Heart & Stroke Support Group
Caring for a loved one with a heart condition or who's suffered a stroke? Get tips, advice, and support in this online support group for heart and stroke caregiving concerns.
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Do any of you have "unhelpful" instead of helpful children? My daughter supposedly came home to help me with her Dad. But every time he asks her to do something for him she acts like it is sooooo much trouble for her. I really wish she would just go away. She makes more work for me instead of less.
My husband was addicted to hydrocodone when he had his stroke. Afterwards I weaned him off of them, but since the mini strokes he has been in too much pain not to take them. My problem is that we fight all month about his dosage. He always wants more and usually badgers me until I give him more than he is supposed to get. Then, of course, he runs out before it's time for a refill. And that's a whole new mess of unwanted expenses, all the new hydrocodone laws.
about 1 month
If anyone could help id greatly appreciate it.
Let me give you alittle up to speed story on my heart health.... Since i was about 16 years old(now 21)... Ive had heart palpatations,anxiety, depression ect. I just chalked it up to be the events I was going through at the time found out it was sinus tachycardia and nearly died several times because of it(almost cardiac arrest).... For several years the palpatations went on now at 19 or 2o years old I find myself getting worse(and i mean i couldn't breath, sleep apnea ect.) so much so I went to the er 3 times before the dr told me what I had had and watching the heart monitor he told me it was "mitral valve prolapse." He did all he could to help me and reffered me to a cardiologist I waited too long to go this cardiologist because as by time i got to his office my chest felt like it was being crushed i was having trouble breathing, sweating ect. He did his check up and told me i had an abnormality and he gave me a sample med to try called "bistolic." And told me it would help me breath better and it did he gave me a two week prescription and took it as proscribed maybe a couple day from finishing the meds my body got used to the meds and they didnt help no more but i finished them... Never went back to him.... Then serval months later the chest pains shortness of breath ect. Returned with a vengeance went in a small walkin emergency clinic because i didnt think i was that bad to go the er and lo and behold the doc does his assesment of me and then hooks me up to an ekg (now mind you im laying flat on my back).. The tech does the test and quickly runs out of the room as if he found something i ask him "is everything ok?." He assures me that it is and i wait a few minutes for the doctor to come and he proceeds to tell me that i have left bundle branch block but you could barely see it and he said since i wasnt showing any sighns of high blood pressure he didnt give me anything to help since then (now 21) i went to a different cardiologist to get another opinion and we talked and eventually he set me up for a stress test and a electrocardiogram before the stress test he had me on a halter monitor and when the results came back he told me i had " extra heart beats." Ive been struggling off and on lately having extreme chest pains but now im just chalking it up to a fractured rib(which i dont how i got). I guess what im asking is does anyone think that either the mitral valve is back or still there and is quietly getting worse or is it the left bundle branch block thats come back or is still there and is getting worse? The only reason im concerened is that 3 of my family members ranging from 60-80 have died from severe cardiac arrest in the last 3ish years and both my parent have have pretty bad heart problems?
Thank you for taking time to read my post.. What should I do? The symptoms arnt too severe yet but im trying to catch them be for they get that way again.
An anonymous caregiver said...
about 1 month
It really irks me when a friend or family member asks how I'm doing or how I'm feeling (I care for my husband who has had a stroke), and then I tell them how I'm doing at that time, and if my answer is not - "I'm fine, doing okay" or something similar to that, then they downplay or are dismissive about what I say about how I am doing or feeling at that time. I know they mean well (I hope anyway) and at least they care enough to even ask. It makes me wonder why they even ask to begin with and what is really behind their being dismissive.
Some people only ask how my husband is doing, and tell us it's getting easier for us (as though they are the ones dealing day to day with it, and some will say I should get out by myself more now and have some time for myself (which I can not figure out how to do and so have just accepted it's not possible at this times anyway ... we can some days get out together even though it is usually an ordeal for us to do so) ... so I sometimes say - "so you will come stay with my husband for a few days or have him stay with you while I take a few days for myself?" Their look is like, well, no, and their response is nothing.
Some don't bother at all.
We also have a family member that will text about loving and missing us. So I say how they are welcome to come over (if they miss us) but then I hear nothing back. Another who says why don't you call (when they can themselves just pick up the phone and call if they want), etc.
Just so many irksome things like that which just makes me feel worse instead of more encouraged.
We thankfully do have one (elderly) family member that is very supportive and understanding. Very thankful for them and God and this place here.
about 1 month
My Husben been sent to hospital very low Bp with fever,. Come to find out the results of tests, infection in his blood, an What I understand about this infection if not taken care of u can die,, Thank God they caught it in time an He's no longer in danger. It's hard somethimes to stay calm in these situations, I lost it., so now We wait
about 1 month
Due to a stroke, my husband has lost 99% of his speech. Sometimes he still tries to talk to me as if I would be able to understand him. One time I asked him as gently as I could if when he tried to speak, did he hear (at least in his head) normal speech? I know this is a delicate and difficult subject, probably especially for men. But I wanted to know if he thought I should be able to understand him. He got so upset, I never brought up the subject again.
When my husband does try to talk to me, it's probably only a few words or a question, but I can't understand him. I have told him that I don't understand him, but he still does it. I don't want to discourage him from trying to speak. Does anyone have any suggestions?
about 1 month
My husband often says inappropriate things. Also he makes all these gross noises. And he pretty much refuses to take a shower or wear anything but his underware. I know this is because of the stroke, and after three years I should be used to it, but it's getting on my last nerve.
about 1 month
My husband had a stroke almost 3 years ago. Since then he has had several mini strokes. I'm not sure if this is normal but my intimate feelings have changed drastically. I still love him, but find it's more like I care about my children, rather than a husband. Anyone else?????
about 2 months
Hello All, thanks for having a place like Yours to be able to express an share Our situations. My husben Hector is in His 5th yr. of recovery an its been a journey. This yr we'll be Celerbrating Our 37th Wedding Ann, like everyone We have our good days an bad ones, lately His emotions of sadness have really come over Him, with prayer i try an turn it around, most times im good but there r times i get emotions as well ., any ideas, Ty
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