COPD Support Group
Welcome to this online support group for caregivers, family, friends, and others with an interest in COPD care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with COPD. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone. You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.
Help spread the support to more people in need -- Please tell a friend or two. Thanks!
What's New Today
Today was not a good day I was working on the back lower deck trying o fix. A flower box that was messed up. When I had stopped swearing I heard a noise behind me and there was my wife in her night gown without her o2 coming to help me. I had to carry her back up the stairs and into the house thank god she only weighs 92 lbs. I am just about at my wits end trying to deal with this.i don't know how much more I am capable of doing for her. Sometimes I just want to sit and cry but that is not a Manley thing to,do. Sorry I just had to vent hope everyone understands. Thanks
hi ok people I have a question, or maybe just need to put this out there. ok my husband dan has copd is on oxygen almost 24/7 but yet can go iding on his scooter for 2 hrs and not need oxygen?! when i asked wtf? he said well all i do is sit there. well ok all he does is "sit" on couch all day but needs oxygen to do so. ok so what is going on? has he ben faking all of this? I do not understand how someone can go riding around in the middle of the day for two hours without oxygen but needing it for every minute of the day when sitting around the house. I think there are some real serious issues here. what are your thoughts on this ? needing advice thanks, vicki
My wife has copd it is nice to find a site with people in similar situations who understand what it is all about. We all have to stay strong and always hope for the best but prepare for the worse.
my husband has COPD and has just been diagnosed with Pulmonary Hypertension as well We see the new doctor is a few weeks. His o2 has been upped to 6 litres from 2. He is working hard to stay on the treadmill daily to see if that helps. I have no idea how much time we have. He is in the kitchen doing dinner dishes so he helps as much as he can. I'm afraid I"my babying him by doing the grocery shopping etc, because he refuses to use his O2 when out. I'm thinking that has caused the great decrease in his health. He has been on 2 litres for 2.5 years. Anyone dealing with the speed of this disease? I'm trying to figure out my work life and it's hard. I run a real estate business and wondering when I will need to quit and stay home with him.... This is hard!
My brother moved in 5 years ago. He has zero sense of humor and misunderstands so many things ( lack of oxygen to his brain). Refuses to use his oxygen, and spends an hour telling my son how terrible I am. I have forgiven him, but am afraid to talk to him about anything. Am I the only one? Do I need to move him?
A fellow caregiver said...
I have a had a really rough week. My husband was drinking and he started a fight with my daughter she is 26. He then said some unfavorable things to her 8 year old son who adores my husband. My daughter told him not to talk to her like that. My husband then grabbed her and started punching her in the jaw and the back of the head. He then took my car and drove 300 miles to his brothers house. Where he ended up in the hospital. Before he was admitted his brother had him turn power of attorney over to him. Therefore, I was not allowed to know my husbands status even though I have to pay for everything. I did make the 300 mile drive down and found out that the brother was bringing alcohol and cigaretts into the hospital for my husband. He then went into ICU and he was intubated. I was still not allowed to talk to him when 5 days later he was taken off the machine. He is alive but I am not allowed to talk to him.
I received a text from his brother saying that Michael is Willing to see me during the day during the week. I work and now have a horrible cough. I am sick, confused, and hurt.
about 1 month
Hi all, Ok I have got a new one for me anyway . Always before when I do things around here because my husband can't anymore it was met with indifference. If I do whatever the laundry, don't care. If I cook, don't care. try to talk, don't care. so life has gone on. Me down in the basement but still here in case he needs me. Now anything I do which is everything I have been doing. He gets pissed , major! Leave it or leave me alone! Just go leave. that is it.All I see of him now is the closing of the bedroom door. I am at my wits end. Why the sudden change in what he now can do whereas he couldn't. Acts like he can't stand to be around me. period? help! thanks
about 1 month
I don't know how much longer I can do this. My partner of 35 years has been on oxygen 24/7 going on 4 years and it just gets more difficult. We are so alone with no family at all and a very small support network. Weds afternoon a friend came over and I took a quick break to shop. I just got to the store when he called saying he burned off his mustache. It is much worse than that. PLEASE ALL OF YOU TAKE VERY VERY SERIOUSLY THE DANGER OF FIRE!!! I rushed back home. He had leaned over a scented candle to blow it out. . He put out the flame with his hand but nose,, lips and cheeks have 1st and 2nd degree burns. I cleaned him up best I could, but quickly realized he should go to the ER. We started trying to get him ready to drive there, but he was too shaky to get out to the car, so we called 911. They decided to take him to the large medical center 1 hour away instead of our local community hospital. He was evaluated and finally determined the burns did not extend into the airway or they would have sent him to a burn center 3 hours away. Admitted for overnight, and expected to be released the next day, That just happened to be the day my renal mass biopsy was scheduled at a hospital near his and if I put it off it might take weeks to get another appointment, So with great misgivings I decided to go ahead with it. On the way to my hospital (driven by a friend) he called to say his cell phone is dying and he hadn't brought along a charger so it was several hours we could not communicate to find out if he'd be released and if so, how was he going to get home? At long last we found out he could be transported by an ambulance. Wish I could say things are going well but far from it. Although my biopsy procedure went well, I am to avoid heavy lifting and supposed to take it easy FOR TWO WEEKS. Ha!!! The burned tissue is shedding from inside his nose making breathing even more difficult and he is very weak, yet micromanaging me. Thankfully the friend has stayed, but he's really not much help. I am desperately afraid he's going to develop an infection. I hope we can get a visiting nurse here soon. I am trying every means possible to avoid infection. Just went out and spent over 50 bucks on stuff like hand sanitizer and alcohol wipes, etc. If I have to have kidney surgery soon, I just don't know how we're going to manage. Thank you for this place to vent. Has anyone here gone through an oxygen burn?
Load More Conversations