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Multiple Sclerosis

For those of us caring for loved ones with Multiple Sclerosis. Group started by a Caring.com member in April 2012. Information Caring.com offers for MS caregiving: Multiple Sclerosis Resource Center

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14 days ago

My daughter, 49 has progressive MS. Started out 25 years ago while in college. From relapsing remitting to secondary progress to progressive. She is wheel chair bound, has dementia, incontinent urine. Has become almost non verbal. Has flat affect. Mostly agrees with anything said. She seems to be slipping away from me in bits and pieces. I am her caregiver. I am married, but my spouse does not understand the disease, nor is willing to. I am on a lonely journey. I still work. I am overwhelmed. I am so hurt to see her continually decrease. How does one get thru this when there is no one who understands

Wells1961 said...

14 days ago

LAJ2012 said...

6 days ago

many_hats said...

24 days ago

I quit my job in December 2014 to go to school full time and two days later my wife was diagnosed with MS. At first changes were small but over the last year they have become basically unmanageable. She and I have a three year old together and I also have a seven year old with my ex-wife. I had to quit school in May of 2016 and wished I would have quit sooner. I went from the Presidents List to not attending class. We had to empty our retirement funds just to stay afloat and that money is basically gone. Im presently trying to prepare for test that certify me in the field I'm attempting to get into; but Im over whelmed trying to care for my wife and family while doing anything else. Most of my wife's health issues are cognitive for the time being but it changes regularly, it will fluctuate between depression, IBS, memory lose and struggles with thought process ( such as what am I doing and why ). A lot of days these symptoms are collectively working against her almost on a daily basis and for weeks or months I handle it all with a smile on my face and positive reinforcement; but eventually it always leads to me feeling resentment towards her, then I lose my since of patients and start to question if I will be able to continue to do this for much longer. I don't want my son raised in two separate houses and I don't think she could survive without me but I don't know what to do. Money is running out as is time and energy. I love my wife and want what is best for her but I struggle to keep up and I'm not sure where to go from here. Any words of advice would be appreciated.

LAJ2012 said...

6 days ago

Chgogal said...

6 days ago

angle face said...

2 months ago

my friend is loosing the battle of MS. has been living with it for about 43 years. comming to a quick end... he had a sezier August 1 and the legs have stopped working... prior to this episode he could transfer to the couch from the wheel chair, and onto the toilet and bed as well.. he was pretty independent... since August 1 he needs help almost 24/7 its really been hard....

Debmartin said...

3 months ago

My son is 32. He had relapsing remitting MS for ten years before he transitioned to secondary progressive ms. He lived with me for 5years and I watched him decline. He is now in a wheelchair without the use of his right arm (tremors). I do everything for him yet he lashes out at me constantly and says any mean thing he can think of. I have RA scleroderma and lung fibrosis. I know he's angry and depressed (he takes meds). What can I do my heart breaks for him but I can't take the abuse anymore. Help!

Worn out M said...

3 months ago

I have separated from my husband with MS for several months , I've been taking 24 hr. A day care for him for over 7 years. I'm physically and mentally worn out and down. I have terrible guilt issues, has anyone else experienced this?

GeneK said...

3 months ago

mballiet said...

3 months ago

My dad has had ms for 44 years and now is declining bad and keeps getting urianry infections that land him in the hospital. My mom is taking care of him but he is mean to her and doesnt follow what he should do and falls onto the floor and lays ether for hours until his legs are strong enough to get up. My mom changes him bc he cant make it to the bathrroomn by and i dont think she can do it anymore.

3 months ago

Me and my mom are caregivers for my father who has Primary Progressive MS. Lately we have been having some bowel issues. He takes Miralax in the morning and we have keep suppositories and soap suds enemas on hand but this situation is different. He said it feels like his muscles internally are not working. This causes discomfort. Does anyone have any ideas other than laxatives as he does not like the stomach discomfort that comes along with those.

AngelKitty said...

4 months ago

My husband has had Progressive MS for 16 years, but only began to decline in the last six years. He is a strong man and has handled his illness well, except for his temper. When he can't do something he starts cussing and swearing at himself as if he hates himself. Lately he has said he is useless, "just put me in a home", and how I'd be better off without him. I have a very strong faith in God, but I don't know how to handle his anger and hatred toward himself. Do other MS people have this anger issue?

4 months ago

Sciteach05 said...

4 months ago

I am new to this blog, please bear with me. I have been caring for my husband with MS for over 25 years. Within the past 11 years, he devloped stage 4 esophageal cancer. Because he was having chemo, he stopped his Avonex. The chemo and radiation took a toll on him, but he survived and is cancer free still today. He refuses to take his MS medication and has declined progressively over the years to the point where he can still stand and walk from one room to another with a walker however the risks of falling has significantly increased. In fact, if his MS is really acting up, it is not uncommon to him to have a series of falls in a day. I work 7 days a week and worry that he may fall on days i am in the office.

LAJ2012 said...

4 months ago

ab12p said...

4 months ago

Hi Everyone, I am completely new to the world of MS. My boyfriend (27) of 3 years was diagnosed earlier this week with Relapsing-Remitting Multiple Sclerosis. He is beginning to sort through his treatment options and is handling the diagnosis well. What are some changes I should expect this early on? As a significant other, what can I do to assist him and help ease some of his stress? I will take any and all advice you have for me!

Chgogal said...

4 months ago

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