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Alzheimer's & Dementia Care

Caring for a loved one who has Alzheimer's or another dementia? In addition to the Stage Groups via the Steps & Stages resource, we also offer this new online support group for family caregivers with loved ones across the stages of Alzheimer's or dementia. Please introduce yourself, share about your caregiving experience, and let us know how we can be of help to you.

Additional resources that may be helpful:

Group created in February 2014.


What's New Today

still-trying said...

about 18 hours ago

Hi ! I joined this group as a last resort. So sorry to say it that way. I have always had a extremely close relationship with my mom. She was my best friend. I still live just down the street from my parents. I truly believe that both of my parents are suffering from some dementia or worse. Mom has been going through treatment for breast cancer. I was taking her to pretty much all her appointments. Chemo 5 days a week, for her tests and many other things. My adult children . Who live at home for now would be sure to help get them both good healthy meals. Things seemed to take a turn for some reason and my sibling started to take over. She takes complete control. I have no idea what has been going on with her health, sister takes her to the bank just about every time they go out and has not even let my dad go with. I do think that my sister has some survelliance in their house as when we are there she will call or just drive by. My sister is a diagnosed bi-polar and there is a long history of family problems. Mom has now stared accusing my daughters of stealing from her . She is just plain cruel to all of us. I brought her lunch one day and she called me a traitor. My sister adds to all this by telling my mom that dad has a gf. she had trackers on his phone . One time while trying to get mom to hospital she burst in ( against dads request ) and hit my husband. Then went home and then beat herself up and tried to get a order or prot. against him. It did not go through as her lies were very obvious . When my family visits my parents house her family will stalk our house. They drive up and down our street. They yell curse words and other threats. We have cameras in our car and around our house now. We have also gone to police but until something bad happens.... ? Here is where things just keep getting worse. Mom just keeps turning more and more against my family. It is so very hard to deal with the hurtful things she says. She has even told my kids she will write them our of her will. They were hurt but said fine. We work for what we have. My sister has been dependent on my parents and is always taking from them financially. She has even sued us at one point. I dont know if there is even anything I can do to help with my relationship with mom. At this point I am afraid of also losing my daughters. Our family has been through so much hell and back but.. we still keep getting drug through it. If there is a game y sister and her daughter has played it... They are hurting our parents so much more than they realize. All my fiends, family and I have even sought out counceling tell me to step away. I take to much degrading,, being humiliated , and it is slowly destroying me. ( and my entire family ) I am sorry for the long post... I am truly at my wits end with all the hurt, pain, conflict and being harassed. Has anyone else gone through stuff like this. I have already lost my best friend. The loving kind mom I once knew is no longer there. Anytime I visit or even call she just seems to want to argue. I was always her go to for everything. I have contacted our lawyer but I am at a loss for what we can do ? My sister and her family does not even keep my parents fed properly . This daily pain is overwhelming. Do I keep trying when it does seem that my sister has convinced her to turn on us. My granmother had alzhem. and I know she turned on those closest to her. It was also a long long road. Again, sorry for my long post. Any suggestions or helpful advice would be so much appreciated.

emptynest said...

about 5 hours ago

still-trying said...

about 4 hours ago

whimsyburd said...

5 days ago

This sweet lady I see now is a stranger to me I want to ask this sweet lady where did my mom disappear? I want to ask this sweet lady to have a look in the mirror I want to ask this sweet lady where did my mom go? The truth is this sweet lady just does not know My mom is still alive I know this to be true My mom is in her own reality which I feel is just so cruel I need to stop questioning the why and the how I need to start accepting the here and the now I mourn for my mom who knew how to comfort me I mourn for her presents will no longer be I mourn for her laughter, spirit and strength I mourn for her hugs and talks we had at great lengths I mourn for her elegance, style and grace I mourn for her kindness, energy and pace I mourn for her caring for children and friends I mourn for her giving heart which the list just never ends I mourn for so much I can not even possibly say I mourn for the mom I was friends with each and every day I mourn for the mom that that was always there for me I mourn for my mom who I will no longer see Even though this time is ridden with despair In my mind my mom will always comfort me there In my heart and soul my mom will always hold the key This sweet lady I see now is a stranger to me

~ Mollie Burd

Kathycan313 said...

4 days ago

Nimble said...

3 days ago

Shell44 said...

9 days ago

I am concerned about my mother-in-law. She is 72 years old. She has been experiencing memory loss for over a year now along with numerous falls. We took her in to get a referral for a neurologist. He did very minimal testing. I had everything documented from hallucinations to falls and memory. He wasnt too concerned but did run blood work. She came back with low b12. They started doing the injections and it turned to worse. She called me at work and I picked her up from the hospital. She was unable to walk. She was taken to another hospital to have a ct scan done to make sure there was nothing else going on in the brain. The neurologist never ordered one. I called the nurse yesterday to the neurologist to inform them that things are getting worse with the injections. I just don't know what to do

whimsyburd said...

5 days ago

Shell44 said...

5 days ago

barbaraluma said...

about 1 month ago

What about outings such as shopping trips, going to restaurants, etc. with someone with dementia? It seems to me that the woman I am a live-in caregiver for (extended family -- she is my sister-in-law's mother) is very disoriented both while out and after coming home for awhile. Is there a point at which outings should stop? Yesterday, her son took her to the cemetary to visit her deceased husband's grave. Is that a good idea? She is still very ambulatory, but is forgetting how to perform simple tasks.

irisized said...

15 days ago

barbaraluma said...

15 days ago

Apeacock59 said...

about 1 month ago

Hello, my husband, daughter and I are living with my mom. We've been with her for nearly four years now. She has been experiencing signs of dementia for sometime now. Shortly after we moved in she was hit and miss with her meds, and she takes LOTS of them. She has severe macular degeneration and is constantly seeing things that are not there or misconstruing what she sees. She also has sarcoidosis, copd, atrial fib. I have one sister that lives very close and one that lives hours away. I get very little help from either of them. An occasional "day off" is about all I get a month. My husband, daughter and I all work and it's a constant battle trying to get someone to be with her while we're at work. I definitely have caregiver burnout to the max. I was a caregiver to our son who has severe autism for 16 years. We had to place him in residential care and he is doing much better. Once again I'm experiencing exhaustion, isolation and depression. I feel so guilty for feeling this way. Thank you for any help or words of encouragement.

emptynest said...

about 1 month ago

RyanD said...

about 1 month ago

My dad is 76 and his memory is getting worse and worse. He can't remember something he told me or saw an hour before however his long term memory is sharp as ever. He hasn't been diagnosed with anything. I was looking into trying CBD oil with him and see if that helps at all. Has anyone had experience with CBD or any other recommendations? He is very active however I can tell his memory loss is taking hurting him. Thanks all

emptynest said...

about 1 month ago

whimsyburd said...

5 days ago

Hummingbird770 said...

about 1 month ago

I really need this site. My Husband and I are taking care of my 97+ yr. old Mother with Dementia. She is at the stage where she cannot say a name or noun, or understand anything beyond simple ideas. She has forgotten that pills go in her mouth and that she must swallow them with water. She does small things over and over and cannot get to the "next" thing. Toilet paper might as well be nonexistant, she won't use it, causing me to go to the bathroom with her maybe up to 10 times a day as she takes diuretics for heart failure. If I don't, you can guess what gets in her hair and under her nails. I need help with these small type problems, just everyday solutions about the nitty gritty stuff. I am coping as best I can, but traits of "sneaking and hiding" are getting me down. The minute I turn my back she is off to the bathroom to do it the way she wants. Bless her heart, Mom doesn't live there any more.

Ladymiller said...

about 1 month ago

whimsyburd said...

about 1 month ago

Totally depressed. My mom is not my mom anymore. I am grieving all of the time seeing her as a different person. She is still sweet and kind, but a different person. I can not hardly stand seeing her this way even though she is not combative.. I get so depressed after seeing her and looking at pictures from just five years ago. My mom is gone. She still knows me, but she is not my mom anymore. I feel like I can not get closure since she is still alive. This is just a long and agonizing goodbye. I do not want to go on meds for depression. I am eating right, exercising and socializing. I have a great support with my husband, sister, and daughters, but still am battling depression and grief,. IT is like a sick feeling in my gut, and I am tired. Some days better than others and for some reason mornings are hard when I wake up. Nights are better. I sigh a lot lately too. My one sister and I are getting along great, but my other sister and I are over. But that is a whole other problem and yes it is came on when my mom became ill with undefined dementia. Additionally, this diagnosis bothers me too because it is so vague. I feel everything is the unknow including the is fricken diagnosis. I can not hardly stand it. And on top of it all I feel tremendous guilt about having my mom in a nursing home She is incontinent now and can not walk or even move the wheelchair.

gb402434 said...

about 1 month ago

Lost816 said...

24 days ago

Jakiejf said...

about 1 month ago

I think I need a psychologist I'm angry at everything and everyone

Wezzles said...

about 1 month ago

Ladymiller said...

about 1 month ago

ShellbellTX said...

about 1 month ago

I am at the end of my rope. I am 45 yr old and the care taker for my father who has recently been diagnosed with dementia. I took care of my mother for the last few years before she passed away almost 10 years ago. I am tired!!! No help from my brother and my kids are in their early 20's with lives/families of their own. I am separated from my husband ( he is not help at all) and I don't really have anyone to lean on or a shoulder to cry on. I just want to run away for a few days....but then my problems are just there waiting on me when i get back. Ugggg!!!! Dementia/Alzheimer's is such a cruel disease. .

about 1 month ago

whimsyburd said...

about 1 month ago

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