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Alzheimer's & Dementia Care

Caring for a loved one who has Alzheimer's or another dementia? In addition to the Stage Groups via the Steps & Stages resource, we also offer this new online support group for family caregivers with loved ones across the stages of Alzheimer's or dementia. Please introduce yourself, share about your caregiving experience, and let us know how we can be of help to you.

Additional resources that may be helpful:

Group created in February 2014.


What's New Today

1 day ago

My Mom who has AD has been in 2 Board and Care homes since Jan 2017. Each one had a major problem: dislocated jaw at #1 and at #2 they neglected to hold her Xeralto as instructed and she ended up bleeding "profusely". 911 was called. Also, she got ESBL prob. from Home #2. Maybe it is time to bring her back home. I don't know what to do.

emptynest said...

1 day ago

about 21 hours ago

Shell44 said...

4 days ago

So my mother-in-law is on namenda for her Lewy body dementia. I noticed she was getting very short of breath. I'm not sure if it's the med or disease causing this. Her primary Dr is on a leave so we see a new Dr on the 29th of September. I am thinking of calling her neurologist and see what he thinks is going on. I'm trying to take care of her. I'm just so scared I've never seen her like this before. We are in the process of trying to find a place for her to live and leave her house. She agreed to do this as it's safer for her. Right now I have an emergency pendant with fall detection. I just need to advice or any information on this disease. If anyone has had experience with this disease it would be so helpful.

Shell44 said...

4 days ago

Ladymiller said...

4 days ago

leener1234 said...

7 days ago

I care for my 85 year-old father in my home. He has been diagnosed with dementia with possible Lewy Body disease. He says he is hearing "chanting" or "singing" in his head at different times, most often when he's sleeping or just awaking. He said it's very loud and interferes with his sleep.

He is taking Donepezil, which has helped improve his memory and alertness.

I have read about hallucinations, but most of them are visual. Does anyone know about hearing things like this? Is there anything that can be done? I already bought him a white noise machine, which helps a bit but not when he's walking around during the day.

emptynest said...

7 days ago

Jakiejf said...

16 days ago

Is there is there any place anytime a day center for early stage of Alzheimer's my husband just retired and all it does is just sit in a chair he's not using his brain for anything I was wondering if there is a learning center for him to go to a couple hours couple times a week I live in Lynchburg for Genia

emptynest said...

15 days ago

11 days ago

16 days ago

My father has Alzheimer's. He is cared for by my step-mother. I live about an hour away but I call almost every night to speak to him and check in. Tonight I called and found out that my father was plunging the bathtub full of brown water. Apparently he had a bowel movement while showering but appeared to have no idea of what happened. My step mother didn't persist on how it happened but instead cleaned him up and reshowered him. I'm not sure what my question is, other than is this something that happens as the disease progresses? Is this something that his doctor needs to know about? I appreciate any feedback.

P. Rose said...

15 days ago

dboothe said...

13 days ago

17 days ago

I've been helping out with taking care of my grandparents. My grandmother has Alzheimer's, which she's had for years, and my grandfather has a recent onset of dementia due to a stroke in March of this year. I've noticed that it's getting harder for me to deal with things, and I've been more short-tempered lately. Last week was really rough as I had to wash my grandmother's hands after she went to the bathroom (she always forgets), and she fought me, which she usually does, but this time with raising her first at me multiple times and kicking at me. I ended up yelling at her, which I know I shouldn't have, but everyone can only take so much. Just looking for some more support because some days are harder than others.

emptynest said...

17 days ago

Suzu said...

28 days ago

My mom was placed into the Assisted living the 1st of August. She has dementia. As of last week she decided that when my husband and I moved her there we replaced her mattress with an old one and her recliner also. She has called us both and even threatened to call the sheriff. I knew it would take a few months to get settled but her decline is so sad. I live 150 miles away and can't get there everyday to help her. I can't talk to her on the phone because she screams at me about me lying and stealing. What can I do?

Ladymiller said...

28 days ago

AysenurTask said...

23 days ago

His Honey said...

about 1 month ago

So far, my experience on this sharing group has been to add support and share my faith. Now, I am facing a dilemma created by my own thinking. We are moving next month from NC to GA. My daughter and her family are there, but the primary reason is because assisted living is almost $2K less than it is here. Even though we have long-term care insurance, they only pay 80% of the cost. Currently, my husband has regressed to having very little comprehension or cognition. I would say that his awareness of who I really am is limited but not totally forgotten. I am his full-time caregiver and do not object to any of the required tasks involved in his daily needs. Since being diagnosed, my stance has been that I would continue to care for him until or at such time that I was physically unable either due to my health or his physical ability deteriorated to the point of needing physical assistance for daily care. And, I have been content with that decision. The house my daughter is helping us purchase is about half the size of the two bedroom apartment we are now living in and is the perfect size for retirees. We have moved several times in the last five years, and each time is a readjustment period that takes months for my husband to acclimate. Over the last several years, his memory goes back to his childhood home and wants to "go home" meaning there. Not really recognizing his surroundings as being "home".We are going to travel there (a 10 - 11 hr. drive) for the closing, stay for a week or two to get a feeling for the size and what we really need to bring with us. We will then return to NC to pack up and close out the apartment. That requires so much activity, helter-skelter boxes in almost every room and nothing resembling home. So, I thought it would be best to put my husband in respite care for the time that I need to be in NC. Now to the dilemma - would he be better off to leave him in assisted living and not try to return him to a new home environment to try to acclimate? There is a little nagging voice saying to me, "Isn't that why you have paid for long-term care insurance for all these years and the premium has now doubled? Shouldn't you (me) be able to give up the day-to-day responsibilities and enjoy the times when you can go visit, daily if you want to?" I hate that nagging voice, because it is so contrary to what has been my commitment to care for him until I am no longer able. Another option, I was able to find a facility that offered memory care day care which he was able to participate in a couple of years ago. But, I have had cautionary advice from someone at the facility where he was in respite care recently that at his stage it would be far more disconcerting for him to be shuttled back and forth; that what he needs is continuity of environment where he feels safe and at home. Guess that made sense to me, so have probably ruled out daycare. So, fellow caregivers, based upon your experience what do you think would be the best scenario for my husband?

GoldenPoppy said...

26 days ago

PJJOJO said...

17 days ago

DonnaElizabeth said...

about 1 month ago

Mom died 2 weeks ago. She was home with me and she came to the point where she was eating about 3 tsp of puréed peaches a day and sips of punch. Then, no longer would take in anything due to inability to swallow. It all sounds wretched and it is. But as I've learned in my life with God near there is also beauty in the midst. The Lord provided precious tenderness in our last days that I will treasure always. But oh the anxiety and worry and stress..... having helped her fight the fight of living then switching gears ....yet again for the millionth time ....to fight for her comfort and peace. Sadly, in the background, before she was gone while on Hospice, one sister was buried asking me to reject mom's wishes of a burial, another sister was actively seeking to take away my privilege and honor to fulfill mom's wishes and take it away from me to give to a non family member the right to mom after she died; just as soon as mom passes, a brother who for no known reason just flat out ignored my offering him and his wife to stay at my home when the funeral took place and my husband getting drunk two days after she died and woke me from a sleep and called me a bitch. What world am I living in? My one sister came to the funeral. (A funeral my mom prepaid for in a contract) The other, who worked behind my back, went to a party across the country. I will never understand this. But I have looked it up and found that this is quite common. I've no regrets. I took exceptional care of my mom. I sacrificed so that she would always know someone she loved and trusted was always near. It was hard as hell and I'd do it again. ❤️

Wezzles said...

about 1 month ago

gb402434 said...

about 1 month ago

hatter said...

about 1 month ago

Hi all, I just moved my mom into an assisted living facility. She has dementia and has packed up all her things and said she is leaving! She is very angry with my sister and I. She says" She just can't do it" I am so confused and don't know what to tell her. She fell at home and she is no longer capable of taking care of herself. I know she is where she needs to be but it's so painful to see her so upset. She says she's knows I'm the one that put her in there! Thanks, Jill

RosaR said...

about 1 month ago

hatter said...

about 1 month ago

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