My mom is end stage MDS. It has been a nightmare. Diagnosed in October 14, however, reflecting on past behavior and declining health believe It's been going on for over 2 years. All the same symptoms, the meaness is obviously the most painful as a caregiver. I have been caring for her, by myself even though my 3 siblings live within 5 miles of her home, while I live 900 miles away, for the past 6 mos. I pray she has a peaceful and painless transition. We are now awaiting the hospital to release her back into my care with the aid of hospice in the next few days. Unfortunately I had to go home 2 weeks ago to deal with my own life and within 4 days she was back in hospital. Any lesson to be learned, if this is your parent and you love your parent then help care for your parent and don't leave all the decisions to one sib, especially one who lives far, far away. I had to put I. Hold my own life, my marriage and my children to do this. I am exhausted, overwhelmed and a little angry and disappointed, my siibs still think its the hospitals fault and don't accept for one second that mom has cancer. Sorry this has turned into a Vent, wasn't my intention, but then that is dealing with grief. Praying mom dies with dignity, without pain and has comfort surrounded by her children who are all finally accepting without denial.