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Heart & Stroke Support Group

Caring for a loved one with a heart condition or who's suffered a stroke? Get tips, advice, and support in this online support group for heart and stroke caregiving concerns.

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Sma3367 said...

4 days ago

My dad just suffered through his 2nd stroke in the past 16 years. Of course, this was worst than the last. Hopefully, he'll be released from the hospital tomorrow, after being there one week, & admitted into Health South. I am more than happy to a attend his therapy sessions cuz I feel I can better care for him at home if I do so. My conflict comes in with matters of his live in gf that he has been the primary caregiver of for the past 10 years. She's not competent to take care of herself due to the pain meds she's on & I worry about her being in his house alone. She's constantly nodding off while smoking, burning pans & crockpots on the stove & misusing her pain meds. I know my dad would want me to take care of her the way he has but I feel that if I'm not giving him 100%, it's not fair to him. She does have kids who either refuse to help her or want to move in my dads house. He physically looks fine but has problems swallowing so everything has to be thickened for him, he also has memory & speech problems. Should I be worried about her prompting him when it comes to remembering people's names & events & speaking to him in baby talk or trying to give him Coke to drink hindering his therapy? I'm concerned he wouldn't progress as much with her presence but I know he calls her by name & is always happy to see her. I want to do what's in the best interest for my dad. Are there any assistance programs I could get to help me with her until he's better? I mentioned to her that I could hire someone to help with her housework & her appointments etc cuz that's time I can be there with dad instead and she fills telling me that she'll just pack her stuff & live in a storage unit. I expected the mood swings & being emotional from my dad but what in the world can I do for her?

Sheila1944 said...

4 days ago

emptynest said...

2 days ago

Evil Lab Monkey said...

12 days ago

Since my two strokes (hemorrhagic stroke Aug 31, 2014 and Ischemic Sept 1, 2014), I have been in a constant battle with the evil between my ears. I have done a lot of scholarship on every subject, from disability benefits, depression, anxiety, to law for the disability. And still that is no replacement for contact with others with the same infliction. Feeling alone and hopeless is unbelieveable,and no one who had experienced a stroke befor can not take this into context how we feel, the embarrassment, and the isolation because of our physical or mental deficiencies. I continue Picking Up the Pieces with A Broken Mind.......

Sheila1944 said...

10 days ago

Sheila1944 said...

10 days ago

Lorelai422 said...

about 1 month ago

Hi all,

It has been years since I have posted here. My aunt had a stroke about 3 or 4 years ago. I was her caregiver for awhile as she recovered and eventually she was able to care for herself. I posted a few times years ago because her personality and behaviors, which were difficult before the stroke, became impossible to handle after the stroke. It has only gotten worse, but when confronted about the behaviors she claims it is due to the stroke. Has anyone had experience with this? She also behaves in ways that are unsafe and has little regard for others. She told me today that she drives down the middle of the road when she thinks others are not around! She also refuses to care for herself. She eats junk and doesn't take care of her body. I am in a tough spot between cutting ties for my own sanity and staying because I feel guilty. Has anyone else seen such an intense change in a loved ones behaviors and personalities after a stroke???

Sheila1944 said...

about 1 month ago

tropu said...

about 1 month ago

wife of 40 years had stroke in feb 2016---crazy world now //don't know what or where to get help just don't know

emptynest said...

about 1 month ago

Beyond Tired said...

about 1 month ago

pj66 said...

about 1 month ago

Hi, My 19 year old son had a massive stroke one month ago tomorrow. We are still in the hospital but are hoping to go to inpatient rehab this week. This whole thing has been totally unexpected. He was a normal 19 year old healthy college kid until the stroke. Now his right side is paralyzed and he cant talk.. I have no idea what the future will be like and am reaching out to meet other people in similar situations. he is recovering slowly health wise but im having a very hard time getting him to eat or do anything. All he wants is more pain meds and to sleep. is it too soon for me to try and make him move

Beyond Tired said...

about 1 month ago

Jsands801 said...

about 1 month ago

LadyAngelic said...

about 1 month ago

Hi. My mother had a heart attack a few months ago and she now has 5 stents in her heart. Her health has improved over the past few months since she's had it done. I'm the only one of her 7 children taking care of her and I must admit that at times I feel resentful toward her when I know I shouldn't. I know this isn't her fault but I can't help feeling like I'm being punished for not doing more years ago. My fiancee and I are having issues and this is making me feel worse and worse everyday. I don't do anything anymore and I feel so lost and sad all the time. I make sure my Mom eats properly and she exercises everyday. I don't know how to handle this anymore and I feel as if I'm breaking apart inside. I could really use some advice on things I can do to make this situation better for everyone involved. Thank you for listening.

1of6grahams said...

about 1 month ago

Beyond Tired said...

about 1 month ago

NK said...

about 1 month ago

Does anyone have any experience with TAVR (transcatheter aortic valve replacement)? My dad was diagnosed with severe aortic stenosis last month. The only symptom he is having is swelling of the feet. He has slowed down a bit but can still get around fine and has no other medical issues. He is 90 years old. We are considering TAVR. The medical reports that discuss TAVR sound good, but I am having trouble finding longer term outcomes from this surgery such as 2 year and 5 year outcomes. I can't find any data on TAVR outcomes for someone that is 90 years old. I have heard of mixed results when doing TAVR, but can't seem to find data that is longer than 1 year out. I am wondering if the longer term outcomes are not being shared because the longer-term outcomes are bad. Also, has anyone found any medications or therapy that can lessen the severity? I am struggling to understand if it’s better to wait until more symptoms occur before doing TAVR. Right now, my dad is getting around fine but is starting to show some minor symptoms.. I would hate for his last few years to be miserable because of TAVR. I would really appreciate any experience that you may have that you could share with me. Thanks.

helpless sis said...

about 1 month ago

My sister had a severe stroke in April, 55 years old. She is still paralyzed on the left side. She was transferred to a rehab center...not making much progress physically. The biggest problem is my mother. She is unhappy with the rehab center and my brother in law. While he sometimes does things that aren't the norm, I don't comment. My mother is finding fault with everything he does. I should also mention my niece has special needs and my parents are 80! They have helped my sister's family with everything since the birth of my niece. I do not live in the same state as my parents and sister. I feel helpless and frustrated with my mom! She is angry and hateful right now. My father has been ill for several years and was even hospitalized for several months and then in a nursing home until April when they moved to assisted living which she hates! She has had a lot to deal with....we all have. She is just SO difficult that it is impossible to be around her. ANy suggestions would be great!

Chrisdom said...

3 months ago

IM 33 yr old male. Married almost 2 yrs and just purchased a home with my wife. I have a good job maintaining train cars was working 7 days a week. June 27 2016 I suffered a stroke due to a brain clot. I was hospitalized 9 days... I decided to go back to work 11 days after my stroke. I get very dizzy and IM more emotional and feel unlike myself. If I stop working we lose everything. What do I do?

Chrisdom said...

2 months ago

Sheila1944 said...

2 months ago

Lizzy2016 said...

3 months ago

I'm so frustrated!!!! Please help!!! I'm crying while writing. I don't know what to do! My husband had 3 strokes 3 years ago at 41 years old. He has lost strength in the left side of his body, he has memory issues, he can't work anymore. The big problem is that he is angry all the time and very aggressive. We have 2 teenager boys who don't even like to be around their dad. I ask him to go to therapy and he refuses. How can I help me and My family if my husband isn't willing to get help? I know that the personality change is due to the brain damage from the stroke. Any resources or advice would be appreciated

borderman50 said...

3 months ago

Grizzycat said...

2 months ago

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