POD "A" (Parents of Disabled Adults)
POD "A" (Parents Of Disabled Adults) forum/online support/shared advocacy network/information exhange for parents of adult children with mental/learning disabilities.
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Sherrie Wallace said...
9 days ago
Hello I just found this forum site, I am the mother of a 28 yr old developmentally disabled son who refuses to accept his disability, refuses to get help with his anger and who refuses to take medication which is causing serious problems in my marriage to his step dad, My son wants me to help him get his own place because he can't with no working income, I can't do that because he punches holes in the walls when he argues with his girlfriend on the phone which infuriates my husband who is ready for him to go. What do I do, I was thinking since he doesn't want to get help them give him options, Halfway house, assistant living etc. help
12 days ago
I am the mother of a dev disabled adult in nY with many medical issues . He has struggled to overcome many of them and learned to be independent with some parental support . However we worry about his emotional issues when he is left alone after us . At present he is part of a social group which is very good for him but only serves adults who live with family . I am trying to find a phone support group of parents who can call the adult children from time to time just to provide some human connection. I am in Ny and would love to hear from any parents who are interested in forming such a group online .
17 days ago
This is my first post on this website. I recently moved to Henderson, NV with my 31 year old disabled adult son. I am having a hard time finding social groups for him to join. He has CP, is hearing impaired but is not very mentally disabled. He drives and is attending school, but needs some form of socialization. Does anyone know of any groups?
17 days ago
Has anyone heard about community service trips for developmentally disabled young adults? I've seen travel agencies that specialize in trips for disabled people (and are very expensive) but nothing that has a community service focus. Any suggestions? Thanks.
Mom for 29 said...
21 days ago
HI everybody, I'm searching for a compassionate and reliable person to care for my 29 year old son, while I am at work. He has significant developmental delays and some mobility challenges. He requires assistance with eating, toileting and ambulation.. We just moved to the Albany/Cahoes area. If anyone knows someone who would like this opportunity please pass it along. Thanks so much for any help at all. Eileen
about 1 month ago
Hello, my son had a serious car accident 2 years ago which left him quadriplegic. He is 31 years old and though his brain function was not addected, he is completely paralyzed from his nipples down. He was in the hospital for close to a year then lived with his dad for a short while and recently moved in with me.. Since I am the only one caring for him 24/7 it has become so overwhelming.He has to be turned every 2 to 3 hours when in his bed and just getting him washed dressed and put inhis chair takes me hours.. Not to metion, I have to feed him, give him drinks and make sure all cathadors, treks and g tubes are clean. It is a non stop job and he seems so demanding. I'm 68 years old and not in the best health myself but refuse to let him go to a nursing home. He was in 2 homes previously and both times seriously ended up in the hospital close to death. Yes, I am sure he will die in a home. I love my son so much but Iam getting very exhausted and I know he feels as though he is a burden. Not really looking for much I guess, just a place to release. Thank you.
about 1 month ago
My daughter at the moment has an Massive budget, Im a single mum with few health problems of my own. She has severe global probs, uses wheelchair outside our home, but can get around inside using grab-rails, bottom shuffles or crawls; but normally walks using the grab-rails.
She finishes college next June for good, n the council want to put her into support living. My daughter needs 24/7 care as shes unable to do even the simpliest of task without adult support, even tho shes 20 her mind thinks that shes still in the toddler stage. She needs to be stimulated all the time, hence the big budget n the fact that Im a single mum caring for her n her brother who has autism; son isnt a concern here much at the moment as he has learnt just like I have to take care of himself, but it was always harder for my daughter. I was threatened to be thrown into jail if I didnt put her into school at 5, but she was still like a new-born n Im sorry to say, I know that was what ruined n slowed my daughters development.
Government make our kids go into education much too young, regardless if they have special needs n then as soon as they come out of full-time education the damn council want to take them from their parents. My daughter will suffer big time if she was made to leave, son doesnt wasnt her to go n I certaintly dont, I am scared the thought of her being left. Ok! I think its cos of her budget, but I never asked for alk this support, the professionals did; they just like of handed it too her on a silver platter. Its not the money, ok!its the help, the support tgat we both need to keep her stimulated but they council cant take her from the family home. If anyone knows of any organisation that could help I, we would be most appreciated.
about 1 month ago
People do not understand. So many people think it's simple. Hire a caregiver, make time for yourself, put them in an institution. It's not that easy. Emotionally it is difficult to walk away from your loved ones. So many solutions offered are not feasible because they take money that is not available. It is a journey you mostly walk alone. It's like you are punished because you care for them. Some nights i go to sleep and hope to not wake up. There seems to be no solutions. I can not walk away from this, yet I can not stay. Yes, I have applied for all assistance known to man. I have been approved for skilled nurses to stay with my lived one. But, there are no nurses available. There is no solution.
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