Spouses of Caregivers
This online support group is focused on the unique challenges facing spouses of caregivers. So much to explore as the caregiving role affects marriages and relationships.
Help spread the support to more people in need -- Please tell a friend or two. Thanks!
What's New Today
4 months ago
This is the first time that I feel that I cannot take anymore with caring for my husband. He sustained a SAH and has another aneurysm over his right temple. This occured back in 11/2011. He has had several infections which occurred post his first SAH. He was the sweetest man, I have for the past 5 years caring for his needs. If he need special hose, shoes, bandage. He is not pro-active in treatment. He gets upset if I remind him of his insulin and other medications that he has to take. Yesterday was a nasty argument between myself, son and husband. I currently take care of my grandson's who are the love of my life. They keep me going and they are funny. I have to keep them quiet in the morning when they arrive. The other day he sleeped until 6 pm in the afternoon. He is on sliding insulin scale but we argue about that he should take his insulin on time along with his other medication. We seem to be on a 2-3 month schedule of fighting and he sitting on the chair watching TV. I have tried to get him interested in being outside. Not doing strenuous work just to get him to have some involved. We even have a gym membership so he can have some activity. I have know this man for over 30 yrs and married 24 years. I am searching for someone to give some advice . This stress has caused me a weight loss of 90 lbs in the past 8 months. not sure why there are a barrage of test that will be done in the next few weeks, I pray to God not to be something serious.
7 months ago
My name is Dorothy I have been caring for my husband for 2|1/2 years. He is not motivated have to take care and do house work including taken care of our 9 month old baby!!! I am so tired he sleeps all day and up all night.. I am so tired never get sleep.. He means well takes care of the family.. I have no problem in that department... I am just so tired.. I need a support group asap
8 months ago
Hi! I am new to the group. I am a 38 year old mother of 3 whose husband was diagnosed with a debilitating autoimmune disease called CIDP a year ago. He has gone from an once extremely active man to being wheelchair bound. Life has been extremely hard with such a young family and all it's demands. He has many Dr. appointments that require trips to a major city an hour away, my children have many needs as they are growing and have activities and demands typical to their ages. I feel like after a year I am beginning to burn out which scares me. Feel alone in all this for a lot of care giver support groups are for older individuals that I have been able to find.
An anonymous caregiver said...
11 months ago
Hi I am new to the group. I am so happy that I have someone to talk to who has the same problems that I do. I feel sad a lot because I see other people whom their spouses are active and happy. My husband has femoral nerve damage do to minimal invasive hip surgery. He use to run marathons and now can barely walk. He is angry and it has changed him. That kind and patient man is gone. I work and that gets me out of the house for a while.If anyone can relate to me please let me know. Maybe I will not feel so alone. Even when he is there I am still feeling alone. I keep praying some miracle will happen.
11 months ago
Saturday night and I'm alone. Well I'm not completely alone. My husband is upstairs asleep because of a migraine and an avalanche of side affects from a new medicine he is trying to relieve his cryogenic chronic tension migraines headaches. The waves are crashing down in my mind as they do when I think of all the things we can't and aren't doing because of his illness. Simple things like going to a concert or deeper things like starting a family. He is 26. I am 29. Time is something that is so scary to me. How young we are is both good and bad. How long until we find relief? Will our lives be defined by this? I am the primary caregiver which has become more challenging lately because of his short term memory loss. I have to call all the doctors because he forgets what they tell him. The doctors ask me questions because he stutters, slurs his speech and can't process thoughts quickly enough without embarrassment. I am his voice. I am doing all I can do. But it often feels like it's not enough. Our parents are concerned but they have no idea how bad it is. I am looking for empathy because that is the only comfort I can think of. Is there anyone else out there in our situation? Are we alone? I hope not!
An anonymous caregiver said...
about 1 year ago
I know this isnt the right support group for me but i thot that maybe somebody here could direct me somewhere since support groups for my disease are very outdated online and i cant attend physical meetings. Im asking here for a different kind of support group and dont know if it even exists, but i need to find smtg desperately. Here is my issue - my husband is my caregiver and its horrible. He treats me like a huge imposition and blames everything on me when he gets to bed late or that things are a mess. We have two seven years olds that are the main cause of sleep deprivation and the messes around the house. Ive had other people come into the home but most were not worth the outrageous money the companies would charge and barely any of it went to the workers! Im looking for a group where i can talk about caregiver issues from the cargivee point of view. I became ill within the first year of marraige and have been for 15 years now. Can anybody help me or direct me somewhere?
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