Caregivers for Progressive Supranuclear Palsy
Progressive Supranuclea Palsy is not well known or researched but this is a devastating disease. It affects balance, swallowing, and sight to mention a few things.
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DR Kimball said...
12 days ago
Im trying to read everything on this page i can and reply time is the culprit watching the wife and being in the office at the same time hard to do and keep an eye on her as well she mostly stays in her wheel chair so all i have to do is listen when in the other room !! i gotta keep her in the chair or she will fall got hurt last time she was using the walker fell in to he fire place and got cut up might get a seat belt for the wheel chair lol and a nascar 5 point harness and a hans device lol now all i need is a race car ha ha
An anonymous caregiver said...
about 1 month ago
My husband was diagnosed with PSP about five years ago. Our doctor hasn't said much about what to expect in the future so the only info I have is what I found online. Is there anyone that has been thru this that can tell me exactly what I'm facing in the next few years?
about 1 month ago
My brother in law has PSP. He is 55. Today he told my mom he is dying. This breaks my heart. (to put it mildly) Over the weekend he found he can't walk from the kitchen to the living room. He is using a wheelchair. PSP can go to HE double hockey sticks.
Does anyone know if there is a program to donate your loved one who has passed with PSP for medical research. I know there is for Parkinsons, but can't seem to find an answer for this. I've messaged the Cure PSP Facebook site but haven't received an answer.
3 months ago
I really need help so any comments will be greatly appreciated. My 74 year old sister was diagnosed with PSP a couple months ago but we have known something was wrong for 5-7 years now. It took that long and a lot of doctors and tests to determine this. She is my older sister and helped me so much growing up. She was the sweetest person I ever knew. Now she gets very angry, laughs at everything funny or not and has had the cough for a few years already. Is there a sight where I can get any kind of timeline for this awful disease? Thank you and God Bless you all that are going through this!
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