Cancer Support Group
Welcome to this online support group for caregivers, family, friends, and others with an interest in cancer care! Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with cancer. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone.
Help spread the support to more people in need -- Please tell a friend or two. Thanks!
What's New Today
Yesterday my husband had LLC Chemo beads infusion directly to. 2.6 cm liver tumor. He has had a severe reaction... up most of the night... sleeping now. Difficult to get him to eat. He MUST to take any pain Medication. I need support from other caregivers on this path. I am distraught, I know this is a long process. How can I be the best caregiver for him? Your stores and support is greatly appreciated!
I'm Greg and my wife of 42 years has stage 4 lung cancer, aphasia from a stroke, and severe diabetic retinopathy. I am retired and full-time caretaker for about the past year. I have no real leisure time because I see to most of her needs while those assisting me take care of things around the house. It would be great to communicate and share experiences with people who understand what I am going through.
My name is Julie and it's my first day in the group, but I've been struggling a lot lately. I lost my mom to Metastatic Breast Cancer when I was 19 (about a year and a half ago). I took 2 years off mid-way through my undergrad at the University of Michigan to help out with caring for my mom and to attend grief therapy. I'm very anxious about heading back in the Fall.
I recently got a job at this beautifully amazing and inspiring peer-to-peer cancer support non profit called Imerman Angels. It's been a blessing for me to walk into a work environment where almost everyone has their own cancer story. Not long after I started, though, my mom's sister and my aunt was diagnosed with Colon Cancer. It seems like cancer is an inescapable thing in my life. My mom first got diagnosed with Breast Cancer when I was in 4th grade, then my dad with prostate cancer in 7th grade and then a week before leaving for college, my mom was again diagnosed with stage 4 Metastatic Breast Cancer. Now, it's my aunt (and I'm one of the primary caregivers).
I guess I'm just incredibly drained and tired of watching so many adults that I'm supposed to be able to rely on and that I love suffer and have them lean on me. Just felt like I needed to share that and I like the idea of online support in addition to my Mentor Angel.
Just because it helped me so much, I wanted to share a little more about the organization for your sake as well in hopes that it might be a good, free resource to remind you in another way that you're not alone.
Imerman Angels is a free peer-to-peer cancer support organization where we match both patients and caregivers to 'Mentor Angels' who have endured very similar circumstances. My 'Mentor Angel' helped me a lot during my mom's journey and later with my bereavement. She was also the youngest daughter of a mother who had the same type and stage of cancer with the same treatments, similar side effects and was trying to handle caregiving while also trying to be a normal college student. She was such an incredible person that I now became a Mentor Angel to another daughter.
You all seem like incredible people so I just wanted to provide that info so that you know it exists because I wish I had known the option was there even earlier than I did.
Here's the link if you want it: https://imermanangels.org/get-support/
I'd be happy to talk to anyone further about that support if you have questions and obviously about my own journey. I look forward to getting to know everyone more!
My husband has Anaplastic Astocytoma, brain cancer, that along with surgies, chemo, and radiation has impacted his cognitive abilities. He is fairly young and was super athletic so his body is quite strong. He believes he can still do activities that he just can't plan out anymore. He wants to help out but just can't problem solve even simple tasks anymore. I feel so bad keeping him from doing tasks that were once routine but find that if I don't we can really get into trouble quickly. A little example of this is that we have a dog who gets clipped to a dog run in the back yard for excercise and to go potty. Today my husband went over to the slider, flung the door open. and let the dog loose in the neighborhood. It is Spring, finally, and the dog was happy to go for a run. My kind neighbor returned my dog to me so I didn't actually have to choose whether to leave my husband alone for a bit to look for the dog or just hope the dog would come back this time. It seems these little incidents happen so darn quickly. If I run to the restroom there is trouble waiting for me. Has anyone else had to limit activites of their spouse and keep them basically in a chair or bed for their safety or other's safety more often than not? I make him promise to stay in the recliner when I run to the restroom but often he forgets and is on the move before I get back. Feeling so bad about the situation and frustrated as well. This is the first time I am posting to any kind of support group. I am usually on the supporting end of the discussion and finding it is hard to share my true feelings about some of what we are going through.
about 1 month
I feel horrible. My husband has cancer stage 4, tonsil cancer. I snapped at him for something he couldn't help and hurt his feelings. I told him how sorry I was but still I have no excuse for it. I really have no one to talk to about what is going on. I guess I just needed to talk to someone.
about 1 month
Hi everyone. My mom was diagnosed in April 2016 with Ovarian Cancer. It was the biggest shock and worst thing we had to go through. She had an amazing doctor though, went through surgery and chemo and she was cancer free just over a year later! She’s been cancer free for almost another year.... or so we thought. She was just recently (this week) diagnosed as having a tumor on the right side of her brain and a cluster of tumors or lesions on the back of her brain. She has since started whole brain radiation. It’s only been 2 treatments. They say they have a really good success rate. But she can’t stop crying. She can’t sleep. And when she does finally fall asleep, she can’t stay asleep. I’m afraid she’s developing depression along with her anxiety. I just feel so helpless. I just needed to share my story and ask if anyone else going through cancer with someone they love and are caregivers to, have any advice? It would be greatly appreciated. Thanks
An anonymous caregiver said...
about 2 months
Not sure what to say. My daughter was just diagnosed with leptomeningo cancer. This is stage 4 breast cancer that is around her brain and down the spinal cord. She is a single mom. Our relationship has been strained, but I need to start taking care of her and I the kids. I am soooo scared and afraid that I won’t know how to help her.
about 2 months
My first time here. My husband died from the cancer three weeks ago. By the time is time was up he had cancer everywhere. He started with colorectal it moved to liver, bladder, lungs, and was growing around his heart. He had two ostomy's a port two hernias (from the surgeries) and by the time he died he had no idea who i was. His birthday is today and I miss him so much. I have to admit I would not want to change places with him but i would love to have gone with him.
I am a caregiver for my husband ,who was diagnosed with Multiple Myeloma Cancer in January, 2014. It is getting more difficult for him to walk with a cane, so our daughter purchased a motorized scooter for him. I was wondering if anybody would have some information of where we could get a lift to put the motor scooter in the bed of our pickup truck. The bed of the truck has a hard cover on it, so it would probably have to be a platform lift that we could put the motorized scooter on, and it would raise the scooter up to push it into the truck. Any input would be greatly appreciated. Thank you.
An anonymous caregiver said...
My wife was diagnosed with Stage IV NSCLC in Oct '17. She is amazing and handling it well. Treatments are going pretty good. For me, I'm stuck in the grief stage of sadness. When I'm alone I get upset and then feel guilt because she has the cancer but I'm the one who can't handle it. Anyone else go through this emotion?
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