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Alzheimer's & Dementia Care

Caring for a loved one who has Alzheimer's or another dementia? In addition to the Stage Groups via the Steps & Stages resource, we also offer this new online support group for family caregivers with loved ones across the stages of Alzheimer's or dementia. Please introduce yourself, share about your caregiving experience, and let us know how we can be of help to you.

Additional resources that may be helpful:

Group created in February 2014.


What's New Today

popi said...

4 days

Dear Group: After noticing my DW's memory problems 20 years ago and being a very slow progression, which I am thankful for. She was finally diagnosed with Alzheimers ten yeas ago and started on Airocet which was change to Donpesol soon after and has been on it ever since, don't really think it is helping anymore. Did try the combo which seemed to rile her up.. Now she is at the point where she does not know what day it is, what year, what month. She does not recall her grand children or that they have children. She has memorized our children and can repeat their names when asked. I doubt if she recognizes them though.. We get together a couple of times a year. She is having some anger problems and our CNA quit and said she was to abusive (verbally) The agency said they could not send anyone else unless I doubled the fee. So am doing her baths myself and it is working I developed thick skin. The doctor we have been going to (geriatric) says this is all normal for the disease and has subscribed Zoloft to help keep her calm, but does not seem to working too good. He won't subscribe anything else. Is it time to change doctors? Some one suggested a neurologist, to test her and find out just what stage she was at. I really don't want to put her through a bunch of tests just to find out what I already know. I know I am over protective and we have been together 63 years. I guess just putting all this down is some help in itself. There is a sweet lady from hospice that comes once a week and gives me a break. We also have a gal that comes once a week and helps me keep the place clean. New doctor? Neurologist? Keep on keeping on? Hugs, popi

faith01 said...

4 days

popi said...

4 days

Libby20 said...

7 days

I couldent take care of her because I have health issues and it put more stress on me .She lived with us for 9 months but her alzheimers was getiing worse so we had to place in nursing home .no support from my siblings .they don't go visit her because they wont be getting any of her money I am still sick and everthing is on my shoulders if I don't go see her she gets no company theen the guilt starts I take care of all her finances and when she needs something she wont call any body but me I don't know what to do anymore

faith01 said...

7 days

Kycountrygirl said...

7 days

Libby20 said...

7 days

my mom was living with my brother for 2 months because she couldent live alone anymore. They were after her to give them her money by starting a power of attorney when she refused and they were charged with elderly neglect

Kycountrygirl said...

7 days

Libby20 said...

7 days

brother was taking care of My Mom in his home for 2 months I didn't know that they had just done it for the money,. The told their daughter to move in My moms house because she gets evicted alk the time .She moved in and did not pay any utilities so we had to have her evicted. When my mother refused to make them poa they basically put al her belongings on their porch an

Kycountrygirl said...

5 days

12 days

Not sure if this right place for this. My mother is in assisted living in Massachusetts, my sister is also in Massachusetts and is primary healthcare contact, I am in in Wisconsin. Basically we have run out of money to keep her there and her health has declined enough to move her to a skilled nursing facility so we started that process but seem hit roadblocks with the MassHealth (Medicaid) application. Now the assisted living facility has given my sister a termination notice and I am in a complete panic of what to do, Does anyone know anything about Massachusetts care for elderly and/or stopgap places she could go until we can get MassHealth? The skilled nursing will take MassHealth pending but they are looking at the application and are concerned that it may not get approved due to some financial things between my mother and sister.

red_at_night said...

18 days

In a nursing home, how does the staff change soiled incontinence underwear on a dementia (probable AD) patient who has lost so much function that they don’t even recognize what their own feces/urine is but still has enough physical function remaining that they will very actively physically resist and run away from any effort to change them?

19 days

I'm 26 years old and my mother has dementia at 62. Does anyone have any suggestions for how to provide care, or useful things to tell yourself when you're feeling overwhelmed or worn out? Also , do any of you go to support groups?

red_at_night said...

18 days

faith01 said...

18 days

tgreyesp said...

about 1 month

I live with and care for my 92 yr old grandmother-in-law. The doctor mentioned that she is " starting to get dementia" but went no further because there was another medical issue to deal with. She has a lump on her breast. Today we found out that it is cancer. Unfortunately she has to ask numerous times what the Dr told her today. Everytime she gets very quiet and sad and repeats that she doesn't want him to cut her open. The Dr was not very happy with her decision to not have her breast removed so we asked about taking some pills to slow it down and to make her comfortable so that she could know all of her options. She has a health care directive and power of attorney but every time we see a doctor they ask me to talk to her and try to change her mind. Is that even legal for them to ask me that? She did all of that stuff beforehand and she can remember what she put it in and she is still sure that is what she wants. I don't know what to do but keep telling them she has already made her decision and they must respect them. On top of them I have non-immediate family members telling me that I am a horrible person for not just letting cut her open and removing her breast and some have eben called me a murderer. I am so lost. I want to help hed but I also what to respect her wishes. Thank you for letting me ramble. Any help would be greatly appreciated.

momsdaughter210 said...

about 1 month

tgreyesp said...

about 1 month

Handinhand2018 said...

about 1 month

How do I get involved

aroider said...

about 1 month

Kycountrygirl said...

about 1 month

shellybo said...

about 1 month

When a loved one has Lewy Body dementia, is it appropriate to allow them extended sleep after Behavior that is unusual for them? I don't mean unacceptable behavior. I mean falling and shaking with Parkinson's like syndrome and falling to the left side regardless of where they are resting. I have family members who prefer a stricter regimen. My experience tells me to allow extended sleep in order for him to awake much more like himself. Any thoughts on this?

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