State Medicaid are the programs that pay for Care Giving. Unless your spouse qualifies for Medicaid under a particular Disability Waiver allowed by your State's Medicaid, she and you must qualify under Federal poverty income limits. These are VERY low.
My husband has a TBI and is on full SS Disability, but our State does not provide Medicaid for brain injuries. In our State, he has to qualify under the poverty income limits. His $946 month SSDI check will always put him over the limit and keep him ineligible. Same with our combined income as a couple. I took early SS to make ends meet financially. He DID qualify for our State Medicaid program CAPS, but we had to pay the first $720 each month, - almost all of his monthly check. Plus, the paperwork and receipts were a terrible burden.
In our State, spouses are not paid to provide care unless they have passed State certification. Your new income, - whether from being a Care Giver, or working PT out of the home - will be added in and will increase your monthly CAPS deductible costs.
After 3 yrs of trying, searching, and applying for every Medicaid program I could find, I've given up on getting help from State programs. I am now working PT caring for a Disabled child. I can and am getting paid for caring for someone else, but not my husband. The mother pays $1,800 each month to get the CAPS services for her daughter! Even with the mother's high salary as a supervising RN, this is a crippling sum to pay each month.
In conclusion, I have found that the States have been dismantling the Medicaid programs due to the economy. I have not found the help I had hoped for through the State Medicaid programs. The Medicaid programs change almost weekly. October 2009 when my husband was re-hospitalized, I was applying for State Medicaid Long Term Care. In the middle of my application process, our State eliminated Intermediate level nursing home care. Now only the acutely ill will get LTC. Other States like Florida, are limiting their programs to one or two hundred a year. I hate to be the barer of bad news, but Medicaid help is being dismantled.