POD "A" (Parents of Disabled Adults)
POD "A" (Parents Of Disabled Adults) forum/online support/shared advocacy network/information exhange for parents of adult children with mental/learning disabilities.
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What's New Today
5 days ago
I care for my 36 year old daughter who has bordèrline personality disorder and epilepsy. Because of the paranoia she experiences, she prefers staying home. So she and I are pretty isolated. And it is difficult to get her to commit to regular counseling which would help her tremendously. I would be interested in starting a local support group for caregivers. Has anyone participated in a local support group for caregivers of disabled adults?
13 days ago
I have a 48 year old son who suffers from mental illness and is also mentally slow. He lives on his own in a trailer park in an RV. I need to find help for him. He has no hot water and no heat in the winter. He has a gym membership so he can take showers there. He is 35 miles away from me and I would like help finding him a place closer.to me. He has no drivers license and I don't believe the RV will run without repairs. Where do I go for help? He just lost his Wallet with his ID, all his money and what ever payment card SSI gives them for money. He doesn't know what the card is called and neither do I. He's going to his local Social Security building tomorrow and I drove up to his place yesterday and gave him money so he could pay his rent. He doesn't get mail at this Trailer Park because the the manager never gave him a mail box or key. I called the post office and they told me to mail box is all taped up. I tell my son to ask the manager to fix this, but he doesn't ask. I pay for my son's tracfone so I can stay in touch with him. My son is computer illiterate, so it's up to me to try and find things out for him online, then print it out and take the info to him. I'm 69 and I'm not going to live forever..
15 days ago
My 32 yo son is schizophrenic and has borderline personality disorder. I take care of him by myself and am at my wits end. No real professional help where I live and no support from his father or my daughter, his sister. Feeling very much alone. The struggle is real!!
Issue's in N.Y. said...
21 days ago
Hello, I am looking for information, My sister age 66, has multiple disabilities, living now in state run group home. I am in process of guarding. State run group home, is now not contacting the family, My sister was in the hospital for 5 days, We didn't know. I had a meeting last Friday with group home, they inform me, my sister has rights family doesn't . Group home claims, my sister didn't want us to know, when I asked my sister about saying that, she said no I never said that. Clearly there issue with in this group home... What are the family rights ??
Sad Moma said...
23 days ago
I have an adult son who is very intelligent but has schizoaffective disorder. I am also his guardian. He lived independently off and on for 10 yrs, but the bottom feel out about 2 years ago. He's just moved into a Level II RCF. He hates me now and blames me for where he is now. Does anyone else have a situation at all similar?
27 days ago
Hello, My daughter with multiple physical disabilities, non verbal and mental disability has just turned 18. I have applied for SSI and have some questions regarding proper use of the money. I read on the SS website that a vehicle can be owned and not count toward the $2000 asset cap. Our handicap accessible vehicle is quite old and we need another. 1. Can I use the ssi to make car payments? 2. Does the car have to go in her name, or can it just be in mine & my husbands. (Or hers and ours) I called my local SS office & the lady was clueless. Can we just document "travel expenses?" Thanks in advance
about 1 month ago
I have a 31 year old sychizophrenic daughter and I need to place her in a group home of some sort. I've been trying to deal with her living at home but she is 400 pounds now and she doesn't listen to me. I am very frustrated. Any advice?? Thank you.
about 1 month ago
I started here a while back while dealing with my moms dementia. She passed away 2014. My disabled son is 47 and is sometimes so draining . I honestly dont know how I made it with him and my mom and I was also working . I gave up using my college education to get a decent job. I had to take several junk jobs that worked around my son. I have done this since I was 18 years old. No family help etc. My son is intellectually disabled and also mentally ill. He is OCD and at 16 they said schizophrenic. Of course, he was diagnosed with several labels . After a while I realized labels dont meant anything. Unless you fit in one that has a specific group support. He throws away everything !!! My clothes....shampoo....what he thinks is obsolete........new things...furniture..... Recently I took him to the mental health emergency and they were no help.....they wanted me to take him to the developmentally disabled program. Since he has both disabilities, neither wants him......the psych hospitals dont and nobody wants mental illness. He cant live alone....has been with me mostly all his life. No program , no day anything.....when I worked he called me constantly and also my mom before she had dementia. My husband is no help and has called the police on my son for throwing things etc...!! I cant find support groups for parents taking care of disabled adult children at home. In this country ...they dont talk about this on tv etc... ...we need plans for our vulnerable citizens......not group homes that stack them in and treat them worse than animals...... I am in Michigan........Macomb County.......anyone out there ?????? carol
about 1 month ago
Im interested in changing the rules concerning caregiving parents. They need more support and better working conditions.I live in NJ where the DDD has so many silly rules....and the state itself does not acknowledge the huge burden we deal with. Anyone else mad about this???
Example...why cant we take our kids off our taxes after the age of 18 if they are living at home and legally disabled to the point where we must caregive 24/7? You cant take them off your taxes unless its directly medically related yet we spend a fortune on our son just keeping him entertained....along with food, clothing, medical co pays,personal items, transportation etc.
Shouldnt people get a tax break for the loss of income they experiance when they stay home to care for their disabled child? especially when they have no choice?? my son is a non verbal autistic with epilepsy, with
OCD, ADD and Tourettes but he is 3938 on a waiting list for group homes.
Why are they trying so hard to shut down our disabled work shelters???My son cannot give you minimum wage quality work in the community and the shelter was a good place for him to be.With a shellter work gone he sits in his room all day with nothing to do....no one can find him a job
Why cant guardians be paid caregivers?? if someone is a guardian because they are loved and trusted enough to make decisions for a person, wouldnt it be reasonable to assume they would be a better caregiver than a stranger you get from an agency???
And why are we forced to go through agencies? My sister was a paid caregiver for my son for two years. She had to join an agency to do it. She made 18 an hour. Easter Seals took 3 dollars out of every hour off the top, which brought it down to 15. Taxes and fees watered her pay down to about 8 dollars an hour. 8 dollars an hour doesnt got you top notch help in most cases.
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