orangeunsub
Caring for my mom Member since March 11, 2010This is an addition to this original writing. As the time finally came and for a # of reasons,I had to make a decision. It was time for mom to live in a nursing home. I prefer to call it the 'Inn', as it is the way the name of the residence ends and I prefer not to use the term nursing home. It was time when I think I knew mom could get better care than I was able to give her. Part of that was hard as actually I was being selfish in a way, thinking I was still the best for my mommy. There comes a time to realize that isn't so. Myself, being on disability made lifting and moving mom more difficult. In addition, I needed to spend more time taking care of myself after some new recent health news. Not really wanting to go into it, but i really do, but for my own personal reasons not here and with this name, but the irony of it all does not escape me.
The rest I wrote I am not changing a word because thats was how I was than and I need to read that once in awhile and share that. I was at this for many years, with my mom. Everything being what it is, what I wrote previously is as true now as it was before, especially, 'alone'. You can add scared...my life runs on fear. (hi-test..for us old-timers...at 52!!!)
Never knew the feeling of truly feeling 'alone'. I regretfully say I now can. Never in a million years did I anticipate where I am, how much I have changed and not a fear anymore about doing all things necessary. I feel as I live in a bubble. My sister, adult grandchildren all live less than a mile away yet, they will not come over. somehow, my taking care of my mother in advanced stages of Alzheimer's and the years before annoys and angers them. Their answer to that is to not call or visit mom at all. Yeah, that'll show me. Who suffers? everything seems to come with a price, which to me is opposite of what should be. Why aren't they grateful for what we do as caregivers? Why do become the enemy and despised by the family and even our loved one we care for.. Mom's Neurologist confirmed that in recent studies. Why must everything come with a price?
Well, at least we know that we will not be fighting for Medicare or Medicaid coverage on our behalf. I know it as a fact! That the pain we must go through isn't covered by any insurance plan.