All support groups

Heart & Stroke Support Group

Caring for a loved one with a heart condition or who's suffered a stroke? Get tips, advice, and support in this online support group for heart and stroke caregiving concerns.

Help spread the support to more people in need -- Please tell a friend or two. Thanks!


What's New Today

ThunderFan said...

6 days ago

My bother is 53. He suffered a stroke 6 weeks ago. He is in a IRF and thriving. They said his funding is up next week and I have to take him home even though his needs exceed my ability. We both want him to go to a SNF but he has no insurance. Social security/Medicaid pending. Can the rehab just kick him out even though he has no safe discharge??? Help!

ThunderFan said...

5 days ago

Sheila1944 said...

5 days ago

dsmchef said...

18 days ago

I read about the benefits of beet juice. Is there a specific type or should I be using my vitamix to make my own?

18 days ago

prtlysny said...

2 days ago

October said...

about 1 month ago

I haven't been able to completely open any of the posts...I receive them, but since these sites were updated, I can't figure how to read any of them to the end. I click on 'see below', but I only get the beginning and nothing else. Please advise. Thanks, October

October said...

about 1 month ago

18 days ago

emgomez9908 said...

about 1 month ago

Is there a Specialist that can work with a stroke patient for dental work. My father suffered a stroke 3 years ago and is in need of dental work badly. I was advised that he needs to see a Hematologist to be able to get dental work(cleaning, cavities, extraction). He has Medicare ACO and Medicaid with HMO. Who can I reach out to...

Sheila1944 said...

about 1 month ago

4RockinRob said...

about 1 month ago

My husband is a twice over stroke victim. The first one came in September 2001 then another in 2016. After the fist stroke he was able to go back to work and carrying on a normal life with medication. He only had small struggles like his speech. His stroke was at his brain stem due to a bent artery. The second stroke this year 2016 has left him with way more struggles and damage than the first. We are very lucky, he can talk, walk and think but he is not able to go back to the job he has done since he was 14 years old. He is now 57 and trying every day to start a new carrier. He is still able to do things so I felt guilty about even asking for help but I'm not sure how else to help him. He is so frustrated in even trying to write things or sign his name. He still goes to speech therapy each week but I know there is more out there that I can be helping with. I know there are thousands of people who are worse off and I'm so sorry for that but can anyone give me direction on how to deal with this? It has turned his life upside down and I thought that I can fix this but I can't. Please help.

4RockinRob said...

about 1 month ago

Sheila1944 said...

about 1 month ago

about 1 month ago

I lost my mother 4 days ago due to heart failure, She was 80. Doctors tried their best but unfortunately she could not be saved. In last 3 days, I have read online about heart failure and I have a question regarding her behavior during treatment in early stage of her treatment in emergency. Doctors found high BP and 587 level of Sugar in her body, just after she was admitted. She was already having too much difficulty to breath, wheezing and coughing up white phlegm. Doctor gave her Oxygen but she was constantly removing Oxygen Mask as she found it difficult to breath even with Oxygen mask. Doctor had also added some liquid medicine along with Oxygen pipe. But she was removing the mask regularly, Since she was able to listen at time, I requested her to keep Oxygen mask. After that she tried to keep that. Can any one pls tell me if she had problem in breath then why she was not convenient with Oxygen mask and why she was removing that regularly?

Sheila1944 said...

about 1 month ago

caringcw said...

about 1 month ago

my husband had a stroke in sept and now it is dec . We owe a rental property that we are going to sell but my husband to save the real estate agent commission wanted me to list it and show it. I am already overwhelmed with work I have to do so I told him I couldn't do it. He swore at me and called me F bitch and other unsavory words. This hurt me deeply and I had to call my daughter to come our and media for us. James and I were both crying. He appolized but he was like this before the stroke. Angry and mentally abuse. I cannot leave him because I have to take care of him. He is 81 and I am 75. Before the stroke I just left and stay in a motel for 2 days. He cannot cook for himself or do other things because his hand is impaired. He will not listen to reason when he is out of control. I cant leave and so feel stuck however he can be left alone for several hours.

Sheila1944 said...

about 1 month ago

about 1 month ago

Cfulton99 said...

about 1 month ago

Hello. I am new and would like to introduce myself. I am stay at home mom of three. My husband was diagnosed with stage 4 cardiomyopathy at age 40. He was implanted with an LVAD two months later. At age 42 he had a severe stroke that left him nearly completely deficient in his left side which left him bound to a wheelchair. Eight months after his stroke we found out that he also has thyroid cancer. He underwent a total thyroidectomy three weeks after diagnosis. When he had his stroke we determined that it was no longer practical for me to work since he requires 24/7 assistance and monitoring. All of these changes are taking its toll on me. I have difficulty dealing with the loss of intimacy in our marriage as well as the issues with going places due to the difficulty of transporting him and limited wheelchair access into friends' homes and our regular places of entertainment/hangouts. All of these changes to our lives have occurred since October of 2014. It has been a real shock to all of us.

COACHT said...

about 1 month ago

My boyfriend had a stroke on Saturday. It was mild, but has lost some motor skills on his right side. All week he has been appreciative of my help, support. Last night at the hospital, he said he hated me, doesn't want me there, and that I don't love him and I want to be with someone else. I'm crushed.

Sheila1944 said...

about 1 month ago

about 1 month ago

MimiGau said...

about 1 month ago

My dad had a stroke 5 years ago and my mom has had a TIA a few years before my dad. For the last 2 years I have been their primary caregiver. I am not well myself but their needs have become more important.

My mom had open heart surgery this year in June. She nearly died the day before but they sent her home. She was in the hospital for a week. I was juggling both parents at the same time.

If the stroke wasn't enough for my dad, he had 2 back surgeries, a prostate surgery. A year ago, he fell off a bar stool and broke his hip. That's when everything went crazy.

In the operating room something was contaminated. He's been in pain for a year. He had a second opinion and had another surgery last month. The infection is almost gone, but he will have to wait until January for the full hip replacement. In the hospital he had a few mini strokes but the nurses didn't listen because he was talking.

I am utterly exhausted since he's been home. He needs 24 hour care. My doctor and counselors think I have reached caregiver burnout. Can anyone tell me about how to get out of burnout and keep taking care of them?

MimiGau said...

about 1 month ago

Sheila1944 said...

about 1 month ago

Load More Conversations