Diabetes Support Group
Helping a loved one with diabetes manage his/her diet and blood sugar levels? Medication(s)? Related health concerns? Get tips, advice, and support in this online support group for diabetes caregiving concerns.
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What's New Today
11 days ago
I'm very new to being a "caregiver" of someone with type 1 diabetes. It's almost 30, and was diagnosed around 15. He is on an insulin pump, and is on that monitor that can watch for trends in your sugar levels, that you can track on your phone. I may be new to this, but I'd like to think the highs/lows can be controlled to some level and shouldn't happen as often as it does. Last night he got home from work, checked his levels and he was good at 129 (he's 6'1" and about 150lbs. He had a can or 2 of juice, some chicken noodle soup (I want to say he said he gave himself some extra insulin so he could have another sugary can of juice but I could be wrong) and went to bed. At 11:30 I woke up to him in the kitchen, cracking 2 cans of juice, coming back in the bedroom to check his levels and he was at 41. And he wondered how he was even up walking around and talking with them being that low. He has a shitty diet. Works 10-12hr days 4 days a week, at a restaurant but eats 1 meal a day when he works, 2 when he doesn't, and snacks on crap (chips, for the salt), gummy bears, etc. am I that naive? Or is he not doing what he should to manage this better? I've been with him 3 months, almost 4 and it worries me. I know he's a grown man, but since we've been together, I've heard of him having levels between 200-550 3 different times, and last night was the first time I was there where his levels were that low. He could have gone unconscious, from what he's told me, if they got any lower. What would have happened if I wasn't there?
26 days ago
Left my insulinin car and didn't realize it was ruined resulting in something I have ever experienced before. Very high sugar level resulting in such strong muscle cramping/fatigue that I still hurt 5 days later. I assumed it was acid but it has not gone away. Any thoughts?
3 months ago
I am concerned about both of my parents who are diabetic. My mom has pretty much stopped driving because of vision issues BUT she is dragging her feet going to the doctor. My dad is complaining about pain in his feet and fear of falling from imbalance or numbness. Both of them are fairly young, 65 & 63. I'm currently caregiving for my husband who has a lung disease. I attend his doct appts to stay on top of what's going on with him. Now I feel like I need to do the same for my parents, though neither has asked me to. For my dad, especially, because even though he talks about what's going on with him, I suspect he's not getting himself to the doctor in a timely fashion because he's scared. In addition to diabetes, he has Krohn's Disease, which he hasn't had properly treated in 10 years and my cousin, who is a nurse, told him that left untreated that could develop into cancer. So now he's really scared. I've heard that diabetes is a silent killer and my husband has two cousins who have both had limbs amputated due to diabetes.
Please advise on how I can and should get involved in my parents' medical care.
3 months ago
Hi everyone - I've been hoping there would be an online group of this nature out there somewhere. My husband was diagnosed with diabetes in 1997, and he is 46 years old this year. We recently found out that he is in the approximately 1% of diabetics where the neuropathy will attack the spinal column. He had been diagnosed with diabetic amyotrophy, diabetic thoracic radiculopathy, and diabetic autonomic neuropathy. These are complications on top of his sugar, hyperthyroidism, retinopathy, and his kidneys are in a state of failure. He went blind overnight with only about 10% of vision remaining Oct 2014, and he was holding steady until about 6 weeks ago. We had no idea what was causing him to decline so quickly until yesterday. I have been able to modify my work schedule to be able to work from home when I can in the afternoons, but lately it doesn't seem enough. He can't dress himself, bathe himeself, brush his hair or his teeth himeslf, and there are times that I feed him as well. I go to work and deal with stress there, I come home and I don't stop. I feel horrible when I feel relief when he doesn't want to get out of bed. I feel horrible when he stays in bed all the time because of the pain and lack of mobility. It seems lately the doctor's have been changing his medications on a weekly basis, and that has been wrecking havoc on his eating habits. I feel lost when trying to get assistance anywhere. I want to be able to stay home with him, but I know we can't go down to his SSD income. I'm sitting on my bathroom floor right at 12:30 in the morning because I can't stop thinking there has to be something I need to be doing. Does this feeling ever stop? I'm typically the strong one of my family, but I've just about reached my limit. We have a long road ahead of us, and I don't see how this is going to get any better.
3 months ago
My husband of 32 years , Type 2 diabetic for 25 of them, having more and more health issues relating to the disease but his mood swings are basically now a daily, sometimes several times a day, issue. I am basically now a nervous wreck and walking on egg shells constantly. I can immediately detect when he is too high or low, heck, even the Dog senses it! If I suggest he checks his blood sugar it enrages him, if I try to not acknowledge the anger and try keeping the peace, it engages him. I am at my wits end and don't know what to do..he does not believe he has these swings so what do I do? ( other than grab more tissue like right now)????
A fellow caregiver said...
3 months ago
I needed a support group to help me when it gets to be too much dealing with my husband. He has been Type II diabetic for 20 years now but the last 9 years have been the worst. He has heart disease now. But, and I don't know if anyone else has this problem, but his mood swings are what are getting to me. Does anyone have this same problem? And, how do you get a 60 year man to change how he eats? I'm out of ideas.
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