What are good books to read about Parkinson's dementia caregiving?

Margeryv asked...

We are dealing with mom who is in the early stage of Parkinson's dementia along with occasional delusions. Can anyone recommend some books that can shed some light on this most disturbing aspect of caregiving?

Expert Answer

Graham A. Glass, MD, is the co-founder of PEAK Neurology and Sleep Medicine, LLC with multiple locations across Alaska. Previously, he was deputy director of the San Francisco Parkinson's Disease Research, Education, and Clinical Care Center PADRECC and assistant clinical professor of neurology at the University of California, San Francisco (UCSF). Glass received his medical degree from the University of Texas Health Sciences Center at the San Antonio School of Medicine and completed his neurology residency at Tufts-New England Medical Center. He subsequently completed a fellowship in movement disorders at the Mayo Clinic.

This is a good question, and I'm not sure that I have great answers for you. In terms of dealing with the dementia issues, books like "The 36 hour day" have been helpful for some of our patients even though it is targeted more at Alzheimer's disease. The basic principles hold true.

In addition, the "Lewy Body Dementia Association" has a lot of down loadable resources that you might find really helpful.

Even though Parkinson's disease dementia (PDD) is thought to be somewhat different from Lewy Body Dementia, there is significant overlap in the symptoms and in fact, patients who have had PDD and Lewy Body Dementia have very similar, if not indistinguishable, pathology in the brain.

I hope these help and look forward to hearing what resources others find helpful.