Alzheimer's & Dementia Care
Caring for a loved one who has Alzheimer's or another dementia? In addition to the Stage Groups via the Steps & Stages resource, we also offer this new online support group for family caregivers with loved ones across the stages of Alzheimer's or dementia. Please introduce yourself, share about your caregiving experience, and let us know how we can be of help to you.
Additional resources that may be helpful:
- Alzheimer's Info Center
- Memory Care Communities in U.S.
- Professional In-Home Caregivers
- Senior Money and Legal Resources
Group created in February 2014.
What's New Today
3 days ago
MY mom has advanced Alzheimer Disease, I have be caring for and looking after since the beginning in 2003 despite the fact that I have Cerebral Palsy.
My mom got approved for medicaid long term insurance in June 2016 after being on the waiting list for 5 years she was approved for 27 hours of home health services than in October her hours were increased by 15 hours per week according to the home health agency who sent an another aide to cover the 15 hours, now on December 26th her hours of care was decreased down to 10 hours a week.
I filed a compliant with state and requested Phone Hearing after getting the "RUN AROUND" from the insurance company now claiming she does qualify. The phone Hearing with DCF and the Insurance is set for February 1, 2017.
I am preparing for the Hearing does any one have any advice?
6 days ago
My husband is crossing some threshold. I don't know if it's dementia, Alzheimer's or depression. Will not go to the doctor..... he calls things by different names... can't understand what I'm saying or just doesn't listen.? Lies a lot. Toilet habits are lacks. And he's really, really slow. I find myself with little tolerance.
9 days ago
My father was admitted to the hospital dec 10 he was diagnosed with sepsis after several tests were ran. He also was diagnosed with dementia yet unknown how far he is. He then was sent to a care rehab place On dec 20th he has a catheter because he has his prostrate sitting on his ureter causing him to not release his bladder fully which caused his blood infection into his body. Since transferred to a rehab he has not gotten out of bed but a couple times to shower ( but he needs assistance) he refuses PT and OT daily, hecwint eat but little bites here and there if that, he is angry, sleeps all the time, hardly ever wants to visit and shuts you out when he is dine talking , he will not answer questions about why he is not moving and refusing to do daily life activities. He orders my mom and I around constantly, watches tv non stop, says he wants to die,he is just an angry person anymore, he has lost so much weight he has no strength, yet supposedly he needs help to sit up and the other day I forgot my jacket he was laying down when I left and I went back and he was sitting up on the side of the bed with his feet hanging down, it's like he is faking it. We do not know the severity of the dementia as dealing with the doctors has been difficult to get answers, as they say he has been having mini strokes and maybe has Parkinson's He has been put as failure to thrive And will be moving to hospice care If we do not go up everyday he makes us feel guilty by calling But we go and see him my mom and I and he is awful to us or he sleeps If it's my brother or my husband he is awake Wants to see his grand daughter and is awake for her but angry at me for something if I ask a question of any kind shits me out I just feel horrible my dad is like this he was a fighter taught me never to give up and he is I wish I could understand this is all new to me and my family Stressed, depressed, sad, unsure etc. any advice would be greatly appreciated
9 days ago
I feel guilty for even complaining. My mother has plenty of money, lives in a great nursing home, but has dementia yet is at stage where she knows she does and is always very depressed and scared. I work full time, intense job, live in same town, but I'm overwhelmed with managing her bills, visiting her, and my sister is ill and lives far away. I'm always tired, can't sleep well, am seeing a doctor and psychologist and getting medication, but I feel so alone and lately just Netflix binge etc. Exercise is hard bc I broke a toe. Need to find local support group but so far they are all during the day and for people who have parent(s) at home. Luckily my husband is loving but i have come to resent his comparably carefree life. He won't come with me to visit her, hates seeing all the old sick people. Well, thanks and sorry to all those who have it worse.
An anonymous caregiver said...
19 days ago
My husband's mother is 85 years old; she moved into one of the best assisted living apartments 2.5 years, but lived there about 1.5 years. During that time, she complained about people in the facility did not like her and stole her stuff. She moved her money to all the banks in the area accusing the banks of stealing her money. She called the police a couple times to her assisted living accusing the nursing assistant of stealing her stuff. She wanted to move to live with her brother despite all of us telling her not to. One day she just moved out of her assisted living and showed up in front of her brother' s house. Her brother helped her buy a house in the 55 and older community very quickly. After a month in her new house, she started complaining about her neighbors stealing her stuff. She called the police 8 times accusing her neighbors. She moved her money to different banks accusing them of stealing her money. She is putting her house in the market now, and she said she is moving in my house despite we telling her that she is not invited. We know that it is just a matter of time before she showing up in fron of my house; and she will call the police on me after a week she cannot find her stuff that she has been hiding. My husband was trying to talk to her doctor; she threatened to sue the doctor. Can someone please give me some suggestions what I should do when she shows up at my house?
26 days ago
Good morning to all and happy Christmas Eve. I have had my father move in with me in April 2016, he was then showing signs of Alzheimer's, however since seeing the neurologist a few times now my father has already advanced to severe Alzheimer's. He also has lost the use of his legs and they now bukle from underneath him. So he cannot walk and shouldn't walk. This is fast I didn't realize as a caregiver this would go from a bit of memory loss to where he is today. I am asking you please for advice. My father refuses to pee in his diaper so the commode is still next to his bed, he has fallen in the last five days four times, as he's getting up all hours and walking to the commode. I have tried taking it away but he won't use his diaper, I try to enstill this over and over but to no avail, when I explain not to get up he won't remember that I had already told him. How can I stop him from getting up and trying to walk. I do not want him in a home I am trying to keep him with me until he passes . Please help me with this I appreciate any help,Jennifer
28 days ago
Hello. I am new to this site but wanted some support. My husband is 20 years older than I am. He was diagnosed with Alzheimer's in 2014, but was experiencing symptoms before that. His children are out of state and so I am responsible. My difficulty is the feeling that life is passing me by and I am in this alone.
29 days ago
Hello, everyone. I just found your site -- thank you for being there! My mother is 79 and lives alone in the home she shared with my dad, who passed a year ago. Mom has been diagnosed with MCI and her neuro suspects early AD. My brother and I are with her every evening and on weekends, making dinner for her. I take her grocery shopping and to appointments, as her neuro does not want her behind the wheel. (this is a huge problem for all of us -- an issue for another time!). Mom has trouble telling time and does not seem to know AM from PM. She is also very anxious. We learned that two nights ago, a friend found mom a block away at 10 PM looking for her friend's house where she attends a weekly 10 AM prayer meeting. She was 12 hours early, it was dark and frigid outside. Now we know we can not trust her to stay alone at night. I guess my brother and I could take turns sleeping over, but when my sister spent a few nights there, mom woke her in the night several times. My brother and I are already exhausted as it is. Does anyone have any suggestions? What worked for you? Thank you!!
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