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Alzheimer's & Dementia Care

Caring for a loved one who has Alzheimer's or another dementia? In addition to the Stage Groups via the Steps & Stages resource, we also offer this new online support group for family caregivers with loved ones across the stages of Alzheimer's or dementia. Please introduce yourself, share about your caregiving experience, and let us know how we can be of help to you.

Additional resources that may be helpful:

Group created in February 2014.


What's New Today

Julie N. said...

about 22 hours ago

Hi all. I just joined. I live with my parents to help care for Dad, who is in the end of sixth stage AD. He is still continent but his behavioral issues are becoming too much for mom. He verbalizes constantly (sometimes very loudly) and wanders the house "talking" for most of the night while we are trying to sleep. I am interested in talking to anyone who has experience with trying CBD oil for Alzheimer's. Thanks!

barbaraluma said...

6 days ago

I begin caring for an 83 year old woman with moderate dementia in 2 weeks. She is an extended family member (my sister-in-law's mother). I will be living at her house and working with her 12 days on and 2 days off. I haven't even started yert, but I do have a really good tip for stress relief for caregivers. Learn to meditate. You could take at least 10 minutes before they wake up in the morning or after they are asleep. I can guarantee it will be worth it! I recommend mindfulness meditation. I tried many types of meditation before I got the truly discernable results I get with mindfulness. It will also help during the day to apply mindfulness in situations that would otherwiuse be super frustrating. There are lots of resources for mindfulness meditation online that have free information.

Just sheryl said...

5 days ago

FAL said...

8 days ago

I have been taking care of my mom (Alzheimer's) for seven years at home. My dad, 85, makes me promise to keep her at home and I will. He is so depressed over her - they have been married 62 years. She has recurring UTI's from incontinence and now her fourth c difficile from the antibiotics. She gets belligerent when I try to give her medicine - I crush pills and mix in lemon sorbet. Any ideas to make this easier?

FAL said...

8 days ago

8 days ago

Just sheryl said...

10 days ago

Hi, I am new to this group, and just looking for people that would understand my anger or fear, usually in the morning getting ready to face another day or in the evening after a day of trying to explain to my mum that we are in her house, that she has lived in for the past 55 years. My mum had dementia, my dad had Alzheimer's, my grandpap had a bad heart and was 96 years old, my gram was 94 years old and had a problem getting around. I took care of my dad, moved in with my gram, and placed my grandpap in home care hell hole. I signed everyone of these loved ones into hospital, nursing homes, and personal care homes. None of them were ever the same and they all died soon after I took them from their homes. I am now taking care of my mum and living with her, and I will NEVER place her in a nursing home. And that is my story. Just looking for another adult or person to talk with that can carry on a conversation. I have three sisters, that I have not seen or heard from since bringing my mum home for the hospital

8 days ago

Just sheryl said...

8 days ago

Ctabor said...

12 days ago

Dad has Alzheimer's, restless legs, possibly Parkinson's. Had a pacemaker put in Dec. 20th. Jan 27th they checked pacemaker and discovered that bottom lead may have come loose the first week after pacemaker was put in. They just went in today and fixed the lead but we have to keep his arm in a sling for a week. We had a hard time doing that when the pacemaker was put in and that may be why the lead came loose. He is taking his arm out of sling, I had a shirt over the sling and he some how managed to get his arm out of it and had the sling twisted around so he could use that arm and hand. Does any one have any suggestions on how I can stop him from taking arm out of sling?

debby24 said...

11 days ago

Ctabor said...

11 days ago

DLEAKW said...

13 days ago

My Mom is forgetting to use the bathroom...today she had a bowel movement in the middle of the hall and she continues to urinate in her clothing...is this part of a stage with dementia? She was diagnosed with Vascular Dementia

12 days ago

Ladymiller said...

11 days ago

cheresasue96 said...

13 days ago

does it get any easier? I'm twenty and I take care of my grandma. Lately it has been getting really hard. Some days she just stands in the bathroom and talks to the mirror, which I don't mind, I sit on the floor and listen to the conversations she has. She has been falling lately, and her feet are swelling really bad. And I cant seem to get her to sleep at night. Im really looking for some advice.

emptynest said...

13 days ago

Ladymiller said...

10 days ago

DonnaElizabeth said...

16 days ago

Just need some knowledge on dementia and the flu. Somehow my mom who is housebound has gotten the flu. I brought it in from somewhere. Anyway, her fever was pretty high, 103, and this morning it's down to 99. But she is completely disoriented and has forgotten how to stand up! Is this normal? I gave her some Motrin last night and a mild anti vomiting med that she is used to taking from time to time. It's not like she took narcotics. Does being sick with the flu cause people with dementia to become disoriented and lose large motor skills like sitting and standing? I'm confused.

Ladymiller said...

16 days ago

DonnaElizabeth said...

14 days ago

27 days ago

Does the Veterans Administration have benefits that pay for in-home care?

judie22 said...

19 days ago

Julie N. said...

about 22 hours ago

wakemeup said...

about 1 month ago

In 2014 I noticed that my father started shuffling when he walked. I had read that walking like that was connected to dementia. I dismissed it because just 8 years prior I had gone through this with my mother . Then he started confusing seasons and time of day. He started forgetting the word for what he was talking about. In January 2015 I discussed my observations with his doctor. I was ok because he had a checkup in the summer of 2014 and was tolf he was in excellent and the mini test they give seniors to determine if they have mental issues was good so you can image after we talked, my surprise with my dad's behaviour. He felt someone was getting in the house and stealing his tools because he could not find them. He repeatedly called the police to report the theft. He insisted I drive to a dealership where he did not purchase he car to ask why they gave the keys to a person we called "the man". He put locks and chains on all the doors and kept his things on a cart that he kept in his bedroom. He started hallucinating. At that time he was 95 and in excellent condition except for his mind. After back and forth with the doctor, his supervisor put my dad on 25my of seroquel at bedtime. He had horrible dreams so I cut the pill in half and sometime fourths. While on seroquel my dad was back to his normal self. The things he was doing started very suddenly. It was like someone flipped a switch. At that time he would threaten me but not harm me. One night he shot a gun in the closet ajacent to the bedroom I was sleeping in. He said he did it because he knew the man was in the closet. He talked to the man and himself. He did a lot of babbling and having two way conversations according to my brother. I never witnessed that. After 1 month my father refused to take it anymore sitting horrible dreams and dizziness. I was afraid the behaviour would start all over again. Surprisingly it did not. For an entire year my father was his old self. He did not many of the things he did. In October 2016 it started again but this time he was violent. After several episodes the hospital did a TDO and he was transferred to a facility where they said they would regulate his medicine. From the reports from staff he was doing great with occassional bouts of anger. After 2 weeks they sent him home. They put him on 1/4 seroquel morning 1/2 dinner and 1/2 bedtime. He was no longer combative. They said he was mild to moderate stage. Recently I told his. doctor it was not working as well as the first time. He has the occassional anger spells which bothers me because I now have home health care. After a 2 day hospital stay he became unable to bear his own weight. It takes 2 people to transfer him from bed to chair and vice versa. I did not know loss of motor skills was a side effect if seroquel is what is causing it. He has been sleeping a lot but the last 2 days it became really bad. The help was unable to wake him this morning so I just let him sleep until he was ready to wake up which was 10 am. He goes to be at 7 pm. Normally he sleeps a few hours and spends the rest of the night mumbling except the last 2 days. The last 2 days he has been sleeping uninterrupted. Today I could not wake he enough to get him to eat or take his medicine. Is this normal progression? Has he jumped from mid to late? Is the seroquel causing this? The hospital put him on Remeron which I thought was for sleep not the seroquel.

emptynest said...

29 days ago

wakemeup said...

29 days ago

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