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Multiple Sclerosis

For those of us caring for loved ones with Multiple Sclerosis. Group started by a Caring.com member in April 2012. Information Caring.com offers for MS caregiving: Multiple Sclerosis Resource Center

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Debmartin said...

15 days ago

My son is 32. He had relapsing remitting MS for ten years before he transitioned to secondary progressive ms. He lived with me for 5years and I watched him decline. He is now in a wheelchair without the use of his right arm (tremors). I do everything for him yet he lashes out at me constantly and says any mean thing he can think of. I have RA scleroderma and lung fibrosis. I know he's angry and depressed (he takes meds). What can I do my heart breaks for him but I can't take the abuse anymore. Help!

Worn out M said...

24 days ago

I have separated from my husband with MS for several months , I've been taking 24 hr. A day care for him for over 7 years. I'm physically and mentally worn out and down. I have terrible guilt issues, has anyone else experienced this?

GeneK said...

17 days ago

mballiet said...

about 1 month ago

My dad has had ms for 44 years and now is declining bad and keeps getting urianry infections that land him in the hospital. My mom is taking care of him but he is mean to her and doesnt follow what he should do and falls onto the floor and lays ether for hours until his legs are strong enough to get up. My mom changes him bc he cant make it to the bathrroomn by and i dont think she can do it anymore.

about 1 month ago

Me and my mom are caregivers for my father who has Primary Progressive MS. Lately we have been having some bowel issues. He takes Miralax in the morning and we have keep suppositories and soap suds enemas on hand but this situation is different. He said it feels like his muscles internally are not working. This causes discomfort. Does anyone have any ideas other than laxatives as he does not like the stomach discomfort that comes along with those.

AngelKitty said...

about 1 month ago

My husband has had Progressive MS for 16 years, but only began to decline in the last six years. He is a strong man and has handled his illness well, except for his temper. When he can't do something he starts cussing and swearing at himself as if he hates himself. Lately he has said he is useless, "just put me in a home", and how I'd be better off without him. I have a very strong faith in God, but I don't know how to handle his anger and hatred toward himself. Do other MS people have this anger issue?

about 1 month ago

Sciteach05 said...

about 1 month ago

I am new to this blog, please bear with me. I have been caring for my husband with MS for over 25 years. Within the past 11 years, he devloped stage 4 esophageal cancer. Because he was having chemo, he stopped his Avonex. The chemo and radiation took a toll on him, but he survived and is cancer free still today. He refuses to take his MS medication and has declined progressively over the years to the point where he can still stand and walk from one room to another with a walker however the risks of falling has significantly increased. In fact, if his MS is really acting up, it is not uncommon to him to have a series of falls in a day. I work 7 days a week and worry that he may fall on days i am in the office.

LAJ2012 said...

about 1 month ago

ab12p said...

about 1 month ago

Hi Everyone, I am completely new to the world of MS. My boyfriend (27) of 3 years was diagnosed earlier this week with Relapsing-Remitting Multiple Sclerosis. He is beginning to sort through his treatment options and is handling the diagnosis well. What are some changes I should expect this early on? As a significant other, what can I do to assist him and help ease some of his stress? I will take any and all advice you have for me!

Chgogal said...

about 1 month ago

Prjanson said...

2 months ago

Exhausted. Always exhausted. How do we keep going to work and do life tired all the time. Does anyone care? How come they get disablilty but we don't get paid to care for them? Who pays the bills? What is @HillaryClinton doing for us?

caregiver44 said...

about 1 month ago

Chgogal said...

about 1 month ago

Andybobandy said...

2 months ago

Hello, I am a 32 year old who over the last year got into a relationship with someone with M.S. When we met she was high functioning, working, taking care of her son. However over that period of time her health has declined. She has had to have a tendon re-assignment surgery in her legs. She was walking a little better after that initially, but has begun to regress. She was on tasabre for 5 years no relapses but became fearful of PML. She switched to techvidara a year ago and has begun to have exacerbations again. She can barely walk most days. Has respiratory distress, and loses control of her bladder very often at night. I feel defeated, maybe it's selfish but I feel as if I am in over my head. She was written up at work for mising too many days and I'm afraid she will lose her job soon. I work in Healthcare as an oncology researcher( low level) I don't make enough for us to survive. We live together and she has no one else but I don't think I can do this anymore. Am I wrong to feel this way? I feel very selfish especially around her, and do my best day by day. It's not enough though. I would appreciate any advice. .. . Thanks Feeling defeated

LAJ2012 said...

2 months ago

Sreddin said...

2 months ago

I am a caregiver of my husband that has MS now for 20 years, he is now wheelchair and bed bond. He lately has memory issues , he can tell you something that happened 20 years ago but forgets what he ate 2 minutes ago. He now has this issue thinking he had to go to the bathroom all the time even an hour after he goes. He can not go by himself and had to be stimulated to go. I tell hi he had already gone to the bathroom and he tells me no I haven't . We are getting into agruements over this to the point he is screaming to the top of his lungs. He stays confused all the time. Is there anyone else out there that is dealing with this issue I call the poop monster?

Chgogal said...

2 months ago

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