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Alzheimer's & Dementia Care

Caring for a loved one who has Alzheimer's or another dementia? In addition to the Stage Groups via the Steps & Stages resource, we also offer this new online support group for family caregivers with loved ones across the stages of Alzheimer's or dementia. Please introduce yourself, share about your caregiving experience, and let us know how we can be of help to you.

Additional resources that may be helpful:

Group created in February 2014.


What's New Today

BadSpottedDog said...

about 1 hour ago

First, a little history: I am an only child, caring for my Mom with stage 6 Alzheimer's. She can still get around "OK", but has no cognitive ability left, and her memory is maybe 1 second (on a good day). She still knows who I am most of the time, but does get confused. She is not violent, but does get agitated, especially in the evening ... sun downers, I know. My husband and daughter and I have literally moved ourselves and my Mom to Thailand so we can actually afford care for her. (Just ask me about the 27 hour flight for her to get here. OMG) Fortunately, we are able to work online, and still make a living. We currently have a Thai lady coming in 5 days per week to sit with and watch Mom, cook and clean, because I am working all day. My Mom cannot understand why I can't sit with her all day and visit. While the home we are in is safe, it is NOT what she is used to, and not home to her. She cannot be left alone for any length of time, as she has already gotten out of the concrete perimeter wall to "go for a walk". The neighbors ended up bringing her home. Question: There is a wonderful resort in Chiang Mai, Thailand which is affordable, and specializes in Alzheimer's care. It is a short and cheap plane ride away, so we would be able to visit her often. Since we are not able to keep her active all day, and we cannot visit with her all day, we are thinking it would be best for her to go there at the end of the year. Even though we take her out to eat, to visit the elephant, go swimming, etc .. when we can, she has no recollection of it. She is always convinced that she just sits on the couch all day. :( She is always complaining about not having much to do but watch TV, which she really doesn't watch anyway. It's basically just background noise. She is not comfortable doing any art or craft project, and refuses to. I have heard that if you wait too long to put them in a home, they never fully adjust. So .. is it better to move her sooner rather than later? Or hold out as long as we can?

pochop said...

16 days ago

Like all on the posting, at times feel that I have reached my limit of caregiving. Been doing all of the household task for the past 10 years,
Have one caregiver that comes in weekly for her shower. Have an Adult day care center that I take her to three times a week. Now in Oct. she fell and broke her hip, resulted in a hip joint replacement.........as she has no short term memory, she cannot remember to use her walker, Have resorted to alarm pads for chair and bed. She has further decline of mental acuity, she now does not eat and I have to feed her. Even thou I get free hours during the day, the knowledge that from 5pm to 9-10am, the tasking is mine......dealing with the incontinence problem is challenging, As she still knows me and relies on me, I cannot find it in my heart to institutionalize her. Thinking/considering looking for a live in caregiver that can share the load..........it would be so nice to be able to get away for a vacation an recoup the necessary energy. What I need is homeless woman, 50-60, turstworthy and free from family ties..........good luck.

emptynest said...

16 days ago

Sndra said...

17 days ago

I have begun caring for my mother, an alzheimers victim, in our jome-full time. We just lost my father, her husband of 67 years. She suddenly feels she is no longer at home and "wants to go back". Having outlived most of her friends and those that stopped visiting and/or including her once the changes became obvious, she is simply lonely. I would like to contact others in the community to provide in home social visits - creating a group of like persons-similar to an in home "meet-up" The stage of the group would be those able to visit, communicate, feed themselves, "able to engage". The hardest part for my mom is lonliness and all she had now is me. She was always social. Any feedback, ideas, possibilities.? We live in Round Rock, Tcx

pochop said...

16 days ago

Just sheryl said...

16 days ago

Just sheryl said...

18 days ago

I am about to lose it! I have 3 sisters, and a brother, I have no help. I got the chance to leave the house today because my brother is home. I got to come home and do my mum's laundry and to spend that time with my husband. I have 3 grandchildren, two of them lost their dad 3 years ago, the are now 13 and 10. When my son in law passed away so suddenly and unexpectedly, I moved in with my daughter to get the day to day things done. Get the kids to school, get their uniforms ironed and ready, check homework, and talk to the parents of the kids school that would bring dinner for the first month.
Now that I have to live with my mum, I can't get to see my kids. I am so super stressed about this summer. Last summer my grandson and I found a local pool that he just loved, we spent almost everyday there. On other days when I had the day to myself I would leave early go to Geneva on the Lake spend the day at the beach get something to eat and return home. I would go to my grandson's game and became honorary Grammy of the team. How do I get through the day, and not be able to think how I can accomplish some of this, this summer? I know I am thinking to much, but I cannot control my thoughts. I am EXHAUSTED!

Just sheryl said...

15 days ago

gojojo said...

3 days ago

Kathycan313 said...

21 days ago

Hi, I'm caregiver to my 80 y.o. Mom, and really feeling overwhelmed today. She has dementia and fell and fractured her pelvis 6 weeks ago... Long story short, when she has times of lucidity she is hateful and argumentative, and thinks I'm telling her to use a walker just to be mean, my patience is worn thin and we have 2 dr. Appointments today. How do you deal with them fighting you every step of the way? just getting her to put on clean clothes is a battle and getting a shower is a huge ordeal.... I'm sooooo tired! And no, there is no one else to help, my brother is useless in this and acts like it is not happening. We can't afford to hire any help either, so it's just me and my husband helps as much as he can... I get so angry to, the guilt is awful.

gr8grma said...

20 days ago

Just sheryl said...

18 days ago

Katt1 said...

26 days ago

I have been angry , and kinda lost my temper w my parents , verbally before ... I think I was actually taking their disease out on them a bit ... I felt bad and always apologized ... I am having to learn to watch what I say , as in basic info and I am trying to come to terms with the fact that I am no longer able to talk to them , as I was before they were sick ... I have grief over this . It's just me and them .. as in family .. Has anyone else been angry and said things they shouldn't have ??

Katt1 said...

25 days ago

Just sheryl said...

24 days ago

kkhood said...

27 days ago

how do I help father with dementia but no power of attorney

kkhood said...

27 days ago

emptynest said...

27 days ago

Dcunningham said...

29 days ago

I attended my first local support group to find an outlet for my pain, anger, sadness, concern and so much more in dealing with my mom who's suffering with dementia and stepfather whose simply developing a failure to thrive! I did enjoy making connections with people in similar situations n I believe these monthly meetings will be great for my well being as well as giving me a wealth of information!

emptynest said...

29 days ago

DottieJones said...

29 days ago

Mom has Lewy Body demntia. She's 98, very poor vision and hearing in spite of hearing aides. She experiences longer and more frequent phases of disconnectedness. Much of that is that she lacks any way to engage her mind. I always disabuse her of the negative ones, denying or steering her from them. It's difficult enough to engage her in conversation, so I wonder if it's wrong to play along with her harmless delusions just to provide an avenue of conversation.

Julie N. said...

about 1 month ago

Hi all. I just joined. I live with my parents to help care for Dad, who is in the end of sixth stage AD. He is still continent but his behavioral issues are becoming too much for mom. He verbalizes constantly (sometimes very loudly) and wanders the house "talking" for most of the night while we are trying to sleep. I am interested in talking to anyone who has experience with trying CBD oil for Alzheimer's. Thanks!

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