Parkinson's Disease Caregivers
Just looking for someone who's caring for a parent with Parkinson's. My mother's been with me for over 5 years and has had PD about 17 years. She's been pretty independent up until this past year. A month ago she fell and broke her arm and now has become almost 100% dependent on me for dressing, changing Depends, fixing meals and most everything else. I have a home healthcare aide who bathes her but that's it. I am the youngest and only girl in my family, but I have 4 brothers who live in town. They make their token visits every month or so, but that's it. I beg them to help but they either just don't want to see her like she's getting or are just too busy. I'm so overwhelmed. I called a family meeting last week to discuss the possibility of putting her in a nursing home, but none of them would hear of it. One brother told me that when I talked her into selling her house and used the proceeds ($20,000) to buy a bigger house with a mother-in-law suite that I was committing to taking care of her and keeping her out of a nursing home. I HAVE!! FOR ALMOST SIX YEARS!!! She'd of been in a home 5 years ago if I hadn't moved her in with me. They don't see it that way though. Even though they don't want to have much involvement with her, they feel they have a say in any decisions. I know it's going to come down to losing my relationships with them and I hate that, but I have to watch out for myself and my family. I can't leave my house without my husband being here with her. He's done more for my mother than my brothers have EVER done. It's not fair to my marriage and me to sacrafice my whole life. She could go another 15 years. Who knows?? I sit here 24/7 while my brothers live their lives, take trips, spend time with their families, go shopping, or whatever. I do nothing. It's just not right. I know I signed up to take care of my mom and I have. But it's getting overwhelming and nobody's helping. Anybody relate???