POD "A" (Parents of Disabled Adults)
POD "A" (Parents Of Disabled Adults) forum/online support/shared advocacy network/information exhange for parents of adult children with mental/learning disabilities.
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What's New Today
about 14 hours ago
I have a mentally challenged son, 53 years of age and all these years with issues and nothing seems to help, he can be a sweetheart but he has obsessions with buying things or doing things, outtings etc and will not stop until you feel you will explode, then he ends up getting angry and yelling. Has anyone else gone through this and know what to give him or how to help fix this problem.
3 days ago
My son is 32 and lives at home. I need to buy enteral (nasogastric) feeding tubes (Vygon #311.10). Medicare DME suppliers refuse to special order what I need and the manufacturer won’t sell to me directly. I am actually considering starting a medical supply business just so I can order what I need for my son. Any ideas where I can order?
7 days ago
I feel lost. I'm a single mom to a 25 year old son who lives with developmental delays. He has never worked, and doesn't have many friends. I have lived in a bit of denial. I need help with what I need to do what resources I have. I want my son to be as independent as possible. Ive tried VR but they offered no help. Where do I go? We live in NC near Raleigh. Thank you.
QuietStorm - VA said...
9 days ago
I'm the mom/caregiver of a 31 year old male with Autism/Intellectual disability, who continues to reside in our home. I am managing with the proper supports for him. Sponsored Residential/Day Support/Community Integration/Respite/SSI/Transportation. It has not always been easy and in the past I had many set backs as a result of trying to care for him as a single mother. I have lost jobs/been homeless/lived in a shelter, public housing/Section 8. But only by the Grace of God have we been able to live a comfortable life now. I pray the same for everyone, but I know from personal experience, it takes patience/determination and advocacy to get the services/supports and resources our individuals need. If there are any families that reside in the Richmond, VA/surrounding areas - I would love to communicate with you and offer my input/assistance with getting supports. It is my mission to start a Non-Profit organization/Support group geared towards caregivers like myself who are single and/or have no direct support/assistance from family or friends. Those who need the support of others who understand the struggle in order to be able to care for our individuals and ourselves. Please contact me with your story.
Teenage mom said...
12 days ago
I am 37 with a son that is twenty who was labeled with a delayed learning disability since he was one. I have recently married but my spouse can't handle the responsibilities of living with a disabled adult. My son is starting to develope more signs like autism or schizophrenia. What should I do?????
25 days ago
Hi, my 29 year old sister is learning disabled and lives at home in a very remote area. I’m wondering if anyone here has heard of an online group of other learning disabled adults where they can Skype video chat or Google Hangout. Essentially I’m hoping she can find a group of friends to laugh and talk with.
27 days ago
I have a 22-year-old daughter who is officially diagnosed as learning delayed. Recently she rented an apartment with a family friend to try and gain some independence. I am still doing most things for her as she won't attempt to do what she can on her own. After the lease was signed and they started moving in the "roommate" moved her 23-year-old daughter in and the agreed upon household rules began changing. LIke now no friends over, no drinking allowed, only certain types of music, tv shows, extra........ are allowed in the home. My daughter was already having issues with anxiety and depression when she choose to move out. In June my family had an emergency in another state that was going to require us to be gone for several weeks, she was invited to go along but choose to stay because she wanted to go to her special olypics games. After we left she got word that the games had been canceled and wanted us to return and get her. I explained that I was sorry but we didn't have the funds to return home and then go back to help her grandparents. SHe became upset and started being argumentive with everyone and shut down. We talked to several family members and found her a ride to Colorado from MO. but the day before she was to be picked up she "accidentally" overdosed on her medication. I say accidentally because the Drs don't believe she is actually suicidal just trying to convince us she is. SHe spent two weeks in the hospital and was released. During this time they talked to her about group homes and how great they were, papers were drawn up to give her a guardian, thankfully my sister-in-law found out and it was delayed. My daughter was given papers to fill out and sign when she is unable to read past a second grade level. The problem is even her mentor from Independant LIving Resource Center is at lost on how to help her. SHe has lost touch with what is real. She and her "boyfriend" make elabrate stories up about being attacked and beaten and fighting. and how they beat people up all the time. She was taking classes every Tuesday to help with her reading skills and cooking classes on THursdays but has been kicked out of them because she fails to go unless I or my husband take her. SHe has refused to get on the Oats bus after they come so much they wont pick her up anyore.She tells some people she wants to be in a home and others she will kill herself first. I am at a lost on how to deal with this normally wonderful young lady. I should say also that her newest doctor believes she may have autism and it was never diagnosed. After reading all her records from childhood to present and talking to her, he believes the doctors at the time of diagnosis just settled on at the time 'mental retardation" with no further testing needed because it was easier. I need suggestions, and maybe information on homes and what is required to go in one or to leave one if you don't like it, resources in my area. I don't want to just go by what state caseworkers say, we haven't really had good luck with them. I know this post is disjointed and doesn't make a lot of sense but not sure I really understand what I need to help her best, only that her doctor says all test show she doesn't need to be in assisted living and he doesn't believe she needs a full guardian so he won't recommend either.
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