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Caregiving Wives of Stroke Survivors

This group is created to provide a place to encourage, give or ask for advice, or just vent to other wives who are full time caregivers to their husbands who are disabled by massive strokes.


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Nanjoy said...

2 days ago

Sometimes there is nothing you can do. You care for them and love them. Make sure their eating and taking their meds. Watching over them while they sleep,but when their time here on earth is over you must kiss them good bye and live on. Ron passed away on Sunday May 21,2017 at 2:19 pm. His heart no longer to beat life into him and passed from a heart attack on the way to the hospital.

Nanjoy said...

2 days ago

scoozie said...

2 days ago

AnneMaria said...

7 days ago

My husband suffered his stroke 2/17. We have excellent health insurance (bc/bs) which is a blessing! Husband was in hospital for 1 month 1 week and was admitted to the subacute unit on 2/16/17. I went to the hospital EVERY day to help and support him. He was released on 3/9/17 and was placed on in-home PT and speech. He started back to work on April 10 part-time and is about to go back fulltime. Prior to his stroke, we have not been intimate due to his "ED" because of high blood pressure and his high blood sugars. Never once did I make him feel bad about it because he recognized the problem. Now that the stroke has happened, he really doesn't have that much function in that area even with the aide of a pill. I don't mention it because I know some men feel their "worth" when it comes to sex. My husband has become so EVIL and verbally abusive since this has happened. He's not the caring and loving individual he was prior to this happening. I know and I am very aware of his emotions and understand his feelings because he's not able to do the things he's done prior to this happening. I am okay with this. I try and reassure him that I'm with him every step of the way. I encourage him and always put myself last, but it's getting to the point where he is so NASTY! Not only to me, but to the people who are helping him (PT). My feelings are so hurt that I have no one else to talk to. I have another girlfriend whose going through the same thing, but she's not in a position to help. I just need to know how can I get through this without loosing my mind. It's like he thinks I'm cheating on him and I'm suppose to stay home with him when he's home all the time. I have girlfriends that I go out to dinner with for a change of pace. I go to church and work. He has the ability to drive, bath and feed himself. It's like I'm suppose to put my life on hold to take care of him. Am I not suppose to have a life? I'm tired! The hole time he was in the hospital, I went to work, church, hospital and vice-versa. Ladies help me out. I'm burnt out. We are both 53 yearls old.
His stroke affected his right side and speech.

scoozie said...

7 days ago

7 days ago

DrowningK said...

about 1 month ago

I am 42 and my husband will be 43 this August. We have great insurance which is a blessing! My husband's stroke happened a year ago this month. He has complete use of his right side and is verbal. His left leg is coming around but his arm is flaccid. We have two children who are ages 3 and 7 years old. I find everyday extremely challenging. I have no help to speak of and am on constant errand runs.....school, daycare, Pt/Ot etc. I am always exhausted and can't even find the time for a good cry! I'm angry all the time, always apologizing and find that my husband and I have nothing in common.... except for the caregiver/patient communication. I don't know how to save our marriage. There are no boundaries anymore. He's like one of my children. I just don't know how to keep our 21 years together from cracking. To make matters worse. If he doesn't return to work soon he'll end up without that too. Like him, I feel completely helpless. I just want to run as fast as possible, but to where, I have no idea.

DrowningK said...

29 days ago

scoozie said...

28 days ago

JanieJo said...

about 1 month ago

I have been searching for a support group for exactly this. I'm the resident caregiver, 70 years old and totally responsible for husband who will be 76 next month. He has excellent medical care through VA, that's not a concern. Multiple strokes starting 5 years ago with the big one. He lost his problem solving and higher function, which put him squarely in my lap since then. We have been a separate couple for years, his travel and working long spells far away was how we stayed married, if you can understand that. So I'm well into 5 years of being sort of his mom, functionally. Our adult kids are busy, try to help when they can, but it's all down to me. I'm frankly pooped. He's had many TIA events and has continued to lose cognizance and ability with each. The latest small setbacks mean he needs help even more. I kind of want to go out on the porch and shriek. How do you all deal with the ongoing losses?

scoozie said...

about 1 month ago

about 1 month ago

I have been a caregiver for 10 years . When my husband had his stroke in October 2016 , my whole world has been crazy . I continue to work because I must, thankfully it was not bad , but it is a serious drain on me . His short term memory is just that , not to mention how he has trouble with forgetting what he wants to say, before he completes his thoughts . I totally feel like I am loosing my own mind .

Susan W B said...

about 1 month ago

Virginia semain said...

about 1 month ago

I too am a wife of a stoke patient. Needs full help, he is paralyzed onright side face. Arm, leg he is a little aphasia in his speech. What I would like to know is how do you women "caretake" my husband weighs 250! I can hardly push his wheel Chair let alone lift him to bed, change his diaper, bathe him, etc. he sits in his wheel chair and watches cowboys tv. We have no long term care, so hired a pvt male caregiver but I'm afraid im going to run out of funds how do you gals do it?? I just turned 80 he will be in Oct. I'm paying About 4800.amonth cash no ins.

Susan W B said...

about 1 month ago

DEDEBOSWELL5 said...

about 1 month ago

My husband had his first stroke nearly 3 years ago and subsequently has had a total of 5, he had excellent help at the VA hospital, was there several months before coming home, he quit doing any and all therapy, and now wants me to do everything thing he wants: get a drink, fix him this, that. He is handicap but not bed ridden, just sits in front of the tv, and smoking like a freight train, no exercising, or nothing, has became a complete slob (he's former military) it almost devistated us financially, he seems to hate our son, nothing he does is right, just don't know what to do anymore. Any suggestions would be appreciated, I believe the only thing left to do is divorce, but I don't want people to be judgemental about what this has done to us!

Nanjoy said...

2 months ago

i feel like a bad person for hating the stoke that has taken my life away. Rons stroke has left him mean and angry. he will not go and get help. everything that he was doing is now on my shoulders. i never do anything right. i am about to lose it..

scoozie said...

2 months ago

Nanjoy said...

2 months ago

Leah D. said...

3 months ago

Hi. I just found this site. My husband has a massive stroke July 17, 2015 that left him partially paralyzed on the left side. He was 46 at the time and I was 32. Doctors have said that he could recover but of course, there would be deficits to deal with. Prior to the stroke, he was very active but in very bad health. We also have 2 small children together. I'm a very supportive wife and caregiver but I'm exhausted, frustrated, irritated and so much more. At the time, we were only married for 4 years and now I feel my children and I were cheated. I resent him for it taking care of himself better and doing what me and everyone else was telling him to do. At times, I feel like I'm going to just break down because I have no one to talk to and in the midst of his recovery, my mother passed so I'm catching it from everywhere. I can't let my babies see me cry because I don't want them to worry but it's hard not to cry and depression has completely kicked in. Just need to vent.

junkinforfun said...

about 1 month ago

scoozie said...

about 1 month ago

woolncathairs said...

4 months ago

What's on my mind? Most of my life is comprised of living with a man I do not like at all. He cannot help having had a stroke but he has refused to try to get any better for whatever reason. He would prefer to sit in the wheelchair than to get up and walk with a cane. His doctor has told him he should be much farther along by now but as soon as he gets home, he plops himself right back down in the chair. He constantly whines for me to 'help' with things he should have been able to do two months ago. The tone is leaving his legs and arms rapidly and I imagine he will be to the point where he will not be able to recover as much as if he had tried. Everyone asks me if he is depressed. WHO ISN'T? I'm so depressed I could jump off the roof of the house. He lost several jobs before the stoke - he told our daughter he just wanted to 'do nothing'. Sure, I'd love to do nothing too, but now I can't and because of the financial situation he has left himself in, I'll be working longer than I planned to. If I am doing everything and repairing everything by myself - I'd be happier doing it all by myself. His favorite words for the 30 years I've known him have been 'I can't' and 'I need help'. If I ever get out of this mess, I will go crawl in the bushes somewhere and die when my time comes rather than EVER put myself in this situation again.

scoozie said...

4 months ago

woolncathairs said...

4 months ago

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