End Of Life
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Does anybody know an active support group to help me in a National campaign against this cruel end of life Pathway installed on people ? Whereby NO allowance for ANY recovery or potential recovery is given.
Please inform me somebody I need help with PTSS talking therapy not helping need the latest successful therapy that I know is out there but I cannot afford. Thankyou.
My mother was put on an End of Life programme by use of a 'driver', unknown to me (who was her full-time carer , ' I was sidelined ' by medics etc ) but known to my siblings who had POE was put on end of life plan by use of a driver installed. Mother had UTI which wasn't treated fully (she did have trouble swallowing). I was horrified to learn she was on this programme as I watched her deteriorate rapidly since installation of the driver and the medicines. Some of Mother's medicines were withdrawn first day after installation of driver including her HEART tablet. Mum had no fluids or even a drip, after my request after 5th day of mainly nil by mouth. It was mortifying to hear the GP's reply to me after I requested her to go on the drip, he said "we do not put people in a drip who are in end of life programme" ,I chillingly protested "my mother is pleading for fluids and seriously dehydrated during one of the hottest weeks of the year". Mother did have Dementia but major part of her days were of lucidity and cognitive awareness. Mother was 96. Mother suffered 9 days of mainly nil by mouth was heartbreaking after seeing signs of recovery after partial slow patient hydration by myself, yet my assertions to medics and DNs was ignored. Needless to say the time allotted end of life programme was fulfilled by the final deadly administration of injections given that night before she died in the home we shared. To this day I still feel mother may have pulled thro had I been listened to. Mothers death certificate strangely put as number one cause of death Old Age. I was informed by two medics that it is unusual to put end of life programme in place by use of a driver to people who do not have a terminal illness. Yet I do know old age is terminal but certainly not an illness. I not only suffering grief but also Post traumatic stress syndrome as I have been told by a therapist whereby I get flashbacks to dear mother muttering "thirsty" "thirsty" but Dns were not at her bedside to hear that thro the nights and early mornings. This U believe is potentially a national issue. As to me it is not unlike the Liverpool End of Life Pathway which was supposedly done away with.
My husband died after a Massive Stroke on June 10, 2018. He was hospitalized and on life support for 7-months. I had to return to Israel for the funeral. I think I have been numb emotionally as I have traversed this crisis in life. I am adjusting to living alone and not depressed. I have had so many details to take care of. I would like to communicate with others going through this transition.
Hello Community Members,
The end-of-life online support group is here to help you through all the difficult decisions and emotions involved in the before and after of losing a loved one. (https://www.caring.com/end-of-life). Connect with others willing to listen, and get support for end-of-life challenges. Learn how others are coping with grief, and post your tips and advice too. Come as often as you need to share, vent, ask questions, and feel less alone.
Additional resources that may be helpful:
Help spread the support to more people in need -- Please tell a friend or two. Thanks!