The very best and first thing I have read that clearly provides steps to asking for caregiver help regardless of the community status. Of course I knew Eldercare services are available but wandering through a maze of telephone numbers in a rural community qualifies as combat fatigue.
over 12 years,
sistercris
said...
I have found government programs to be useless, in some cases worse than useless. It would be helpful if there were a description of private, professional sources of skilled care. My father does not need caregiver support groups. He needs competent professional care, which he does not have at this time in spite of my ability to provide financial support.
almost 13 years,
Cordero
said...
Reminding me of local state programs and alternatives was very useful. When you are, llike me,, doing the things you have every day in routine
almost 13 years,
cris1
said...
Yes it is. Mother is progressing more and changing from literally one minute to the next. I must watch my voice modulation, what I say, what I don't say, when I say it and change the subject as soon as she begins to get aggressive or upset.
Constant vigilance is necessary and her hearing aides are not working well so I must yell so she can hear me making going out, which we do everyday to keep her happy, difficult. She is legally blind and cannot read so I yell the menu each day and she becomes upset if she does not like the food or the tea is cold, etc. My goal is to have her safe, happy and as well as possible.
I keep telling myself that it is not my mother but his awful disease and wish so much I could wish it all away for her.
My dread is her progressing to the point she must go to memory care for her safety, by then she may not even know it, she is happy in her own way now and I feel that it is probably harder on me right now.
Hearing information really helps, thank you
almost 13 years,
Emily M.
said...
Thank you Noval! For the English speaking members of our community, here is a translation of Noval's comment: "How wonderful! Regrettably n / p we have an efficient organization / help. Few people with expertise to care for patients w / dementia. All it's really expensive. Vcs. of parabens are offering free help and easy access to information to all. Thank mto. News at q / send me. It has helped me a lot. A hug to the whole team." Translation courtesy of Google Translate ( http://translate.google.com/ ). -- Emily | Community Manager
almost 13 years,
Noval
said...
Que maravilha !!! Lamentávelmente n/ temos uma organização eficiente p/ ajudar-nos. São poucas as pessoas com especialização para cuidar de pacientes c/ demência. Tudo é mto caro. Vcs. estão de parabens oferecendo ajuda gratuita e facil acesso a informações à todos.
Agradeço mto. à s notÃcias q/ me enviam. Tem me ajudado bastante.
Um abraço a toda a equipe.
The very best and first thing I have read that clearly provides steps to asking for caregiver help regardless of the community status. Of course I knew Eldercare services are available but wandering through a maze of telephone numbers in a rural community qualifies as combat fatigue.
I have found government programs to be useless, in some cases worse than useless. It would be helpful if there were a description of private, professional sources of skilled care. My father does not need caregiver support groups. He needs competent professional care, which he does not have at this time in spite of my ability to provide financial support.
Reminding me of local state programs and alternatives was very useful. When you are, llike me,, doing the things you have every day in routine
Yes it is. Mother is progressing more and changing from literally one minute to the next. I must watch my voice modulation, what I say, what I don't say, when I say it and change the subject as soon as she begins to get aggressive or upset. Constant vigilance is necessary and her hearing aides are not working well so I must yell so she can hear me making going out, which we do everyday to keep her happy, difficult. She is legally blind and cannot read so I yell the menu each day and she becomes upset if she does not like the food or the tea is cold, etc. My goal is to have her safe, happy and as well as possible. I keep telling myself that it is not my mother but his awful disease and wish so much I could wish it all away for her. My dread is her progressing to the point she must go to memory care for her safety, by then she may not even know it, she is happy in her own way now and I feel that it is probably harder on me right now. Hearing information really helps, thank you
Thank you Noval! For the English speaking members of our community, here is a translation of Noval's comment: "How wonderful! Regrettably n / p we have an efficient organization / help. Few people with expertise to care for patients w / dementia. All it's really expensive. Vcs. of parabens are offering free help and easy access to information to all. Thank mto. News at q / send me. It has helped me a lot. A hug to the whole team." Translation courtesy of Google Translate ( http://translate.google.com/ ). -- Emily | Community Manager
Que maravilha !!! Lamentávelmente n/ temos uma organização eficiente p/ ajudar-nos. São poucas as pessoas com especialização para cuidar de pacientes c/ demência. Tudo é mto caro. Vcs. estão de parabens oferecendo ajuda gratuita e facil acesso a informações à todos. Agradeço mto. à s notÃcias q/ me enviam. Tem me ajudado bastante. Um abraço a toda a equipe.
Thank you, Paula - excellent resource list.