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Rheumatoid Arthritis Caregivers

This group is designed to assist those who are caring for loved ones who suffer from RA.

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coleman216 said...

2 months ago

I was wondering if anyone else had seen a change from restlessness to fatigue wile taking prednisone? My mom is taking prednisone while waiting for a new infusion to be started and is really struggling. She has a tingling of the mouth and taste sensation change she has never had before and has been told it could be the Indian spices she enjoys but they have never bothered her before. She is starting to cut back on the medication on her own and I really don't know what to do. Her new meds. will be ready at the end of the month but Dr. said to keep taking prednisone until then. Sorry, I know that I was kinda all over the place with that.

coleman216 said...

2 months ago

I was wondering if anyone else had seen a change from restlessness to fatigue wile taking prednisone? My mom is taking prednisone while waiting for a new infusion to be started and is really struggling. She has a tingling of the mouth and taste sensation change she has never had before and has been told it could be the Indian spices she enjoys but they have never bothered her before. She is starting to cut back on the medication on her own and I really don't know what to do. Her new meds. will be ready at the end of the month but Dr. said to keep taking prednisone until then. Sorry, I know that I was kinda all over the place with that.

rocksmooth48 said...

2 months ago

My wife has RA and she claims she is too much pain to have sex or other activities we can do together, Yet last month she went to Las Vegas for a birthday party with her friends. Now she has a 5 day ski trip planed. Am I being played?.

kubo said...

2 months ago

Shayrenee said...

7 months ago

I care for my son. He has multiple diagnosed illnesses.. RA being onset from I type 1..a brittle bone disorder. Its just hard to be alone..so in here.

georgedurham said...

7 months ago

My wife suffers from rheumatoid arthritus. In addition to pain, she has sleepless nights, and massive fatigue some days. How can I help as her husband, and caregiver?

sbirvin said...

2 days ago

sbirvin said...

2 days ago

Wife4life said...

8 months ago

What can I do to help my husband, when he doesn't want any help? I tried to switch our diet, but he won't eat the anti inflammatory diet. How can he keep doing this? What can I do? Does anyone have any suggestions for me?

sbirvin said...

2 days ago

Wife4life said...

8 months ago

My wonderful husband has psoriatic arthritis, he was diagnosed a little over two years ago. We have three kids. He will be 40 this next birthday. every drug he has tried he is allergic to. Nothing is helping. The steroids help him a little but make him too mean to be around. He just lost his temper, I got back home late from a family birthday with the kids. And now I feel guilty about leaving, sad that he is so mean to me about everything, and just realizing this is it. This is our life, I will be asked over and over again if I am a single mom, and I will be alone at every party and should I bother going out to a party, he needs me, even if he does just blow up over absolutely nothing. It's so hard watching him working from home, and seeing him stress out over everything, watching him get worse daily because everything he takes is just not working. Trying to help and getting rejected over and over again. Watching the kids ( all 3 are under 10. ) miss their daddy, they jump over each other to say hi to him first. I constantly have to explain to the kids he is on a medicine that makes him cranky. And people don't usually treat others the way daddy does its not polite. my heart is so heavy. I love my husband and my kids. I am so tired of being sad. And he is too. I try to talk to him, but the steroids are always too much. Two years of steroids, is so awful. His skin getting stretched with all that water, it's more pain on top of all that joint pain. I don't know what to do anymore. It feels like he hates me. Nothing I do is rite. and it shouldn't be about me. He is having all this medical trouble, and I need to be calm and supporting, but when I do. ... ahhh. ..I hate this disease, ...and darn it. I'm not even in the correct group, he has psoriatic arthritis!!

sbirvin said...

2 days ago

10 months ago

It's so hard watching my wife go through this each and every day. I feel like a part of me dies a little bit every time I see her in pain. I just really hate this disease. I'm hoping we can get it under control soon...I'm getting exhausted being both the mom and the dad in the house. I'm trying not to feel sorry for myself, but some days it's really tough not to. I need time for myself, too. To recharge, re-energize. But when? Anyway, I'm glad this forum is available because I certainly feel as if I need it!

sbirvin said...

2 days ago

whatnext28 said...

about 1 year ago

hello, I have RA. its been 30+years. My mom is 88 and moved in with us 3 yrs ago. she was diagnosed with dementia 2 yrs ago. Other than the dementia she is outstandingly healthy. her doctor marvels at her health and strength. I on the other hand have deteriorated much since she moved in. She is social, I am not. She watches me struggle with her meals but waits patiently at the table. she does not require a lot of sleep but I do. she is up at 530 while I am struggling with stiffness and pain from 7am on. my husband has always been very helpful and caring for me but now resents her and is always angry. I am looking for assisted living she can afford. I have one sibling. She has so many problems and cannot help. why do I feel guilty about putting her in a home?

about 1 year ago

My 51 year old husband has moderate to severe RA as well as other spine/disc issues. He is on so many prescription medications including high doses of opioids for pain. I have to manage his pain meds because he doesn't handle them well on his own. He also has been diagnosed with severe depression. I know he is suffering, but I am finding it increasingly difficult to support him due to my own feelings of isolation, lonelyness, depression, anxiety, and years of self sacrifice. He is constantly starting back to work and then going on short term dissibility, and I fear he will lose his job. We can't make it on my salary alone. So much uncertainty!

about 1 year ago

about 1 year ago

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