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Multiple Sclerosis

For those of us caring for loved ones with Multiple Sclerosis. Group started by a Caring.com member in April 2012. Information Caring.com offers for MS caregiving: Multiple Sclerosis Resource Center

Help spread the support to more people in need -- Please tell a friend or two. Thanks!


What's New Today

4 days ago

I'm super angry with my best friend who has MS. She refuses to take the appropriate medication for her seizures because the MS prevents her from making good decisions. She rages because she refuses any depression meds and is out of control with her perspective. She doesn't have the ability to make a rational decision and I'm fed up with her irrational stubbornness. I'm at the end of my rope and have almost zero compassion left for her. She is sicker than necessary because of all her bad health decisions. I'm at a complete loss.

Nan-902 said...

11 days ago

MS is such a hard disease to care for! It is on and off! One day my husband is happy and active and the next day he is sad, tired and afraid for his future. It's almost like being married to someone who is bi-polar! Most days I roll with the punches pretty good, but somedays it gets really difficult. Is this how the rest of my life will be??? My husband was diagnosed in 2005 with RRMS. I guess that got that relapsing-remitting part down right!

connie@ymail said...

17 days ago

I have been with my husband for over thirty years and he has had multiple sclerosis for 18 of them years. It has been a very difficult road. The worse part of my husband MS is the mental changes that have happen. He has impulse control issue that have cause many problems in our marriage. Just last week he professed is undying love to another women and thought that he could support both of us. We don't even make that kind of money. This relation was a scam and he took out a loan and sent her over 2000.00 that we do not have. Every day is difficult and I am trying to protect both of us.. However, most of the time he looks at me as his enemy and has delusions and think that everyone is out to get him. I am at a lost and at the end of my rope. I pray that God will give me answer as to how to handle this situation. I love my husband and he does not want me to leave. But he looks at me as his mom to some extent I do not know if I can deal with this. I don't have the answer.

emptynest said...

16 days ago

talkey said...

14 days ago

AmyK0001 said...

23 days ago

I am new to participating in the world of on-line support groups. My boyfriend of 2 years has been diagnosed with ppms about 7 yrs ago. I care very much for him, and every relationship has its issues, but with a disease like this, wow! Things can get very intense quickly. I would really like to be a part of a support community.

emptynest said...

23 days ago

stuza2 said...

21 days ago

ErinAnn said...

about 1 month ago

Is it the disease? He was diagnosed over 10 yrs ago. I can't figure out of it mid life crisis or what.

about 1 month ago

stuza2 said...

19 days ago

ErinAnn said...

about 1 month ago

My husband says the most heart wrenching things to me. At 39 he called me barren and lifeless because I didn't have a child. I'm now 41& he has said it more.

Nan-902 said...

10 days ago

Chipmunk48 said...

7 days ago

Chipmunk48 said...

2 months ago

I have a question for anyone. What do you do when your spouse says hurtful things to you. How do you rise above it and try not to let it cut you to the core, even though it does? Do you find your spouse having a good time one moment, then like flipping a switch, the mood turns sour and hurtfulness and meanness comes out. You know deep down that this isn't the person you married, that it's the disease making your spouse act or react this way......but it still hurts, nontheless. I am facing this......and today.........my spouse states that he's not sure why he wants to stay married. I know he doesn't mean this, but how do you erase the words from your mind and your heart, once they are said? Any good advice or suggestions would be greatly appreciated. ????

stuza2 said...

about 1 month ago

Chipmunk48 said...

about 1 month ago

ClaireBear03 said...

2 months ago

May I ask some people how long after their spouses original diagnosis, did things start to really go down hill?

Wells1961 said...

about 1 month ago

Nan-902 said...

11 days ago

Chipmunk48 said...

3 months ago

My husband was diagnosed with MS in 2009. He has lesions on his brain. We were married 3years ago and I have stepped into the role as caretaker. I've tried to research everything I can about MS to better help and understand him and this disease. It's very difficult, watching the person you love go through something like this, struggling every day dealing with this. While I don't have MS and won't understand what it does to a body, I, too, live with this disease. It's equally difficult seeing my husband become someone I don't recognize, who does and says things, sometimes hurtful things and then doesn't remember it. I try to remind myself that he has a brain disease and not let these things hurt but they do. I know that it's going to get worse for him instead of better; I feel I'm doing everything I can to stay positive, to be supportive, to handle everything that he cannot....... I just don't want to lose myself in the process. I don't know if anyone else has gone through something like this as a caregiver, this is very new for me. All I can do is continue to do what I am doing and hope for the best.

Chipmunk48 said...

3 months ago

Nan-902 said...

11 days ago

Worriedgf said...

3 months ago

My boyfriends mom has MS. I've been doing everything as far as cooking,cleaning and everyday chores that she has become unable to do. The last few days her health has deteriorated. She told me she ordered her meds over a week ago, but admitted that she hadn't yesterday. I stayed up with her all night and was able to convince her to go to the hospital this morning. My mom said because I'm technically an in home care provider I should look into a support group. I'm worried and feel alone. Please help.

Mermaid01 said...

3 months ago

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