COPD Support Group
Welcome to this online support group for caregivers, family, friends, and others with an interest in COPD care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with COPD. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone. You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.
Help spread the support to more people in need -- Please tell a friend or two. Thanks!
What's New Today
15 days ago
I need help overcoming emotional eating. I'm controlled at work with my eating. But when I get home, where my husband is, I seem to lose it. I try not to keep unhealthy foods at home for this reason. For the last couple of weeks I"ve been eating salted and buttered popcorn. The last 2 nights I ate ritz crackers. In bed or laying on the couch. Eating one after the other until the pack was empty. I then wake up the next day with a binger's remorse. I come to work, armed with a packed healthy lunch,, fruit, drink water all day, walk every chance I get to reach 12K steps by the end of my day. Still, when I get home, I'll do the same thing. If I could just go to bed when I come home, I'd be okay, but that is not reality. Home responsibilities await ,me when I walk in the door. Any suggestions for overcoming this problem.
18 days ago
This weekend my husband said now he understands how his lung disease can kill him. He was wearing oxygen, as usual, but when it was time to go to bed, he complained of not being able to breath. He then has me checking the cords and the concentrator to make sure everything was connected. Of course, it was. I hate when he's having trouble and he doesn't accept that it's just the course of the disease. There's nothing we can do about it in those moments--at least, not that I'm aware of. And from our discussion with the palliative care doctor, that's why he was prescribed the oxycodone to help with the air hunger. When I suggest that he takes one, he says no but if they can calm him, that would be much better than him acting like something is wrong with the machine.I mean, he starts wanting to change cords, cannulas, cleaning the filters, etc. Does this sound familiar to anyone dealing with end stage symptoms of COPD?
25 days ago
My husband is 72 years old and I'm not sure at what stage of COPD he is in, the doctors told him there isn't anything else they can do. The next thing would be hospice, all he does 24/7 is sleep or play games on the computer or watch TV. He says he can't do much else because of his breathing but I feel a lot of it because he just doesn't want to do anything any more. The doctors told him to move around, do little things, keep active, just do a little something a bit at a time. But he doesn't even try and this really makes me angry that he won't even try. But every once in awhile when there is something he wants to do, he will act like the energizer bunny and work at it until it is done. So I know he can do things if he wants to and that is why I get mad. I can't stand it that all he does is TV, computer or sleep. I am left to do the daily running of the house (cooking, cleaning, laundry, pay bills, shop for food, pretty much everything). Am I wrong in getting mad? Should I just be more tolerant and grateful that he is still here? My friends tell me that they wouldn't put up with the stuff he pulls like expecting me to clean up after him all the time. Since the day I met him he has always been kinda lazy about things and a procrastinator but since he was told he has COPD it has gotten worse, to the point of doing nothing now. Someone please advise me, should I keep at him to do things or just live with it? Sorry for the ranting and thank you for listen.
John Sommer said...
29 days ago
I am a care giver to my 55 yr young wife of 36 yrs and was diagnosed with severe copd 2010 fev1 of 18% on oxygen at night and as needed through out the day, she still gets around well, drives , gets exhausted quickly, taking 3/4 hr knaps daily. I started talking to a counselor as directed by our family physician to help me understand her mood swings and has damaged relationships as the results of this behavior. Doctor informed me that as a result of her not wanting to help herself and owning her actions and choices in life she will die from this terrible disease, where he's telling me is treatable, so I realize there's other factors that are used to determine life expectancy and Gods time, but I fear waking up or coming home from work and find her gone, as she's made me aware of a few times she'd woke up not having oxygen in and trying to catch her breath. Sorry for babbling I am just scared..
about 1 month ago
my mom has COPD, we are on hospice. she has been having memory troubles from all of the medication. she has been hallucinating, seeing people who are not there. having nightmares and staying in them when awake. when I try to talk with the hospice nurses about it all I get is it is apart of the disease give her more medication. I'm wondering if anyone else has similar experiences with this.
about 1 month ago
My husband has become increasingly difficult. He is verbally abusive. Often ranting at me, calling me names. He is bedridden and when I leave his bedside to ignore his rants he yells and yells and throws things. I called the hospital last night and they said to have him come in. I told him I was calling the ambulance and he said he'd refuse to go. So I wasn't able to get him there. At least he quieted down.
Load More Conversations