Caregiving Wives of Stroke Survivors
This group is created to provide a place to encourage, give or ask for advice, or just vent to other wives who are full time caregivers to their husbands who are disabled by massive strokes.
What's New Today
12 days ago
My husband has had a strike 2 years ago.his body is almost as it was .his mind isnt. He is no longer the man I married.we where best friends.did everything together .he has no sex drive now .this is not a problem although he is distant. Clearly I do everything .I got him a dog this has been is saviour. He treats me like a pest. Everything in his head is over dramatized.I have tried to bring this to his attention but then he snaps at me.I don't want to leave him .I love him.just finding it hard.
12 days ago
My fiancé is 49 and New Years day while he slept he had a stroke. I had no idea and woke up and went to work early like I normally do. When he gets up for work our son is sleeping. He showered as normal and drove a 1/2 hour to work. He realized then that something wasn't right but didn't so anything. His coworkers did nothing. I did not see him for 12 1/2 hours later and begged him to go. He believed it was a pinched nerve in his back/neck. Now he is barely understandable, his motor skills are all messed.up and the MRI proved it was a stroke. We came home today. He is super impulsive and jumpy. I've made him aware.of.it but he still wants to do things and.not be hovered over or as he calls it babied. How can I positively help him?
14 days ago
My husband have Aphasia and Apraxia, memory loss from his stroke Feb 16. He was 60 when he had it. I understand what everyone's going thru. frustrating for both of us.trying to figure out what my husband want.When i dont understand him have him to draw pics what he want and help whole lot he is doing good..But when he have his emotions outbursts man i tell you it not good at All.I am my husband caregivers.as caregivers we need that support to, because our live changed to..with stroke person they're not same person usto be yes they get angry and frustrate they can be verbal abuse and physical abuse i just get verbal abuse.they are like child mind with brain damaged they dnt mean any harm it brain that was damaged due to stroke
17 days ago
I am glad I found this group. My husband had a stroke and is 79. He was already in the hospital. He has been non-responsive for a few months now. The Doctors are Optimistic and I think there is no hope. He is on life support in a long term hospital a plane ride from me. I am numb. I am living in Israel. I visit for a few days every other week. I don't know why they want to rehab him as it looks hopeless. He has Osteoporosis, IBS, GERDS, Scoliosis, He was totally dependent on me before but now he is a vegetable. He opens his eyes but doesn't focus on me. He has atrial fib. He had bed sores as he has thin skin. I said no aggressive care but the doctor doesn't care what I say. He was diagnosed with Dementia years ago. I don't want to be a prisoner to this situation. Thanks for listening. I have a home in Colorado too and want to return this summer there. The Doctor said I can. I just feel guilty leaving him. He is getting excellent care. He has a Trach and needs suctioning every 2-hours. To me he is a vegetable.
18 days ago
It’s nearly 8 months since my husband’s stroke which was a severe brain bleed. It’s becoming more and more apparent that he may never be well enough to leave nursing home care but idea of him being there is awful to me. We had only been married 6 weeks prior to the stroke and the emotional roller coaster he experiences has him both crying for me and pushing me anyway.. what have others done to cope?
20 days ago
My husband (#3) had a stroke as a result of heart surgery at 53. I am 10 years older than him. He is aphasic and apraxic. It was a difficult relationship prior to the stroke as I have always contributed way more financially and emotionally. I am fully invested in his recovery for the time being, updating family etc. but I feel like a robot and doing what I should but I feel it out of duty rather than love and feel like I have done more than enough. He is making good progress but long term I expect there will be issues. I will commit to a year of his recovery but I can't keep giving with no return as per usual. Yes, that's my problem for not being more attentive to my needs and I finally learned boundaries prior to all this (too late) but as its not a long term relationship I'm just not feeling a commitment. I had planned to travel and do other things without him this year as he wasn't able or ready to join in but too late apparently. Sux.
about 1 month ago
Hello. I'm feeling desperate. My husband had a cerebella stroke last year (aged 46). His main 'thing' is permanent dizziness, although there are some memory and cognitive issues too. We have have three young children, including one who is disabled. Medically he has been signed off and has been told that, given the extent of his brain damage, he is lucky to be alive. Not dreadfully helpful but I guess the doctor had a point. He's horrible now. Lots of the time. He has lost almost all sense of compassion. He seems so consumed by his own suffering that he is blind to the fact that I'm not having an easy ride either. It's easier than his, apparently, so get on with it. I am the number one person on his side but he doesn't see this. He was taking anti depressants but didn't get round to having a check up so they have stopped. I think (know) he was better on them but I don't know if he sees it. We haven't spoken to each other in days. I'm always the one to try to solve things but I've just no desire to do so this time. I very much want things solved but I want him to see that he needs to sort them. I want him to see that he's not the only one having a hard time and I want him to see that he is being really unkind and unfair. I am completely lost. I cannot get through to him . Please, does anyone have any ideas? I am 32 and have my hands full. I'd love someone to help!
about 1 month ago
My husband has recently had two minor strokes. Physically he is fine. His impairment is cognitive. He doesn't fully understand what it means that he has had these two strokes. Without this awareness, he doesn't understand why he can't drive and why he can't be left alone. Mostly, I am really grieving for the vibrant, confident man that I married. Now he has trouble deciding what to wear or put in his smoothie. He blames me for our current situation. I try to explain that the two strokes have damaged his brain. I am lonely and scared. There is lots of support out there for the stroke victim, but nothing for the spouse. I do not know where to turn or how to help him.
about 1 month ago
feel abandoned by friends because husband had a stroke
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