Cancer Support Group
Welcome to this online support group for caregivers, family, friends, and others with an interest in cancer care! Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with cancer. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone.
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What's New Today
about 24 hours ago
Does anyone know anything about the drug Ruxolitinib (Jakafi)? We are trying to get my Mother in law into a nursing home for bone cancer and she is on Jakafi and gets it on a needs based program from Novartis. The nursing home in her town said they will not take her because of the medicine she is on. They said it is too expensive. She would still be able to get it through the program in the nursing home.
4 days ago
Hi im about to be fourty and my husband is 13 years older then me .we have been married for 17 years and together 21 years . we just found out he has stage 2 bladder cancer , he has started his first round of chemo and it was really had on him . life has changed so much in the past few months . it's all we talk about now . I don't know if there's anyone who can relate to what we are going through . it would be nice to talk to someone that understands. Thanks Vonda
5 days ago
My husband had a brain tumor 2 years ago, he had surgery, radiation and a few rounds of chemo. He did ok on the radiation, but the chemo was way to hard on him. He only completed three rounds of chemo, before it almost killed him last August. Chemo was stopped and the tumor remained stable until his last MRI a few weeks ago showed it was growing again. He is scheduled for surgery to remove it in July, but in the meantime has been having bad headaches daily. The doc had him on Tramadol which worked for awhile, but recently stopped working. He just got a new RX for Tylenol #4 which we just started today.
I'm just wondering if any of your spouses and or significant other are on pain meds and what has or has not worked for them.
13 days ago
my grandfather had two masses removed from his brain last week; melanoma metastisized. he's now in an nursing/rehab refusing to eat he's lost ~20 pounds in the last month. Lost his sense of humor, one word answers, not remembering a lot. We have a care plan meeting on Monday.
18 days ago
I'm 23 and I've been caring for my grandma for almost two months now. She has primary cancer in her left lung with mets to the brain.. lots of mets to the brain. She's currently in the hospital where an assessment will be made if it's time to bring in hospice. On a day to day basis, we don't know who we're going to get with her. Either the vibrant, hopeful, stubborn woman we all know or a shell of person we don't recognize. Or we may get an angry mess you have to walk on egg shells around. It's exhausting and I love this woman so much. As I lay here this evening, I'm starting to realize all the time I didn't spend with her when she was well the last couple years and I have so much regret. My heart hurts thinking about the times I didn't stick around just a little longer for conversation. the time I get with her now is dear to my heart but I have so much regret for the times I wasn't there. I just needed to vent a little while letting the tears roll. Thank you for reading.
about 1 month ago
How to handle angry, reactive family members.???? My 86 year old mother in law was diagnosed with advanced ovarian cancer in February 2017 and started double chemo, no surgery. The 1 PET scan showed metastases to liver, spleen and various pelvic implants. A more recent CT with contrast should slight improvement in liver and spleen and stable disease of pelvic masses . I adore her and have known her for over 40 years. She and Pop live in Florida, my BIL and SIL live close by the rest of us in New England. At the beginning, I suggested that we all keep in close touch through texting and I was very impressed how they all came together- impressed because the family has few communication skills to deal with bad/negative info. I have a background in medical research and saw both of my parents through cancer. I let them decide if they wanted me to be the medical translator. No matter how careful or gentle I am with mom's condition, it is frequently met with disbelief, denial and hostility. During text conversations about worries over her weight, nausea, etc., I offer what I know, have experience with and only evidence-based information. It is taken as criticism or a direction, not simply as offered- hey here is some interesting info on how this or that might be approached. Even with my husband (supposedly) talking directly with all of them when visiting FL along with his sister, it has only gotten worse. I asked how I might relay info better- SIL texted (HER capitals) that I made her feel STUPID, and she is NOT stupid. Of course I apologized again, told her that I do not think she is, acknowledging that she is doing such much of the work and doing it so well.... had to block their numbers so I wouldn't text (G_d how I hate texting at this moment) something in snark mode. Any suggestion ??
about 1 month ago
Hi, My 77 year-old mother was recently diagnosed with breast cancer. A stage 2 carcinoma in her right breast which has gone from the size of a golf ball back in January to about the size of a handball now. Thankfully it has not metastesticized. It's at 5cm.. They are recommending a mastectomy. But it would seem my dad and sister are not willing to agree to it. She also suffers from alzheimers and lives with my dad. I've set up and have taken them to all the appointments and even went to Sloan Kettering for a second opinion. They all agree that she needs a mastectomy to have it removed. Chemo will not even be necessary. Thankfully all these appointments have been quick in succession. But now. It would seem my dad wants to wait and seems as if he does not want her to have surgery and is afraid of the risks. Also adding that we should have faith. No matter what questions I answer. No matter what reassurances I give concerning the risks, I'm not getting anywhere. I'm trying to get this going because I know she will have a chance of survival rather than leave it alone or waiting till it spreads. I've tried everything. But at this point my dad is like., worry about your own problems and family and don't keep interfering. I certainly can't drag her and have her get surgery. I'm at a loss and feeling helpless.
about 1 month ago
Hello my disabled Hubble was diagnosed with prostrate cancer 7 years ago ,been in hospital for 2 months he came home a month ago and won't eat me and our children tried everything ,sleeps most of time only awake 3 hours a day at most ,cancer nurse says prepare for worst but we can't give up gets so hard at. Times
Pat and Peter said...
about 1 month ago
Hi. My name is Pat. My husband was diaganosed wth stage 3 non small cell lung cancer last March. The doctors were encouraging about the cancer being in remission. However, the chemo brought out a incurable disease called idiopathic pulmonary fibrosis. Which is incurable.. This has been difficult to deal with . He was a strong healthily looking man prior to the cancer diagnosis. After chemo. (Which had to be stopped short because it gave him such breathing difficulties. He now needs 6 liters of oxygen to move. His attitude is incredible.. We got a call today from his ongolgist saying that he needs aPET scan after a suspious cat scan that was preformed yesterday.. So scary, we were /are learning to manage the IPF . I cannot believe that cancer might be on the table again as well.. This disease is just so scary. So many ups and downs...physically and emotionally. We both retired to fight this disease together but it is a really tough fight. His motto is to defy the hand you're dealt but it'really hard. I get so emotional with every set back.. How do people stay strong for their partner???
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