POD "A" (Parents of Disabled Adults)
POD "A" (Parents Of Disabled Adults) forum/online support/shared advocacy network/information exhange for parents of adult children with mental/learning disabilities.
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What's New Today
about 15 hours ago
My son whom I an carrying for needs adult diapers and I cannot afford them I love in Birmingham alabama and in desperate need of help if I can't get some relief here I hate to do it it's going to hurt me more than it hurts him even after my wife left me but I'll have to put the poor boy out on the streets! Please any info that 100% works is welcome!
12 days ago
I’m trying to find an ophthalmologist with experience treating adults with cerebral palsy who cannot follow instructions in keeping eyes open etc. So far the last 4 doctors we visited were impatient and unable to actually give my son a reliable eye exam. Any names you can share?
13 days ago
I need some input/advice. My 64-year-old fiance has a 31-year-old adopted son with developmental and mental health issues. I love his son and we have a great rapport, but the son's situation is not a healthy one. In addition to having special needs (developmental issues with math, time, organization), he is either bipolar or completely enabled and undisciplined. He cannot hold a job due to his temper. He lives with his mother, who does not believe in medication. We feel that she treats him like one of the many pets that roam her small condo - one that smells worse than a pigsty. The poor "kid" comes over reeking like the worse thing you have ever smelled. (My finance called the health department to little avail). That said, the main issue is that the son is extremely sensitive and highly volatile. He can be sweet as pie, or he can come over and start swearing and generally acting quite vile. We're getting up in years and managing these cycles is difficult. Because he does not live with us, we can't force the medication issue nor do we have any control over the degree to which he has been enabled. As my fiance says, his son is like a wild animal. I have been trying to encourage my fiance to set limits, as we're both getting "too old" to handle the drama. I'm certain that my fiance feels a lot of guilt for having let the mother take custody of the son on his 18th birthday, as the son's growth has been stilted. He is spoiled, has no responsibilities and feels he can act out without consequence. Never mind the fact that this son has no real life to speak of, which is a shame, as he has some good traits as well. I don't know what to do, as my fiance keeps allowing the son to hit the "reset button" - a term I use to convey the fact that the son will act out, not come over for a while, and then we repeat the pattern of spending time with him only to have the relationship deteriorate, as the mother plays the son against us. I'm not sure of what to do. I can't fix it, but I feel a need to protect our own mental health. Any advice? I appreciate your time.
18 days ago
My son is 24 and has mild disabilities due to Klinefelter's Syndrome and very mild TBI at birth. He graduated from high school and is smart, high normal IQ. Despite testosterone therapy he remains delayed emotionally and lacks motivation/responsibility to be completely independent. He lives with me but I don't see him stretching his wings or becoming more responsible if I handle everything. Yet, I am terrified to let him be under someone elses supervision. I live in Oklahoma but can move just about anywhere as I am a RN. He does get SSI benefits.
29 days ago
Hi, I' have a disabled adult son, age 28. He has mod developmental delay., childhood Apraxia, and some mental impairment. He desires to make friends and date, but there are very little opportunities for socialization in our area. It's frustrating for him, and causes him to act out. He lives with me, and is very hard to watch him suffer like this. I'm wondering if there are other parents facing this same dilemma. We live in Maryland, and am thinking about starting some sort of social group. He tried social media, but unfortunately wasn't able to handle that responsibly. If you have any suggestions or information you'd like to share, please let me know.
Lindy LG said...
about 1 month ago
My son is 35. He is on the autistic spectrum, has a TBI, and bipolar. I am 66 and very ill. He is verbally abusive and makes terrible messes wherever he goes. I am trying to sell my home as it is too big for me, but can't get it ready with him here. He receives $800 per month in SSD so can't live on own. What can I do? I live in Colorado. Lindy
Supermans mom said...
about 1 month ago
My son survived a severe accident 14 yrs ago. Now he is almost 20 and is suffering from epilepsy. This has been highly stressful for the entire family causing myself to become hypertensive. On top of all this the clerk of courts that oversees his trust is cutting back his monthy allotments and is overwritting a judges orders pertaining to the distribution of funds. Now that he is an adult she still sees that his care is 100% my responsibilty. Not the millions put in trust for his care. Has anyone had to deal with similar issues and can share some wisdom on what to do.
about 1 month ago
I have a mentally challenged son, 53 years of age and all these years with issues and nothing seems to help, he can be a sweetheart but he has obsessions with buying things or doing things, outtings etc and will not stop until you feel you will explode, then he ends up getting angry and yelling. Has anyone else gone through this and know what to give him or how to help fix this problem.
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