COPD Support Group
Welcome to this online support group for caregivers, family, friends, and others with an interest in COPD care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with COPD. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone. You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.
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What's New Today
about 3 hours ago
Well, I took my mother-in-law to Urgent Care because the pain was getting worse in her back, thank God no new fractures and they did have a reason for increased pain, except maybe the muscles were tightening around the fracture so they had her increase her pain meds. They also looked at her lungs and said because she is not taking deep breaths that some of the top part of her lungs had collapsed. Should I be concerned about that or will trying to deep breath help with that, the urgent care doc didn't really address that. At least she is not on the verge of another exacerbation, I just never know when they are going to occur. She has lost 4 pounds in the last month. I put a call in to the nurse on her palliative care team so maybe I will have a clearer understanding and won't worry over the weekend.
about 19 hours ago
Has anyone had to deal with back fractures due to osteoporosis. This is the second time my mother in law has had her back fracture, this time she was just getting dressed and she now has a hair line fracture in one of her vertebra and it is causing her a lot of pain and although she says her breathing is fine I can tell by watching her that her breathing is more shallow, and she is exhaling out of her mouth more than usual.. She is also having sharp (like a knife stabbing) pain in her back when she is just sitting in her chair. Today she was real lethargic, not having any energy. Any suggestions? She refuses to wear a back brace so I don't know what else to do for her. I told her if she felt the same way tomorrow we should call the doctor, but she usually fights me on this as well. I just feel like there is more going on and if I don't get it addressed we are going to be having more complications. Any input would be appreciated.
1 day ago
Is there anyone here who uses supplemental oxygen on a liter flow higher than 8? My husband uses between 10-15 liters most of the day.. He complains about blood clots, scabs, and possible cartilage clogging his nose. We've mentioned this at doctor's appts but they don't seem to do anything but prescribe ointment for him to put in his nose. He's shown me some things that he's pulled from his nose and I'm becoming concerned about what is going on with this.
7 days ago
I have been caring for my mother-in-law for 6 years now, she has stage 4 copd. Some days she is able to take care of herself and even drive, then she will have an exacerbation and I have to take care of her for days on end. Normally I haven't minded taking care of her, but she has come to the place that she expects me to live my life around her wants and needs, she has become very selfish and I am worn out emotionally. I know that she could remain at this stage for quite sometime and I feel terrible and selfish but I wish it was over. She has always been a negative person but over the last 2 years it has gotten worse. It doesn't matter what the doctors tell her that she can do to help improve her quality of life, she won;t do it. She sits all day either on the computer or reading a book. She doesn't do anything else except buy lottery tickets and she continues to smoke. It doesn't matter to her how this is affecting anyone else in the house it is just all about here and at this point I have given about all I can give. I get out of the house as often as possible but I am getting to the point of resenting the fact that I have to come home to her negative attitude. Sorry for such a long vent but I have been holding this all in for months. There is more that I could share but I don't want to go on and on. Is there anything that I can do to help make this easier. I don't know how much longer that I can do this. Thank you for any input.
11 days ago
I was told I had Adult On-set Asthma I never heard of that. I was later told that I had COPD. Well I ended up in the hospital, I went for an electrocardiogram, the nurse would not let me leave and took me to the Emergency Room. They kept me for 10 days. I came home with an Oxygen Tank, and they also ordered a concentrator. I use a BiPap Machine and I have to have O2 at night. Yesterday (last night) I really had a bad night couldn't sleep in bed but I was able to get some sleep in my recliner and with my O2 on. I's almost midnight now so I am going to call it a day. Good night.
17 days ago
I am brand new and looking for ideas. My brother is almost 60 and has COPD. He lives with my 78 year old mother, who can't handle it anymore. I have no idea what stage he is in, but he has virtually no assets and some social security disability income.. I am trying to get her to move to an independent living home where her meals are served restaurant style and get out from under this stress. She wants to so bad, but can't afford to take him with her. She has made all the right decisions, he has made terrible choices his whole life. I don't know what to do. I am disabled and do not have the financial means to help. I live in a studio apartment with my husband. Is there anyway to get assistance if you have COPD? I just want to help him find a suitable semi-private situation and it is so expensive. Even with Medicaid it isn't enough. Does anyone know of any help he is eligible in Georgia?
Jen the nurse said...
24 days ago
My name is Jennifer I have been taking care of my father for 5 years now. He has COPD, pulmonary fibrosis, emphysema,lung cancer twice with lymph node involvement also gets with other general conditions that come with aging including macular degeneration. I am his only caregiver with no help from anyone. The only way to get help in our community if for him to loose his home and savings which he refuses to do. I am trying to keep him living in his home for as long as I can. I am an only child so managing his doctors appointments medications his home and mine working full time has worn on me over time. Everyone thinks it should be easy because I am a nurse and know what he needs and o know his doctors. I recently turned forty and the hope of getting married and having children died the day I turned 40. He consumes my life and if he feels that he is not getting all of my attention he acts out and he ends up in the hospital. When that happens I worry like crazy get stressed out. I have anxiety and depression issues already that he likes to exacerbate. I have created my own monster so to speak because I didn't think things would go on for this long and I would be this frustrated and tired. In the beginning I gave him everything he wanted when he wanted it. Now he takes that for granted. He is the king of one more thing. He is always adding on more task to list I am already doing. It makes me insane!!! All of those little things add up to a lot!!! He thinks nothing of asking me to stop 3 places to get lottery tickets!!! When I do get a break I am still coordinating rides for dr apt getting calls from the pharmacy and getting phone calls from him 3 times a day. That does not feel like a vacation to me. Dad wants me Finnish my BSN before he dies. I had it half way done before he got sick. I recently tried to go back to school and the requests got more frequent and he messed up all of his medications and ended up in the hospital. I recently dropped a class because my brain is in survival mode and shuts down on my. I would sit a my computer for hours and could get nothing out to write papers. That makes me feel like a failure??. When looking at this group some one said her husband can only see what he wants and she feels guilty because she is ready for the end to come. I feel the same way!! I feel guilty for feeling that way. I miss the man my dad once was. I hate the way this illness had changed our relationship. I resent him for taking my life away. I feel like I am doing everything I can to keep him here but he chooses to be noncompliant. I am frustrated beyond words!!! I am grasping at straws here. I am a nurse but I am also a worn out daughter giving him everything and it is never enough. Sorry for such a lengthy post.
29 days ago
Husband came home from hospital Sunday. Receiving home health. His COPD is final stage, but not as bad as I think it's going to get before it's over. He's basically bed ridden now because of spinal problems complicated by 3 hospital stays since first of this year. His cognitive abilities are little to none, so he mumbles and fusses and scolds. He needs continual care 24 hours and refuses to go to a rehab nursing place to get help so he can function at home. He won't even let anyone explain it to him because he thinks it's "putting him away to die". He won't listen to me. I can't take care of him. It's near impossible for me. He weighs 275 lbs and has fallen 3 times since Sunday. I haven't had time to take a shower since Sunday before going to pick him up from hospital and very little sleep. Been sick with winter crud too that doesn't help much. I'm trying to hang in there for a couple of weeks to see if home health pt gets him to where he can stay home alone so I can go back to work. And if that doesn't happen, that maybe he'll become more open to getting the help he AND I need. I'm very angry with him for not looking at this according to what I can and can't do - he only sees what he wants. Every time I try to discuss it he yells and shuts me out. I feel like I'm stuck and can't do anything to help myself except leave him helpless and run away. Sigh...that's not an option right now. As much as I've worked to prepare myself for the inevitable that he will die from an exacerbation one day - right now, I wish that would happen soon, because this is like living in hell. I hate that I feel that way, but I do. I know when he does die, I will be sorry for thinking that way. God give me strength.
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