marriage. As one caregiver summed it up, "Even a strong marriage, like mine, suffers from the imbalance in household and child responsibilities because one of us is caring for a parent. Decreased time together, lack of opportunity for consistent communication, resentment of the needy parent, shift in the use of financial resources, increased fatigue and stress all increase the strain on a marriage."
At the same time, the balance of the respondents said that caregiving has caused no strain on their marriage; some even found that it brought them closer. As one woman confided, "My husband knows that my mother won't be here forever and tells me to do what I feel like I have to do, and I love him dearly for this."
- According to survey results, three factors in particular put caregivers at the highest risk for marital strain:
- Holding down a job on top of caregiving duties
- Providing financial assistance to an aging relative
- Caring for an aging relative in the home
Many of those surveyed are members of the "sandwich generation," managing kids and work as well as caregiving duties. As one harried caregiver explained, "My husband and children always have to work around the current emergency that arises with my mother. It makes you tired physically and mentally to care for someone who's sick all the time, and it drains your energy in all aspects of your life."
For other caregivers, however, a partner's help provides solace and inspiration: "My spouse has been very supportive of me and my caregiving of my parent. He's my rock," a reader told us.
- 89 percent of respondents said caregiving caused them to spend more time apart from their spouse; and 48 percent said it was causing them to "drift apart," diminishing their feelings of attachment to their partner. One caregiver wistfully told us, "My husband and I were alone for more than eight years, and now we have my dad. Our pleasant routine is gone. We no longer have a date night and we can never do anything spontaneously. We don't seem to have much private time to just talk, and we both feel the strain on our relationship."
In other cases, however, a partner was able to grow and adapt. As one caregiver explained, "At the beginning of this journey, my husband was resentful of the time I spent caring for my dad. He's a more compassionate person now, and I believe this journey has actually strengthened our marriage."
- 46 percent of readers said that caregiving had a negative impact on their romantic relationship with their significant other, and 34 percent said it had a negative impact on their sexual relationship. Many respondents complained of the toll on their own physical and/or mental health. Said one, "I feel like a rat on a wheel most of the time, and I can't get off the wheel."
But other respondents told us that a spouse's support helped them cope: "I've come to appreciate my partner for his assistance in not only dealing with my mom with Alzheimer's but also for being an equal caregiver in my aunt's final days here at home. He has been a wonderful, caring person who rose to the occasion in a fairly new relationship. I feel truly blessed to have him at my side during this difficult journey."
- 25 percent of respondents reported that caring for an ill or aging relative played a significant role in their divorce or separation. One caregiver wrote, "My husband and I never used to fight. Now we're taking care of my husband's grandparents. We're still married -- but I'm planning on leaving. No breaks and no stress relief really hurt me and have broken my spirit."
At the same time, 56 percent of respondents said that caregiving played no part in their separation and divorce, and some actually credited it with strengthening their marriage: "Caring for my husband's mother, as pancreatic cancer took her from us, brought us closer together -- a deeply shared experience. We did it together out of love for one another and for her," a reader told us.
Clearly, the ways in which couples respond to the challenges of caregiving are as unique as the marriages themselves -- but our findings made us wonder why some marriages do better under the strain of caregiving than others. Are there things couples can do to protect their relationships? To find out what experts suggest for strengthening a relationship, see Marriage and Relationships: How Caregiving Couples Can Make It Work, which contains advice from several Caring.com contributors, including Family Advisor Carol O'Dell and Drs. Charles and Elizabeth Schmitz, authors of the award-winning book Golden Anniversaries: The Seven Secrets of Successful Marriage.
Has caregiving affected your relationship with your spouse or significant other? Tell your story here.
Love and Marriage (and Caregiving): Caring.com's Marriage Survey


Donna + I just now read what you had written. It is so profound and so on target. Thank you for that wonderful insite. I feel and understand your pain.
There was nothing here for caregivers that are caring for their spouse! It seems we always get left out of the discussion. Caring for a spouse has a very signifcant process that can effect the marriage in many different ways. Since my husand has moved into memory support, for example, I keep asking, Who am I now? I am just 74? How about more articles on caring for a spouse, even though I know that this site is for baby boomers caring for parents. Adult children need to understand how extremely difficult it is for their parents to deal with caregiving.
I am new to WellSpouse and was excited to think I found a site that would have others I could really relate to. I was interested to know there had been a survey taken, but as I read the results, I saw a common thread in the results - most of the people who responded were/are caring for a relative such as a parent, not a spouse. From speaking with and corresponding with other truly "well spouses", being the caregiver for your spouse is VERY different than being the caregiver for a parent or other relative. When you are caring for a parent, you have your spouse other other siblings as a possible helpers. When you are caring for a spouse, YOU LOSE SO MUCH and in many cases such as mine, don't have anyone to help or pick up any slack. We have known for almost 5 years now that my husband of 27 years has Parkinson's Disease. He was a loving husband, doting grandparent, talented engineer and woodworker and great provider before this diagnosis. His PD has progressed at a very rapid rate, and for the last 2+ years now he no longer drives, and has been unemployed for the last 3. He does have a moderate amount of income from his retirement and social security, but moderate is the operative word. In order to not punish my husband and take him away from his woodworking shop and the home/small farm he loves, I now work 3 jobs to keep our small farm. I take care of his every need. I go without sleep. I handle all of the financial issues, cooking, cleaning, recreational, social and any other issues. My husband now additionally has Parkinson's Dementia and is very forgetful as well. I don't have a spouse to help me with anything any longer. A sexual relationship has been impossible for over 2 years now partly due to the multiple medications he takes and partly because of the mental state PD thrusts on its victims. I am 61 and my husband is 68. I feel young when I am not at home, and old when I am there. Watching your loved one - your spouse - deteriorate before your eyes is a depressing, daunting, and many times overwhelming constant situation. Joe has aged so quickly that repeatedly I am asked if I am his daughter. This hurts Joe and embarasses me. There is no where to go or no one to go to, to escape what you see, live thru and witness on a daily basis. At times I just want to scream "STOP - stop the progression of this disease", but there is no stopping it, only relentless degradation. The wonderful man I once knew who so loved and interactively played with his precious grandchildren now sits and stares into space in their presence. The man who was an awesome lover now sleeps curled up in a ball and has nightmares at night - sex being the furthest thing from his mind. I could go on and on and on - but my point is that caring for a SPOUSE of many years and caring for a parent are 2 VERY different issues, and I am disappointed that your website and survey entitled "Wellspouse" didn't really mean that at all. Sincerely, Donna Kleinert North Carolina
I'm wondering, what if the "aging relative" is your spouse? And in lots of cases, the ill spouse is not a senior -- TBI, cancer, for example. check out the Well Spouse Association, http://wellspouse.org , peer emotional support for husbands wives or partners of people with chronic illness and/or disability.