COPD Support Group
Welcome to this online support group for caregivers, family, friends, and others with an interest in COPD care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with COPD. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone. You can also find information that will may you manage financial and legal matters for your loved one in the Caregiving Money Matters Resource Center.
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What's New Today
My husband has severe copd. He has been complaining of feeling more bloated even before eating a meal I'm a bit worried. I have read that the lungs expand with progression with the disease.He hates going to the doctor. I was wondering if anyone could give me any advise to help him.
Hello! My name is Julie and I’m new to this group. I have kind of a unique situation in that I’m in my early 30’s caring for a father in law with end stage COPD- he lives with me and my husband. I joined this group because I’m realizing I have started to feel very isolated and alone in this- most people my age are not In this boat- we don’t have support groups in my area so I’m hopeful this group can help! Nice to meet all of you :)
My husband the repeater. This will sound a little funny but I see either a bored man, or his mind is getting worse. He sits most of the day watching tv and keeps calling me sexy woman all day long. It gets aggravating but just let it slide because he has severe copd.
My Hubby has been on oxygen 24/7 for over 10 years due to COPD (emphysema/asthma). I retired in Feb., 2018 so I could devote more time to taking care of him. He has about 23% of his lungs still working. He had a triple bypass 10 years ago, and recently diagnosed having squamous cell cancer in two spots on his legs that will be removed in a couple of weeks. He cannot go places on his own anymore. I am his caregiver and provide transportation to all appointments, plus do all shopping (groceries, errands, etc.) . His short term memory is not very good lately. Is it normal to feel so alone during this horrible disease? I feel terrible feeling this way (alone) but cannot tell him how I am feeling as he has enough issues he is contending with and I do not want to stress him more. Don't mean to vent, but feel better just being able to "say" how I am feeling as a caregiver a this time. I am sure I am not alone with how I feel but do guilt myself for it!
Can someone please explain this to me because I don't get it. I am the caregiver for my husband who has end stage COPD. He is on oxygen 24/7 and has been for years and his doctor has told him not to drive anymore. So I take him wherever he wants to go. But lately he has started keeping track of every where I go and what I do. He literally marks it on the calendar and when I ask him why he is doing it, he says I don't know I just want to see how often you go out and have fun. Can someone please explain this behavior to me because I don't get it. Even before he got sick he never wanted to go out and do anything, he would rather stay home and watch TV or play on the computer. He still does both of those things and now because of being sick he sleeps a lot. I tell him I'm not going to sit around and just watch him sleep, so when my girlfriend ask me to go somewhere I go. And now he feels the need to keep track of when I leave and where I go. Please help me understand this behavior, thank you in advance for your help.
I am the caregiver for my husband who has had stage 4 COPD and cardiomyopathy since January 2012. I love him dearly but I am getting very worn down. I was blessed enough to find a job where I can work from home about 18 months ago but it is still a struggle to give my all to my employer for 8 hours and help my husband. I try to stay upbeat but as the years go on, it is harder for me to maintain my positive attitude. Do some of you other long term caregivers have a tips to keep up the calm and pleasant demeanor that is so necessary with COPD patients since any anxiety tends to cause an exacerbation? Thank you!
Jerusha James said...
It is with mixed emotions that I share with all of you that we made the decision to put my MIL into assisted living, we moved her yesterday (still feels like today since I can't sleep), I know it was the right thing to do for her and for me. I was mentally and emotionally exhausted. She fought me on so many things and after a while, you just don't have any fight left. I kept trying to just get her to do what was in her best interest and she just kept doing what she wanted and disrespecting me and I just couldn't do it anymore.
I know that she will smoke more and already she is back to drinking soda, which is really bad for her at this stage of the disease, at least at this point I don't have to continue watching her kill herself hour after hour. I know her health will decline because she is going to do what she wants instead of what she should. I am going to let go and get back to living my life. I will go to see her every few days and my husband will go by often and I will still take her to her doctor appointments, so I guess only time will tell how all of this is going to work out. I am still in the de-stressing stage so hopefully, in a few days, I will feel like myself again.
Thank you to all of you who have been a support for me while she lived with us. I will keep checking back and hopefully be able to encourage you as you continue on your journey.
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