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Caring For a Blind Spouse or loved one

This group is to give caregivers of blind loved ones a means to share their fears, while receiving tips from other users on ways to cope with caring for the blind while taking care of themselves.


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CMV scared said...

17 days ago

My partner of 20 years was just diagnosed with detached retinas due to CMV. I'm not sure what to do. He was an artist and hair stylist for 28 years. He wants to die now because he thinks he is just a burden. Where do I find help? Are there organizations that can guide me through social security?

lifetransfusion said...

23 days ago

My wife is blind in one eye. We have been married for 10 years. I never considered her to have a disability but I think she has insecurity because of it which makes maintaining relationships with anyone besides her immediate family impossible. I cannot take it anymore. Is there any association of mental illness with blindness? She lost vision in one eye around 4 months old and has low vision in the other eye. Through use of certain supplements her vision has drastically improved in the good eye but I just don't know.

23 days ago

Sandmangirl said...

about 1 month ago

My dad snapped at me today. He is just angry because he is losing his sight and mobility and independence. I get it. I just don't know how to reassure humor make it better. It was a wake up call for me though, I have been wary of addressing my husband's impending eyesight issues, but after today I will slack no more. How do you deal with the anger? I know when my husbands vision really starts to go he will be really frustrated and angry...

Luz Silva said...

2 months ago

My father in law is blind due to glaucoma. He is very bitter ever since he cant see and don't want to do anything but stay home. He has been living with us for a year now, My husband is the one taking care of his father but he is also disable due to a cardiovascular condition. It reached up to a point that my husband gets extremely tired and I know he is not feeling well even if he does not complain. As you can understand I am so very worry about my husband he is only 62 and don't want to loose him because he over did work he is not suppose to do. The elderly is bleeding when he goes to the bathroom now, he was in the hospital for 6 days and the Doctors cannot do anything because of a heart condition so they sent him back the same way he got in. My husband himself takes care of his father, he cooks, cleans, wash his cloth and drive him to several weekly visits to the doctors and clinics and now he will have to clean in addition for the new condition. I don't mind the elderly leaves with us but we are in desperate need of help to care for both of them. I work 5 days a week and my daughters are in college and we barely can cover our house expenses every month. What kind of assistance can you help us with?

Mr m said...

4 months ago

My wife became blind due to diabetes. We ve dealing with this for 4 years. She is very depressed. She easily gets angry and down. I feel the strain and getting stressed. I run around for my family. I just want her to be happy. She says she doesnt want to be around. anymore. She says she doesnt want to be good anymore. Does that mean sleeping around or hurting herself or others. I dont know what I can do.

Beyond Tired said...

2 months ago

5 months ago

I have been married to a man with low vision for 23 years. He has been legally blind since age 9, we are in our fifties now. I do not work due to health problems. My husband works full-time. I love him, and want to help him when he needs it. My problem is that since I have stopped working, I feel he has lost respect for me, as well as love. I am just one of the ways he gets the additional help (I drive, clean house, cook, etc.) he needs, and that is it. Does anyone else feel this way about a blind spouse?

Thanks for listening!

Beyond Tired said...

2 months ago

CraigKay3 said...

5 months ago

My husband does not love me. He simply needs me because I drive him places, cook, clean, etc.

Boo90 said...

5 months ago

My partner has RP and has recently new registered sight impaired. We are starting to get offered help but thisnis a recent thing. He's currently in his denial stage and is pushing away me and any other help he has offered. What can I do?

2 months ago

Sharrhan said...

7 months ago

My spouse and I have been together happily for almost 30 years. He has Usher's Syndrome (I call it 'the Helen Keller disease'). So he's 100% blind and quite badly hearing impaired, with hearing that's gotten noticeably worse in the last year. He naturally doesn't want to socialize much, because in public he can't hear people (1-on-1 he's great). I am a musician and a very social person. I'm feeling sad and isolated. haven't had a party since about 2013, and stopped trying to participate in music gigs with my many music friends, because my partner INSISTS on going everywhere with me, 24/7. (Yes, even to the laundry room in our building and to the store, always.) The only time I'm alone is in the shower, and I feel my life is passing me by. Tonight I'm supposed to be doing a gig with friends -- I was invited, and I know they miss me -- but I passed it up because he had a big hearing test today and I know he's tired and it was very stressful. Yes, I'm feeling sorry for myself. I love him to bits, but I need to somehow carve out some small space for myself to be a musician and a social being again. IDEAS??

lifetransfusion said...

23 days ago

Carol Allan said...

23 days ago

guide and mom said...

8 months ago

Do any of you have a newly blind spouse and also have young children at home? If so, I'd love to talk to you. I am feeling really burned out! He is trying to do the best he can, but I feel like I now am a single parent to 3 children, when before we both worked together to care for the kids and home. Help!

Tulqueen said...

7 months ago

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