Alzheimer's & Dementia Care
Caring for a loved one who has Alzheimer's or another dementia? In addition to the Stage Groups via the Steps & Stages resource, we also offer this new online support group for family caregivers with loved ones across the stages of Alzheimer's or dementia. Please introduce yourself, share about your caregiving experience, and let us know how we can be of help to you.
Additional resources that may be helpful:
- Alzheimer's Info Center
- Memory Care Communities in U.S.
- Professional In-Home Caregivers
- Senior Money and Legal Resources
Group created in February 2014.
What's New Today
5 days ago
Hafa Adai All, I realize my issue is not nearly as serious as most but I sure would appreciate some advice. My wonderful spouse is sliding slowly but steadily down the hill of dementia. I realize she may need to move to a facility in the next year or so. I am trying to "lighten the load" of items in our home of lots of years. I was doing OK on things she had accumulated, giving them to Navy Relief. Saw a big box of stuff, opened it and found it wrapped in newspaper from 1991! Found lots of house things we bought together, saving them for our "dream home." That did not happen, life intervened. I remembered each piece as I unwrapped it. Somehow it all got rewrapped and back into the box. I just cannot seem to be able to let loose. Any hints of how to let loose of this? Stumper, Pilot in Almost-Paradise
24 days ago
Ok everyone plz try your best to take care of yourself I know we hear this & easier said than done but I'm laying in icu yes I have Addison's disease that made my health worse but I also allowed to much stress on my body Drs are saying stress can lead your body into dehydration high bp low potassium which can cause cramps etc and death if depleted I'm going to share my report as soon as I'm home so you can see more details as caregiver we find it feeling impossible to relax or get help we put our lives & health aside for our loved ones but how can we give our best if our best is wreaking due to not being healthy mentally & psychically or if we allow stress & our health to God forbid take our lives who is gonna be there for them maybe this seems emotional or crazy I admit I'm not @ my best right now but I am blessed to be alive to be with my brother I'm working as my dr advised on saying I'm blessed to be alive to have my life not just to be alive for fear of leaving my brother you know most of you feel that way for your loved one but that's not ok you should see & love yourself like myself & ppl on this site see you and push harder to relieve yourself from stress & heartache I know that's my prayer for you all wishing you my best angels love & prayers Mandy
28 days ago
Hi there. My mom is 84 and my dad 86, I am 55 and I take care of them. My priority in life? My parents. I try to do my best but I have my health issues too and sometimes I feel over stressed. We are together 24/7. We moved to Henderson seeking health help. I really feel lonely and frustrated when one of my condition (fibromyalgia) activates or when I can hardly move or walk. I try to be positive most of the time but there are times I feel I could get some help.
about 1 month ago
My mom is 92 and has a hard time balanceing. She holds onto furniture and walls when she walks. She has a walker available but will not use it. My husband and myself work during the day and we cannot be with her. I want to bring in help but my mom does not want anybody at the house with her even though she complains that she is lonely. Nobody has POA and she will not sign POA. She takes a lot of time to care for her without any help. She has the money to pay somebody to come in, but insist that she does not want anybody to come into the home because then she would have to get use to that change and she is tired of learning new things. I need help and I need to know what to do. I have no diagnosis but I am sure she has dementia. She will not let me take her to the doctor which she has not had one in years. I just got her accepted to see my doctor but she does not feel that she needs to go. She has never been on medication and she has done a full life of activities that most people do not do in a life time but now I see her just being alone during the day and calling anybody she can to listen to her, and I see the disease eating away at her. My mother did art all her life and has over 300 pieces and we had an auction, but the art pieces were not allow to be sold. We suggested putting them in a temperature control storage unit so we can move on and get her house sold. She now wants us to get a building for her to hang her art work in so she can sell her art. She wants to hire somebody to run the art gallery and she tells me that it is her money and she can do with it what she wants. She will not help by having anybody come into the home and pay for that, but wants a gallery. She pays nothing while she lives here and my husband and I have no life accept when we work and even then I worry about her being alone. Also I got one of those medical alert system for her which she feels that she does not need. I have suggested a million things to her to help with the situation and she continuously says no due to learning a new change. Without POA I am not sure what to do. If I get a diagnosis I know I can go for guardianship but the lawyer I went to see stated that it would be about 5000.00. I love my mom, but she is exhausting us and so negative about everything. I need a break what can I do. Everything you read says not to argue with her, but giving into her is not doing anything also. She just continuous to complain, repeat things a million times, when confused, she cannot hear or understand, helping her physically getting to one place to another, showering her and doing her daily hygiene, talking to the siblings on the phone and then they give their two cents worth to her on the phone and that causes her to be upset, the distrusting, she plays between my husband and I, although that has lessen due to either of us will listen to her when the other one is not present and we tell her that, so she leaves it be. I feel that my home is not where we want to be anymore and we just want our lives back. This person I am living with is not the person that she use to be and even though there may be glimpses of her once in a while, most of the time she is angry and this very negative person. I know that she has a hard time losing everything and I know that she knows her self is gone and she has told me that she does not feel like a person anymore. What do I do to get somebody in here and help us while we are at work and she pays for the help. I make just enough to pay the bills and we are getting close to retirement age and would like to retire at some point. Any suggestions on getting her to complete POA and Durable Health paperwork. She has nothing in place. Any suggestions would help.
An anonymous caregiver said...
about 1 month ago
I need some feedback. I apologize for going on and on.
Quick background: My mother was 75 when I lived with her for almost a year, in her home, when my dad died and when I was going through a very difficult time (e.g. autoimmune diseases, loss of parent, disagreements with my siblings about money). After that year she we were both doing a lot better, but I felt trapped, had major financial issues that I was stressed about, and needed to leave. Luckily, she was strong and able enough to take care of herself and I moved to an urban area where I could make a living.
Fast forward to today: My mom is now 80, suffering with mild-moderate dementia (I think), and has serious hearing loss, My financial situation is much better, and I decided to move back in with my mother to help take care of her as she ages. I have been here about 6 weeks and don't know if I can do this! Although we talked on the phone almost every day while I was away, I was not prepared for this. I feel that I am being weak and selfish as she is really not that bad yet. What has changed? For one, I think I put too much of my previous unhappiness here at home on being sick and struggling financially. Now I am feeling just as trapped and miserable as I was before. Also, my mother rarely leaves the house now. She used to go to church every Sunday and would run errands or see friends at least once or twice a week. Now she is always home, following me around, wondering what I am doing and where I am going. I am never alone. She opens my door without knocking and told me yesterday that she put her ear against the wall we share to listen and heard a ticking sound - Do I have something in the bathroom that ticks? Who cares?! Why are you listening to me in the bathroom? She can't hear well and I find myself feeling angry all the time because I am screaming. Even if I'm happy, once I start yelling so that she can hear me, my body tenses up and gets the message (wrongly) that I must be upset. My sister that stops by once a week for an hour walks on water, but if I ask my mom to please let me know when people are coming over, I get, "I'm always in trouble about something!" This makes me feel terrible, like she thinks I am mean, and does not appreciate me. I no longer respect or talk to my siblings and it is a huge stress both when they come over (and I stay in my room) AND when they don't come over, which makes me angry and resentful. If I had my own space I would not have to deal with them.
The thing is, all the dementia stuff is easier for me to handle - the losing of items, repeated conversations, becoming disoriented, having trouble paying bills correctly. It's her constant presence and total loss of independence that is killing me. I don't know anyone here, it is not a big town, and I feel isolated, though I have zero desire to get out or go do anything. I know this doesn't make sense, but that's how it is. I also recently found out a friend from high school is dying of cancer at age 46, the third of my friends to recently die in their 40s or come close. I think about my own mortality and feel like I am going to die alone here with no one to care about me, or will waste what few good years I have left being miserable.
I am considering moving out and getting an apartment nearby. I know it will only be a short while before my mom REQUIRES more full time help, so I'm not sure it's worth it. I also don't know that I can be the person that cares for her. She is okay financially, but does not have extra to spend on care and is insistent on staying in her home. I feel like a failure, and a selfish, bad daughter, I can't stand how my sisters shirk their duty to her, and it kills me that I might end up doing the same.
What should I do?
about 1 month ago
My husband has Parkinson's & dementia. He knows who everyone is & where he is & does not wander. He can't be trusted to cook a meal, drive, take a phone message, or do simple home repairs. Lately I've noticed a new problem. Although he has no problem showering, dressing & getting to bed, if he gets up at night to use the bathroom, when he returns he sometimes can't remember how to get back into bed! A couple of times I have found him in bed on his hands & knees & unable to figure out how to lay down. Last night was one of those nights. I just reassured him & talked him thru it. Sadly, he's aware enough to be aware of his cognitive decline. Today he told me that he had a dream that doctors were standing over him saying, "there's nothing more we can do." How do you convince your loved one everything will be ok, when you know it won't?
about 1 month ago
I just admitted my DW to an Alzheimer's facility near our home. She did not know ahead of time but seemed to be okay as she blended in to mixing with staff and other residents. We left as she was occupied with others.. They asked that we wait a week before visiting to allow her to become familiar and to get used to depending on the aides. This has been just gut wrenching for me.
Any suggestions on handling the first visit back to see her? I need to try and enter happy and positive. Not sure how to approach the first time.
Load More Conversations