about 5 years ago
LauraL said...

I am so very sorry to hear about your dad, Anonymous. Being given a time frame is, I feel, both a blessing and a curse. A blessing, in that you know that if there are things to do and say, now's the time to say and do them, while at the same time, a curse because you know too well how soon your life will change.

When my father was diagnosed, it was only days before he died. We spent the time we could with him, and he made sure things were done the way he wanted them - giving direction, signing documents, and just loving us best he could, as we loved him.

Even with all that, I have to say I look back on that time as a very intense, loving time, for we were all together for a while.

My best wishes go out to you.

about 5 years ago
KarenK said...

I'm very sorry to hear about your dad.  My mother died of pancreatic cancer in 2007 (she lived three months after diagnosis), and my main advice is to call a hospice facility immediately.  They'll help you through the whole process and let you know the kinds of things you can expect--although, of course, every situation is different.  Hospice is the most valuable resource out there, IMO.

And be sure to enjoy the time you have left with him.  You'll eventually appreciate the fact that you had some warning of what was going to happen.  The next few months are going to be very challenging for your family, but they'll have their rewards as well.

about 5 years ago
Lola said...

I'm very sorry to hear your news, and wish you and your family strength during the coming months.

I have no information specific to your question, but wanted to add my voice to those talking about the time ahead of you.

I lost my best friend to Breats Cancer, and although the course of her illness was one of the most difficult times of my life, it gave us some beautiful times together too. I remember days spent just being close with her, talking and just making the most of each other.

It's a time to talk and appreciate each other.

 

Thinking of you x

about 5 years ago
Melanie Haiken said...

What Lola said was very true when I was caring for my father, who died of esophageal cancer, also after receiving a prognosis of three to six months.

What I'd suggest is preparing a list of questions for your dad's doctor. Tell him you want the "nitty gritty" version, you don't want him to soft-peddle the information. (Many oncologists will speak much more plainly if you reassure them that you can take it.)

Then ask about everything you want to know: what to expect right away, what to expect down the line, and what can be done for your dad to make him more comfortable as the cancer progresses. Good luck, and keep on checking in; I'm sure we'll hear from more folks with stories to share.

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about 5 years ago

So sorry to hear about your father - this time must be very difficult for you and your family.  My mother passed away from brain cancer and from diagnoses until she passed was about 9 weeks.  I have also had 2 friends pass away from brain cancer, all were approximately 9 weeks.  For a better answer to your question, I would keep an eye on his motor skills, his speech, the names he calls his children, what he calls familiar things, etc.

My suggestion to you is that while he is still cohesive enough, he get things in order.  Consider getting a living will, durable power of attorney, executor of the estate, advanced health care directive, etc.  You don't want to be in a position of going into probate.  Also, if he is on Medi-Cal, you can call In-Home Support Services at 408-975-4899 for some assistance in caring for him if you plan to keep him at home.

Best of luck to you during this very difficult time.

over 4 years ago
Mildred said...

My wish is for you to have it easy. I know there is nothing easy going through what you are dealing with?? Please do all that was susgested by the person above. Get power of attorney so you can make the desisions that are necessary. Make sure the will is in order so you can settle everything after it is all over. Don't want to go to court and have all the waiting and fighting over his belongings. If you are taking care of him,you know what he wants done with all his belongings. So I wish you all the luck and my prayers are with him and you. I know it is so hard to sit by and  can't do anything for him but show him lots of love and attention. I hope and pray that God answers our prayers and heals him. Anything is possible with GOD. May you find peace and comfort and him too. Let him know how much he is loved and cared for?? Makes them feel better. Yes,I have gone through  it with both parents. My Mother died of breast cancer,in 69, my Dad died of Dementia15 years later. I took care of both of them and would not trade anything for those last years I had with them and their stories they shared with me. Things I had never heard from them before,so It was so interesting to know all these things about their lives and when we were babies,what we did? How we lived? All the sweetest stories to find out from them. I wrote it all down so I can make a book of it of my parents lives and ours too,in a way?? I treasure those stories so much so get them to talk and share their lives  when they were young,So enjoyable to hear these stories. My prayers are with you dear one,May God blessings be with you and him. Mildred

about 4 years ago
AnnieM said...

My 81 1/2 year old dad recently (3/2009) passed away from brain cancer which was diagnosed in 10/2007.  As far as we know, because he was a quiet but hard working man, 20 years younger than his numbers according to the doctors, he started showing symptoms in June/July - his "gait" was in the form of a shuffle.  The doctors sent him to orthopedic surgeons.  In August he couldn't figure out a simple milage vs. gals. of gas question and back to the doctor he went.  Had a cat scan, dr. said he had a  brain tumor, biopsied, said it was stage three and he had maximum 2 years to live.  He had several small seizures which required hospitalization and large quanities of the drugs that shrink the swelling in your brain.  In January of 2009 he had a seizure and went to the hospital for five days and then into Hospice Residence where he lived for 2 1/2 months fighting an amazing fight.  He went there because he couldn't walk and my 80 year old mother couldn't take care of him any longer.  He had no pain except for the nerves under his very very thin skin were super sensitive in the last 3-4 months.  You couldn't really touch him except very gently - he refused pain medicine and only got it when he somehow missed what they told him it was.  He was an amazing man - I wish you could all have known my dad!! 

about 4 years ago
Melanie Haiken said...

 Dear Annie,

your dad's fight sounds so much like my dad's -- spirited until the end. My heart goes out to you in your loss, but I also commend you for the care you gave him; it sounds like he had good treatment and they did all they could do. My dad also went faster than the maximum time the doctors gave him -- my sense is it can be hard for them to predict how aggressive a cancer tumor will be. I appreciate your description of your dad's symptoms, because may others will read this and will send their parents to the doctor if they have similar symptoms. Brain tumors are much more common than most people realize, and can cause symptoms that are easily confused with dementia and other illnesses. Thanks for sharing and our thoughts are with you.

about 4 years ago
ratly said...

Dear Annie,

My late dad had one remvoed and treated with radiation along time ago when he was 58. He was diagnosed again about about 5 years ago when he was 82. He had a pretty good quality of life although he was under pain mangagement with methadone and quick release morphine for a failed back operation or the back operation just wore out. He was able to drive and do light work aroung his house. However, the second tumor he had at 82 was glioblastoma IV. He soon entered a hospice where he got excellent care. It sounds harsh, but do the durable power of attorney and get the estate settlement rolling. At least he did not unduly suffer. He developed some more pain from the tumor crowding everything in his head. However, his pain was relieved. By the time he lost the ability to stand up and any coordination death was near and he died peacefully. It is rough, no doubt. My blessings and codolences. Ratly

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about 4 years ago

I graduaed with biology-government minors at U of Tex.I do not trust many Mds who are allopathic as most are.I know there sights are set on one thing only and they have no choice if they wish to continue to practice-money and drugs/alternative ones are much better and they can and will cure as matter of course instead of thinking about money.Royal Rife in 1932 had a generator which cured 16 of 16 so called incurable patients and his MD friend were poisoned and their labs burned down as their cure was too cheap and not pharmacuetical meaning a loss of millions of dollars every day to the professionals and pharmaceuticals.They could not accept this.I was showing off a rife machine in pilippines and I too was poisoned with garlic as was my girl friend.I had anti-dote.Beware of burning throat symptoms even if eating ice cream as it is likely arsenic poisoning.

about 4 years ago
bullman said...

Brain tumor. Dont be afraid hope, prayer every day. But at 81 god bless him. I hope he feels ok.

about 4 years ago
bullman said...

I have been through several cancers. The first one scared me. After that I got stronger with the rest and accepted them. But was mad.

about 4 years ago
bullman said...

My father in lay just passed at 93. Pretty good till end. Went to church after went to Wendys ,loved that. But when it was time he told us I dont think I can make it much longer. He didnt. But what a life and lots of stories.

about 4 years ago
ratly said...

Bullman,

 

Going to chuch and then to Wendy's and was at peace. That is good to hear. However, you never get over losing your father. Happy Easter,

 

Ratly

about 4 years ago
gtb said...

Ratly, You're right...you never get over losing your dad. Mine died of a brain tumor in 1984. In hindsight, we realized all the symptoms that we couldn't figure out in the yr or two before he was diagnosed. I still miss him.

almost 3 years ago
workerpriest said...

I am reading your posts and feeling for all of you and for myself and my Mom. For about 3 weeks now she has been failing fast in stage 3blung cancer but the symtpoms of weakenss, memory loss and some hallucinations along with irrational and suspicious behaviours suggests brain metastasis and she was told this by an oncologist last week bu so far she refuses a brain scan.

Meanwhile I see daily changess and today ahd was very accusatory of me in just about everything and this evening , while I was on a conference call, she got lost in the neighborhood.

For those of you who have experience of such rapid deterioration, I would like to have an idea of how advanced she is in the brain symptoms and what to expect in this rapid deterioration. I have the feeling that this is all a preluded to very terminal processes that will set in soon as she has chosen not to have treatments and probably that has been best.

What do others think? She is 85 and recovered from vocal cord cancer in 1987. She has been very lucky to be cancer free until 2008 when cancer re-appeared in her lungs.

almost 3 years ago
judith16 said...

Workpriest, As a former person who recovered from a brain tumbor. I really encourage you to look for natural alternatives. My sister had an aggressive cancer and surived. I really do encourage anyone to do so because when you do something to help even if things get bad you'll have the relief you did something, all you could to help. Please feel free to visit my profile or send me an email just to talk or answer any questions you might have. jgonzalez1292@yahoo.com

Best Wishes, Judith

almost 3 years ago
workerpriest said...

Thanks Judith. My Mom is in very advanced cancer now though with this added brain mets problem, I am only looking for palliative care suggestions. She has never been a person who would accept alternative medicine approaches though I myself personally am very open to them and am much younger than she is.

I am not really looking for special hope right now but rather the best ways to take care of someone deteriorating so quickly from day to day and manifesting. faster than I could have imagined these deficits that can come with brain mets. Thanks though and I will take your advice for myself, workerpriest

Thankyou

Thankyou thb

almost 3 years ago
judith16 said...

Workerpriest, I understand completly not everyone is into natural anything. But you must know you can give that option to your mother and tell her the benefits to do so. People from nature when they seem themselves getting worse they actually, many not all tho, change opinions and start looking for alternatives. But I do hope you keep that in mind because from my experience its the best derection you can go. But any questions or anything please feel free to ask me.

Best wishes, Judith

over 2 years ago
tim tim said...

Hi there I just wanted to share that my dad died 1 year ago today from a grade 4 gliobastoma multiforme, it was inoperable and they gave him 4 months to live if he took no action or up to 1 year if he did. He did every thing possible and fought the whole way. He lived exactly 8 months from the day he was diagnosed. For the most of this he was completely dependant on everyone for everything. I am not sure now if I am happy that he fought on or not. I hated seeing what he went through. I am glad that he tried, dont get me wrong, my son (his first grandson) was born 3 weeks after he passed away and I know that dad wanted to meet him more than anything. That probably kept him going. Rest in peace dad. "Sleep tight matey!"

over 2 years ago
AnnieM said...

I am so sorry for your lose. My dad had the same thing he fought hard and lived 1 1/2 years after diagnosis. He did not want to die and did everything to fight it - it was very hard on the family, but we supported his wishes. Who knows what the correct decision is . . . . .

over 2 years ago
NoraK said...

Very sorry to hear of your Dad. My Dad had the same but was not found till stage IV. Really up till hospice he was doing very well. Just got tired and wake time lessened. Hospice was 2 days. He was a joy every day. Be there as much as possible as I learned one nap will come and he will just stay asleep.Sorry your question regarding time from diagnosis till my Dad passed was 7 weeks.

over 2 years ago
AnnieM said...

Just to let you know, my dad's tumor was biopsied and he was stage four and then lived an additional 1 1/2 years.

over 2 years ago
AlanH said...

Mom was diagnosed on August 24, just two days after noticing her first symptom, which was difficulty in typing an email message to me. She passed away on December 3. There was no surgery, but there was radiation therapy and chemotherapy -- six weeks of each, running both at the same time. Her abilities declined quickly, and she had been a very active and healthy person, so she was frustrated with her loss of ability -- use of a walker to wheelchair to inability to help transfer to/from wheelchair. Mom was a nurse. She did not want to turn her family into nurses for her, so she went to a Hospice House, where she lasted four more weeks.

I am glad that she did not last longer in her state of frustration. Of course I wish that I had her longer, but not with her feeling depressed over her inability to do anything for herself.

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over 1 year ago

judith16,what type of brain tumor you have before?... my fiancy fighting also this kinds of sickness....and what about UNIVERA....

about 1 year ago
Sho B said...

Hi All, As of April 4, 2012 Caring.com changed the old format of Forum discussions to new online Support Groups. If you have a new topic you'd like to post to the Cancer support group, please do so here: www.caring.com/support-groups/cancer

Thank you! Sho of the Caring.com Community Team

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about 1 year ago

My 82 year old father was diagnosed on Jan 31st with a gliobastoma in the left temporal lobe the size of a golf ball. He was given two months without treatment. He decided not to do the biopsy nor any radiation or chemo. Here is is 5/15 and he is still with us. His memory is shot, he is very weak and lost 20 lbs. ONly gets up 1x day except in the evening he gets up thru the night to eat a little something and smoke. He is getting nasty with my mother who is 80 and she is very tired and getting frustrated. Don't get me wrong, we are not wishing him gone, but it has been 4 months and his dr. said two. He is starting to wet the bed and he fell once already.

Any suggestions?

about 1 year ago
ratly said...

Dear Caregiver, You are now in the end stage with this most merciless of godforsaken diseases. Does you dad have any pain? Regardless of how he treated your mom before the glioblastoma presented, if he is too much of a prick or too abusive and it is allowed to go unchecked it will effect your mother in an adverse way. (Been there and done that!) It will also effect the caregivers as well ....if it has not already done so. If violence presents, and if it does it won't present tor too long ....but maybe long enough to do real physical and emotnional damage......perhaps you should consider a hospice. Glio. victims that become abusive may still be strong enough to cause physical and emotional damage to both themselves and others. No two victims are the same. Suggest that you consult with the neurologist, have a conference among the immediate family, and make the best choice that you can. To be sure your choices are limited. There is really nothing that you can do for your dad but keep him safe, (your mom safe from him) and to minimize the stresses upon yourself and your family. If pain presents....they can manage that in a hospice situation better than you can at home. You have my heart's felt empathy.

about 1 year ago
Penny1571 said...

Thank you. He is not in pain. He has only been sporatically verbal with my mom. Not physical yet, thank goodness. Hospice nurse comes in at least twice a week. His vitals are still good. Blood pressure can go from 120/50 to 88/45. I wish he would stop smoking! But realize that a 60 year habit is hard to quit. He is also starting to ask questions that make no sense - when you can understand the jiberish. Just wish we knew how long we had so we can prepare as best we can Mom in some ways feels like this is going to go on forever. She worries about what to feed him and when as he is on his own schedule. He can sleep some days for 23 hours and then others (not so often) he gets restless and is up every 7. So hard.

thank you

about 1 year ago
ratly said...

Dear Penny, I am certain that you wish that he would stop smoking. I don't want to spep out of my place, but doesn't somebody have to be aroung him when he smokes so that he does not either burn himself or set fire to the house?

However, at this point, his stopping smoking is not going to help him in any way. I know what you are going through. V/r, LTC Rattus, USA, ret.

9 months ago
jennjenn said...

my dad is showing many symptoms of pancreatic cancer. He has a sudden onset of diabetes, abdominal pain, loss of appetite, and vomitting. He had a CT scan and the dr. found a tumor, he is going in for a test to do a biopsy. could someone tell me their opions on what we might be looking at and if we might be looking at pancreatic cancer. i am going crazy over here....

4 months ago
Millizway said...

My Step father went to the dr Dec 2 of this yr and was told he had pneumonia.. Took the Meds and went back for a recheck a week or so later to find out he had lung cancer and it was also in the Kidney, Liver and pancreas . The week before Christmas he was really sick and became jaundice Christmas eve he had a stent put into the pancreas to get ride of the jaundice, and with more test was told that he had stage 5 small cell lung cancer and it went to the brain.. This is way to much to fast so I fell for everyone going through this. Before they knew it was in Brain they said 3 to 6 months to live. We had to do the radiation for the brain so that my mom did not have to care for a 63yr old baby, but this is such a hard path to travel.. all i can say is thank you lord i am a distributor for Herbalife as he does not want to eat, but will drink my shakes which you can mix with just about anything and it is a full balanced meal.... www.goherbalife.com/millizway

4 months ago
ratly said...

Being a caretaker of a dying spouse for close family member is something that I went through. I would not wish that experierience upon anybody. I respectfully suggest that you yourself be regularly monitored and cared for by a physician during this time as you are prone to have high blood pressure, anxiety, depression, anxiety and fatigue. Hopefully, your family's suffering in regard to your dad's condition and the process of losing him will be as swift as possible and that you will be able to find peace and reconciliation. Not eating is a vital indicator that end of life is near. Just try to see that you and mom don't get sick because of all of this suffering, loss, and physical strain. V/r, LTC Rattus, USA, ret.

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