My mother is happy they keep her clean but as a stroke victim she is more accepting of her new situation and where she finds herself. As her POW and caregiver they are a nightmare. The more I complain the more the do to keep me from being her advocate.
I took a day off from work for my 2PM meeting with the social worker. As to my needs for info on how I am goig to handle my mother's affairs, she is totally inept (my opinion) and raises her eyebrows at the thought that she she should be giving "me" info to work with. Instead of a one on one meeting in her office. She staged an event with cast of 5 in my mother's room - physical therapist, nurse, herself, me my mother and later the director of nursing. That was for the purpose of performance by staff I guess. Everyone just told me what they did with my mother that day. ??? She says she doesn't know what will happen with my mother, has no info for me because my mother is on some other plan besides Medicare and her plan may say any day she is no more eligible to stay there, has no idea what her plan says. She says I don't understand, "no one knows (she even couldn't even give me a scenario how it goes in these cases in general) except they think she needs 24 hour care, and she had a bad stroke. I said to her " is that all you do is sit there taking notes of what 'Im saying", "you're supposed to be helping me." Then I asked her if she had a list of places besides the one she sent me to be our advocate ($4000) for medicaid, and she says , no , they only work with the one place. When I said the woman was nice, but I had to check her out first, and other agencies, she looked pissed. I do admit that most of this time my voice tone was out of control and
insulting because I had already reached a point of bitterness and anger because of incidents that already had occured there previously.
Then when I asked about wanting my mother's hospital records, they bring in the Dir. of Nursing who says absolutely not, I can not have the records. Once a week she will give permission for one of the nurses to give me a report on my mother but it has to be verbally , not in writing. (now until now i could call whenever I wanted.) I said but it was my rights to have her medical reports as power of attorney and she said she didn't care. I also said I would pay for faxes. She said she didn't care. I said i would report it to the medical board. She said she didn,t care.
She said I have to trust the nurses there or take or somewhere else. She also seemed to be angry with the nurse there who was trying to be helpful and accommodating.
I don't know how much my mother really understood, but when they left, she said I did good, patted me on the hand, and pointed to both of us as to say, "you and me" and smiled.
I now have to write all these letters now because our rights are not being acknowledged, and copy a million people to get everything in writing. LIke I have time. But worst of all I am actually being shut out now of her care, and have absolutely no voice in my mothers care there. I wasted a vacation day because not one thing was accomplished or helpful. I hope this site will let other potential clients what I am going through.