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Caregivers for Progressive Supranuclear Palsy

Progressive Supranuclea Palsy is not well known or researched but this is a devastating disease. It affects balance, swallowing, and sight to mention a few things.

Help spread the support to more people in need -- Please tell a friend or two. Thanks!


What's New Today

6 days ago

My husband was diagnosed with PSP about five years ago. Our doctor hasn't said much about what to expect in the future so the only info I have is what I found online. Is there anyone that has been thru this that can tell me exactly what I'm facing in the next few years?

PaminUS said...

1 day ago

Carlamae said...

about 21 hours ago

JasmineRose said...

9 days ago

My brother in law has PSP. He is 55. Today he told my mom he is dying. This breaks my heart. (to put it mildly) Over the weekend he found he can't walk from the kitchen to the living room. He is using a wheelchair. PSP can go to HE double hockey sticks.

9 days ago

I'm giving up on this site. There is never anyone posting. except for me. Sad

Carlamae said...

about 21 hours ago

9 days ago

Does anyone know if there is a program to donate your loved one who has passed with PSP for medical research. I know there is for Parkinsons, but can't seem to find an answer for this. I've messaged the Cure PSP Facebook site but haven't received an answer.

29 days ago

Hello? is there anyone here anymore?

PaminUS said...

28 days ago

about 1 month ago

so sad that there is so little traffic on this page. Nothing for 27 days

about 1 month ago

wigglebulls said...

17 days ago

caringnanny said...

2 months ago

I really need help so any comments will be greatly appreciated. My 74 year old sister was diagnosed with PSP a couple months ago but we have known something was wrong for 5-7 years now. It took that long and a lot of doctors and tests to determine this. She is my older sister and helped me so much growing up. She was the sweetest person I ever knew. Now she gets very angry, laughs at everything funny or not and has had the cough for a few years already. Is there a sight where I can get any kind of timeline for this awful disease? Thank you and God Bless you all that are going through this!

about 1 month ago

2 months ago

There's not much traffic on this page. Of course, I haven't been here for months, and I don't know why. Just writing here makes me feel better. Like a diary. Thanks for being here.

PaminUS said...

about 1 month ago

about 1 month ago

2 months ago

Help! My own anxiety is getting in the way of caring for my husband. I am short-tempered and angry with him. I know this is horrible, but I can't seem to help myself. I feel so alone. I have no one to stay with him so I can get out. Grocery shopping is done while he takes his afternoon nap or late at night when he's asleep. I am so exhausted.

Amyb56 said...

3 months ago

My 90 year old mom has PSP. She is declining to quickly. Her word finding , time awareness and ability to reason is going so fast. Now she is becoming agitated. This is a miserable illness

PaminUS said...

3 months ago

NicinUS said...

3 months ago

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