Heart & Stroke Support Group
Caring for a loved one with a heart condition or who's suffered a stroke? Get tips, advice, and support in this online support group for heart and stroke caregiving concerns.
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21 days ago
My husband had a very light stroke and was not affected physically but he has memory loss.,.....lost his job and are a handyman at present.....I am losing it because I still expect to have an equal husband/partner and time and again we have quarrels because we live in different worlds. There is this constant misperseptions/interperations of his side and then it leads to conflict. We have lists on the fridge of things he should do but I am losing it.....I need help to cope with him?
about 1 month ago
Hi, My best friend suffered a series on strokes 13 years ago. While not diagnosed her family and I believe she had another over the past year. Until March of this year she was living on her own due to circumstances beyond our control she had to give up her apartment. I thought it would be a good idea for her to move in with me and while i love having her with me i believe I wasnt completely compared for the amount of care I would have to give, and now I feel i am in over my head.
about 1 month ago
Hello, my mom recently suffered from a small stroke back in February. I am 20 years old away at college and we are now living wit a very close family friend bc we had to sell our condo due to my mother also suffering from breast cancer and having a double mastectomy about 2 months before the stroke. My moms brother my fuck head of an uncle, illegally signed the power of attorney document and is refusing to give my mother back some documents that belong to her. We have now closed all her accounts, credit cards and sold her business as well. She knows and can comprehend everything that is going on now. What can i do to makre sure my uncle gets in trouble for all the extra pain he caused my mother to go thru and make sure he never can take any of my moms money or belongings again? :(
3 months ago
This is hard. I almost don't know where to begin, I am so overwhelmed. I am hoping that by writing this I can get someone to pass along a little info. A bit of background first: My husband and me are in our mid-50's, have known each other since childhood but went our separate ways at the end of childhood. Fast forward through 30 years or so through our respective adult lives and marriages and divorces. We have been together of 4 years married for 3. We love each other very much. His mother has always been a big part of this marriage because she lives with us. She is 85 and has end stage CHF. My DH has 2 older siblings, a sister and brother. The brother lives out of town but is involved where he can be. The mother and sister don't get on well and she is reluctantly involved, if at all. I have known all along what CHF would eventually mean for her. I researched it. I found out what it really meant. I love this woman and finding out what would eventually happen to her just broke my heart. Now, here is the weird part, or at least weird for me: These people are all insanely in denial. 2 weeks ago she got dizzy on the way to the bathroom, passed out, apparently fell against a wall and got a compression fracture in her L2 vertebrae. Found out her hemoglobin was low which is what caused her to pass out. Her blood pressure was super low when they took her to the ER. This stay in the hospital lasted 10 days. She looked so terrible and was so frail that I began asking questions of my husband about her end of life care. What plans were in place? What did she want fr us to do about her care? Did she want to die at home? When I brought it up he was shocked. He was shocked that I asked about it and had never spoken to his mother about it. My husband is disabled and cannot care for her. No one else will help so it falls to me. It blows my mind that they will not talk about this. She is very bad. She cannot catch her breath. Her hemoglobin should be at minimum 11 and it is down to 8 but dipped to 6 in hospital. Yet she says every day that she will live to 92. Can a person with CHF be in denial right to the end? Do I have a right to talk to her doctor about what to expect? She has always been very cagy about her care, lies to us about it, conceals things from us. It is really hard to deal with. She doesn't want us going to the doctor with her. Until she fell she was still driving. Now we have to stop her or she could kill somebody else. Until her bak heals she will be stuck in bed. But some day she will want to drive. Money says I will have to be the one to tell her, even though she isn't my mother. My dad had alzheimers. I took care of him for many years but we had help and a plan. this is killing me. It's like they were all hijacked by aliens or see some kind of different reality where people with CHF live forever. I think I am going nuts.
Grannys Z said...
3 months ago
I am at my wits end, my husband had a stroke August 29, 2016. We have gone through physical and speech therapy for 6 months. He has improved, he can walk to the bathroom with no help but he has been urinating in all the wrong places. My coffee cup...which is now a planter, a jug of canola oil I had set out so I could fry fish, imagine my surprise and disuct when I poured it in my pan and all I could smell was oily urine. I have a carton I save egg shells in for my plants well this morning I fussed at the cats for getting into them as I found a few pieces on the floor but then I found the carton in the kitchen sink full of shells and urine. This is driving me crazy, I don't have anyone to help me, our daughter lives close by but she will only help if her husband is there to care for him and that might be a few hours every other month. I can deal with hI'm calling me names and trying to hurt me, I know that is the stroke but the peeing in everything is so gross. Any advice would be welcome. Sorry for the rambling.
4 months ago
My dad had a stroke on wednesday night. He currently can not speak although he tries to. I'm just so confused because some of the drs say he doesn't understand things. And others say he does understand most things. My dad was pretty much homeless and the when he was found the estimated that his stroke happens around 12 hours earlier. He hasn't taken the best care of himself (drug use) but he still my dad and I want him to get better but I also don't know what will happen to him once he is discharged.
4 months ago
a year ago today my husband suffered a stroke. He is doing pretty well. He is really working on his balance, so he can walk alone, and his speech. i decided to look for a support group for myself. How do i turn off my caregiver role and be his wife? thanks for listening, Red
5 months ago
Hi my 93 yr old nan suffered a severe stroke on Sat, we have been told she is the last stages of life. She is totally nil by mouth (no food or fluids) its her 6th day, she is still trying to talk to me and i know she is aware. She has now picked up a nasty chest infection, her lips are split and very sore due to total dehydration. How long does this last how long do people survive without food or drink. We the family have been told daily that she is unresponsive yet whilst sat with her she will call out my name or ask me a question, today i noticed her shivering and asked the nurser for a blanket. As soon as the blanket was placed on her she said she was cold. To me this doesn't sound unresponsive. She called my name 3 times yesterday and today told me she loves her family. The hospital she is at has her on a ward, i'm so upset by this, we have been told she should be in a side room with peace and calm but there is no space. She is dying with people watching. I heard her tummy rumbling all day today and also kept moisten her lips as she is so dry her lips are split and sore. She can hear everyone else on the ward having there meals and drinks. I'm so concerned as she is still with us and knows the food and drink are there yet is not being given anything. She raises her hand to her mouth as its so dry, she is wanting water but the hospital wont allow it. This has got to be the cruelest thing i have ever seen. How long does she have to go through this? They have told us there was a option to bring her home to die but now we cant, she has to stay on the busy ward with everyone's visitors coming and going. Its undignified, and where we want to talk, privately to her we cant. Im so upset. x x What can i do xx
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