Are there any sleep aids that don't have side effects for dementia patients?
I have a question. My mom is 76 and suffers from moderate dementia, and I think that she does need some medication to aid her sleeplessness. I do understand that most sleep aid is harmful for people who suffers from dementia. Can you please tell me if there is anything out there that can help her sleep with no adverse or side effects or something that would not make her symptoms worsen? She has already tried several that were prescribed by her doctor. Unfortunately, she did not fare well on those.
Sleep patterns can be drastically affected by Alzheimer's disease and by other related disorders that cause the symptom of dementia.
Of greatest importance, is being sure your parent is kept busy during the day with easy repetitive chores and tasks along with exercise and social interaction to help tire her while preparing her for an adequate night's sleep. Folding clothes, setting table, dusting are all simple tasks that can make her feel helpful and contributing; the outcome does not matter!
There are over-the-counter meds and alternative herbs and supplements that have been reported to help sleeplessness. These may be worth a try. Before intrducing any new product, be sure to check with both your physician and your pharmacist for efficacy and possible side-effects.
It is frequently difficult to find the most effective treatments for elderly folks and, in particular, those with a dementia. The possible reactions and the side-effects seem to be heightened, making the ability to find the most appropriate products very complicated. I do know that some children's medications used to treat allergies seem to aid sleep in AD people and may be worth a try. Also some alternative-supplements used by travelers may also be helpful. Again, check with your doctor before introducing any new products as the interaction between meds and natural herbs or supplements may be more harmful than the sleeplessness.
Be sure to take care of yourself.
My mother goes to an adult daycare 5 days each week for 5 hours. I try to keep her busy as I do recognize that boredom seems to be a big factor for outbursts. She does dishes, fold clothes, go for walks, dust and sweep the house. I never interfere with her whenever she is engaged in these tasks, except for "walking". I have tried prescribed sleep meds and also herbals and otc sleep aids. Almost always my mother seems to have the worse type of reaction to all of these sleep aids and sleep medicine. I do understand and appreciate all that you have said in your response. Alzheimer's/dementia is in my opinion the worst disease anyone can battle and not win. My mother have some very good days and then some really bad days. The days when she is disoriented, upset, confused are the worst days, because on those days, I feel truly helpless. There is not easy solution to this disease. Thank you for your response, Joanne.
My father suffers greatly because he doesn't sleep. He is 87 and also has Alzheimer's. We have tried a long list of medications--from melatonin---didn't help at all, to antidepressants, to antipsycotics like Haldol. We keep him busy during the day so it's not like he is napping all day. He gets up at least 5-10 times a night. He expends more energy trying to get out of the bed. I think his brain is so damaged from this disease that medications don't even help. My siblings and I are with him 24hrs a day because my mother can't care for him herself. She is 76 and has her own health issues. We made a promise that we'd keep him at home because we don't want him to die in a hospital. His mind seems to have deteriorated more in the last 2 weeks and we are also feeling helpless and hopeless. His primary care physician doesn't seem to offer us any other suggestions, and the psychiatrist has had him on several different meds that haven't helped. This is such a horrible disease. I have been a reader of this website for months and this is the 1st time I am writing. It helps knowing others are going through the same ordeal but at the time it feels like you are alone in the struggle. God bless everyone.
Melatonin... I swear by this stuff for my mom as well as me. The type I particularly like is the 5 mg dissolve on your tongue strawberry flavor. I have ONLY found it at Walmart, dark bottle with a purple lid. There are other Melatonins out there but this one works THE BEST!! Good luck!
My 91 year old aunt lives with my husband and I, she has mild dimentia, more severe if her sleep is out of control. We've tried many drugs to help her, but Trazadone has been the winner, and of course watching her caffiene and chocolate intake, good luck, sorry have to get back to work, love this site. Steph
Medicines that are commonly prescribed for dementia patients often have side effects that negatively affect sleep and wakefulness. Aricept, for example, can cause dream disturbances and/or insomnia. Antidepressants (especially SSRIs) can induce or exacerbate periodic limb movements in sleep (PLMS). Check for possible adverse effects of the medicines your loved one is on at:
Also, drug interactions can make a drug less effective, or exacerbate side effects. Look for possible drug interactions at:
Pain is undiagnosed or undertreated in a staggeringly high percentage of dementia patients, and is a major cause of agitation and sleeplessness. Tools to help evaluate whether your loved one is in pain:
Ask for a referral to a sleep clinic. There are many different types of sleep disorders that may develop in dementia patients, such as sleep-disordered breathing, PLMS, restless legs syndrome (RLS), obstructive sleep apnea, nocturnal myoclonus, and parasomnias (e.g., REM sleep behavior disorder, RBD.) The treatments that are most likely to be helpful depend on the specific type(s) of sleep disturbances involved. For example, patients suffering from sleep apnea have difficulty breathing; with each apnea event, the brain briefly arouses the person in order for him to resume breathing, but consequently sleep is extremely fragmented and of poor quality. Depending on the cause of the apnea, treatment may be a change in diet, simple devices to encourage sleeping in a different position, a specially designed oral appliance which prevents airway blockage, or a CPAP (continuous positive airway pressure) machine. RLS is caused by a functional disturbance in the dopaminergic system, and so the treatment of choice consists of dopaminergic drugs or dopamine agonists such as pergolide or pramipexole.
Circadian rhythms may be disrupted in dementia patients. If your loved one is on Aricept, consider switching to a cholinesterase inhibitor that has a better profile for supporting "normal" circadian rhythms, such as galantamine ER administered in the morning.
Also consider trying bright light therapy. Results from clinical trials on the use of bright light therapy for dementia patients have been inconsistent -- quite possibly due to differences in the type of light that was used, the length of exposure, and the time of day the therapy was implemented. Some researchers have suggested that more consistent results might be obtained if only one type of dementia were included in the study, since different dementias produce significantly different types of circadian rhythm disturbances. For a discussion on some of the bright light studies, see:
One medicine you might consider discussing with the doctor is Prazosin. This is a mild antihypertensive with an excellent safety profile, and very inexpensive. It is being more and more widely used to treat the sleep disruption and agitation associated with PTSD, and has successfully gone through two small clinical trials for treating agitation and aggression in Alzheimer's patients, and is now entering two larger trials. Several caregivers have reported success using Prazosin for sleep disturbances and agitation on the Alz Assoc discussion forum.
Consider offering a snack when your loved one gets up in the middle of the night:
Or perhaps both of you would benefit from setting up a "safe room" where your loved one can safely pace at night, which allows you to sleep more soundly. Beverly Bigtree Murphy's husband paced at night for two years. She describes the "safe room" she set up for him at:
If you are considering trying melatonin, PLEASE discuss it with the doctor and the pharmacist first.
Melatonin is a very powerful hormone, and the safety of long-term use of oral supplements has not been established.
Melatonin can cause a number of serious side effects -- including confusion and depression -- which become more likely as the patient continues to receive it. Supplemental melatonin may exacerbate seizure disorders, which is a concern for Alzheimer's patients since they can develop seizure disorders at any stage. Melatonin shrinks arteries and may be contraindicated in persons with cardiovascular disease (including vascular dementia). Melatonin supplementation may aggravate autoimmune disorders such as arthritis and severe allergies. The effects of steroid drugs such as cortisone and dexamethasone may be counteracted by supplemental melatonin. Immune-system cancers such as lymphoma and leukemia may be further stimulated by melatonin supplementation.
Patients with liver or kidney disease (and the elderly, whose liver and/or kidney functions are often compromised) have a decreased melatonin clearance with increased daytime levels of this hormone. They would be more susceptible to problems associated with taking melatonin.
Melatonin can have serious interactions with a number of prescription and nonprescription medications, including "blood thinners" (e.g., warfarin, heparin), blood pressure medications (especially nifedipine), products that contain caffeine, drugs that may affect your immune system (e.g., azathioprine, cyclosporine, prednisone), fluvoxamine. Tell your doctor or pharmacist if you also take drugs that cause drowsiness such as: certain antihistamines (e.g., diphenhydramine), anti-seizure drugs (e.g., carbamazepine), other medicine for sleep or anxiety (e.g., alprazolam, diazepam, zolpidem), muscle relaxants, narcotic pain relievers (e.g., codeine), psychiatric medicines (e.g., chlorpromazine, risperidone, amitriptyline, trazodone). Check the labels on all your medicines (e.g., cough-and-cold products) because they may contain ingredients that may cause drowsiness.
A Cochrane review notes: "Because it is considered a dietary supplement and not a medication, its safety and efficacy have not been evaluated by the U.S. Food and Drug Administration. Some melatonin products contain one of the contaminants associated with the eosinophilia-myalgia syndrome in L-tryptophan users, and some do not meet the standards of the U.S. Pharmacopeial Convention General Tests and Assays for Nutritional Supplements."
It's not a good idea to give melatonin on a daily basis. Melatonin use on consecutive nights should be avoided, and only the lowest effective dose should be taken. An effective dose is often in the 0.1 - 0.3 mg range.
Repeated administration of doses over 0.3mg can cause the patient to build up a tolerance, and can eventually disrupt, rather than improve, sleep in some people.
Large clinical trials failed to establish any general benefit for treating sleep disorders in dementia patients, although the possibility exists that it may be helpful for some individuals.
In theory, taking melatonin helps regulate the circadian rhythms. In theory, bright light therapy would help regulate melatonin synthesis/secretion, and would be a much safer alternative. I'd suggest starting there.
Have you tried an antihistamine - Benadryl, for instance? Our doc suggested that; I have seen no side effects, and it does cause drowsiness.
I tried Melatonin in an effort to help my mother's sleep and to try and diminish her nighttime wandering. She was only on it for a week and would awake confused in the morning. Today she told me that she had been having very vivid and disturbing dreams lately, which I can only attribute to the Melatonin. She has moderate dementia and is on 24 mg of Galantamine ER.
I agree with the warnings above about melatonin. I struggled with insomnia for years and tried everything (I'm 55), including Melatonin, which caused me to to have vivid nightmares, to feel drowsy the next day, and to gain weight - and I was only taking 1 mg a night. For the few weeks I took Melatonin, my husband told me I didn't seem like myself anymore - moody and sensitive. Imagine what it must do to an elderly person who's probably already on several medications and/or suffers from dementia.
Benadryl and other "sleep aids" made me feel very groggy the entire next day - even if I took half a dose. Valerian gave me HORRIBLE nightmares. And there are several other medications I tried that had troubling side effects and/or were habit-forming/addictive.
Finally I figured out what was wrong: Peri-menopause was causing my hormones to be out of balance. Three days after starting a bio-identical estriol and progesterone cream (from Amazon) on my inner thighs every night, I was sleeping like a big baby! (Just a tiny bit of progesterone cream though and only if you've had a hysterectormy.) Oh, I also take coral calcium and magnesium every night along with lemon balm liquid gels. I think it's 1,200 mgs of calcium and 600 mg of magnesium. I take 2 lemon balm gels. It's like nature's little tranquilizer without the side effects and interactions. (Although I don't take any medications.)
My elderly mom (she's 80 and has Parkinson's) is in a nursing home. She sleeps very restlessly - if at all. The Parkinson's meds cause her to have disturbing and VERY realistic hallucinations, which in turn cause her to have night terrors. And I mean screaming throughout the night. Her doctor tried several pharmaceuticals for better sleep, but they only made her hallucinations worse and then she was out of her mind the next day with anxiety. He refused to give her anything for anxiety like Ativan or Valium or Xanax because he was afraid she would lose her balance and fall. Desperate for her to get a good night's sleep, I asked the staff at the nursing home to give her calcium and magnesium after supper every night (Amazon makes chewable wafers) as well as two lemon balms (which are safe to take with her meds.) The staff has noticed a HUGE difference in the quality of her sleep now. Mom doesn't scream out in the night anymore or complain about nightmares the next day. I can't tell you how wonderful this is for ALL of us!
working with elderly 25 yrs ive seen the best for sleep or even anxiety has been melatonin ... 1 and 2 mg some 3 .. works wonderfully for most and not every night .. here and there ..
Hello I take care of my grandpa he is 84 and has Alzheimer's/dementia. My grandpa takes 50mg of seraquel and .5 mg ativan at bedtime which helps him sleep most nights (he also has insomnia always has) however I have noticed the nights he has Sundowner's (agitation confusion hallucinations disoriented etc) it seems as if nothing helps and he has a tolerance of a horse. His doctor gave him a emergency only medication called halaperidol because we've had nights he thought we were holding him captive in the war n trying to bust out the windows to get free seeing dead bodies n trusting no one thinking were all trying to kill him etc I've only had to give him the emergency medication 6 times in 4 years (twice didn't effect him) my question is what is it that causes Alzheimer's patients to have no affect to their sleep meds as if u never gave it to them? Is there anything that anyone suggests to help with these nights? Also wanted to mention I just started a Facebook page called caregivers supporting caregivers to give us caregivers someone to talk to that's going through the same/similar experience a place to get tips give tips ask advice give advice n just be there for one another feel free to join the site (Caregivers Supporting Caregivers)
I take care of my 88 year old grandmother; with help from my aunt and my mother. We have taken her off her depression meds, and some other meds because they were interfering with her pain meds. We tried Trazadone.....made her have 'benders' (episodes sometimes lasting days without sleep and being very obstinate and combative). And Melatonin does not work at all. There needs to be more research out there for this sleeplessness because US the caregivers need sleep too!!!!!!!! We have tried everything with her from keeping her busy to light aids and nothing. There needs to be a sleep aid that will help the alzheimer's patient at whatever level of alzheimer's dementia whatever you want to call it sleep through the night so the caregiver can get sleep too!!!!! And does not interfere with other drugs the alzheimer's patient is taking. SO researchers out there reading this......yes we need to know where and how and why Alzheimer's happens but the caregiver in the mean time is loosing sometimes years off of their lives because of the stress and no sleep and in my case a rural area no care facilities (meaning either daycare or someone come in and help/look after the patient for at least 8 hours or more so the caregiver can take a break)!!!!!!!!!!!!! I applaud all caregivers out there...because we are the heros in this disease and researchers and doctors need to listen more to us because we are on the FRONT LINES!!!!!!!!!!!!!!!!
Cannot add an answer but just recently my Mom has been diagnosed with mild to moderate dementia and I am the only caregiver, only child, during the night when her Aide leaves at 7pm. This has been a MAJOR challenge for me mentally, emotionally and physically. It hurts to see her not rest and go through so many things and then I have to go to work and I feel like I am sleep walking.. I really wish somewhere somehow something is found to help them rest their minds, bodies and souls and I know as a caregiver my mind, body and soul will rest as well
Anyone tried a Philip Stein watch for agitation and anxiety? I'm all about alternative options. This watch uses your own energy to calm you. A friend who was on ambian for years doesn't need it any more. She just uses the watches (day/night). I have a feeling that someone is going to find it useful to treat symptoms of Alzheimer's and Dementia.
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