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Alzheimer's & Dementia Care

Caring for a loved one who has Alzheimer's or another dementia? In addition to the Stage Groups via the Steps & Stages resource, we also offer this new online support group for family caregivers with loved ones across the stages of Alzheimer's or dementia. Please introduce yourself, share about your caregiving experience, and let us know how we can be of help to you.

Additional resources that may be helpful:

Group created in February 2014.


What's New Today

barbaraluma said...

5 days ago

What about outings such as shopping trips, going to restaurants, etc. with someone with dementia? It seems to me that the woman I am a live-in caregiver for (extended family -- she is my sister-in-law's mother) is very disoriented both while out and after coming home for awhile. Is there a point at which outings should stop? Yesterday, her son took her to the cemetary to visit her deceased husband's grave. Is that a good idea? She is still very ambulatory, but is forgetting how to perform simple tasks.

emptynest said...

5 days ago

barbaraluma said...

4 days ago

Apeacock59 said...

7 days ago

Hello, my husband, daughter and I are living with my mom. We've been with her for nearly four years now. She has been experiencing signs of dementia for sometime now. Shortly after we moved in she was hit and miss with her meds, and she takes LOTS of them. She has severe macular degeneration and is constantly seeing things that are not there or misconstruing what she sees. She also has sarcoidosis, copd, atrial fib. I have one sister that lives very close and one that lives hours away. I get very little help from either of them. An occasional "day off" is about all I get a month. My husband, daughter and I all work and it's a constant battle trying to get someone to be with her while we're at work. I definitely have caregiver burnout to the max. I was a caregiver to our son who has severe autism for 16 years. We had to place him in residential care and he is doing much better. Once again I'm experiencing exhaustion, isolation and depression. I feel so guilty for feeling this way. Thank you for any help or words of encouragement.

emptynest said...

6 days ago

RyanD said...

10 days ago

My dad is 76 and his memory is getting worse and worse. He can't remember something he told me or saw an hour before however his long term memory is sharp as ever. He hasn't been diagnosed with anything. I was looking into trying CBD oil with him and see if that helps at all. Has anyone had experience with CBD or any other recommendations? He is very active however I can tell his memory loss is taking hurting him. Thanks all

Wezzles said...

9 days ago

emptynest said...

9 days ago

Hummingbird770 said...

12 days ago

I really need this site. My Husband and I are taking care of my 97+ yr. old Mother with Dementia. She is at the stage where she cannot say a name or noun, or understand anything beyond simple ideas. She has forgotten that pills go in her mouth and that she must swallow them with water. She does small things over and over and cannot get to the "next" thing. Toilet paper might as well be nonexistant, she won't use it, causing me to go to the bathroom with her maybe up to 10 times a day as she takes diuretics for heart failure. If I don't, you can guess what gets in her hair and under her nails. I need help with these small type problems, just everyday solutions about the nitty gritty stuff. I am coping as best I can, but traits of "sneaking and hiding" are getting me down. The minute I turn my back she is off to the bathroom to do it the way she wants. Bless her heart, Mom doesn't live there any more.

Ladymiller said...

12 days ago

whimsyburd said...

13 days ago

Totally depressed. My mom is not my mom anymore. I am grieving all of the time seeing her as a different person. She is still sweet and kind, but a different person. I can not hardly stand seeing her this way even though she is not combative.. I get so depressed after seeing her and looking at pictures from just five years ago. My mom is gone. She still knows me, but she is not my mom anymore. I feel like I can not get closure since she is still alive. This is just a long and agonizing goodbye. I do not want to go on meds for depression. I am eating right, exercising and socializing. I have a great support with my husband, sister, and daughters, but still am battling depression and grief,. IT is like a sick feeling in my gut, and I am tired. Some days better than others and for some reason mornings are hard when I wake up. Nights are better. I sigh a lot lately too. My one sister and I are getting along great, but my other sister and I are over. But that is a whole other problem and yes it is came on when my mom became ill with undefined dementia. Additionally, this diagnosis bothers me too because it is so vague. I feel everything is the unknow including the is fricken diagnosis. I can not hardly stand it. And on top of it all I feel tremendous guilt about having my mom in a nursing home She is incontinent now and can not walk or even move the wheelchair.

emptynest said...

12 days ago

gb402434 said...

9 days ago

Jakiejf said...

15 days ago

I think I need a psychologist I'm angry at everything and everyone

Wezzles said...

14 days ago

Ladymiller said...

12 days ago

ShellbellTX said...

17 days ago

I am at the end of my rope. I am 45 yr old and the care taker for my father who has recently been diagnosed with dementia. I took care of my mother for the last few years before she passed away almost 10 years ago. I am tired!!! No help from my brother and my kids are in their early 20's with lives/families of their own. I am separated from my husband ( he is not help at all) and I don't really have anyone to lean on or a shoulder to cry on. I just want to run away for a few days....but then my problems are just there waiting on me when i get back. Ugggg!!!! Dementia/Alzheimer's is such a cruel disease. .

16 days ago

whimsyburd said...

13 days ago

Memekolb said...

26 days ago

My husband was in an accident 16 years ago resulting in Trauma Brain Injury and seizures. Two gran mal. For years he has been doing ok, except few times in the hospital. For the last couple of years he has dementia, very bad. My question is that now from morning to bedtime he repeats the same questions over and over. Is that normal for dementia?

Kathycan313 said...

26 days ago

Memekolb said...

26 days ago

Wezzles said...

about 1 month ago

What's on my mind is that I don't want this position of caregiver of my husband at age 61. I'm almost retired and I want to travel and eventually move to the beach!! I am the sole caregiver here. His family gives very little if any help. I have no family except my daughter who is on an internship in Arizona. I had to go on a VERY expensive anti depressant and ativan for my nerves.sleeping pills to sleepand I have no prescription coverage. I want to RUN as fast as I can from this and. meet someone who is normal and just understands and away we go to the Carribean. Yeah right! My life is soon and gloomsville

JanofBHC said...

about 1 month ago

Drowning said...

28 days ago

slightly said...

about 1 month ago

Hi my friends, Things are going well with my 91 year old Dad with whom I live. I feel I belong here and am not complaining. What I've noticed is that the things that set my dad off are more and more as time goes by. We lost my mom 4 months ago. I have to choose my words very carefully to say the least. He has a deep need to feel important and authenticated. He cannot have his opinions challenged in any way. When I talk to him at a normal speed he cannot comprehend. So of course I slow down. I'm learning this new routine. Have any of you gone through this? Have any special tips worked for you? Hugz.

slightly said...

about 1 month ago

Just sheryl said...

about 1 month ago

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