All support groups

COPD Support Group

Thank you to everyone who has participated in this online support group. We appreciate that you took time to share about your caregiving experiences and helped others as well.

Effective March 1, 2019, though, Caring.com is discontinuing this support group feature on our website.

More info here: https://www.caring.com/support-groups/copd/fc2cb8f2b632e30fb96bf9f91eaf35ec


What's New Today

1 day

Thank you to everyone who has participated in this online support group. We appreciate that you took time to share about your caregiving experiences and helped others as well.

Effective March 1, 2019, though, Caring.com is discontinuing this feature on our website.

Alternative online support groups to consider include …

Alzheimer’s Association Message Boards: https://www.alzconnected.org

Memory People support group on Facebook: https://www.facebook.com/Memory-People-126017237474382/[facebook.com]

Caregiving.com: https://www.caregiving.com/groups/[caregiving.com]

Caregivers Connect on Facebook: https://www.facebook.com/groups/CaregiversConnect/[facebook.com]

Caring for Elderly Parents on Facebook: https://www.facebook.com/groups/113354218750970/[facebook.com]

AgingCare.com Forum: https://www.agingcare.com/caregiver-forum[agingcare.com]

Also, a tip for those who want to stay connected: Please do not post your email addresses or phone numbers on the public page of this group. Share that via private message in Hugs & Prayers.

Questions? Please email community@caring.com. We hope these suggestions are helpful.

We hope these suggestions are helpful to you, and do let us know if you need any help finding professional in-home care agencies or senior living community care (such as assisted living or memory care for a loved one). We also now offer caregiving guides: https://www.caring.com/caregivers

-Caring.com Community Team

Di4ski said...

1 day

1 day

This conversation is not accepting new comments.

RVdoc said...

2 days

Deborah was admitted to the hospital last Friday, her blood oxygen dropped to 78 after walking to the kitchen less than 25 ft. Let her relax. and it didn't change. Anyway she was taken to hospital in an ambulance and was admitted with blood oxygen of 83. They put a bipap mask on her and took her to xray where they spotted pneumonia in one lung. It is now Wednesday and she has been on antibiotics and predizone since. Yesterday they spotted something with her heart and she is now in ICU and they prefer no visitors. What in the world does that mean? Anyone out there ever experienced such a thing. If so is this the way it ends and if it is i promised her she wouldn't die in a hospital but at home. We have made that quite clear to them and all I have is a code to get to her RN who has not returned my call from 2 hours ago.

DebinMn said...

1 day

Di4ski said...

1 day

pigdog said...

23 days

Does anybody have any tips on how to help our loved ones with anxiety?

Last week was awful for us. She so anxious and upset by everything and me trying to get at what's really wrong. She got so worked up one day she thought she was having a heart attack and another day she got to a frenzy of worry that resulted in 2 days of ragdoll, where I had to physically bear hug her from the bed to a wheelchair then to the toilet and back again. I guess they would call that extreme tiredness? I checked her O2, pulse and BP and since all that was normal for her I knew it was mental. Gosh, hate saying that. It took a week for her to regain her strength and now today was an off-the-rails rant non-stop from the time I got up at 6am to almost 5pm! If she wasn't going off on me, she was on the phone to anyone who would listen. Don't ask if I got any work done. :(

Her nurse's first question to me was "has she been feeling anxious?" We talked about the idea of control and the need to identify what is/isn't in your control. Like, writing down your worries and what makes you anxious, then cross out the ones that you have no control over so you're left with a list of things you can have control over - trying to help you focus on things that might have positive outcomes instead of wasting energy on the things out of your control. Makes sense to me..

Me wife is not so good with this kind of thing, so I feel I'm stuck with what we got, but I'm just wondering if any of you have any tips on how to deal with someone else's extreme anxiety. Oh, she's already on 2 pills for it!

Betty64 said...

19 days

pigdog said...

19 days

Jerusha James said...

about 2 months

I have not been on here in quite some time, there have been many changes in our lives. I hope everyone is having a blessed holiday season. My MIL was hospitalized recently and came home the day before Christmas Eve, we were able to have one last Christmas with her, she is now on hospice so it is day to day. I want to thank everyone who has been supportive over the last couple of years I wouldn't have made it without you. I probably won't be on much because I am going to just be with her and pray that God takes her quickly so that she doesn't have to suffer. She has had a lot of trouble getting enough air so she has panicked and been really anxious, but they have started giving her comfort meds, so she is more relaxed. Again I just want to thank everyone for being there through this very difficult disease.

Di4ski said...

about 2 months

RVdoc said...

about 2 months

about 2 months

Merry Christmas- Bless all of you and your loved ones. My mom has COPD. She's 68, she did not quit smoking and did not even tell me for over 10 years but she always had a cough and got sick often - she had a heart attack in Sept, she was too frail for by pass so they did stents, she then got diabetic gangrene foot. She's losing weight and not eating much, lots of rattling and she sleeps most of the day, she has been falling, changes in attitude and memory loss - she struggled to breathe a couple days ago after a treatment so I called 911 and she has now been in the hospital with pneumonia, some kind of lung mass - they said may be cancer, she had a hernia as well - her doctor suggested hospice a couple months ago and we had decided to go that route but since she stayed with me and I live in a disaster zone hospice can't come in so we are working on a nursing home so she can at least get hospice care and be comfortable..- I have other siblings that are completely unsupportive and I have health issues too and I struggle to care for her by myself - its been hard to get her the care she needs - the doctors are conflicting at best - she's 78 lbs- I found old records of hers from 2000-2002 that said even then she had severe COPD and diabetes, depression and degenerative disk disease- I hope the hospice can just give us some quality time together - I found a video by this man Jeff Waters on youtube who had severe copd - he used cannabis oil mainly but completely healed his COPD - for some it may not do it but it may help with symptoms - I wish I would have seen it sooner but I do give it to my mom to stimulate her appetite - worth looking him up :) thank you for your support, prayers for healing and comfort for everyone and happy new year <3

about 2 months

about 2 months

Ted600 said...

about 2 months

I just want to take a bit to thank all of the people in this group who are so supportive with each other and wish all of you a very merry Christmas and a happy new year. And again thanks for all your help.

RVdoc said...

about 2 months

Betty64 said...

2 months

What percentage is fev1 of 1 liter.Been looking on internet.This is my husbands.Says he is candidate for ling transplant

Betty64 said...

2 months

I love my husband and know how sick he is and treat him right. Cook his mealsetc. Okay so we are waiting for disability and have just about used up all of our savings. I suggested getting food stamps but he doesn't want them to know our savings account. Its almost gone. So he doesn't want me too. Guess he doesn't mind starving. Don't know if its stubbornness or that dang cognitive. Thanks for letting me blow off steam

Betty64 said...

12 days

DebinMn said...

11 days

3 months

My husband has severe copd. He has been complaining of feeling more bloated even before eating a meal I'm a bit worried. I have read that the lungs expand with progression with the disease.He hates going to the doctor. I was wondering if anyone could give me any advise to help him.

Betty64 said...

2 months

RVdoc said...

2 months

Betty64 said...

3 months

Happy Thanksgiving

lackofsleep said...

3 months

roses70 said...

3 months

Load More Conversations