Heart & Stroke Support Group
Caring for a loved one with a heart condition or who's suffered a stroke? Get tips, advice, and support in this online support group for heart and stroke caregiving concerns.
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What's New Today
where did he go said...
about 1 month
Hi I am back after having time to reflect all that is going on in my life with Mike. After his stroke and mental issues I have managed to find ways to cope with the mood swings and learning ways to diffuse the situations. The last one was wanting to ride his motorcycle but I had hidden the key and because of his recall and mechanical ability that day he found it was missing new keys have been acquired. So yesterday I heard the loud clunk of his riding boots and came in to the house but didn't say a word and he was just sitting in the chair. A little while later I saw him sitting in a lawnchair next to the bike but he never went for a ride. I am wondering if he realizes he shouldn't do it. A slippery slope for sure as he seems to have accepted not driving the cars but this has been his passion for 60 years and maybe he is trying to come to terms with it. I have tended to him with several accidents over the years and to be blunt if he gets in another wreck I hope it is the last. I would not be able to care for him if he is totally disabled or could I afford a home for him. Last night he just go ornery and went to bed at 8:30 and then woke me at 3am. What a dilemma but seems minor to some folks problems. Thanks for listening
about 1 month
My grandfather had a stroke 2 days ago. He is 89 and was suffering from dimentia (sunsetting). He is now "awake" but cannot speak or swallow. The dr is telling us we need to decide if we're going to give him a feeding tube. My mom says he didn't want us to "keep him alive" but I feel like we're killing him if we don't feed him. I am do conflicted and don't know what to do.
about 2 months
Hi group it's been awhile since my last post. I am going through a lot with my husband.. He is so mad because he can't smoke and now it's like he has ginev up on our sex life. Next month will be our 24 year anniversary..I don't know if I want ro even celebrate it. The doctor told him back in January not to smoke anymore because his heart is so weak..but he still does it..but he gets so mad because I tell him that he needs to stop..and please not to buy anymore..I'm tired and I don't know what to so please help me
where did he go said...
about 2 months
Well things seemed to be quiet for a couple of days re: Mikes memory from stroke in Nov. Doc had adjusted his med to 2 pills at bedtime. Was good for 2 nights. Then he never slept the next night so was up for almost 18 hours without any sleep. Had to drive him to town for a haircut which he couldn't get the day before with reg. person and wouldn't go to someone else so that doesn't seem to connect or he doesn't care about the 2 hr. round trip. Back home in great spirits, and after dinner his usual fall asleep in the chair and went to bed about 10:30pm. He woke me up at 3:30 am saying he couldn't find his insulin syringe. I have taken them all away as he can do that part of his med regimen any more and all the needles are hidden. His blood sugar didn't require any. I went back to bed and he was back at me about the missing syringe so just convinced him no insulin needed and fixed a snack at 4:00 am. He said he was sick of me and wanted a divorce. He finally went to sleep in his chair, and has been there ever since and it is now 9:00 am. Good thing I don't require too much sleep. Maybe the medication isn't the right one. He said if he had a gun he would end it now. They are all hidden. Well at least the sun looks like it is going to be out for the whole day. My salvation. Have a good day everyone and try to find some mental peace
My husband has. CHF..he has had it since 2011..we have been married for 24 years and I have been his back bone and support..but he talks to me like a dog..because he can't smoke..or if I tell him no salt..please help me#tiredofcrying
Too many doctors said...
My husband has CHF for many years now, he is also a diabetic and kidney stage 3b disease. My first thought is he has too many doctors telling him what to do, each one changes his meds all the time. Who do you listen too. We had a major life change in March of 2017. He went into a fib with rvr, ever since that he has been in and out of hospital to have fluid taken off. This past November he ask me to take him to ER he couldn’t breath, so I take him to one ER and they send him home saying nothing wrong, I was so upset with the dr because you could tell he was swelled with fluid retention. 12 hrs later I took him to an out of town Er and they admitted him, too 6 liters of fluid off within 7 days, he also during this time was put in ICU due to CO2 poisoning. He was breathing in but not out everything. My question is he has twitches or Shakes where he can’t control anything in his hands or himself, they are not seizures....everyone seems to put this on a back burner...I just brought him home from hospital again due to low potassium and they want him to only drink 50 oz of fluid a day. He puts out way more then he takes in, they seem upset about this, WHY? Also, heart dr says there is nothing else they can do for him, he has lost 32 lbs from fluid being taken off, there are times he gets confused. Any suggestions as to any help or what to look for would be appreciated
Ok so it’s the holidays. Everything was going great. I thought maybe we were over a hump. I guess I was wrong. I have been berated and insulted like none other. I’m struggling walking on eggshells. I have no idea what he’s saying. He’s telling me I’m saying stuff about him when I haven’t even opened my mouth. He’s trying to throw me out of the house
I’m new to this group. My husband had a stroke almost two years ago. He has aphasia and his memory was affected and seems to be getting worse. I was hoping he would improve over time. Physically he’s in good shape - does Pilates three times a week and walks the dogs twice a day for 30 minutes. He’ll be 85 December 23.
Joe mc said...
My wife is 39 she had a massive stroke on the left side of her brain. She was sent home November 14th. The doctors said they couldn’t find the bleed and doesn’t know how long it may be before she bleeds again. I tried to keep on a good face but some how all the weight came down on me Tuesday. I left with our little girl just to ride. Now her family tells me that I’m angry and need help because of the things I have said. I have been looking for groups such as this one. Maybe it will help if I just put it on here. She can’t talk walk or use her right arm. I have trouble being a caregiver. It’s hard to go to work then get home and have to work there I love my wife. I know now that I’m not the only one going thru this.
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