My aunt (86) seemed to be getting forgetful for a couple of years, but was still living on her own. about 2 months ago she developed pneumonia, and a couple of other infections and was hospitalized for a couple of weeks then was sent to rehab for 3 weeks. At the end of all this she seemed to be getting better and against the advise of the therapists at the rehab I asked that she be allowed ...
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My aunt (86) seemed to be getting forgetful for a couple of years, but was still living on her own. about 2 months ago she developed pneumonia, and a couple of other infections and was hospitalized for a couple of weeks then was sent to rehab for 3 weeks. At the end of all this she seemed to be getting better and against the advise of the therapists at the rehab I asked that she be allowed to go home with carers (I am her poa), she was only home a few days when she fired all the carers, refused her medications and called EMS to get her a drink of water. I don't live with her, but went over there every day. After the ems incident I called them again and had her taken to the hospital because I suspected an infection, she was delirious, paranoid and was hallucinating. At the hospital they did all the test to rule out infections, and then did CT scans, neurology reports and dementia evaluation. The upshot was, she has dementia with paranoia, delusions and hallucinations. While in the hospital she became extremely angry with me and told me to get out, I was called the next day and told she had agreed to go to a full care facility long term. We went and met with her and the doctors, she seemed ok and even spoke to me. Next day she screamed at me to get out again, now (20 days later) she will neither see me nor speak to me, gets really agitated when my name is mentioned and screams if she sees me, said she is having me arrested and having a lawyer take away the POA, I have told the nurses to tell her I don't have it anymore, hoping that will calm her down. I don't know how long I should wait until I just go there and insist on seeing her, the social workers say she is convinced I have put her in there to rot and will never see me again, she even threw away the photos I sent and refused the cookies etc., that I sent. I have stayed away and phone every day and ask the nurses to tell her I love her and want to see her, but she says I put her into care, and I am stealing all her money and she never wants to see me again, tells everyone I have listening devises in her room and am spying on her through the window. This is tearing me apart, I feel terrible guilt because I did promise never to put her into care, I even offered to have her live with me or for me to stay with her, but she refused, and I also start to think the diagnoses is wrong, especially when other people visit her and say she appears to be fine. She has refused all her medications, (COPD, congestive heart failure and fluid in the lungs) and all oxygen, says she wants to die, they told me not taking these meds would kill her but she still appears ok. She has stopped therapy, complains about everything, and is generally miserable, when they asked her if she wanted them to have her moved she said no she is staying there.This is all wearing me down, my husband is getting upset with me because I can't sleep properly, feel guilty all the time, and talk about her constantly, even though I try not to.
Hi "Miranda's Mom," Thanks for introducing yourself to our community. There is a support group called POD "A" (Parents Of Disabled Adults), which was started by another parent of an a disabled adult in our community. You may find a few other caregivers in the same caregiving situation as you in that support group by visiting this link: http://www.caring.com/support-groups/pod-a Feel free to introduce yourself again there.
Kind regards, Sho of the Caring.com Community Team