Caregiving Wives of Stroke Survivors
This group is created to provide a place to encourage, give or ask for advice, or just vent to other wives who are full time caregivers to their husbands who are disabled by massive strokes.
What's New Today
1 day ago
I am exhausted. I feel like a terrible wife because I don't know who my husband is anymore. I am 31 and my husband us 33. We have three children ages 8, 6, and 2. On March 24, 2017 my husband suffered a massive hemorrhagic stroke which left him in a coma for 18 days. It was long and hard for quite some time. Now, he is doing pretty well. He is physically unscathed but his mental state is so different. I look at this man I have been married to for 10 years and I SEE my husband, but I know nothing about this person. I feel like a complete failure when I ask myself if I can do this. He is so different. I try to tell others but it's impossible to understand. I feel so alone. I have searched for support groups but so far haven't found any in my area. Please tell me I am not a terrible wife?? Please tell me there are others put there that get what I am feeling???
5 days ago
I have been married to my husband for 27 years, full of hopes and dreams and 3 children. In 2014 he had a heart attack followed by a stroke 2 days later. Physically he is able to do most things but he suffers short term memory loss, has no desire to do anything but eat, watch TV, sleep and take medicine. He's obsessed with medicine and doctors yet he still he's horribly and he's a diabetic that acts like little Debbie cakes are on the food pyramid. He has no since of responsibility, won't help at home unless he wants to like a child, tears up, destroys everything like with me working alone I have plenty of money.......most days I can't bare to be around him because he has turned to lying constantly and stuff is turning up at my house that he has stolen......I don't understand these behaviors in a 60 year old man!!!!
13 days ago
I been reading recent comments. To each I say You are Angels of caring. For me, my husband age 80, I am 70 & married 48 years. My husband had a massive stroke in Jan 2016. Although he has movement in arms & legs, his right side effected. He can't walk, speech lost ,all his personal self is gone thus I care for him 24/7. He has so many medical issues, heart, tremors etc. I exercise his arms & legs to keep his muscle in shape. He sleeps it seems all afternoon, evening waking 3-4 am & my days begin til 10 to midnight .. I do get so down , so worn & yes, we sob.nit just cry but sob.. Every morning I think positive but nothing gets better & yet we hang on.. I just wanted to let others in my shoes or traveling such a rough road..I know what you are going through. May God Bless You
20 days ago
My husband had a stroke in 2014 at the age of 58. After being in the hospital for a month and a nursing home for recovery for 3 months, he came home. He has had therapy ever since and I have been there to encourage and support him. I always thought that, with time, he would return close to the man he was. I was told his recovery would be a marathon. My problem is that he is not the man I was married to for 37 years. I can live with the physical limitations of the stroke, but it is the changed person that I don't know. I feel I have lost my best friend, my companion, my soft place to land...so to speak. We are no longer intimate, I feel I don't know this person he's become. He is still a kind person, just very different. I'm not sure how to cope. It's as though my husband died, but there is this person I am supposed to love and care for, who looks like my husband, but isn't. I feel so alone. Anyone else ever feel like this/
about 1 month ago
My husband is 53 and suffered a stroke March 28th because of a chiropractor. He is now walking like he never had a stroke..to look at him youd never know except his right arm but he's getting movement in it more and more. He has Aphasia severely.. His personality is still sweet. He depends on me like no other..he doesn't know colors, shapes and sometimes does some off the wall things..But he understands EVERYTHING. Here's my problem..I am so angry with him I told him tonight I hate him..he has hurt me to a point I dont know if I can ever get past it. The morning of his stroke I heard him hit the floor, I came running downstairs, looked at him and knew..I grabbed his phone because mine was upstairs. As soon as I turned it on I saw a message from a women..I called 911 and quickly read the brief message..He had called her and she was sorry she had her phone off..I called the number and told her who I was and told her to loose his number as I was driving to the hospital..Fast forward..I found naked pictures women sent him..naked pictures of himself he had sent to women..dating sites he was on including Ashley Madison. Since March 28th I've never spoke about this to anyone...Untill I lost it and told him everything I knew..of course I dont understand what he says..This was a few weeks ago. Today I found out this had started Aug 2016 till his stroke March 28th...It started 3 MONTHS After Our Wedding !!! I dont feel like I can continue being his "wife"..hahaha who am I kidding all I am is his caregiver..he hasn't tryed or been interested in sex..he didnt touch me for over a month before his stroke. I told him exactly how I feel..I dont want to be his wife anymore..I took off my rings and I'm on the couch..he said something I cant understand had tears in his eyes.. I dont care. There is NO ONE other then me to care for him..thats probably his worrie. I dont know what to do...How do I stay ?? .how do I leave him ?? Do I just take care of him and have a separate life ???
about 1 month ago
My husband had his stroke July 7th 2016....he has always been quick to anger; and was emotionally and physically abusive before he ever had his stroke....my biggest fear has come true his personality/temperment didn't get any better not at all....just the opposite; he is far worse than I ever imagined he could ever be....each day is full of his fits; his screaming blowups and filters nothing I would have never believed a man would ever dare speak to his wife in such a cruel, fowl fulgar manner and in front of who ever is unlucky enough to be around when he blows up and the physical abuse is worse than ever also.
about 1 month ago
I am just looking into finding a support group to help me not get to depressed due to my husband's 7th stroke. The 6th he lost peripheral vision, 7th lasting effect was being nonverbal. It's very hard, he got out of the hospital March 17,2017. Have been to couple Dr spots, back to the hospital for stint on one side. Supposed to do other side in a month. Can't leave him alone but he is afraid of getting in the car to go out. So have been out of the house 6 times since March 17th. Going stir crazy, don't have tv either. Ideas suggestions helpful, please and thank you
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