COPD Support Group
Welcome to this online support group for caregivers, family, friends, and others with an interest in COPD care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with COPD. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone. You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.
Help spread the support to more people in need -- Please tell a friend or two. Thanks!
What's New Today
4 days ago
My husband has had COPD for years and is on oxygen 24/7, he heard about stem cell help and now wants to try it. I try to explain to him that he is 72 years old and we are on a very fixed income. One, we can't afford it and two, they probably won't do it because of his age. He wants to send out a help request and see if he can get donations to have it done. He figures it will cost at lease 70,000.00 dollars from every thing he has read and heard. That to me is begging for money and I can't do that plus with his age I still don't think they will do it. Am I wrong on this? Am I being selfish about the begging? Has anyone heard of this stem cell operation and does it work? Does anyone know what the requirements are to be accepted for this program? I don't see them doing it for a 72 year old person instead of say 35 year old who has a lot of living to do and has possibly young children. What do you think? Please help me, I am so confused.
Me Julie said...
13 days ago
My mum has COPD. She had cancer and half of her lung removed 10 years ago however still continued to smoke. She has good and bad days, however over the past few months they have been more bad. I take her to the shops and she can only just walk round. She doesn't really eat and so is losing more and more weight. She constantly coughs stuff up and will not go to the doctors, I think because she doesn't want to be sent to hospital. It's heartbreaking and my poor dad has no life, he's just watching her slowly fade away. I really don't know what to do.
20 days ago
Just discovered this support group, and, after reading some posts, feel a bit less alone. My husband, who is 73, has been on oxygen for 2 years. He is very angry, and spends most of his time sitting in front of the TV. He doesn't want me to leave, and I have to argue with him every time I do. No family in area, and friends have disappeared. Will keep checking out posts here to help me. Thanks
20 days ago
My name is Gina. My husband will be transferring to a sub acute facility soon. He has had many medical setbacks which have prevented him from being weaned off a ventilator. I'm very worried he will not get the attention he will need in order for him to be weaned. What should I do and what do I need to know in order for me to get him the attention he will need?
Hopeless mom and wife said...
29 days ago
My name is Susan. My husband James is 50 years old. Almost three years ago he had a heart attack, his artery was completely blocked. During all his follow up doctor visits it was discovered he has emphysema. Also last summer he was found to have blood clots in his lungs. His emphysema is at stage two however he continues to smoke. I am fearful of losing him if he doesn't quit but I know only he can make that choice. I am 41 years old, we have two daughters 12 and 4. I am dying on the inside and don't know what else to do. We've tried many doctors and programs. Feeling hopeless.
An anonymous caregiver said...
about 1 month ago
My wife has severe copd last test she had, her fev1 was 18% not sure of the 6 min walk, BMI 30.47, BP 153/83, pulse 89 ,presp. 18 ,SpO2 93% she's on oxygen mainly at night and occasionally during the day several inhalers, she takes an antidepressant, and has refused lung transplant and was on a ventilator for 10 days back in 2010 she stopped smoking at that point until last year started back up maybe a pack a week.. Guessing. She's very moody, serve mood swings sometimes gets fiscal, agrues about little things, wastefully spending, buying very expensive dogs now have 6 and can barely take care of herself and I personally don't have time when I am trying to work and support the home. I am looking for answers on her over all health condition and any advise on her anger issues will be greatly appreciated... Thanks
Carly's mom said...
about 1 month ago
Hi everyone, mal went to the new pulmonologist and he is very good and thorough. He made some changes to the meds and told Mal he would begin to feel better. The next day he was in bed with sob, tight chest. he seems breathless all the time. does purse lip breathing 24/7., Has anyone talked to the dr. with out the patient being there? I cannot figure out if he is being overly cautious or really needs to be in bed. this man does nothing all day but sit. or lay. I cant get him to go to rehab. Meanwhile, My granddaughter is in swim finals in Rehoboth beach, DE. I have been invited to go with the family from the June 23 to the 30th/. I cant go with any piece of mind, because he hates when I am not here. there is no one else to help., And I am beginning to feel so resentful. I am missing time with my family because he is afraid. and I am afraid for him. I am so tired of feeling guilty and my family is upset because I turn them down. Did I mention the 2 dogs who have to be walked, or the fact that I am building a new business. Selling mobile homes, because his meds and oxygen and motorized chair and lift have cost a fortune. Sorry for the rant, but I just feel like I am going to explode. The last thing I want to do is make him feel like a burden. Any suggestions' will be appreciated.
about 1 month ago
Hi, my name is Michael and my girlfriend has advanced stage COPD. I am starting to feel alone and a failure as her caregiver as I have not been able to find any type of support. At times I feel totally overwhelmed just trying to get thru a day. There is always so much to do and at times it seems impossible to accomplish even the normal daily activities. I've noticed feelings of resentment and hopelessness lately. This is a horrible disease and I can't imagine how it must be to have it. I don't want to ramble on but it seems that no one seems to think of us. I never hear from anyone in her family about how are you or is there anything we can do for you guy's. The last time I spoke with her brother was Thanksgiving of 2014. They live about 6 hour's away. Not so much as a phone call. Does anyone really care or am I on my own. Feelings of isolation are not fun. I guess the old saying, out of sight out of mind are true.
about 1 month ago
Hello,my name is Adrienne. My father had COPD. He went to Heaven Wednesday April 13, 2016. I was his caretaker and I did not fully understand the disease as I should have. I am searching for a support group for my situation. I'm currently living in Fayetteville, NC...if anyone knows a group for me. I want to find a way to spread the word and awareness of COPD. I want the knowledge of COPD to be just as out there as is breast cancer and heart disease and other well known, widely spread knowledge of illnesses.
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