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Alzheimer's & Dementia Care

Caring for a loved one who has Alzheimer's or another dementia? In addition to the Stage Groups via the Steps & Stages resource, we also offer this new online support group for family caregivers with loved ones across the stages of Alzheimer's or dementia. Please introduce yourself, share about your caregiving experience, and let us know how we can be of help to you.

Additional resources that may be helpful:

Group created in February 2014.


What's New Today

Jakiejf said...

1 day ago

I’m so mad all the time and that’s not me . I fill like I’m loosing my mind.

Ladymiller said...

1 day ago

Shell44 said...

about 1 month ago

So I need some advice. My mother-in-law has Lewy Body Dementia. 3 weeks ago she fell and was in the hospital for over two weeks. She is currently at a therapy center that also has long term care facility. She seems to be sundowning as last night was really bad. I called out to the facility today and was told she was given oxycodone for a headache. Tylenol wasn't even given. I am thinking of talking to her Dr on Monday and discuss with her to get rid of the oxycodone as she is not in pain. I'm thinking she might need an order of Ativan to help her with sundowning if it gets really bad. I having trouble with family members that are in denial of her disease. Has anyone had a loved one with Lewy Body Dementia had issues with sundowning. It seems after her fall the disease got much worse. I try to tell everyone we have no control over this disease but we need to come together and be there for mom. Any advice or information is greatly appreciated.

Thank you

talkey said...

24 days ago

talkey said...

24 days ago

about 1 month ago

New to caring for spouse with memory loss has not b even diagnosed but I know..how do I v egin

9 days ago

sallyzellers said...

7 days ago

2 months ago

My Mom who has AD has been in 2 Board and Care homes since Jan 2017. Each one had a major problem: dislocated jaw at #1 and at #2 they neglected to hold her Xeralto as instructed and she ended up bleeding "profusely". 911 was called. Also, she got ESBL prob. from Home #2. Maybe it is time to bring her back home. I don't know what to do.

about 1 month ago

Wezzles said...

about 1 month ago

Shell44 said...

2 months ago

So my mother-in-law is on namenda for her Lewy body dementia. I noticed she was getting very short of breath. I'm not sure if it's the med or disease causing this. Her primary Dr is on a leave so we see a new Dr on the 29th of September. I am thinking of calling her neurologist and see what he thinks is going on. I'm trying to take care of her. I'm just so scared I've never seen her like this before. We are in the process of trying to find a place for her to live and leave her house. She agreed to do this as it's safer for her. Right now I have an emergency pendant with fall detection. I just need to advice or any information on this disease. If anyone has had experience with this disease it would be so helpful.

Shell44 said...

2 months ago

Ladymiller said...

2 months ago

leener1234 said...

2 months ago

I care for my 85 year-old father in my home. He has been diagnosed with dementia with possible Lewy Body disease. He says he is hearing "chanting" or "singing" in his head at different times, most often when he's sleeping or just awaking. He said it's very loud and interferes with his sleep.

He is taking Donepezil, which has helped improve his memory and alertness.

I have read about hallucinations, but most of them are visual. Does anyone know about hearing things like this? Is there anything that can be done? I already bought him a white noise machine, which helps a bit but not when he's walking around during the day.

emptynest said...

2 months ago

Jakiejf said...

3 months ago

Is there is there any place anytime a day center for early stage of Alzheimer's my husband just retired and all it does is just sit in a chair he's not using his brain for anything I was wondering if there is a learning center for him to go to a couple hours couple times a week I live in Lynchburg for Genia

emptynest said...

3 months ago

2 months ago

3 months ago

My father has Alzheimer's. He is cared for by my step-mother. I live about an hour away but I call almost every night to speak to him and check in. Tonight I called and found out that my father was plunging the bathtub full of brown water. Apparently he had a bowel movement while showering but appeared to have no idea of what happened. My step mother didn't persist on how it happened but instead cleaned him up and reshowered him. I'm not sure what my question is, other than is this something that happens as the disease progresses? Is this something that his doctor needs to know about? I appreciate any feedback.

P. Rose said...

3 months ago

dboothe said...

3 months ago

3 months ago

I've been helping out with taking care of my grandparents. My grandmother has Alzheimer's, which she's had for years, and my grandfather has a recent onset of dementia due to a stroke in March of this year. I've noticed that it's getting harder for me to deal with things, and I've been more short-tempered lately. Last week was really rough as I had to wash my grandmother's hands after she went to the bathroom (she always forgets), and she fought me, which she usually does, but this time with raising her first at me multiple times and kicking at me. I ended up yelling at her, which I know I shouldn't have, but everyone can only take so much. Just looking for some more support because some days are harder than others.

emptynest said...

3 months ago

Suzu said...

3 months ago

My mom was placed into the Assisted living the 1st of August. She has dementia. As of last week she decided that when my husband and I moved her there we replaced her mattress with an old one and her recliner also. She has called us both and even threatened to call the sheriff. I knew it would take a few months to get settled but her decline is so sad. I live 150 miles away and can't get there everyday to help her. I can't talk to her on the phone because she screams at me about me lying and stealing. What can I do?

Ladymiller said...

3 months ago

AysenurTask said...

3 months ago

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