COPD Support Group
Welcome to this online support group for caregivers, family, friends, and others with an interest in COPD care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with COPD. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone. You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.
Help spread the support to more people in need -- Please tell a friend or two. Thanks!
What's New Today
Hi. I have recently moved in with my folks in order to provide help and support as my Dad is in last stage COPD. We do have home health assistance 3 days per week (about 9 hours per week)- but caring for him is a 24/7 job. In the last two weeks he has started sleeping almost all the time. He has little appetite but seems to have an unquenchable thirst. He is constantly asking for water, Gatorade, 7-Up, etc. Is this normal? To drink so much? He will down 24 ounces at once and ask for more. Also - my Dad has always been VERY controlling. He is still trying to make all of his care decisions - but he is often confused...and just plain wrong. How do we get him to trust our decisions for his care without him becoming so angry and frustrated? My Mom just buckles which in turn makes caring for him more complicated. He can be so mean. This is so stressful. I just need someone to talk to. Thanks!
Hi all, Well just when things are going a bit smoother around the house I just got my mri results! I have a massive tear in my rotator cuff. I have been trying to get an mri since early November. I kept telling the rs my shoulder has been killing me. (They don't listen) Anyway guess I will be off awile and its my right shoulder sooo.
good luck to all you nice folks. I will be back. thanks all, v
hi all our hot water heater went out today. jeez if that was not an all day project! I had to do all the running upstairs to get tools. My sister and her boyfriend came over and helped.so thankful for them. Home Depot only wanted $1600 to replace and put in. those folks are crazy! hope everyone had a good day v
Hi, My name is Vicki and my husband has COPD. I need help on living with this condition. It is like we are just waiting to die . My husband does nothing he is retired. he used to work 7 days a week year around. Since retiring we have not gone on any vacations together. period. He says he is afraid to go because he might get a flare up. Even tho there are drs every where you go. at this he replies its not the time.
We now live seperate lives together in one house but not together. He eats when he wants and what he wants. I never cook because he will never eat anything i fix. He provides me with a nice home and car that is paid for and pays for my cigarettes and Tequila. That is what my husband does for me. I have disability ss which is a few hundred a month. This is what I buy my clothes whatever food I want and just mad money. We can live comfortably with his pension and stuff. I try to get him interested in hobbies anything. I feel like I am just waiting for him to die. I don't know what to do anymore
Yesterday would have been my husband's 58th birthday. He passed on November 30 just 15 days earlier.
In order to celebrate his life and our time together, I went to a local store where they have names of needy seniors and their Christmas wish list. There were 5 names left...I took all 5 names and bought each one everything on their wish list. I used the money I would have spent on his birthday and Christmas presents......I am trying to pay it forward to as many local charities as I can.
I hope to make this a yearly tradition in his honor.
Jerusha James said...
Hello all, it has been a while since I have been on, life has been busy. We are getting ready for the holidays, my son and his family are coming home for Christmas before he deploys. This will probably be my MIL last Christmas with us and so it will be the last time my son and his family get to see her as well.
I have started noticing that my MIL behavior is becoming more and more childlike. She is taking more naps and forgetting things more often. We don't go to see her Palliative doctor until January and I am sure at that time they will let me know where we stand until then I am just dealing with all of the changes. She has some good really good days and then we have some not so good days, just part of this awful disease. Has anyone else experienced their loved one declining and becoming more childlike?
I hope everyone is doing well.
An anonymous caregiver said...
As I have explained before on this site my husband is 73 years old and has end stage COPD and has had it for about 10 years. Lately he has become very argumentative and wants to argue about everything. He tells me sometimes he does things just because he knows it will piss me off. I try not to let it bother me but it's getting real hard to just ignore him. He has become rude to my family and friends, I think to make them feel uncomfortable to come over. My husband receives a retirement check and a little from Social Security which goes into a joint accounts and I pay all the bills and do the grocery shopping but now he is talking about having my name removed from the accounts by opening new accounts with just his name. I can't tell you how much that hurts that he would even threaten me with such a thing. This all began with his son calling and requesting private information on me and my children and their families for a security job he was applying for, I have been married to this man for 16 years and I have known him for 17 years and in all that time my husband and his son have talked twice. Once at our wedding and once when he called and asked for the information. But my husband doesn't understand why me or my children won't give him the information. I tried to explain to him that we don't know him and in all reality he doesn't know him either because they haven't been in touch for a long time and we don't know what he is going to do with the information. He keeps saying it's for a government job. I explain if it's for the government than I am sure they can get the information needed. He sees it as a betrayal to him so to fight back he is talking about removing my name from all accounts so I won.t have access to any money. I just feel (like the saying goes) stuck between the rock and a hard place and don't know what to do. .Can I get some advise or something from maybe someone else who is going thru a similar thing, Any advise will be helpful. Thanks.
Load More Conversations