Heart & Stroke Support Group
Caring for a loved one with a heart condition or who's suffered a stroke? Get tips, advice, and support in this online support group for heart and stroke caregiving concerns.
Help spread the support to more people in need -- Please tell a friend or two. Thanks!
What's New Today
7 days ago
My husband has. CHF..he has had it since 2011..we have been married for 24 years and I have been his back bone and support..but he talks to me like a dog..because he can't smoke..or if I tell him no salt..please help me#tiredofcrying
Too many doctors said...
12 days ago
My husband has CHF for many years now, he is also a diabetic and kidney stage 3b disease. My first thought is he has too many doctors telling him what to do, each one changes his meds all the time. Who do you listen too. We had a major life change in March of 2017. He went into a fib with rvr, ever since that he has been in and out of hospital to have fluid taken off. This past November he ask me to take him to ER he couldn’t breath, so I take him to one ER and they send him home saying nothing wrong, I was so upset with the dr because you could tell he was swelled with fluid retention. 12 hrs later I took him to an out of town Er and they admitted him, too 6 liters of fluid off within 7 days, he also during this time was put in ICU due to CO2 poisoning. He was breathing in but not out everything. My question is he has twitches or Shakes where he can’t control anything in his hands or himself, they are not seizures....everyone seems to put this on a back burner...I just brought him home from hospital again due to low potassium and they want him to only drink 50 oz of fluid a day. He puts out way more then he takes in, they seem upset about this, WHY? Also, heart dr says there is nothing else they can do for him, he has lost 32 lbs from fluid being taken off, there are times he gets confused. Any suggestions as to any help or what to look for would be appreciated
23 days ago
Ok so it’s the holidays. Everything was going great. I thought maybe we were over a hump. I guess I was wrong. I have been berated and insulted like none other. I’m struggling walking on eggshells. I have no idea what he’s saying. He’s telling me I’m saying stuff about him when I haven’t even opened my mouth. He’s trying to throw me out of the house
29 days ago
I’m new to this group. My husband had a stroke almost two years ago. He has aphasia and his memory was affected and seems to be getting worse. I was hoping he would improve over time. Physically he’s in good shape - does Pilates three times a week and walks the dogs twice a day for 30 minutes. He’ll be 85 December 23.
Joe mc said...
about 1 month ago
My wife is 39 she had a massive stroke on the left side of her brain. She was sent home November 14th. The doctors said they couldn’t find the bleed and doesn’t know how long it may be before she bleeds again. I tried to keep on a good face but some how all the weight came down on me Tuesday. I left with our little girl just to ride. Now her family tells me that I’m angry and need help because of the things I have said. I have been looking for groups such as this one. Maybe it will help if I just put it on here. She can’t talk walk or use her right arm. I have trouble being a caregiver. It’s hard to go to work then get home and have to work there I love my wife. I know now that I’m not the only one going thru this.
about 1 month ago
I know the holidays have everyone busy, especially those who are caregivers, so I just want to wish all of u busy people peace and love! Whoever ur god is, they love you, and I hope they will help you with the strength and calmness we all need this time of year
about 1 month ago
Today I was helping my husband get from his wheelchair to the toilet. He fell trying to turn around to sit down on the toilet.. I tried and tried to get him up, but i just could not do it. He said I was hurting him more every time I tried. I had to call 911 to get someone over here to help him up. His legs just give out on him a lot. His left leg is paralyzed all the time, since the stroke back in November 2016. He keeps talking about dying, which scares me.
3 months ago
I live in the state of CA. My fiancé had a stroke in 2014. He still needs 24 hour care of will for a long long time the way things are going. I can only work part-time because he cannot afford to pay a care-giver if I work full time. In the meantime he is running out of money and so am I not being able to work full-time. Does anyone know if there is a way to get help paying for his care-giver or to pay me for being the care-giver. He is only 64 so he is not on Medicare.
Load More Conversations