Heart & Stroke Support Group
Caring for a loved one with a heart condition or who's suffered a stroke? Get tips, advice, and support in this online support group for heart and stroke caregiving concerns.
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What's New Today
25 days ago
I live in the state of CA. My fiancé had a stroke in 2014. He still needs 24 hour care of will for a long long time the way things are going. I can only work part-time because he cannot afford to pay a care-giver if I work full time. In the meantime he is running out of money and so am I not being able to work full-time. Does anyone know if there is a way to get help paying for his care-giver or to pay me for being the care-giver. He is only 64 so he is not on Medicare.
26 days ago
My husband had a stroke in 2015 he has a gastric tube because he has swallowing problems he has a certian formula he has to use because he is diabetic and our insurance wont cover it or the supplies we need to feed him and keep his site clean even though its his sole source of food has anyone ran into this and is there anything we can do
29 days ago
My husband had a hemmoragic stroke 7 years ago. He was 58 and I was 54. He has cognitive issues with rightsided weakness. Also memory issues, anger out bursts at home and in public, problems with following conversations and plot issues. He cannot follow a TV show let alone a movie plot. Funny how we take these things for granted untill something like this happens. Our sons speak with him for just a few minutes as he can not follow a conversation. I say he has these issues however if you bring up sports he can discuss to no end. His Dr has told him he needs to focus on what is being said and think before he responds. He still dosent get it. I quit my job to take care of him and thats what I do. Whats more frustrating is I cant discuss our finances with him. He doesnt understand when I tell him we have to stick to a budget. I was asked to return to my previous job and was ready to accept. That was put on hold for now as he had a TIA last week. I do get out but when I return all I hear is “ youve been gone all day and Im alone.” A no win situation. People do not understand what Im going through at home. Thanks for letting me vent.
30 days ago
Hi everyone. I wanted to introduce myself since I’m new here. I’m caring for husband who had a severe hemorrhagic stroke in December 2013. I was 35 at the time and he was 45. He lives at home with me but I work full time. I have homecare come in at lunch and twice a week to give him a bath but otherwise I’m on my own. It gets really lonely. I just want to connect with other women who are going through what I’m going though. Especially at such a young age. Thanks for listening.
about 1 month ago
My husband just recently had his first stroke on June 24th of this year, unfortunately, it was a massive stroke on the left side of his brain. It of course affected his right side. He has been to several hospitals over the course of the last 4 months. He is now going to outpatient rehab, and was doing well, up until last week when he began having problems with his stomach, first it began where he was having issues having a bowel movement, then problems having a bowel movement frequently, and now back to being constipated. It seems to hurt him when he is having one. Has anyone else experienced this with their spouse? My husband is 48 years old, and was experiencing stroke symptoms before having the stroke, however, he was very active before hand.
3 months ago
My mom, age 73, had a thalamic stroke in May 2017. She is a musician and directs many musicals throughout the year and is the music director in a church. She cares for our 5 year old son with autism and has always had a go-go-go personality. Since her stroke she has become depressed and withdrawn which we expected. We got her on an antidepressant and into therapy but the antidepressant isn't working how she/we hoped and she's trying others. The biggest problem has been driving as her doctor has not released her to drive yet. She has a neuropsych exam next week which will help her neurologist determine if she's safe to drive. With her busy lifestyle this has been the source of much depression and tears and she now has said that if her doctor tells her she can't drive "she's done." She confirms that this means she's going to kill herself. Of course this is beyond frightening for our family and she seems to be void of emotion when she talks about it (maybe thalamic-related, I don't know). I am a mental health provider so have done my own assessment for ideation and immediacy and feel that she is safe with what we have in place for now (support, people around her, grandchildren). The problem will come in if she is told she can't drive which will be in the next month or so. I know how to handle if someone is suicidal, but I don't know how to handle it coming from my mom. We are very close and as the person who spends the most time with her (we live in the downstairs of her home so she can be with our son when he has therapy in our home). Has anyone else been through suicidality after a stroke? She has no physical issues or pain and gets around fine. We are feeling quite helpless.
An anonymous caregiver said...
4 months ago
So confused! So it's been 2 and 1/2 years since my husbands stroke and it's definitely changed our lives. He is 43 and I'm 41, our marriage isn't the same,nor is he the same , there's no affection, love making, nothing, I've taken on the roll as the caregiver and I'm no longer the wife. Physically he's fine, but it has affected him mentally. I'm so confused, do I hang in there and hope for things to change, and keep fighting or is this what I have to deal with for the rest of my life, I do everything, and I'm stressed to my max, very frustrated, mad, angry, and sad all at the same time, what do I do?
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