Stroke Caregiver Support

5 Ways to Connect With Other Stroke Caregivers

1. Join a support group for caregivers.

A support group is a great way to connect with other caregivers. Unlike your family and friends, these folks may be able to offer you more objective advice based on their own experiences. You can bounce ideas off the group, ask for suggestions, or just vent about what's bothering you. And if you find yourself connecting with another caregiver, you can strike up a friendship outside the group.

To find a support group in your community:

  • Search online. The American Stroke Association's support group finder enables you to search for groups within or near your zip code. also hosts online support groups , including one for stroke caregivers and the ability to create your own.
  • Check your local yellow pages under "Senior Services."
  • Ask the stroke victim's doctors or nurses for a referral.
  • Talk to a social worker at your local hospital or rehabilitation center.

2. Find a support group for the stroke victim.

If the person in your care would like to talk to other stroke survivors, you may be able to kill two birds with one stone by finding him a support group. He'll be able to take advantage of the group for himself, and you'll have the opportunity to meet other caregivers in the process. You can find a support group for him the same way you'd find one for yourself.

3. Join an online community.

If you're anxious about meeting new people or don't have the time to attend meetings, an online support group may be right for you. You'll be amazed by the sheer number of discussion boards and chat rooms that are out there. For starters, check out the American Stroke Association's discussion boards. To find other online communities, type stroke caregiver online support into your favorite search engine.

4. Consider a faith-based organization.

If you or the person in your care is religious, your church or synagogue may be one of your best resources. Religious organizations offer spiritual support as well as services like respite care and meal programs. And you'll have a built-in community that most likely includes other stroke caregivers.

5. Visit your local senior center.

If your community has a multipurpose senior center, you can take advantage of a variety of services and programs. Classes and group activities will help the stroke survivor socialize and stay active, and you'll have the opportunity to meet other caregivers. By posting a notice, you may even be able to start your own support group.

Stephanie Trelogan

Stephanie Trelogan writes about heart disease, stroke, and depression issues that concern people caring for their aging parents. See full bio

almost 2 years, said...

My husband had a stroke 8 years ago. I am his caregiver. He has dementia, but, can remember everyone. He cannot problem solve or tell time. His personality has changed and is now cranky, especially with me. He does not have any hobbies and cannot read any lengthy articles and comprehend them. All he does is watch TV. I have respite one day a week for 6 hours.

almost 4 years, said...

To dianamk52. My husband had a strock 13 1/2yrs ago. Lost his speech + motor skills in right hand+ walked w/a limp. He didn't understand a lot. 2 1/2 yrs ago he had another one on the same side. He is now in a nursing home. Between visiting him + caring for my 96 yr old mother ( in her home) + having 4 step children who don't bother with there dad, I know what ur going thru. My advise is: if ur doing ur best u can, + involved in ur husbands quality of his personal + medical care then "NO ONE" else matters. Hav as little interaction with them as possible. If something potentially serious happens then + only then contact them. As my husbands health care proxy, I hav given the staff there permission to discuss any questions his children my hav. They do hav a right. I meat my husband shortly after their mother died. It's been almost 20 yrs + nothing is better or worst. This is about u + ur husband. Better or worst + in sickness + in health. It does get very lonely. Good luck. Don't give up

over 4 years, said...

clot busting drugs in a small town---Jasper Tex

over 7 years, said...

My husband had a stoke on Sept. 3. I have been there every day watching over him through the hospital stay, rehab and drs appt. He has 2 daughters who have done nothing but backstab and cause problems for me. I have asked several times for them to stop because it doesn't help me take care of their Dad but it continues and I don't know what to do. They are going behind my back and telling people I am not taking care of him. Mind you 1 lives out of townand we had barely spoken to her in 8 years and the other one we hardly ever saw in the first place. The stress these two are causing is to much but I don't know how to handle it. Is there anyone that can help?

over 8 years, said...

goodMorning, My mother had a stroke at age 50 and my father was her caregiver for many years... until he couldn't do it any longer. (dementia followed) Her stroke was massive, leaving her paralyzed on the right side. She had to learn to talk, walk and do everything with her left hand. (she was right handed). During her struggles I think the most important thing my family had to learn... patience... lots of patience. I remember like it was yesterday, how difficult it was for her to try to form words. Unfortunately, I also remember (in the beginning) trying to help her... it was almost a guessing game. Did this help? absolutely NOT... it upset her more. We had to learn to say nothing and let her take her time, (sometimes a long time) before the words came to her. My mother was a courageous lady, she wanted to do everything herself and she tried up to the end. Yes, she was difficult at times and depressed... I would be too if I were in her shoes. Mother inspired me in many ways... now I am dedicated to helping those who have suffered strokes and have dementia. The hobbies my mother once did, she could no longer do, she could not handle the cards and puzzle pieces.(her favorite hobbies) From observing her struggles, I developed oversized cards and simple puzzles with large pieces. One of my mothers favorite songs she used to sing was "Let me call you Sweetheart" and You are my Sunshine. Check out the Sing a Long - Songs of Yesterday, your loved one will enjoy these activities. takeCare. karen