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Heart & Stroke Support Group

Caring for a loved one with a heart condition or who's suffered a stroke? Get tips, advice, and support in this online support group for heart and stroke caregiving concerns.

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What's New Today

about 19 hours

Has anyone seen major changes in their loved one after a stroke? I am talking about issues with anger and how cruel the individual can be at times with the words that they say and the fact at how mad they can get.

about 16 hours

about 2 hours

Moumita said...

3 days

I suffer(ed) heart palpitations which were affects post my mother's murderer Vasudev Poojari rape,murder attempted me on Valentine's week 2016 & irritatingly I had got harshly scolded aloud, abused due to this by my gym trainer Alpana Bhattacharya(she tripped Bangalore,Mysore,stayed in same hotel room with Vasudev,etc). I need to be free of anxiety,stress,scream,tension,depression,severe bereavement,etc. I am God's creation and I love myself. May God bless! Stay good, healthy and happy.

5 days

Hi, I have a brother who suffered a stroke a year ago he lives in another state then me and living in a nursing home. Every nursing home I submit his medical records to denies him, one nursing home told me its the negative notations the nursing home notates on his medical records this is Ohio and I live in Pennsylvania I have a large family but no one is helps, no one travels to see him like I do and it is getting stressful plus consuming my life I need my brother close to home, I just dont know where to start and where to get the help. Please any advice

October said...

5 days

fallenangel5 said...

6 days

I had a stroke the day after I turned 49. All my Drs. told me someone was looking out for me because I should've been paralyzed on my left side. My stroke went through the bad part. I was in the hospital for a week and now I have a loop recorder in my chest. I have a lot of short term memory lost and I get angry very quickly now. Is this normal..... I'm also very depressed and full of anxiety, I just want my life back

Sheila1944 said...

5 days

October said...

5 days

15 days

My boyfriend and I are new in this journey. He had a massive stroke 8 weeks ago and has been home with 24-hour care and intensive PT, OT, and ST for the past 4 weeks. Before the stroke he was working out everyday, taking no medications, and enjoyed his life. We have been in a long distance relationship for 10 years, seeing each other often. He retired four years ago and I am still working, 4 hours from his residence. Fortunately, I had 50 sick days on reserve but these are dwindling quickly. His ambulation has improved to minimal fall risk status but continues to have balance problems along with residual right side weakness limiting some hygiene issues, he is right-hand dominant.. He initially had global aphasia. His cognitive has improved but still has problems with months, days, and timekeeping. He can identify pictures and tries to call them by name but speech has been very slow returning. He gets frustrated, understandably, because I cannot understand him and he cannot make me understand. His pre-stroke memory is intact but post-stroke memory is very limited. His short term memory is very affected. Fortunately, he has not been antagonistic but is his usual bullheaded self. I have been told that aggressive therapy is the key in the initial six months. I try working with him at home as instructed but he reacts as though I am condescending although I encourage and supportive. I am so torn between loyalty to our relationship and my home life, living alone, enjoying my privacy, working everyday, and not responsible for anyone but myself. I miss my adult children and ten grandchildren who live close to my residence. His sister lives 5 hours away and is retired. She came once to relieve me for one week. She has her life established, events, home, etc. If it were not for his adult child with a mental illness who lives with him, his sister would take him home with her for recovery. The adult child is not capable or responsible enough to assist with his care. I find myself becoming internally angry for the situation I am in. I did not bargain for this. Pre-stroke, he said he would never leave his home to reside closer to me. It is very rural and a great distance from the tyoe of excellent rehab he is receiving in the large city where he resides. Each day I pray for rapid restoration. When he goes to bed each night, there is still daylight so I enjoy my 2-mile walk with which I am accustomed bsck home. I pray and meditate during this break. Any advice?

Elizabethmc said...

12 days

mkjp5057 said...

12 days

17 days

So I’m a 42 yr old woman dealing with a stroke victim of 3 yrs, he suffers from short term memory loss, anger issues, a lot of cognitive impairments , impulses behavior, just wondering does it get better? He’s scheduled to go into cognitive behavioral therapy in August, or since it’s been 3 yrs, is this all the better it’s going to get!? Can’t take it anymore!!

17 days

Sheila1944 said...

17 days

Cyns said...

21 days

Hello, its been 5yrs since My Husben of 36yrs had His massave stroke, He's overcome alot during these yrs, but it hasn't been easy, Our lives not the Same, ajusting, steping up an taking over, Doing what needs to be done to keep Our Family aflot. He's in a long term facility where they take care of Him, im there with him everyday taking care, learning, researching ways to better Our situation. there are days i take for Me, like today,
so glad i came accross ur site, a place where others like Myself can seek help. He's bed bouned an able to be transfered to wheelchair by hoyer. i some day want to bring Him home, except Our home isn't accesible for Him an His needs

Sheila1944 said...

21 days

alwaystired said...

about 1 month

Caring for my husband who had a massive stroke. We have been married for 30 years, I am doing the best I can but feel like I am being crushed in the process. He has constant tantrums, never with his therapists, just with me, and nothing I do seems to calm him down. I am caring for him at home, and bring him to his therapies as scheduled. I can hardly believe how little understanding and support there is from health care workers for also the caregiver! It is a huge life-changing tragedy for both of us, and I feel so overwhelmed and exhausted. I would like to have him cared for at a facility since he is too much for me to handle and he is better with care staff, but my husband wants to be at home. I also do not have the money anyway to have him at a facility, and doctors and therapists have been pushing for me to care for him at home thinking that we are doing a great job of it. I tell them I don't think I can handle it much longer, but it doesn't seem to matter. Also, my husband has a family member that is ... in the name of "help" ... making things worse for us (feels like they are trying to overload me so that I'll have a break down and leave; and my husband gets really upset every time they do the opposite of what he wants). This has been a nightmare for us. I don't know what else I can do to make things better or to just get through another day of this.

about 1 month

about 1 month

about 1 month

It has been a year since my 47year mother suffered a major heart attack and several strokes all at once. She is now blind and has short term memory due to all this and is walking with a walker. I have taken over as her main caretaker and it has been a rough time. I have a 1 year old baby that also requires my full attention. I have also taken the road of a parent to my pre-teen sister. I am so overwhelmed that I am starting to feel depressed. my husband wants to move to a far away state, but in my heart I know I can't as there is no one else to take over her. my brother lives in a different state and is not willing to leave everything to come. My stepdad works and has to make a living to be able to pay the bills and home. I feel stuck. like I no longer have a life to call my own. I quit my job to take care of her and I no longer have a social life. what can I do?

Sharonboo said...

about 1 month

about 1 month

James_fromMI said...

about 2 months

My mother is 63 and recently had a severe stroke that has left her not able to talk, move any body parts and has minimal eye movement, which we try to have her respond to yes and no questions. She has been in the hospital/Select Care Facility now for 60 days with no improvement. She is a government employee and has been for many many years. Given her recovery is going to be long term, my sister and i (who are now her legal guardians) are wanting to retire her. Is there anything that we can legally do or go through to accomplish this? We are being told from the HR department of her agency that we cant retire her without her consent. But, given she cant do this how can we legally do this?

about 1 month

Sharonboo said...

about 1 month

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