COPD Support Group
Welcome to this online support group for caregivers, family, friends, and others with an interest in COPD care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with COPD. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone. You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.
Help spread the support to more people in need -- Please tell a friend or two. Thanks!
What's New Today
3 days ago
Hi, I'm new to this group. My mother is 'end stage' COPD and has been for a couple of years. We've just gone into respite as she can no longer walk more than a metre or so without severe dyspnoea. 24 hours after arriving there, she went back into hospital with her blood oxygen at 71%. I understand that the nature of this disease means there's no way to estimate the 'end', but you can imagine that I'm feeling pretty worried at the moment. Words of advice would be appreciated. Doctors can't tell me much. She's been going downhill rapidly over these last few weeks, and now this. She's never been lower than 85% before (which is bad enough). Thank you!
6 days ago
Hi. I'm new to the group. My sister and I are caregivers for our parents who both have COPD. First off, I can't figure out how to read the whole comment/post by someone. It's cut off and doesn't give me the option to read the whole thing. What am I doing wrong?
7 days ago
Only child moved into 71 year old mom's home year and a half ago to help care for mom with COPD. I'm starting to feel like I don't have a life anymore always sitting with mom watching TV. She's on oxygen 24/7 2.5 liters short of breath but manages to walk to microwave constantly to heat up her coffee. I feel guilty if I'm not with her but getting angry too. I don't know how to entertain her she doesn't care to do much of anything but that damn tv. I'm not wanting to open up as much with her either so I just sit my butt is getting tired. I felt more positive when first moved in but now I don't even know who I am. Thanks for this site
An anonymous caregiver said...
16 days ago
Thank you so much for this site! I am new at this, but really need some help. I am a only child, my Mom is 86 yrs old. Has deminta , COPD, Enthysemia , heart values that are closing up. So her breathing is really bad. Basically just sits most of the day. If she gets up with any little movement She gets exhausted. Sad but doctors and I agree to just let her be and keep her confortable. Nothing you can do .. The days I work, she goes to a day care. She is very fisty and most of the time doesn't want to do anything. Falls asleep most of the day in her chair . I have grandkids and this is suppose to be my time with them. She prays for god to take her. Can someone like her live another 5 yrs? I am doing the best I can but I am tired.. I wish she could be somewhere , relief for me., but these places are soo expensive. If she did another 5 yrs she would run out of money. Any suggestions or ideas much appreciated
23 days ago
I have a question that I need help with. My husband and I was talking tonight. He ask me if there was a way to get a protective order against the controlling sister who lives in tenn. He says he wants the protective order because he is tried of the disrespect and verbal abuse she does to me. and he has tlaked with her but it continues,and he just wants it to stop. He also want her to stop controlling the medical decisions that only I have the rights to make for him . There is a healthcare power of attorney which states I am his agent,and she is second if I am not available.
26 days ago
My husband has lung disease and is on home hospice I am the care giver, But I am dealing with his very controlling sister, which everytime she comes she gets him upset. she goes off on me,and says negative things about me to her brother, then he acts like I dont exist, doesnt speak to me yells at the top of his lung at me cuts me down ,but when she returns to Tenn , then he goes back to his loving ways with me..I really dont know how to handle this problem margo niccum
An anonymous caregiver said...
about 1 month ago
My husband is just now this week started on home hospice. He has COPD and Congestive Heart Failure. He is profoundly deaf and needs a hearing aid. Our daughter is his health care proxy. Once signed up the hospice team takes over all medial care, meds, home health aid, housekeeping, etc. The hospice druggist brought him his regular meds plus morphine, which he was never on before. He is puzzled as he said he is not in pain, just short of breath as usual. My daughter was a nursing student and worked as a nursing assistant for a long time and is also puzzled about the morphine because it's not good with COPD as it messes with breathing. I think maybe because he can't hear very well he was not understanding everything and answered yes to the question ;'' do you have pain'' or else maybe prescribing morphine is just something hospice does. (which worries me as we want him to die a peaceful pain free death someday when the time comes but not to ''drug him up'' and hasted the end as long as he is still able to enjoy life as he does at the present time, going out to eat and etc. with family and friends or just watching the ballgame on television.
about 1 month ago
I need help overcoming emotional eating. I'm controlled at work with my eating. But when I get home, where my husband is, I seem to lose it. I try not to keep unhealthy foods at home for this reason. For the last couple of weeks I"ve been eating salted and buttered popcorn. The last 2 nights I ate ritz crackers. In bed or laying on the couch. Eating one after the other until the pack was empty. I then wake up the next day with a binger's remorse. I come to work, armed with a packed healthy lunch,, fruit, drink water all day, walk every chance I get to reach 12K steps by the end of my day. Still, when I get home, I'll do the same thing. If I could just go to bed when I come home, I'd be okay, but that is not reality. Home responsibilities await ,me when I walk in the door. Any suggestions for overcoming this problem.
about 1 month ago
This weekend my husband said now he understands how his lung disease can kill him. He was wearing oxygen, as usual, but when it was time to go to bed, he complained of not being able to breath. He then has me checking the cords and the concentrator to make sure everything was connected. Of course, it was. I hate when he's having trouble and he doesn't accept that it's just the course of the disease. There's nothing we can do about it in those moments--at least, not that I'm aware of. And from our discussion with the palliative care doctor, that's why he was prescribed the oxycodone to help with the air hunger. When I suggest that he takes one, he says no but if they can calm him, that would be much better than him acting like something is wrong with the machine.I mean, he starts wanting to change cords, cannulas, cleaning the filters, etc. Does this sound familiar to anyone dealing with end stage symptoms of COPD?
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