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Heart & Stroke Support Group

Caring for a loved one with a heart condition or who's suffered a stroke? Get tips, advice, and support in this online support group for heart and stroke caregiving concerns.

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JenLosingIt said...

5 days

Single mother raising two kids now supporting my mother who's had a stroke and lives, for now on her own. How do people do it? Maintain an over 50 hour a week job, teenager that's active in sports, a 6 year old, and now my quickly aging mother. I 'm at loss and am on the verge of a breakdown. It seems finding time to sit and have a moment is in the car in between errands or running between houses. Tell me it gets better. Worst part is I find when I do take time for myself, being single at 42, my mother and kids guilt trip me. I NEED help.. no family no real friends :(

Sheila1944 said...

5 days

11 days

My husband is 48 in a nursing facility. We are 7months in. He cannot talk but uses his eyes to respond yes/no...he cannot move although he is now moving his hands more. He can sit up better now with support. However the facility and doctor's there do not support any ideas to truly help him progress. I was yelled at for wanting him to see a nurelogist which he hasn't seen in 6months. I do therapy ...I learn to suction him as and because of lack of staff,,I learn how to bathe him alone. I administer his feedings because it takes the nurse hours to come and do it. I do this after working my job. I know hes depress and although I try to keep him encourage and give lots of love ...its still hard for him. I want to bring him home. I'm trying to get home as at this point....we both are hurt and miserable there. If I got to do all the work anyway, I might as well be in the comforts of our home. Waiting to see if I can get a nurse while I'm at work and assistance setting up my home to aid him. He desires home and I miss his presence too. I know this is a great undertaking and I have my fears too...but the route we are going....its going to get us both if something doesn't change. Do anyone have any knowledge, wisdom to help me in this transition. I live in GA. Very little family help as of course...because....I got it....in their words. But to have a life, especially the life of the one you love so dependent on your every decision....can be overwhelming. We were only married 10 months.

Sassy16 said...

10 days

8693742 said...

18 days

My husband had a stroke 2 years ago. we have bought 2 pairs of dentures and are having trouble with bite lining up.. Is it possible that the stroke caused his jaw to be twisted and inability to have bottom dentures?

Sheila1944 said...

17 days

Trying2018 said...

11 days

Nancypooh said...

about 1 month

Anyone out there have or care for someone with asphasia that's had success in getting fitted for glasses? Any advise how to help an optician that's not experienced in this? Articles and sites welcome. I did see one from a doctor in Ontario which makes me think it is possible.

Nancypooh said...

about 1 month

18 days

about 1 month

Hi this is the first time I have posted...3 years ago my husband had a stroke & continued with his lifestyle after the stroke...he has diabetes & will not control it...then last April he got gangreen & had 2 toes removed, while he was still in the hospital he had a heart attack, for 4 weeks he was to sick for surgery & then they did the surgery (4 bypassed) after he recovered for that they amputated his foot (BKA). He still will not control his diabeties & now is refusing to go to the dr. All of this time because of the high sugars he has had massive mood swings.I just feel very lost right now..I am always tired & have lost interest in everything..just before all of this happened my only support (my sister) passed away...some days I don't even want to get out of bed.

Sheila1944 said...

about 1 month

Elizabethmc said...

about 1 month

about 2 months

I experienced a Major Stroke in 2001 at age 40. I am now 57 ; but require a different, safe environment, which is closer to my Providers at NWH. I have both Medicare and Medicaid services. I would appreciate your sending me an application for an apartment if you have Apartment Rentals for Lower Income people like myself. Thank you very much for your consideration. Sincerely, Shelley Mintz

Sheila1944 said...

about 2 months

where did he go said...

3 months

Hi I am back after having time to reflect all that is going on in my life with Mike. After his stroke and mental issues I have managed to find ways to cope with the mood swings and learning ways to diffuse the situations. The last one was wanting to ride his motorcycle but I had hidden the key and because of his recall and mechanical ability that day he found it was missing new keys have been acquired. So yesterday I heard the loud clunk of his riding boots and came in to the house but didn't say a word and he was just sitting in the chair. A little while later I saw him sitting in a lawnchair next to the bike but he never went for a ride. I am wondering if he realizes he shouldn't do it. A slippery slope for sure as he seems to have accepted not driving the cars but this has been his passion for 60 years and maybe he is trying to come to terms with it. I have tended to him with several accidents over the years and to be blunt if he gets in another wreck I hope it is the last. I would not be able to care for him if he is totally disabled or could I afford a home for him. Last night he just go ornery and went to bed at 8:30 and then woke me at 3am. What a dilemma but seems minor to some folks problems. Thanks for listening

3 months

where did he go said...

3 months

4 months

My grandfather had a stroke 2 days ago. He is 89 and was suffering from dimentia (sunsetting). He is now "awake" but cannot speak or swallow. The dr is telling us we need to decide if we're going to give him a feeding tube. My mom says he didn't want us to "keep him alive" but I feel like we're killing him if we don't feed him. I am do conflicted and don't know what to do.

Sheila1944 said...

3 months

where did he go said...

3 months

4 months

Hi group it's been awhile since my last post. I am going through a lot with my husband.. He is so mad because he can't smoke and now it's like he has ginev up on our sex life. Next month will be our 24 year anniversary..I don't know if I want ro even celebrate it. The doctor told him back in January not to smoke anymore because his heart is so weak..but he still does it..but he gets so mad because I tell him that he needs to stop..and please not to buy anymore..I'm tired and I don't know what to so please help me

4 months

4 months

where did he go said...

4 months

Well things seemed to be quiet for a couple of days re: Mikes memory from stroke in Nov. Doc had adjusted his med to 2 pills at bedtime. Was good for 2 nights. Then he never slept the next night so was up for almost 18 hours without any sleep. Had to drive him to town for a haircut which he couldn't get the day before with reg. person and wouldn't go to someone else so that doesn't seem to connect or he doesn't care about the 2 hr. round trip. Back home in great spirits, and after dinner his usual fall asleep in the chair and went to bed about 10:30pm. He woke me up at 3:30 am saying he couldn't find his insulin syringe. I have taken them all away as he can do that part of his med regimen any more and all the needles are hidden. His blood sugar didn't require any. I went back to bed and he was back at me about the missing syringe so just convinced him no insulin needed and fixed a snack at 4:00 am. He said he was sick of me and wanted a divorce. He finally went to sleep in his chair, and has been there ever since and it is now 9:00 am. Good thing I don't require too much sleep. Maybe the medication isn't the right one. He said if he had a gun he would end it now. They are all hidden. Well at least the sun looks like it is going to be out for the whole day. My salvation. Have a good day everyone and try to find some mental peace

Sheila1944 said...

4 months

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