Caregiving at Home
This online support group for in-home care discussions connects caregivers, family, friends, and others with an interest in aging in place. Get tips, advice, and support for your in-home care questions or concerns. Post best practices and success stories. Share about your in-home care experiences or challenges with others who understand. Ask for feedback or exchange ideas to help optimize aging in place for older adults.
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What's New Today
2 days ago
My grandmother is 92 and has had chronic UTI's for the past 6 months. She sees an infectious disease specialist but he has only tried treating with oral antibiotics up until august when she ended up in the hospital with sepsis. Since she has been home she has been on IV antibiotics twice and oral antibiotics since then with no end in sight to these infections. She was sent to a urologist who didn't do an exam and just scheduled her for a cystoscopy which won't be done for another 2 weeks that's about 1 1/2 months since her first consultation with him. We are concerned that this infection is continuing to damage her bladder and possibly kidneys and feel there must be something they can do sooner to eradicate this infection. The cultures come back saying it's pretty resistant and only the IV antibiotics seem to help. She is otherwise healthy but these UTI's have really taken a toll on her and she does not want to end up in the hospital again. She showers every day, she is not incontinent, she is taking cranberry concentrate supplements, her renal ultrasounds are good she is on Oral antibiotics she has been on Bactrim and Cipro is there something we are missing ?
4 days ago
Hello! I am new to this forum and I don't really know how things work. I am in a class and I have an assignment where I have to find out what are truly the needs of a caregiver. So can anyone tell me what is most difficult about providing care to your loved one daily? And if I want to reach the demographic of women caregivers ages 35-60 where would I go?
4 days ago
I have been caring for my mother-in-law for 8 weeks now. My husband and I moved into our new home and had been there 3 weeks before it became necessary to move his mother in. She had been living in Assisted Living, but her health deteriorated so that she was no longer a candidate. The first few weeks have been okay, but she has gradually become very difficult to live with. She is in a power recliner in our den all day long and I feel like my house is no longer mine. We have sitters while we are work and then I come home and take over. She sleeps so much during the day....she refused to go to bed at a when I am ready. I don't want to argue with her out of respect, but she is trying to assert control and make it difficult for me. She cannot do anything for herself except feed herself and that is difficult. She is being served by hospice and I want for her last months to be as pleasant as possible, but for me....it is not very pleasant.
5 days ago
12 Steps for Caregivers
Although I cannot control the disease process, I need to remember I can control many aspects of how it affects me and my relative. I need to:
Take care of myself so that I can continue doing the things that are most important. Simplify my lifestyle so that my time and energy are available for things that are really important at this time. Cultivate the gift of allowing others to help me, because caring for my relative is too big a job to be done by one person. Take one day at a time rather than worry about what may or may not happen in the future. Structure my day, because a consistent schedule makes life easier for me and my relative. Have a sense of humor, because laughter helps to put things in a more positive perspective. Remember that my relative is not being “difficult” on purpose, rather that his/her behavior and emotions are distorted by the illness. Focus on and enjoy what my relative can still do rather than constantly lament over what is gone. Increasingly depend upon other relationships for love and support. Frequently remind myself that I am doing the best that I can at this very moment. Draw upon the Higher Power, which I believe is available to me.
17 days ago
Ok everyone plz try your best to take care of yourself I know we hear this & easier said than done but I'm laying in icu yes I have Addison's disease that made my health worse but I also allowed to much stress on my body Drs are saying stress can lead your body into dehydration high bp low potassium which can cause cramps etc and death if depleted I'm going to share my report as soon as I'm home so you can see more details as caregiver we find it feeling impossible to relax or get help we put our lives & health aside for our loved ones but how can we give our best if our best is wreaking due to not being healthy mentally & psychically or if we allow stress & our health to God forbid take our lives who is gonna be there for them maybe this seems emotional or crazy I admit I'm not @ my best right now but I am blessed to be alive to be with my brother I'm working as my dr advised on saying I'm blessed to be alive to have my life not just to be alive for fear of leaving my brother you know most of you feel that way for your loved one but that's not ok you should see & love yourself like myself & ppl on this site see you and push harder to relieve yourself from stress & heartache I know that's my prayer for you all wishing you my best angels love & prayers Mandy )
18 days ago
I just found this group after finally looking online for support groups. I will be 58 this month and am the sole caregiver of my mentally disabled sister. I have been caretaking in one way or another a very big part of my life - so am single. It has, and is, taking a huge toll on me. Are there any others out there who care take a mentally retarded sibling? She is my older sister and it would be such a help to just talk to someone who has done this. I was caretaker for her and my mother. Our mother passed almost three years ago. I would really love to talk to people who understand.
18 days ago
Good morning everyone hope all had a good peaceful night!! Yayyy for me. lol my bp is no longer in danger zone it's not great but it's getting there!! I have multiple free apps on my phone & tablet that help Kevin & me a lot but 1 life app has sent me really good alerts since we have been here he dropped his phone & it gave him time to pick up when didn't it alerted me it also said he isn't moving much that's unusual behavior ETC.... It is really good anyone with smart phones plz consider safety for seniors or children apps they help they alert you if stove has been on longer than should if he falls if drops phone where his location is at all times you can set to alert you 911 local police medics family members neighbors or friends and they work I hope you all have good day I just woke up love & prayers Mandy
25 days ago
Anyone have advice on telling my brother about the death of our little sister?? I'm so afraid I'm wrong for this but I have told him & watched him grieve 4 times already he forgets every time so when he asked about her the other day I just found ways to change subject I couldn't bring myself to tell him & watch him grieve for our sister a 5th time!!!!
28 days ago
I'm beyond exhausted this morning I don't know how many more days like the past cpl I can take!!! I spent all day year day & last night feeling heartbroken 1 minute & angry the next! I'm at my breaking point with hearing ppl tell my brother how he could remember things ETC if he will just try harder!!!! What is wrong with ppl am I the only person that feels like smacking someone in the mouth for making someone with this or any disease feel they are in anyway to blame for their illness?? My older brother is 39 we have no immediate family left & the ones we do have are horrible to him I'm choosing to flip out on here other than lose it with them or accidentally cry or say something wrong to my brother this isn't his fault not in the least bit I pray I can make it thru today & things somehow get better;((
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