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Heart & Stroke Support Group

Caring for a loved one with a heart condition or who's suffered a stroke? Get tips, advice, and support in this online support group for heart and stroke caregiving concerns.

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ElaineWoolacott said...

18 days ago

Hi my 93 yr old nan suffered a severe stroke on Sat, we have been told she is the last stages of life. She is totally nil by mouth (no food or fluids) its her 6th day, she is still trying to talk to me and i know she is aware. She has now picked up a nasty chest infection, her lips are split and very sore due to total dehydration. How long does this last how long do people survive without food or drink. We the family have been told daily that she is unresponsive yet whilst sat with her she will call out my name or ask me a question, today i noticed her shivering and asked the nurser for a blanket. As soon as the blanket was placed on her she said she was cold. To me this doesn't sound unresponsive. She called my name 3 times yesterday and today told me she loves her family. The hospital she is at has her on a ward, i'm so upset by this, we have been told she should be in a side room with peace and calm but there is no space. She is dying with people watching. I heard her tummy rumbling all day today and also kept moisten her lips as she is so dry her lips are split and sore. She can hear everyone else on the ward having there meals and drinks. I'm so concerned as she is still with us and knows the food and drink are there yet is not being given anything. She raises her hand to her mouth as its so dry, she is wanting water but the hospital wont allow it. This has got to be the cruelest thing i have ever seen. How long does she have to go through this? They have told us there was a option to bring her home to die but now we cant, she has to stay on the busy ward with everyone's visitors coming and going. Its undignified, and where we want to talk, privately to her we cant. Im so upset. x x What can i do xx

ElaineWoolacott said...

16 days ago

Sheila1944 said...

15 days ago

galfromct said...

22 days ago

Help. My father has been to hospitals and rehab back & forth since June due to poor care and appartenly 2 strokes. We brought him home in August b/c we thought rehab care was going to kill him. He did ok at home even though he was 24/7 care and bed bound but could sit and stand. He was hospitalized again in Dec due to heart rate in 20s & 30s, were told he had a 2nd stroke. He's 79 and has a history w/ Lyme bulls eye rash. He has been in rehab again this time since Dec 15th. The care is okay, however the therapy is a disappointment.. Its not scheduled and there isnt a routine. The insurance is dropping rehab coverage. We are applying for medicaid and wanting to bring him home. I was informed home care medicaid is no different than facility medicaid. Then the social worker stated if we bring him home now medicaid will not cover his needed home care and we will be financially responsible. We're were informed he has to apply for medicaid facility in order to be able to bring him home, after 3 mos at the skilled nursing facility? He's suppose to be discharged tomorrow & I'm trying to figure this out and do know what information is correct. Anyone able to clarify? He lives with my mom and myself in CT. Not sure if we can bring him home or have to wait for medicaid to be approved, then bring him home...?

emptynest said...

19 days ago

Susan W B said...

29 days ago

My hisband suffered a stroke in Feb 2016. I had this grand vision of him being in rehab for 60 days and then coming home. Well I had to realize that wasn't going to be the case so now I'm having to look at reality. He will neve be able to return home and will live the rest of his life in a nursing facility. Something that he always told me he didn't want. The guilt I feel is overwhelming and if I could go back different decisions would have been made. But since I can't I have to live with the decisions I made and the guilt.

Susan W B said...

26 days ago

26 days ago

ThunderFan said...

about 1 month ago

My bother is 53. He suffered a stroke 6 weeks ago. He is in a IRF and thriving. They said his funding is up next week and I have to take him home even though his needs exceed my ability. We both want him to go to a SNF but he has no insurance. Social security/Medicaid pending. Can the rehab just kick him out even though he has no safe discharge??? Help!

Sheila1944 said...

about 1 month ago

26 days ago

dsmchef said...

about 1 month ago

I read about the benefits of beet juice. Is there a specific type or should I be using my vitamix to make my own?

26 days ago

prtlysny said...

25 days ago

October said...

2 months ago

I haven't been able to completely open any of the posts...I receive them, but since these sites were updated, I can't figure how to read any of them to the end. I click on 'see below', but I only get the beginning and nothing else. Please advise. Thanks, October

October said...

2 months ago

about 1 month ago

emgomez9908 said...

2 months ago

Is there a Specialist that can work with a stroke patient for dental work. My father suffered a stroke 3 years ago and is in need of dental work badly. I was advised that he needs to see a Hematologist to be able to get dental work(cleaning, cavities, extraction). He has Medicare ACO and Medicaid with HMO. Who can I reach out to...

Sheila1944 said...

2 months ago

NurseKathy said...

3 days ago

4RockinRob said...

2 months ago

My husband is a twice over stroke victim. The first one came in September 2001 then another in 2016. After the fist stroke he was able to go back to work and carrying on a normal life with medication. He only had small struggles like his speech. His stroke was at his brain stem due to a bent artery. The second stroke this year 2016 has left him with way more struggles and damage than the first. We are very lucky, he can talk, walk and think but he is not able to go back to the job he has done since he was 14 years old. He is now 57 and trying every day to start a new carrier. He is still able to do things so I felt guilty about even asking for help but I'm not sure how else to help him. He is so frustrated in even trying to write things or sign his name. He still goes to speech therapy each week but I know there is more out there that I can be helping with. I know there are thousands of people who are worse off and I'm so sorry for that but can anyone give me direction on how to deal with this? It has turned his life upside down and I thought that I can fix this but I can't. Please help.

4RockinRob said...

2 months ago

Sheila1944 said...

2 months ago

3 months ago

I lost my mother 4 days ago due to heart failure, She was 80. Doctors tried their best but unfortunately she could not be saved. In last 3 days, I have read online about heart failure and I have a question regarding her behavior during treatment in early stage of her treatment in emergency. Doctors found high BP and 587 level of Sugar in her body, just after she was admitted. She was already having too much difficulty to breath, wheezing and coughing up white phlegm. Doctor gave her Oxygen but she was constantly removing Oxygen Mask as she found it difficult to breath even with Oxygen mask. Doctor had also added some liquid medicine along with Oxygen pipe. But she was removing the mask regularly, Since she was able to listen at time, I requested her to keep Oxygen mask. After that she tried to keep that. Can any one pls tell me if she had problem in breath then why she was not convenient with Oxygen mask and why she was removing that regularly?

Sheila1944 said...

3 months ago

caringcw said...

3 months ago

my husband had a stroke in sept and now it is dec . We owe a rental property that we are going to sell but my husband to save the real estate agent commission wanted me to list it and show it. I am already overwhelmed with work I have to do so I told him I couldn't do it. He swore at me and called me F bitch and other unsavory words. This hurt me deeply and I had to call my daughter to come our and media for us. James and I were both crying. He appolized but he was like this before the stroke. Angry and mentally abuse. I cannot leave him because I have to take care of him. He is 81 and I am 75. Before the stroke I just left and stay in a motel for 2 days. He cannot cook for himself or do other things because his hand is impaired. He will not listen to reason when he is out of control. I cant leave and so feel stuck however he can be left alone for several hours.

2 months ago

dcypherz said...

17 days ago

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