How do I help Dad recover from his stroke if his healthcare professionals seem to have written him off?
My 83 year old father had a "big stroke" six weeks ago on the right side of his brain. His left arm and leg have been affected but his right arm and legs are okay and he has a very strong grip. I'm not sure it is voluntary, but he can break your fingers. However he is left-handed and I'm having a hard time understanding what part of the brain has been affected, I thought that the left side was the speaking side. Can you help me understand this as it pertains to handedness?
Additionally, I was told he would be mute, he appears to have global aphasia, he doesn't respond to commands but he is starting to make words again, not regularly but he can. I asked him something and he answered "yes" and he's asked the nurses "help me please" so he knows what's going on at least sometimes but he really can't focus.
I think he has the ability to recover but the therapists at the nursing home where he has been all along won't give him any therapy because he doesn't respond to commands. No speech, swallow or physical therapy and I think they are writing him off because of his age. Because he has Parkinson's he hadn't been the most responsive all the time anyway but he did walk and talk and know what was going on.
Meanwhile he is on a feeding tube because he doesn't respond when they evaulate him but he can swallow because I've started giving him ice cream everyday when he is alert.
My question is, how can I get information on how to help him start to speak again even without a speech therapist and how to get him to start eating again more than ice cream?
I see a lot of things advertised online but it's very confusing. I'm just looking for some techniques to cue him on how to start speaking again and what he can start eating etc. How can I find these things out? If he's starting to speak on his own, is this a sign he will just snap out of it?
Thank you for you help
It sounds like your father suffered a right middle cerebral artery stroke. In most people, this would not effect speech, but in a fairly sizeable portion of left handed individuals, the language center is in the right hemisphere.
Improvement can go out to six months or even longer after a stroke. Therefore, if your father is now speaking a little bit, and eating a little bit, I would apply pressure on your physician and/or the therapists to get the Speech Therapists involved again. They can work with him on both issues, and are trained extensively in both speech and swallowing related problems. With time, he may even be able to get a feeding tube removed, and swallow on his own. It is still early after his stroke. If the therapist does not want to see him anymore, I would ask if a different therapist is available, or if he can be transported to a different therapy location for speech and swallow training sessions.
Finally, unfortunately, his strong grip with the left hand is probably reflexive - coming from the spinal cord - and not indicative of normal cortical functioning.
That is terrible to hear that they have "written" him off. My mom had a stroke a month ago that also affected her left side and her doctors are doing the exact same things. Saying they feel she is at the point now where she will stay. I disagree at the one month mark. And they refuse to do any rehab at all with her because she doesn't respond to their commands Prayers are with you I understand how you feel.
New studies indicate that neuroplasticity, which essentially is the brain's ability to learn new things, occurs for much longer than what was once thought. So people who have had strokes actually can make gains after the initial 6 months or one year that most clinicians report to their patients. Your dad is lucky to have you as an advocate. Often the therapy services your dad might benefit most from would not be covered by Medicare and would cost but there are ways around this. One way is to look up clinical research studies (clinicaltrials.gov or neicr.com) to see if there is a study your dad might be able to enroll in. This would allow him to try cutting edge therapies that might benefit him and ultimately help all people who have had strokes. People don't often think of clinical trials as a method of treatment but many of my patients have made significant gains while being a subject in a clinical trial. Also, I am happy to guide you if you need any help finding a therapy company that can pick up where the other clinicians left off. You likely need to seek out therapists who specialize in neurology as they would be able to help your dad the most.
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