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Parkinson's Support Group

Welcome to this online support group for caregivers, family, friends, and others with an interest in Parkinson's care. Please introduce yourself - Ask for advice - Share your experiences caring for a loved one with Parkinson's disease. Talk about symptoms, treatment options, side effects, daily life, your tips for others. Vent, laugh, and come back as often as you need to feel less alone.

Help spread the support to more people in need -- Please tell a friend or two. Thanks!


What's New Today

about 11 hours ago
lise rr said...
Cjc6356, it sounds like you have your hands full. Since it is beginning to involve you, perhaps it is time you sat down with them and told th... more
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2 days ago
lise rr said...
Tarasuz, my husband has had PD for over 30 years, in the beginning the doctor told us to go through family counseling to help us understand th... more
2 days ago
civilwarlover said...
Tarasuz, my husband was diagnosed 23 yrs ago, I had worked with a man that had PD in the 70s, and knew the progression. My husband had been ... more
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3 days ago
LoriNannette said...
I hope it all goes well. I will be thinking about you two. Let us know how you are when you can. Hugs!
3 days ago
Marshmallow2 said...
Good luck. Make sure the anesthesiologist knows about the PD. Certain types of anesthesia are contra-indicated for PD patients. My prayers are with you.
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3 days ago
joyanne said...
Hello, ath1111. Welcome to our support group. I'm sorry your family is having to go through such a hard time with your mom's DBS. I can't i... more
3 days ago
Marshmallow2 said...
Welcom Ath1111. I don't understand what my husband is saying most of the time and sometimes I find myself screaming WHAT at 5 million decibels. It's very frustrating and its understandable to get angry. Please stay in touch.
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3 days ago
Marshmallow2 said...
How old are you now Paula? Are you still working? Do you live on your own, or with family? Which medications are you taking? Have you had DBS? Above all else - May G-d send a speedy and complete healing to you.
3 days ago
joyanne said...
Hi, Paula. Welcome to our support group. It will be so nice to have someone here that helps us see the other side of this disease. I think ... more
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6 days ago
joyanne said...
You have a better sense of humor than I do. I get aggravated at my husband for falling asleep at the table. Nine times out of ten he will spi... more
6 days ago
lise rr said...
Sorry to laugh Joyanne but that was so funny, I m sure it was embarrassing for you. Yes Jerry had to give up his beloved Levi's into shorts w... more
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8 days ago
Marshmallow2 said...
Thank you for the helpful information.
7 days ago
lise rr said...
Thank you Joyanne, that is very interesting. I wouldn't want to pay $5000 but $99 is workable. It sounds good even for the alerts on drug reaction. Thank you...
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8 days ago
lise rr said...
Hi At a crossroad, They say everyone gets PD differently, it is like a whole bunch of diseases under one umbrella, they have no definite test... more
8 days ago
Marshmallow2 said...
My husband's first neurologist said that everyone becomes Parkinsonian as they get older. Good luck to you. I hope your doctor finds some helpful treatments.
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8 days ago
joyanne said...
Welcome to the support group, anonymous. I hope you can find some answers to your questions. I know you will find some compassionate support... more
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10 days ago
lise rr said...
That wasn't clear, Use the Melatonin at night to avoid daytime sleepiness .
9 days ago
civilwarlover said...
My husband takes lorasapam 2mg at bedtime now, to help him with his acting out his dreams. Would that also help do you think? We see his neu... more
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