How can we transfer my mom to a cancer teaching hospital?
Is there any organization that could help my family with transferring my mom from her current local, non-cancer center hospital to a clinical trials teaching hospital to prolong my mom's precious life?
We know there are a lot of hopes and options available for my mom. She has extended lung cancer (it's currently well-contained, no growth based on this Monday's CT-scan), but it seems that not a lot of cancer center hospitals in Southern California would admit my mom after they review her medical record. How come none of them showed any compassion toward my mom? Aren't doctors supposed to?
Please advise and guide us in the right direction as time is so limited. We want her to have a new treatment to kill the rest of the tumors inside her lung. Thank you for your help.
It seems like you need a few answers:
Transferring cancer patients to other care facilities of any kind can be risky to the patient, and if the doctors are not accepting the transfer, you need to ask why. It could be for many reasons, such as: that she is at extremely high risk based on her medical condition, age, or prior treatment history, that she is not stable enough to move, that they have no available beds, or that they don't offer the treatment she needs. What prognosis have they given to your mom? If she is advanced, they may not want to offer future treatment to protect her current quality of life. They are supposed to be compassionate, and may be showing it in another way -- Neither of you wants to make it worse for her.
In terms of clinical trials, experimental treatments, and complementary therapies, there are many, many options for cancer patients. Get specifics on her disease from her oncologist and do some research. Remember, to participate in these programs, she must meet their criteria, but you are right, there is always hope.
Lastly, if you do find a treatment center or study center, there are companies that help transport. Air transportation can often be arranged through www.corpangelnetwork.org; ground transportation may be arranged through various St. Stephens shuttles, or Visiting Angels could help you move your mom.
It's easy to get discouraged but keep trying.
I sense you are not listening to how your parent feels, not knowing this. I say let her be and don't make her more axious with your own personal needs. Do your homework first. Quality of care and comfort and take time to talk to a hospice nurse. I had lost all faith in doctors, I was blessed to talk and time to think with wonderful people from hospice. Jan