Caregiving Wives of Stroke Survivors
This group is created to provide a place to encourage, give or ask for advice, or just vent to other wives who are full time caregivers to their husbands who are disabled by massive strokes.
What's New Today
I hope you are well. My sincerest apologies if research projects are not welcome here, but I would like to tell you about a study we are conducting at the University of Newcastle:
My name is Alexandra Denham https://www.newcastle.edu.au/profile/alexandra-denham[edu.au]. I am a PhD student at the University of Newcastle (AU) who is leading the study, “Caring for those who care: A global survey of the health behaviours and health-related needs of informal caregivers.”
You are invited to participate in the research project identified above, which is being conducted by a team of researchers led by Professor Billie Bonevski from the Faculty of Health and Medicine at the University of Newcastle. This project has been approved by the University’s Human Research Ethics Committee, Approval No. H-2017-0312.
This study aims to investigate the prevalence of health risk behaviours and unmet needs of informal caregivers of a person with a health concern requiring in-home care by conducting a global online survey of caregivers. The caregiver groups that we are interested in include, but are not limited to: (1) Alcohol and other drug issues; (2) Alzheimer’s, or other dementia; (3) Cancer; (4) Mental/emotional illness; (5) Mobility/physical disability; (6) Stroke; and (7) Surgery/wounds. However, caregivers will have the opportunity to specify another group if they feel that they care for someone with a different health concern. The survey will be conducted in Australia, New Zealand, the United States, the United Kingdom, and Canada.
With this information, we will be able to develop helpful tools and resources to support caregivers in achieving healthier lifestyles, and address their unmet needs. This will also be the first study
Our survey is now available online from the 16th of March 2018 to the 14th of June 2018.
Please access our survey here: https://ands.newcastle.edu.au/quon/public/health_of_caregivers
Please feel free to share the survey with friends and family who may also provide care for someone else.
We would greatly appreciate it if you would share our study on Facebook with friends and family who may also be caregivers, or within any groups involving carers: https://www.facebook.com/UONengage/photos/a.1430062440566019.1073741830.1430036077235322/1992623040976620/?type=3&theater
Please do not hesitate to contact me if you have any questions, comments or thoughts about this study. We would also appreciate suggestions of any other organisations and/or services to contact who may be willing to promote our study through their networks. The research team is available via HealthOfCarers@newcastle.edu.au
Looking forward to hearing from you, and we greatly appreciate your participation.
Hi, I'm 29 and my husband of 32 had a stroke last year in July. It was after him playing football one night, a header caused an artery in his neck to tear causing a stroke. He is about 90% back physically but since it he doesn't talk to me anymore, he shuts himself off on his phone I have to initiate every conversation. He went back to work way too soon as his company sick scheme was very small and this affected him. He s scared to do exercise. I don't know how to help him as he shuts me out all the time. We have a 5 year old and sometimes it feels like we are just there for him.
My husband had a couple small strokes and is now in a memory unit. I visit him every day and he is calm and pleasant while I am there but when I tell him I have to leave, he lashes out at me and calls me names and tells me to never come back. Is there any way I could be dealing with this better than I am? Anyway I could make my leave taking less stressful?
I made a note here before bu n can't find it. My husband has had 2 strokes and 2 heart attacks. We are almost 9 yrs out now. This year has been difficult. I am tired, frustrated and misunderstood by my family and friends I believe. If I even mention anything negative about him or how I feel I get" well look what his life is like, he has giving up everything and has no control over nothing." Okay so I am a rotten person and not a very good caring, understanding caregiver. So maybe I should just get the hell out of here. I have to argue with him for wks to shower, shave and change clothes. I real don't have a husband anymore. Sometimes I just want to take our dogs get in the car and leave. So now I am taking a chance on let you people know what a rotten uncaring person i am. I just can do this anymore. Tom. may be different I hope
Hi everyone my husband suffered a ischemic stroke in September of 2017 and November 2nd embolic stroke and hemorrhagic stroke. His personality has changed that I really don't talk to except small talk in fear of him getting angry. He is moody, irritable, angers very easy now. We started cooking our own meals and he told me not to wash his clothes anymore. I feel like my marriage is falling apart and just don't know what to do. I have reached out to 2 marriage couselors starting off individual geared towards couple if he will go. We are 38 and 39 with 2 kids 5 and 7. Just don't know what to do anymore
Rainbow 35 said...
My partner had a stroke in January. He suffered no physical symptoms but his personality has changed immensely. He doesn't talk to us any more & only says things like woukd you like a cup of tea...its so lonely living with him like this. It's early days I know. He went back to work thus week but it's to much & he is so tired all the time yet does nothing & can't sleep well. Is this normal? I guess it's the brains way of healing itself but he feels more tired after a nap. I feel for all of you going through this.
about 1 month
Hello! First visit here. My husband turns 47 on Monday and has suffered multiple strokes since Dec. 13th. I’m 37 yrs old and we just got married in Aug. This has been the hardest time in my life and I sure have been thru a lot. I myself had a brain aneurysm (had surgery and repaired) when I was a freshman in high school ...and this period I’m going thru with my husband has been by far the hardest time of my life (and his). He is so young to be having multiple strokes and he is essentially a ticking time bomb since none of the top doctors we are working with can find the cause ....the “big mystery!” for what’s creating these nightmares for him and our entire family. We have the most supportive family and friends around but I am sinking here being his primary care taker ....feeling so alone, sad, upset, angry for this happening ...and of course feeling awful for him - seeing him go thru this. Half of my NEW husband is there and the other half isn’t. So many emotions and a complete roller coaster ride - I need to vent and find strength and encouragement from all of you, yet - with complete transparency for any negative things we are going through. No one can understand this pain without going thru it themselves. He is currently taking Coumadin and that seems to be the life saver even without knowing the cause of his strokes. Trust me - we are getting test after test done ...meeting with the top docs ...going thru the best Physical. Speech and Occupational Therapy - but wow this is all so hard. Thanks in advance for listening and I’m all ears for anything!!
about 1 month
Hello my husband has had a heart attack and two strokes. I had to quit my job to take care of him only income is his work disability. I'm both husband and wife.caretaker and Bill prayer and everything else I've been doing this for about 5 months and I'm so stressed out I he don't want to do anything with in his limits to help out that's includes making a bowl of cereal.im alone no family of my own here his family will only help if I beg I'm so sorry for complaining but I'm just so stressed thank you for listening
about 1 month
Hello! I believe this is a good place for me! We are struggling. Does anyone know of meetings that take place in person? It would be so much nicer to cry together.
about 1 month
My husband had a stroke in May. We were really lucky it was a minor one. He did really well and worked hard during his physical therapy and can walk and talk and gained some of his left arm use back. But nobody told me any information on how it would change his personality!! I know he's frustrated and feels like he's let his family down and gets worse when he sits around all day! But when I stay on him about getting up, getting out, or doing things around the house to keep himself busy he lashes! Everyone elses parents, friends etc. baby him and tells him to take it easy. Am i a monster for expecting him to get up and do the things I know he can do??
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