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about 4 years ago
gleonard said...

I am sorry about your mother and can completely understand what you are going through. My mother is on year 24 with Parkinson's and her husband has taken care of her for 20 of those. Unfortunately we lost him to cancer 2 years ago which left my sister and I to care for her. There is a program out there called "Passport". It is for the elderly and is given based on income and need. We just finished 50 days in the hospital with Mom and she is now home in a hospital bed with 8 hours of care a day. My sister drive 160 miles to be there with her every other weekend. The key is research for help. My mother's meds were $800 a month (which is just under what she makes in S.S.). They are now around $50 a month. Your parents may make too much money, but if not this is a great plan. Contact your medicare dept. and get online at www.socialsecurity.gov. Our other godsend has been medicaid. We had to deplete her funds, but it was worth it.

about 4 years ago
vj3904 said...

I'm sorry to hear about your mother and know you've got your hands full. I don't know how advanced the PD is or how much help she needs and your father can help, so check with dr's office if a social worker or nurse care manager type is available. If it's a private practice, a social worker may not be available. Then call the local or 800 number for the PD national organizations and they can advice you (APDA, NPF, PDF)...if the dr is a movement disorder specialist, he/she may even be able to point you towards the local PD support groups in his area who can give you info. Best to you and your parents and family.

about 4 years ago
henryocarn480 said...

I went through this with my mother, who just died the day after Thanksgiving, 2009. She showed the signs of PD for 15 years and in the last three years we simply could not care for her with her being in another local and due to our age and trying to lift her and having the knowledge to care for her correctly. In Pa. we were able to get her into a good county nursing home where she was for the last three years. However, she had to turn over all of her SS and have no assets other then her burial plot and money for burial. Her home could not be touched or the possessions within. My Dad continued to live in the home.

I do not know if NM has a county system set up or such care system in place. Check with the social service's representative at the local hospital or local government of NM.

Good luck.

about 4 years ago
tooshyinga said...

help with PD as far as meds or something else...my dad is getting worst with PD

about 4 years ago
henryocarn480 said...

AZILECT and many others are available. See your nureologist and go to the PD foundation internet site for a keen insight as to what is being done for patients and in the search for a cure of this disease. There are even listed trials that happen all over the country and in other parts of the world.

You may want to get your Dad tying on the computer as handwriting goes, and I even use a speech to text software pkg on my computer on my really bad days.

about 4 years ago
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about 4 years ago
wwgrace said...

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about 4 years ago
0164 said...

I know how frustrated you must feel being so far away from your parents when they need help.
My husband has had Parkinson's disease for 19 years, and it progressed very slowly allowing him to continue to play tennis, jog, and work for a long time. About 5 years ago, we began to see dementia and a faster progression of the disease. We moved closer to our children, and changed docotors because of the move to a new location. The dr. is a geriatric specialist, and the second time he saw us, he recommended that we have hospice care for my husband. That was very scarry for me, as I thought that hospice meant that the person only had weeks or months to live. I learned that hospice is available for all seniors who have a progressive, incurable disease. It has been a real blessing, and has made our lives easier.
You may want to look into hospice, and have your parents considered for this help. Their Dr. must refer them for an appointment. Blessings, 0164

about 4 years ago
scared son said...

thanks to all of you for your well wishes and blessings. I spoke to my parents today and things are not looking so good. It just so perplexing even to the doctors because my mom's conditions has progressed so fast sh should be in this state for 10 years compared to most. Now she tells she has been blacking out and thats so scary. I really am worried for her. I do think that they are realizing that they cannot doi this alone and so far away from family and will start to begin the slow process of moving somewhere where there are freinds and family and into a senior center as they said. That makes me feel better but we will see, I want to be near them so much, but I cannot just pack up and move not even within a year can I, but hopefully i will in time. Its just so much to process for me and handle on top of my own problems on my home front. The doctors are now sending my mom to some other specialist because the doctors too are confused at the rapid progression and the black out she is now having. this disease sucks I really fee for all familys and individuals who have to endure this, I am so sorry and send my blessings to all of you as well. I can only hope and pray for the best, but it gets so hard to maintain a positive outlook. until next time thanks again for all the well wishes, suggestions and blessings.

about 4 years ago
scared son said...

sorry for all the typos, I was typing fast on my break at work. I tried to edit my post but it's not working.

about 4 years ago
0164 said...

To scared son, I'm sorry that you're having such a hard time on more than one front. I will keep you in my prayers.
I've been a full-time caregiver for my husband for many years, (he's had Parkinsons for about 19 yrs). The last five years have been tough, but six mos ago our Dr. recommended that we meet with a hospice councelor. My husband qualifies because he's a senior with a progressive, degenerative disease. Hospice hass been a real blessing. He has a nurse once a week, and an aid several times a week to help with bathing and personal care. There is a cousellor and a pastor that meets with us. All medications and supplies are paid for by medicare and are delivered to our home. If you decide to look into Hospice, your parent's Dr. can get this started for you. I hope this helps. 0164

about 4 years ago
1275 said...

Please dont be scared. If your parents wont move closer to you so you can help with them then you will have to make a trip to their hometown to see if you can find someone to come to the house to help them. There are government agencies that will help you out. Medicare or Medicaid can provide information to you. You just start calling around and one call will lead to more information. Keep a journal so you can keep names, phone numbers etc in case you need to call them back. If your parents have a house you can help them to sell it and get them into a facility. Please start making calls and you will find out lots of information. The reason your scared is you dont have any information that will help you. Once you start doing this you will feel much better. I had to do the same thing and I do feel better. Good luck and hang in there... Also, there is a guide out there called the Caregivers guide. You can call the Red Cross and they can probably provide you with this.

almost 4 years ago
scared 4 Mom said...

Hello My Mom has this dreadful degrading disease called Parkinsons ,I don't no really what i can do for her.I drive her where she wants of needs to go & i even get her to stay at my house or her sister's house when my Dad is not home. My God this disease has taken over her life in the last 10 years but really has taken control in the last 6 months to a year.. What can i do for her i feel helpless ,i hold her hands when she has shakes i tell her i love hr all the time we even sometimes laugh about silly things.Her speech is almost impared she has to use a cane now thank goodness ,we all no how our Parents are so stern & proud.My Mom has swallowed her pride,self-esteem selfeworth, pretty well it all in the last 6 months.She has aged tremoundousely & is all of a sudden a frail little woman,this is so heartbreaking for her & our family especially myself & Brother cause we see her on a regular basis. I always swore i would never ever put my Mom in a home ever,My God i don't no if i can keep my promice or not i really don't want any more symptims to hit her she is so overwelmened already i don't think her health or mine will hold out much longer. Thank-you all for listening to my story.I hope to hear from someone on what to do or what i can do for my Mom soon...

almost 4 years ago
scared 4 Mom said...

Hello My Mom has this dreadful degrading disease called Parkinsons ,I don't no really what i can do for her.I drive her where she wants of needs to go & i even get her to stay at my house or her sister's house when my Dad is not home. My God this disease has taken over her life in the last 10 years but really has taken control in the last 6 months to a year.. What can i do for her i feel helpless ,i hold her hands when she has shakes i tell her i love hr all the time we even sometimes laugh about silly things.Her speech is almost impared she has to use a cane now thank goodness ,we all no how our Parents are so stern & proud.My Mom has swallowed her pride,self-esteem selfeworth, pretty well it all in the last 6 months.She has aged tremoundousely & is all of a sudden a frail little woman,this is so heartbreaking for her & our family especially myself & Brother cause we see her on a regular basis. I always swore i would never ever put my Mom in a home ever,My God i don't no if i can keep my promice or not i really don't want any more symptims to hit her she is so overwelmened already i don't think her health or mine will hold out much longer. Thank-you all for listening to my story.I hope to hear from someone on what to do or what i can do for my Mom soon...

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almost 4 years ago

So sorry you're going through this with your Mom. My husband has had Parkinson's for 18 years and the last 7 or so have been rough.
I would like to suggest that you ask her Dr. about signing her up for Hospice. I used to think that Hospice was just for someone with only a few month to live, but it's for anyone over 65 with an incurable, progressive disease. When our Dr. first suggested Hospice, I was shocked, but it has been a blessing for the past 8 months. They provide all Parkinson's related meds, a nurse comes twice a week, and an aid comes to bathe him 3 times a week. We also have volunteers, a minister and a counselor. They have also given me names of sitters that I pay so I can go out a few times a week for my own appointments, shopping and errands. Best of luck to you as you navigate this rough road.

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