COPD Support Group
Welcome to this online support group for caregivers, family, friends, and others with an interest in COPD care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with COPD. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone. You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.
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What's New Today
5 days ago
We had to evacuate for Hurricane Irma. We evacuated to my ex's with my present husband and his 86 year old mother because my ex had a generator. We also had 7 large dogs and 10 cats......i am surprised I am not in the hospital. We lost power on sunday night at 7 pm....on tuesday my son got power back where he lived so we moved over there....i had to pack all of our stuff by myself into her van and my car in 90 degree weather with no a/c......We finally got power and learned that our home had not substained any damage on Wednesday...i had to go over to our house..45 minutes each way...and turn a/c on before i could bring him home.... After 6 days I was finally able to take a shower and sleep in a bed...i had let everyone else have beds and i slept on inflatable mattress.. Now we have to be readmitted into hospice because we evacuated to a different county
Jerusha James said...
8 days ago
It seems none of us are on here very often anymore, maybe it's because we are each dealing with so much. I am trying to keep a positive attitude and realize that what I am dealing with is only temporary, in the grand scheme of things it is a light affliction although some days it feels like a dump truck full of poop has been dropped into m life, again this will pass. My MIL is still smoking (outside on the front porch) and when I come into the house through the garage it is the first thing I smell. I guess I am going to have to keep a can of air freshener close by. If she can smoke then she is going to have to handle the effects of the air freshener. I have had enough of her damaging our home. Because she lived down stairs for a little over 6 years and smoked down there she has cost us hundreds of dollars to repair everything not to mention the $1500 filter we had to put on our furnace to keep the smell out. I am frustrated and trying to handle this the right way with out just telling her off because she is still disrespecting me in my own home, I will find my way. God help me.
15 days ago
I am sitting here trying to get all of our plans to evacuate from hurricane irma if we need to...we live on west coast of florida.. I have made arrangements with my ex-husband to go to his house 40 miles inland from gulf...he has generators so we can still have his O2 if we lose power there....we live in a manufactured home as does my mother in law and are first ones required to evacuate......am really nervous about this storm and i have been in fl for 40 years....kéep us in your thoughts
19 days ago
OMG! I get so bleepin' mad at her when she smokes!! I'm feeling full of rage, expletives burst out of my mouth where she can't hear - thank goodness, then the tears start to fall. This is one vicious cycle.
So depressing to feel this way. You'd think she'd quit just because of seeing what it does to me, her "beloved". What a load of crap. Mad at her for not caring about her health and mad at her for not caring to stay with me longer...7 minutes per cig yeah that's a lot of minutes stacked up against me.
I've got sooo much work to do around the house and on this computer it's not even funny. But right now I can't do any of it. No focus there, instead it's all on how I feel mistreated. This is just the sh*t, isn't it?!
It's not just the fact that she's had a butt, but since she uses a walker for mobility issues and has an inner ear disturbance she tends to get dizzy quite easily, any time she moves her head too fast. Add to that a lack of oxygen and yeah she can go down real fast. So, do I get to leave and deal with my issues? No. I can sit here and say I don't care if she does fall but of course I do. I don't want her to hurt any more than she already does and if she does get hurt who do you think is left to pick up the pieces and take (more) care of her?
Now she's knocking on the door which means for me to get up and turn on her concentrator and take the line to her. Yikes. Keep my mouth shut, please. How to cope and not burst?
An anonymous caregiver said...
21 days ago
My hudband's 1st trip to the ER was in 1998. He continues to smoke, never leaves the house, bathes 1 or 2 times per month, has severed all family ties, and ignores the advice of hid doctor. He is a Vietnam Veteran. 70 years old. I have tried all I know to try to get him to share his thoughts with me without success. I am reaching out to you for any suggestions. I do not want to give up; but after almost 20 years of COPD and PTSD, I am at the end.
23 days ago
I've been dealing with my boyfriend s COPD since 2006 he spent two weeks in the hospital in that time he was put on a ventilator, feeding tube then diagnosed with throat cancer.does anyone have any suggestions to help me deal with the anger I feel toward him because his COPD is caused from smoking I'm angry but I also don't know how to comfort him he won't talk about it
30 days ago
My husband is in stage 4 of COPD and he has problems with swallowing (not related to COPD) we were use to him getting aspirated pneumonia about once a year or so but this year alone he has had it 3 times so far. My question is in the last several months he has become very argumentative and says a lot of mean things and has become very spiteful, is this type of behavior normal for someone in stage 4 COPD?
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