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about 5 years ago

My brother has Down's Syndrome and I get paid for being his Personal Care Assistant (PCA).  My mother recently had a stroke. She was his primary care giver but she can no longer care for him. I ensure that he is groomed every day. I cook, clean, do his laundry, take him on outings, make sure he is up in time to get to work, etc.

You might be able to be your mother's PCA through your state. Check with social services.  Good luck...and remember to take care of yourself first!

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about 5 years ago

It's wonderful to hear from others who've done this. I've also seen people ask your question before; I hope the answers help you.

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over 4 years ago

How do I go about finding information on Personal Care Assistant? My husband needs someone with him 24/7. We are facing dire financial difficulties. We need help now.

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over 4 years ago

I would like to read a professional response to that

over 4 years ago
sandynmesa said...

I read your question. I own a non-medical home care company in arizona & I have several employees that i am paying to take care of thier family members. The state altc program allows us to hire family members as a client's caregiver if they qualify for services.

over 4 years ago
julieolen said...

I have been looking for answer to this problem. I've been employed for a long time, and my mother needs me more and more. Someone told me there is a way to get paid to be my mother's caretaker, and I would do it, but where to I get an application, etc. in order to get the ball rolling.

Julie Olen

over 4 years ago
Milagros said...

I live in California and receive a stipend to take care of my mother. I wouldn't call it a salary as it is miserable pay and unless you have no bills whatsoever you can not live on it. It is just above the minimum wage. I do not know what they pay in other states but I do know that here each county sets their own pay scale. You should go online and look up your state's official page on ageing and it should list the name of this program for your state. I first contacted the MSSP program in CA which provides all kinds of social services for seniors. Those seniors who are low income do not pay anything for the MSSP service. That program gave me the information I needed on how to apply for the stipend. In CA the caregiver program is called IHSS (In Home Supportive Services). They will come to your house make an assessment of the needs of the senior and determine how many hours they need for care. There is a maximum number of hours allotted and they do not pay (again in CA) for 24 hour care. Rarely do you receive the amount of time that you actually put in. Her doctor will also be contacted in order to substantiate that she needs care. I maintain almost a full time job and put in an additional 30 hours a week caring for mom. I used to take some of the money they gave me and pay a caregiver to help me out but she quit because I didn't pay enough. This money is a huge help in any case whether it is supplemental income or if it is some income for you if have quit your job. You are going to have to check if this caregiver pay is based on financial need of the senior. If your parent can afford to pay for her own care and is not on Medicaid she may not qualify but don't quote me on that. Again check with your own state. Good luck and don't forget to go online to state and federal departments on ageing and start there...there is tons of info online....also Alzheimeirs Association gives out tons of free resources and referrals regardless of the person's diagnosis and they are in every state and every city. So YES there are resources, albeit sometimes limited, but you have to really search them out.

over 4 years ago
Milagros said...

p.s. This program will pay a family member OR an outside person to take care of the person in question. The money goes directly to the person who does the work not to the senior. The senior has to designate who will be the caregiver and then the checks are sent directly to the caregiver after they fill out a time card and send it in. Everything after the initial asesment is done in the mail.

over 4 years ago
julieolen said...

I would like to do this. How do I begin? How do I get the forms and find a contact? Julie Olen

over 4 years ago
Zpearl said...

I am working on either getting paid or getting outside help, to help me take care of my Mother, now. I'm in MS and I had to file for Medicaid for her, before anybody would even talk to me about this. As far as I know now MS doesn't have any kind of program that will pay a family member. I'll keep you posted on my progress.

over 4 years ago
youswim said...

You're lucky you got any thing in Calif. My sister received $800.00 for taking care of our mother who has dementia/alzheimer's. I thought that was at least, some help to her. I on the other hand, take 24/7 care of my husband. He had a massive stroke 2 years ago. He is 6'5", 240 lbs. California won't help us at all. I am also disabled. I just don't get it. And, yes I have searched, for 2 years for help. So I do pay, from our social security income, 6 hrs a week for a care provider to come help me and so I can get to the market,etc. If he had been a veteran I could have received some extra income. Don't get me wrong, I wouldn't do anything else with hubby but to keep him with me and make sure he is well taken care of. But I just hope I can hold out.....It's extremely tiring, and that is an understatement. Thank you for letting me rattle on!

over 4 years ago

Here in Colorado, as well as states like New Jersey and Florida (others too, but I am not sure which ones), there is a program called Consumer Directed Attendant Services (CDAS). This allows the person needing care to hire whomever they would like. In my case, my wife has Muscular Dystrophy and the original Medicaid laws said that a spouse could not get paid to care for the person with the disability. This program circumvents that and allows me both a paycheck and the possibility of insurance. My wife lists the hourly wage and the only restriction is that a relative can work no more than 40 hours. If your state does not offer this, then there are avenues through Medicaid that would allow a non-spouse relative to get something. I am also a documentary filmmaker, working on films about people with disabilities and their families. My last film was titled "Caregiver" and gave me the opportunity to meet others who have used this same type program, when they have known. It is great that this type of forum is around to help those who don't know, because states NEVER make knowledge of these types of programs common.

over 4 years ago
youswim said...

I sincerely appreciate you writing back with information. Unfortunately California does not have medicaid. It has Medical (California), with much more strict regulations, especially since we, as a state are going under financially and alot of the programs they had are "no more". I would love for someone to find something to help us. I have worked on it for 2 years with the help of 2 social workers. We are considered to be in the middle income, not rich and not poor but working toward the poor quickly. Thank You for your response. I will check on CDAS in California.

over 4 years ago
youswim said...

Good Morning

I did goggle CDAS + California....it took me to the National Disabiities Act. I found nothing to indicate that we have CDAS in Calif. CDAS did talk about Colorado. I do hope your wife and you are having a good day. Again, thank for for your suggestions....I'll take all I can get.

over 4 years ago

Sorry it couldn't have been of more help. I hope you can find the help somewhere in this financial mess, especially in California, where it is worse than just about anywhere.

over 4 years ago
rhea said...

My husband is totally disabled at 59. We live in florida. I would like to bring him home from the inpatient rehab he is in now but I would have to quit work. Can I be compensated as a caregiver. I am also a L.P.N.

over 4 years ago
youswim said...

I wish I could give you an answer. I'm so sorry about your husband. I am only familiar with Calif. law. My husband is also totally disabled. Try asking your/the social worker at the rehab. center where your husband is. I found the social workers have a wealth of knowledge. God Bless and Good Luck.

over 4 years ago
rhea said...

thank you

over 4 years ago
julieolen said...

I called the CDA (Calif. Dept. of Aging) who gave me another number to call for County in-home support services, which is 1.888.944.4477, and in the L.A. area 1.213.744.4477. They are sending my mother a packet with forms to fill out. I'm praying she drops the attitude about medical and utilizes the services it has taken me so long to find. Also,regarding her lost hearing aid, they told me to call 211 in L.A. County, and they will tell me what services are available to help replace it. I will report back, if there are such services in California. We'll soon find out.

over 4 years ago
Sherri -n-Tempe said...

SandynMesa, I would like more information about your program. I am caring for my mother who I recently moved out here to receive treatment from the Mayo Hospital, her husband, my step father, left her here and went back to Nebraska - I hope you can contact me somehow, I really am desperate to talk to someone on this topic. Sherri

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over 4 years ago

Arizona Reader: HELP

I read your insert - "I own a non-medical home care company in arizona & I have several employees that i am paying to take care of thier family members. The state altc program allows us to hire family members as a client's caregiver if they qualify for services."

I need contact information to have altc pay my brother who we've asked to be our mothers Personal Care Assistant. Because of the need, he is unable to work, he with her all day, and does everything we ask of him. He is receiving food stamps and medical for himself, but is unable to pay her rent and deal with his personal needs and think of future plans of his own. We can not afford to pay him, but we do what little we can. If he could get paid for being her PCA this would help and support him.

Please assist - we've been told that he should be able to receive payment.

over 4 years ago
CLT said...

My friend had no insurance so she couldn't get help when she found out she had stomach cancer. She was rushed to the ER and they did surgery for the cancer. The tumor went from her pelvis to her breast and then around her torso. She will need chemo and another surgery. I offered to take her in because she has no money and no one to care for her. She is living in a motel, cheap rent. She lost her job due to being sick from the cancer. She is not a family member will I be able to get help of any kind?

over 4 years ago
Dorym73 said...

My Father is getting ready to move in with me and he lives in TX and I live in IL. I have no idea of where to turn to know what I need to get together in order for him to move in with me. Like you all I was wondering if I could get paid for taking care of him as well? I don't know the first thing about all of this and any help you can give me would be greatly appreciated.

over 4 years ago

Dorym73,

What kind of insurance does he have? Is it public or private? That would be the first place to start and then check the policy to see what it covers. Most private policies wouldn't come close to paying a family member, but a public one, like medicaid, might - depending on the state. At that point, you would have to check Texas's social services rules and regulations. I hope you find the info you need.

over 4 years ago

For those who are interested, my wife and I just discovered that if you are your spouses caregiver, and are paid by a program that gets it's support from medicaid, and you only take care of your spouse and do not get paid to care for anyone else, the amount you get paid is exempted by the Social Security Administration as income against your spouse's SSI. Usually, anything that you make cuts the SSI that can be earned and can endanger the medicaid that they need for medical care. This exemption, which was obscured by many SS offices, just allowed a huge back payment to my wife and alleviated a lot of worry about the catch-22 that existed based on money I made to care for her taking away the insurance that paid me to do this. Thank goodness for one really great SSA employee who made our lives a lot more workable.

I hope this info helps others.

over 4 years ago
rhea said...

Im sorry, Im a little dense. Can you explain that again????

over 4 years ago
rhea said...

...and what program is that????

over 4 years ago
Dorym73 said...

My Dad is on Medicare and Blue Cross Blue Shield and he will be living with me. Should I call the insurance companies and find out?

over 4 years ago

First, check with your state's social services and check to see what programs they may have that medicare would pay for, if any. Then, check with his insurances (beginning with Medicare) and see if there are any options at all. That would be my course.

I hope it helps.

over 4 years ago

To clarify better, If you have a spouse that receives SSI (Supplemental Security Income - through the Social Security Administration) because of a disability and due to that receives medicaid, and if your state has a program, like Consumer Directed Attendant Services, where you could get paid to take care of them --- AND you only work for your spouse and nobody else through the medicaid funded program (CDAS) then your spouse's SSI payments are unaffected by what you make.

In normal cases, anything that a spouse makes at a job affects the amount of SSI that can be earned by their partner. This can mean anything from a cut in the SSI payments, all the way up to losing it all together, including medicaid benefits). However, if the job is caring for your spouse, and is funded through medicaid, and you do not have anyone else you get aid to care for, then Social Security ignores what you make as the caregiver and your spouse receives 100% of their SSI.

I do not know how SSD is affected, but posted this for others who may have to be dealing constantly with how much can be made to not interfere with SSI payments and medicaid.

I hope this clears this up a little.

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over 4 years ago

Their is a program called CDC thru Medicare that family members can be paid to take care of a loved one but the patient or a personal representative has to be in charge and the personal representative does not get paid they manage how everyone is paid.

about 4 years ago
Momola said...

I am trying to get Mother into the "restorative care" of Medicare. This is after being in facility for 3 weeks. I have cared for her for a year and 1/2. She is in better shapoe now. Aorta stenosis. How can I do this.? Where can I find out about what this is? I also will look for info about supplemental incomd. I am not able to work full time caring for her.

about 4 years ago
rellim said...

for momola

A lot of the answer to your question depends on your Mothers income and what type insurance she has. Also where she lives determines if you can get paid or not. Let me know if you find an answer

about 4 years ago
Leigh123 said...

wow..I stumbled upon this web site and I've just been sittin here reading all the post from everyone...to find I'm not alone. I'm in kinda the same situation as alot of you are. My mom is 83 I'm 50 ..she's gettin to the point where she falls alot...falls asleep while somethings on the stovetop...she gets confused and it's just to the point where I have to be here with her. I live here with her and am her only caregiver. I of course had to take on the responsiblities of running a home like the yard work and general maintenance..I had to work two jobs to keep our heads above water.but had to let my night job go ...because mom can't be alone..especially at night when she's taken her medication. Mom only get social security which is nothing..and I make beans at my job..and they just informed me today they'll be going out of business by August. Mom does have an account through a reverse mortgage we got for her...but there's really not much in there but that money is for extreme emergencies.. and would'nt last more than a couple of months anyways if we had to pay for 24 hour care for my mom. She does get Medicare..but I've not looked into benifits for in home care yet..that's my next search...anyways..if anyone knows of benifits in Virgina please let me know Thank you and God bless you all Be Strong

about 4 years ago
kcampbell12 said...

I will be praying for you and your mother ........

almost 5 years ago
evie1 said...

Thank you for working the families, I know I have asked many times if there was a way for me to get paid. There is never an answer.

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almost 4 years ago

good luck anyone in ca. but i trie d for my wife who had colon cancer taken out back in nov 09 shes on chemo now almost finsh her results fr last ct scan were she was greatly improving all tumors have shrunk or half there sizes for now she takes avastin leucovorin for side affects but she still has little bit of side affs. but try the213 9444477 no. is easier to get in to talk to someone.and if they dont take over 2mos. to give medical or presumtive medi-cal here in ca. other states medicade.when you have full scope medi -cal you ll be assigned a social worker if u wan n call it that you know state workers esp ca.she was driving a brand spankin new beemer makes u wonder how much she gets pd hmmm.ca. is so hardup for$.an screwed up.when you get soc wrkr she ll say you have to go to orientation and it costs 45.00.to get finger printed at orientation prob w/bunch of illegals etc. nome sayin.anyway they were trying to milk me for 45.00.which we dont have soc.wkr didnt say anything about 45.00.how the heck we supposed to to pay 45.00 4 fngrprnt.we are dirt po.the soc.wkr was armo.thats why.tyvm 4 hearing. felipa zatardian

almost 4 years ago
marnsuncity said...

Hi Sandynmesa:

I will be moving to Sun City to care for my elderly parents, who are not well. I conveniently just got laid off in California, but upon moving I will have very little in the way of expenses, as their house is paid for, and they have a car I can use. I understand that in California I could get paid about $11/hour for their care. Can you let me know what the policy is in Arizona? Or, if your company can help me?

Thanks!

Marlene

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almost 4 years ago

HELP I AM TAKING CARE OF MY MOTHER 80 YEARS OLD AND VERY ILL. QUIT MY JOB AND MOVED IN WITH HER TO HELP HER. SHE HAS SOME MONEY BUT IT IS ALL TIED UP IN A LIVING TRUST AND MY BOTHER AND SISTER REFUSE TO HELP OR ALLOW HER TO PAY ME FOR HER CARE. SHE HAS BLUE SHIELD AND MEDICARE CAN THEY PAY FOR MY LONG HOURS 24/7?

almost 4 years ago
ppat269 said...

Im looking to connect with the person that has a medical business in arizona that hires family members to do personal care for a family member and get paid for it. Im from MN and there county medical assistance pays a PCA agency company that hires a family member to care for a family member, the county pays the agency and they pay the relative. Is this the case in Arizona?

almost 4 years ago
Firefly2010 said...

June 03, 2010

Hello Dear Sister! I hope that you get a chance to read this message and I pray for both yourself and husband. There is financial, and caregiver support available and the VERY FIRST place to start is your local Social Service Office.

Also, you can ask social services (APPLY 4 MEDICAID & MEDICARE PARTS A & B) to help you locate "The Commission for the Aging" in your town to assist. I've done this in order for me to learn how to better care for my mother who has early state Dementia. In fact, I'm BLESSED that my mom will be living with me soon (moving out of NY State Nursing Home).

If you need In-Home Care Givers (AT YOUR HOME)YOUR SOCIAL SERVICE DPT can and will help with your finances such as (a) Meals on Wheels, (b)Food Stamps, (c)ADULT DAY CARE CENTER MONDAY THRU FRIDAY PAID VIA MEDICAID and (d)CAREGIVER SUPPORT GROUP MEETINGS to name a few!!!

If you like, Ma'am you can also reach me at my personal email address: ladyyawson@gmail.com. or call (717)414-2924 anytime.

It's a pleasure to be of assistance and hope to hear from you.

Very Respectfully, Anita Yawson

almost 4 years ago
springrain said...

I AM NEW TO ALL THIS, I QUIT MY JOB TO HAVE MY MOTHER LIVE WITH US. SHE HAS DEMENTIA AND ARTHRITES REALLY BAD, AND HAS A HARD TIME WALKING.SHE WAS LIVING IN A 24 HOUR CARE UNIT ,PAYING SOME MONTHS AS MUCH AS 6,000 A MONTH. SO I QUIT MY JOB TO TAKE CARE OF HER. SHE DOES PAY ME, BUT HOW CAN A AVOID PAYING IN ALL THE TAXES, I HEARD I HAVE TO PAY IN 40% OF WHAT I GET FROM HER. THAT IS CRAZY! DOES ANY ONE KNOW IF THIS IS TRUE? AND HOW TO GET AROUND THE HIGH TAX. I DON'T KNOW IF I CAN GET PAID THROUGH SOME AGENCY OR THE STATE SINCE SHE DOES HAVE MONEY. I DON'T WANT TO KEEP TAKING ALL HER MONEY.

almost 4 years ago
mongru41 said...

My mother is 74 year old and she needs to be taken care of at home because she doesn't understand english/speak to be in nursing home/assisted living. What is the process to have her with family member at home?

almost 4 years ago
bretandheid said...

my mom is slowly needing some care giving (I believe) I have a 6 year old and am a single mom taking care of my mom (as she lives with me) and also working full time> I need some links to assistance for helping me out with her care, I dont need full time right now, just maybe part time but leading to full time in the future. Wondering if there is something out there that I am missing that will pay for this?

over 3 years ago
jackie9307 said...

I PRAY YOU GET PAID. I DID NOT. I WAS WORKING & TAKING CARE OF MOTHER AT SAME TIME

over 3 years ago

GO TO THE DEPARTMENT OF REHABILATION WEB SITE, TO SEE IF THERE IS ONE IN YOUR AREA. IF THERE IS ONE CALL THEM AND MAKE AND APPOINTMENT TO EVALUATE YOUR MOTHER TO SEE IF SHE QUALIFIES FOR THE PROGRAM. I THINK THERE IS A AGE LIMIT THOUGH. IF SHE QUALIFIES THE AMOUNT OF MONEY YOU WILL RECIEVE FOR TAKING CARE OF HER DEPENDS ON HOW SEVERE THEY DETERMINE SHE IS. ESPCIALLY IF SHE IS WHEELCHAIR BOUND AND CANNOT TRANSFER HERSELF TO THE BED OR ANYWHEHE. GOD BLESS,I HOPE THIS IFORMATION HELPS YOU.

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over 3 years ago

Arizona My mother-inlaw is needing me to quit my job and more in to care for her. she lives in Arizona how do i go about getting payed for caring for her. i checked with Social Services they say you can only get payed for 10 hours a week? is that right?

over 3 years ago

My husband also had a severe stroke in May took out his entire right ventricle of the brain. He was in a nursing home for about 60 days and medicare paid for that, but now he is in a memory care unit and requires fulltime round the clock care. Do you have any long term care insurance? We do and I am using that for now, but it has a cap on it, and he could very well outlive the cap which does worry me. You need a break, I cared for my husband for 5 years at home 24/7 and I too hired someone 4 hours a week to come in while I ran to the grocery etc. It was so wearing on me, (he also suffers from 2 neurological diseases). I can only imagine how exhaustede you are. You need help, check to see if in your area there are agencies that can help. We have one that did help a little, we are in California, only some counties have it. I have a friend in Ohio and she gets a lot of help from the state and county to care from her sister. Check with social services to see if there is help for you. You are in my prayers too. One question, does your husband suffer from agitation periods as a result of the stroke? mine does and they can be very aggressive and go on for several hours a day.

about 3 years ago
L lynn said...

I have been taking care of my husband for almost 5 years now. I had a job where I was lucky to take him with me. But now I can't take him and I can't work. He has liver cancer, colon cancer, bladder and limp node cancer. He is at level 4. He goes in for chemo every two weeks and has 3 hours of the chemo and then sent home with a chemo bag for two days. The third day we go back they take it off and we go home. He also has arthritis in every joint. His hands are so deformed that he can't even open a water bottle. He keeps cutting his toes because he trips a lot. All I want to find out, Is there any kind of help. Like, can I get paid to stay home since we can't afford an aid to come here? Can anyone tell me who to call or where to find help. Thank you. LorEll

about 3 years ago
youswim said...

Llynn,

Get ahold of the social worker at the hospital where he receives treatment. My husband had a massive stroke 4 years ago. We are in California and just received medi-cal. I could have gotten it earlier if had known, what, where, and why............call Calif. Department of Health Care Services.....In-Home Operations Section in Sacramento at (916)552-9105. Also, get ahold of HICAP services in the area you are in. This is mandatory............ have your doctor call the case manager in your hospital and tell them it is an emergency to get you help! You HAVE to push, push, push,, scream, cry, whatever it takes. I now have 6 days, 7 hours a day help with a "share of cost". This is so very confusing. God Bless!

Mary Lyn

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