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Alzheimer's & Dementia Care

Caring for a loved one who has Alzheimer's or another dementia? In addition to the Stage Groups via the Steps & Stages resource, we also offer this new online support group for family caregivers with loved ones across the stages of Alzheimer's or dementia. Please introduce yourself, share about your caregiving experience, and let us know how we can be of help to you.

Additional resources that may be helpful:

Group created in February 2014.


What's New Today

popi said...

12 days

My DW is incontinent, but she will get up in the middle of the night and use the bath room. Not durning the day though and gets really upset if I keep checking on her. She will just sit and watch TV and go and sometime it is poop. This does not seem to bother her and she will deny she has messed. I guess I should be happy she gets up at night and goes. Anyone else have this problem? hugs popi

red_at_night said...

12 days

Dentures and dementia:

How are caregivers handling issues related to dentures in their loved ones with dementia?

For example, my mom takes out her dentures often even though we constantly fit them to be comfortable. She has even broken them several times; she squeezes them like one of those hand grip exercisers and cracks them (thankfully we have a very good and patient dentist).

At some point in the course of the disease do caregivers have to switch loved ones to a mostly liquid or soft food diet that can be eaten without any dentures or teeth but still has all the right nutrients and fiber?

What are your denture issues with your loved one? How are you handling it?

12 days

red_at_night said...

11 days

Mellie253 said...

19 days

Hi! It’s been a while since I’ve posted in the group. My mother in law is declining. It pains me to see such a drastic change, in both behaviors and memory. For the last few days, she’s been insistently saying that we’re on a spaceship and the “monsters” are trying to take control. The next minute she’s telling me she hates me and that all “nggers should be kept in their place. I take all her words with a grain of salt, as I know those aren’t her views, but damn, it’s tough! Today is a good day. She’s thanking me when I help her. She didn’t argue when I asked her if she was ready to get out of bed and shower. But I’m holding my breath, as the day is not over and things could change at the drop of a hate. I guess I just came here to vent and have a wooosah moment. I pray everyone who takes the time to read this is having a good day. ❤️

mermaid grandma said...

18 days

Jack malone said...

21 days

Mom has lbd my problem is her boy friend he's a stubborn mule 85 yrs till me to leave us alone he has run off all mom's family members but me this fool is driving me crazy even taking her off med cause of $ mom has tons of money help me please

sjRog said...

27 days

My mom often thinks I'm her boyfriend. I don't know how to handle this

21 days

Wezzles said...

19 days

SisterM said...

about 1 month

I am reluctantly caring for my younger brother -- have been for more than a dozen years -- who has dementia and assorted other health problems. He's only 62, but he needs help with just about everything. A nursing home is not an option due to his particular health issues. I'm resigned to keeping him with me, but I'd like to find some ways to reduce my stress and frustration. I have pretty much exhausted the options for outside help -- he does get a little, but most of the daily burden is mine. What I'd really like are some suggestions for how to counteract the negative feelings I experience, especially the most dreaded task of putting him to bed every night. It can be a long drawn-out affair, depending on whether he's having a good or bad day, and it eats up the little time I otherwise would have for myself. (I work full-time at home in addition to caring for my brother.) I'm not religious, and I don't drink or use tranquilizers, so prayers and drugs aren't for me! Any ideas?

FergusonDT said...

about 1 month

Hi everyone ...

Has anyone ever had to deal with a nursing home trying to do an "involuntary transfer" for your loved one with dementia (Alzheimer's)?? I can't believe that's happening to us!! Mom has been at the same facility for 4 years and now they try this! Anyone been through this before?? Thanks!!

Ladymiller said...

about 1 month

justwaiting said...

about 1 month

popi said...

about 1 month

I was on this group for some years and had to change my email address and trying to get back on went down hill from there. So Hello I am popi and my wife has Alzheimers and in the later stages. We are doing the best we can to keep her home as long as I can. I had a gal coming in twice a week to bath her from ResCare for the last year. The gal did not show up and when I inquired was told my wife was too abusive and she would not be back. They would find someone else, then called and said they could not do that 22 dollars an hour as the contract read. But they had a bathing price of 35 dollars they could do. ??? The girl that came was only here for 1/2 hour but I paid the hour and lately would help her by keeping my wife calm somewhat. She gets very verbal. So I will have to find some one else, I guess their contract of several pages is just to cover them. Sad

popi said...

about 1 month

Kycountrygirl said...

about 1 month

GSzxv said...

about 2 months

Hello again. I'm back and unfortunately, things are not going in my favor. My dad and I were in the process of having my grandmother transferred into a nursing home from our home, but her doctor believes that she is of sound mind and can make her own decisions, which basically leaves us stuck. I've never felt more defeated. Have any of you been through a similar situation and how do I convince the doctor to see the truth about my grandmother? She cannot make these sort of decisions for herself anymore.

GSzxv said...

22 days

Kathycan313 said...

22 days

2 months

I read part of a lady's comments on her husband who has Parkinson's with Lewy Body Dementia.. We have recently been given the same diagnosis regarding my husband. How are you handling this?

emptynest said...

2 months

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