« All support groups
Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell.
What's New Today
Hello, My husband has been given the clinical diagnosis of mito disease, but all his testing came back negative (save a muscle biopsy) - so they don't have a name for it, but the neurologist at the Cleveland Clinic said that mito is the closest thing that fits with his symptoms. His current biggest health-related issue, besides only having so much energy per day, is that he has... more
My husband has been going through hell for the last three months. He is in the hospital for the 8th time. Now his doctors think he needs a nursing home. I do not think he needs this yet although a short stay is not a bad idea. Is there any recourse. This is not his Mitochondrial doctor that doctor is on vacation at the moment. I do not believe this is in his best interest at this time.
Sorry it took so long to get back. Things have been crazy.
I want to thank all of you for the tips and am happy to know you. They are still trying to figure out just which disorder they are working with. His doctor estimates It will be another two years before they can give him a diagnosis. Every one they have done has come back inconclusive. So his treatment is best guess. It is sometime frustrating. So I am happy you are giving me... more
My husband has been ill on and off ever since he was given a cortisone shot has anyone else had this problem?
If you or someone you love is affected by a mitochondrial disease lets get this support group started. I am a 57 years old, and permanently disabled at the age of 36 due to my Mitochondrial cytopathy known as a M.E.R.R.F variant. It comes with a host of symptoms. Impaired mobility, Dystonia, Myoclonus, Diabetes, Carnatine deficiency, Lipid Myopathy, Complex 1 deficiency. and mor... more