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Rheumatoid Arthritis Caregivers

This group is designed to assist those who are caring for loved ones who suffer from RA.

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Davenajean said...

about 1 month ago

My husband, after months of dealing with unexplained joint pain, refusing to see a doctor, and trying natural remedies has been diagnosed with RA. We have been married 2 years. The man I knew who loved to hunt, fish, work on classic cars and be outdoors now hardly leaves the couch except to work. I take care of him and try to be understanding. My heart breaks for him. However, he has become withdrawn and angry. We argue frequently and he says very mean things. It is stemming from his pain and frustration. I understand that. I'm becoming very unhappy and stressed out because of this. Any advice? I love him dearly but the way in which our life has changed and the anger and arguing are really starting to get to me.

whatif said...

about 1 month ago

My husband has RA. Four years ago after hospitalization for Diverticulitis he was sent to a Nursing and Rehab home for two months because he had been on his back in hospital for ten days. When he came home he received PT and OT and a home health aide for about 4 weeks. He was left with excercises and advice to keep moving. He did not take that advice and after two years of mostly sitting in his recliner and sleeping despite my pleas to move, he started falling due to disuse of his muscles. He is now home again after another round of hospitalization followed by nursing home and rehab. I am 83, have suffered with anxiety all my life, tired, depressed and angry. More PT's and OT's and my life is changed because he now needs more help and I feel trapped. Now the services he is receiving are coming to a close. I cannot get to the senior center as I once did. The most difficult part for me is that we never had a good relationship and I find it hard to be a caregiver to him because of my fatigue and resentment. I feel so guilty about my inability to be kind and find myself lonely and fearful. I am in the middle of trying to arrange for home help but life is forever changed. Hard to deal with knowing at 83 time is running out. This second round did not have to happen if he had taken care of himself.

Momof4+1 said...

about 1 month ago

I have been caring for my 80 year old Mom with RA for 6 years now. I have 4 children, 2 of which are in university and two of which are 13 and 16 (girls) who still live at home. My husband is working out of province. I am starting to feel very overwhelmed with all this responsibility. My mom's RA is under control but she refuses to participate in any of her own care. She moves from her bed to her chair in the living room where she sits til night time when she goes back to her bed. She also needs eye drops 4 times per day which she resists doing herself. I feel trapped. I cant go anywhere longer than 4 hours at a time, Havent been on a vacation with my family for 2 years and feel very on edge most of the time. Help!! Need pointers on how to cope with all this without feeling resentful

coleman216 said...

5 months ago

I was wondering if anyone else had seen a change from restlessness to fatigue wile taking prednisone? My mom is taking prednisone while waiting for a new infusion to be started and is really struggling. She has a tingling of the mouth and taste sensation change she has never had before and has been told it could be the Indian spices she enjoys but they have never bothered her before. She is starting to cut back on the medication on her own and I really don't know what to do. Her new meds. will be ready at the end of the month but Dr. said to keep taking prednisone until then. Sorry, I know that I was kinda all over the place with that.

coleman216 said...

5 months ago

I was wondering if anyone else had seen a change from restlessness to fatigue wile taking prednisone? My mom is taking prednisone while waiting for a new infusion to be started and is really struggling. She has a tingling of the mouth and taste sensation change she has never had before and has been told it could be the Indian spices she enjoys but they have never bothered her before. She is starting to cut back on the medication on her own and I really don't know what to do. Her new meds. will be ready at the end of the month but Dr. said to keep taking prednisone until then. Sorry, I know that I was kinda all over the place with that.

rocksmooth48 said...

5 months ago

My wife has RA and she claims she is too much pain to have sex or other activities we can do together, Yet last month she went to Las Vegas for a birthday party with her friends. Now she has a 5 day ski trip planed. Am I being played?.

kubo said...

5 months ago

Shayrenee said...

10 months ago

I care for my son. He has multiple diagnosed illnesses.. RA being onset from I type 1..a brittle bone disorder. Its just hard to be alone..so in here.

georgedurham said...

10 months ago

My wife suffers from rheumatoid arthritus. In addition to pain, she has sleepless nights, and massive fatigue some days. How can I help as her husband, and caregiver?

sbirvin said...

3 months ago

sbirvin said...

3 months ago

Wife4life said...

11 months ago

What can I do to help my husband, when he doesn't want any help? I tried to switch our diet, but he won't eat the anti inflammatory diet. How can he keep doing this? What can I do? Does anyone have any suggestions for me?

sbirvin said...

3 months ago

Wife4life said...

11 months ago

My wonderful husband has psoriatic arthritis, he was diagnosed a little over two years ago. We have three kids. He will be 40 this next birthday. every drug he has tried he is allergic to. Nothing is helping. The steroids help him a little but make him too mean to be around. He just lost his temper, I got back home late from a family birthday with the kids. And now I feel guilty about leaving, sad that he is so mean to me about everything, and just realizing this is it. This is our life, I will be asked over and over again if I am a single mom, and I will be alone at every party and should I bother going out to a party, he needs me, even if he does just blow up over absolutely nothing. It's so hard watching him working from home, and seeing him stress out over everything, watching him get worse daily because everything he takes is just not working. Trying to help and getting rejected over and over again. Watching the kids ( all 3 are under 10. ) miss their daddy, they jump over each other to say hi to him first. I constantly have to explain to the kids he is on a medicine that makes him cranky. And people don't usually treat others the way daddy does its not polite. my heart is so heavy. I love my husband and my kids. I am so tired of being sad. And he is too. I try to talk to him, but the steroids are always too much. Two years of steroids, is so awful. His skin getting stretched with all that water, it's more pain on top of all that joint pain. I don't know what to do anymore. It feels like he hates me. Nothing I do is rite. and it shouldn't be about me. He is having all this medical trouble, and I need to be calm and supporting, but when I do. ... ahhh. ..I hate this disease, ...and darn it. I'm not even in the correct group, he has psoriatic arthritis!!

sbirvin said...

3 months ago

Family affected said...

2 months ago

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