POD "A" (Parents of Disabled Adults)
POD "A" (Parents Of Disabled Adults) forum/online support/shared advocacy network/information exhange for parents of adult children with mental/learning disabilities.
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22 days ago
I am a mom of a beautiful 20 year daughter. We live in a small town in Alabama. We are having such a hard time with Personal Care workers.
I actually had it out with my daughter's today. My daughter has seizures and sometimes doesn't need the service. However, I don't want to lose the service our she will go back on the State's waiting list.
ANY SUGGESTIONS ON FINDING THE RIGHT MATCH FOR A PERSONAL CARE WORKER AND MY DAUGHTER?!?
Jessica and Lisa said...
27 days ago
I am a mother to a 26 year old daughter named Jessica. Jessica was deprived of oxygen at birth. This resulted in severe brain damage, epilepsy and cerebral palsy. Jessica requires round the clock care. Her immune system is very compromised and she is frequently hospitalized. Jessica is my sunshine and my hero. She makes me appreciate each and every day I have with her. I'm hoping to connect with someone who has similar circumstances. Someone who understands the struggles I go through. And the struggles that Jessica goes through. My name is Lisa.
27 days ago
We are the parents of a 30 yr old son with OCD, ADHD, Aspergers, and has a borderline IQ. He is threatening to hurt himself again. He lives alone but is constantly depressed as his situation doesn't look like he wants it to. He thinks everyone else is to blame for each and every bad aspect of his life. He has been short term phsy inpatient 4 times with no help or change. He has learned to con the doctor's by telling them what they want to hear. I don't believe this situation is right for him again. He called yesterday to let us know that if we didn't come get him he was going to start cutting himself. Now that I think about it he was controlling us. We brought him back to our place to get an assessment of what brought this crisis on. Blame is the name of his game. He has made it where he jumps on his Dad for anything and everything. I am the last hold out and I don't know how much longer I can stay here alone on his side much longer. I will not allow him to drive a wedge between me and my husband or us as parents and our daughter. Tonight I gave our son the information on a inpatient treatment clinic that was voluntary that I feel he could really benefit from. I also told him that this was the last time he was going to come home to escape what ever mess he gets into in his apartment complex and that he was going to have to take responsibility for his actions and for his disability. He cried to try to get me to comfort him and make it all better but That Mom is gone. It shocked him. I told him to sleep on it and he would have to make a decision tomorrow as to whether he was going to this treatment center on his own, be committed to a short term lock-up or go home and work it out on his own.
I am a tiny bit worried about going to sleep as he has acted with violence before toward his little sister and his father but never to me. Well I am alone with him tonight as his Dad works 3rd shift and his sister is away at college. I have taken precautions and locked the bedroom door and have a stun gun by the bed. I really don't think he will do anything but one can never be too careful since I did push him quite hard to make a decision and tell him I wouldn't support him anymore if he didn't seek real help.
Thank you all for your time. It did me good just to write it out. I would welcome and thoughts, advice or just prayer support.
about 1 month ago
I am a carer of a young physically disabled woman in her twenties who would like to meet a young man of her age for friendship/relationship. Can anyone tell me how their son/daughter met their partner or give me suggestions. I would really like her to have someone special in her life. Thank you.
about 1 month ago
I am the mother of a beautifuful 26 year old daughter. She was a premature, low birth weight baby. She is a high school graduate and also has an A.A. degree. She is currently employed part time as a hostess at a local restaurant. I am feeling frustrated as I do not know if she is able to live independently. He father and I are divorced. She has lived with both of us and we are both feeling the same frustrations. My other children are grown and independent. She currently resides with her father and step mother but because of their frustrations they have started to resent my daughter and have asked her to leave their home. I have been accused of "coddling and enabling" her too much . I love my daughter and do want to protect her, but I don't know what my options are. My daughter makes less than $700.00 a month. She is on Medicare but not SSI. She is high functioning and does not look disabled. I need some advice with options. Can you offer any suggestions or advice?
Trevin Milner said...
about 1 month ago
Hello, my name is Trevin Milner and I am currently a student at the University of Illinois. The reason I am here is to receive some feedback on something I am planning to start. I want to start a non-profit organization, and the purpose of the organization is that it will serve as a place where disabled children K-12 can come after school to receive help with speech, tutoring, social skills, college/vocational preparedness, etc. I would hire those with teaching experience or those who have studied special education. My brother, who has autism, has been such an inspiration on me. I have thought about this for some time now and I have decided it is time to take action. So, with that being said, I wanted to get some feedback from some of you to let me know if that is something you believe that people would be interested in and take advantage of. I want to make sure it is something that is needed and will be useful. Just let me know what you guys think. God bless!
about 1 month ago
I am trying to find my disable daughter she is 30 years old have seen her for over 20 years . I need to find she. I have a lot of guilt because. I had to place her. She has mentality at 18 months. Please help me find here. I am 53 and having Heath problems.
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