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about 6 years ago
Missy said...

Hi Susan,

Welcome to Caring's groups!  I'm glad you posted.

I don't have experience with this specifically, but I'm curious...do the doctors feel like this memory loss is long-term?  Did it occur a significant amount of time after her treatment stopped?  My dad had radiation on his brain, but thankfully only experienced short-term memory loss.  It wasn't the same as your mom as he never used the closet as a bathroom.  He more searched for words, was at a loss for names and just generally had no concept of time.  Thankfully as time passed, his memory improved dramatically.  I'm hoping your mom has the same experience.

about 6 years ago
Susan-2 said...

Missy,

Thanks for your response.  They aren't sure.  They tell us that she could be fine in time or one day she could wake up and she could be fine.   She does forget words and lately she has also had panic attacks.  I'm hoping that she improves soon, My poor dad also has COPD and this is just wearing him out.  also did your dad not want to eat. since sept. mom has lost about 40 lbs.?

 

about 6 years ago
Missy said...

You're very welcome!

My dad did actually lose a huge amount of weight.  His deal was that his electrolytes got all out of whack.  A blood test will reveal that.  Has your mom's been checked?  Once his sodium level got stabilized, his memory, weight, energy level and general demeanor improved.  Hope that helps!

about 6 years ago
LauraL said...

Hi Susan,

I'm sorry to hear of your mother's illness. The side effects seem as much a struggle as the disease, don't they? I do hope your mother's memory returns and that your dad can hang in there.  I'm thinking of you!

~Laura

64px-hh6b80fd52d1
about 6 years ago

 Hi Susan,

I know a little of what you are going through.  My mom died of lung cancer that grew aggressively  in her brain....She received numerous whole brain radiation treatments.   We learned how ruthless radiation can be....To save her life radiation help destroy a large tumor and numerous cancer seeds in her brain but along the way, healthy brain cells died as well.  My dad said my mother lost her person in the process.   My dad also had COPD and her suffering made everything harder for him.

I know that my mother knew love and felt love deeply.  Work with that in mind.  Just love her and remember who she really is.........Hang in there.....

64px-hh6b80fd52d1
over 5 years ago

my mom developed more tumors as a result of paracentesis. The cancer cells stick to the needle used to withdraw the abdominal fluid them embed in the surrounding tissue. It is a nightmare. The doctors are at a loss on how to deal with it.

over 5 years ago
stacymsski said...

Susan, I have to tell you that my story is somewhat similar but, ends with us believing that full brain radiation is what killed my mother.  My mother was diagnosed with small cell cancer in her lung (the size of a quarter).  They removed the cancer and part of the lung. Leaving her cancer free.  The oncologist insisted she have full brain radiation as a precaution.  My mother was 69.  It should have never been done.  The first week after radiation started she began to fall and be very forgetful.  It just got worse as time went by. They kept saying they "thought" she might be having mini-strokes.  She grew weaker with time and began with the demetia. My belief is her brain was dying.  It is the hardest thing to realize that it was not the cancer that killed her but, the treatment that was ONLY precautionary.  She had even asked about side effects etc and they insisted that it wouldn't do anything because it was a weak amount of radiation.  I am trying very hard to put the word out so that others don't suffer the same way.  It should have not have happened. We trusted whom we felt were the experts...word of advise...don't take their word and ALWAYS get more then one opinion. 

over 5 years ago
Susan-2 said...

stacymsski ,

I have not written in a while.  We now have hospice at the house.  This is the hardest thing that we have had to do.  mom is getting worse every day and it is so hard to see.  I believe to that the radiation is what has mom at her worst.  do get the word out that if any doctor recommends radiation do not do it, especially if it is just a a precaution.   i think the doctors need to read this also... mom has been going to a military hospital. thanks to every one for the support. 

susan

over 5 years ago
teddybear said...

Whole Brain radiation is not all bad,  nor is Sterotatic Radiation,  My wife has lung cancer, lower left lobe removed, and now it has matastizied to the brain.  We chose whole brain for the first treatment, in hopes of getting all the little tumors that couldn't be seen. Now we are still working on the seven that are anywhere from 1cm to 9cm.  We have been living this life for the pst two years, and I am thankful for every day that she is here with me.  Pray a lot, and remember that everything happpens in HIS time, not ours.

over 5 years ago
Susan-2 said...

greetings everyone.  Just wanted to tell you all my mom passed away after fighting this illness for 2 1/2 years.  She passed away on 04/11/09. It was the most beautiful experience i have ever had.  I miss her very much. Thanks to all for your support.   susan

over 5 years ago
teddybear said...

Sorry to here of your loss.  After being with my other and my mother-in-law when they passed from cancer, it is such a relief to know that they are no longer suffering.  May God be with you and your family.

over 5 years ago
Missy said...

Susan, I'm so sorry for your loss.  My dad passed away on 3/11, so my heart goes out to you in missing your mom very much.  We're here for you and I'm glad you could be with your mom at the end.  If you would have asked me at another time if I wanted to be with my dad in his final moments, I probably would have said no because I was scared.  But when it was happening in front of me, I couldn't dream of walking away.  It was overwhelmingly sad but beautiful. 

over 5 years ago
Susan-2 said...

Missy,

yes, at first i was also scared to be there when mom passed. She was put in hospice the week before.. the people that work at hospice are a God send., but, i'm glad I was.  On Friday, 04/10,i had left the hospital and i whispered in her ear "Momma, it's time to dance with Jesus, we will be ok, I'll take care of Dad.' not 10 mins after i got home my brother called and get back up here.  When i walked in she opened her eyes...which she hadn't in four days. looked around the room and took her last breath... the hospice nurse during her passing sang the song "Jesus is calling you home." to add something to this, my brother(San Antonio Police Officer) was with her wednesday night till about 1:00 am. He went down to the lobby area, outside was a court yard with a pillar and a light that shined down he said that there was a lady dressed in ivory and had blonde or white hair. when he looked at her she lifted up her head and smiled at him. He didn't think much of it , went to the bathroom , came out the light was turned off of the pillar and he looked at the elevators, and the arrows were pointing up... he said that he felt such a peace come over him.. he went out the the parking lot and there were no cars in the parking lot except his.... So God will send us comfort. Missy I'm so sorry for you loss.  The days have been very difficult..... God Bless all of you

over 5 years ago
Missy said...

What a beautiful story, Susan.  It certainly sounds like there was some divine intervention going on with your family.  Those signs have brought me so much comfort in my own situation.

I'll be thinking about you.

over 5 years ago
LauraL said...

OH Susan, what beautiful stories! What uplifting promise. I am sorry for your loss but oh the beauty of your stories. Thanks for sharing those with us!

 

~Laura

about 5 years ago
chrish said...

My mom passed away on 6/19/08 from lung cancer that spread into her liver.  She had lung cancer 7 years before that and they removed the upper portion of her lobe and she didn't need any chemo or radiation.  She was very lucky.  When the lung cancer came back in January of 2008, it was in a different location and was already Stage IV when discovered and had spread into her liver.  My mom was told she had 6-12 months to live!  We were devastated.  My mom went thru about 4 rounds of chemo and each time she got sicker and weaker and she slept almost all the time and she started falling and also couldn't get the words out.  It was so hard to see her body deteriorate like this.  My dad was her care giver and this was so hard on him.  Toward the end, we had hospice, but she died a short time after that.  Right before my mom passed away, she opened her eyes (which she hadn't done in 4 days - which was Father's Day) and my dad told her "just let go" and she closed her eyes, took a breath, and then it was over.  I miss her so much and this is my first Mother's Day without my mom.

about 5 years ago
Vern said...

My Mother has been diagnosed with stage 3 lung cancer and I am terrified.  She had a scan and it had not spread anywhere else.  I hear there is a new vaccine out that increases survival time, does anyone know anything about this?

 

about 5 years ago
LauraL said...

hi Vern! you might make this a new topic so it's better seen and perhaps get a better answer. :)

about 5 years ago
Susan-2 said...

chrish..

im praying for u especially with tomorrow being mothers day...it will be the hardest for me to go through. i do not have children and it was always a special day with me and my mom..it is almost to the day a month ago that my mom passed. just keep asking God to help u..and it is ok to get angry...i go through so many different emotions each and every day.. i do not think about tomorrow, i think about the next moment..my dad as well was my moms caregiver they were married 56 years.. spend time with your dad.. each and every moment is a new one.sometimes i feel that i have cried all the tears that i can but, before i know it here they come again..let them flow for it is a part of the grieving process... find something that will help u.  I started walking everyday that way i talk to my mom often...carry your moms spirit with you at all times.  yes this is hard..listen to the Allen Jackson song."Sissy's Song" God be with u and i will think about you tomorrow..

about 5 years ago
sister sue said...

Vern    My brother was diagnosed with stage 3 lung cancer in March, and it has now turned to stage 4.  It is the same cancer that took my oldest brother Alan 17 yrs ago.  I think the  vaccine you are referring to is called Lucanix . There is a website that my sister found and sent to me.  I will get it and send it to this site.  Susan                                                                                                                                                                                   

about 5 years ago
paulita90731 said...

Hi,  Have the Doctors check her diabetes and surgar level and than check often after. 

almost 5 years ago
monica148 said...

I am sorry for your loss, and yet happy that it was a beautiful experience for you. I have been a registered nurse for over 35 years, and I have been with many people when they died. I, too, have seen some beautiful experiences as some people die. It is usually when the person is ready to die both physically and spiritually, and the famly is supportive of what the patient desires. I have witnessed some things with patients that people may say could not occur. I am very happy that you were there at the time of her death and helped her pass from this life. I am SURE that your support was a tremendous help to your mother.
I thank you from her...

almost 5 years ago
Bernie x said...

my mum has breast cancer and it has spread to the lymphnodes under her arm which she oringinally had removed on the 1st of july 2009, a few weeks later her consultant checked her over and noticed another lump, it was investigated and the results came back that there was another tumour in there, we were totally shocked that it wasnt noticed before and the doctor said that it would have been there from the very beginning, it started off at 1 cm. my mum started chemo therapy on the 13th of august(the day after her birthday) she has lost all of her hair and everything, she go a blood clott about 2 weeks ago and also got an infection in her blood which was terribel and also she is allergic to every type of sick tablet which is unfortunate because she cant have them with her chemo anymore. today she had an mri scan to check if the tumour had shrunk and if the cancer had spread into her other breast and unfortunately it had enlarged by about 3cm, so its now 4 cm big which is very bad! and also the chemo is not working!! i cannot believe it, i feel sick to my stomach, i have never been so worried in my whole life, my mum is my best friend and i cant live without her im so worried!!:( now she will need immediate surgery to have a mastectomy which is to fully remove her breast and after that she will nedd to finish off her 6 month cycle of chemo and then have her cycle of radiotherapy, oh and on top of everything the cancer is the most agressive form and has spread to her blood vessels!!+before she started chemo she was told that if she didnt start it then she would be dead within 8 months but as the chemo hasnt worked, 3 months have been wasted! it seems like its one thing after another and im only 14 and am going out of my mind. my beautiful mum is only 37 and yet so ill, its horrible to see. Does anybody know that if one chemo doesnt work then what happens next? do they try another chemo ?

x

almost 5 years ago
Susan-2 said...

my prayers and thoughts are with you and your family. all i can say is just be as strong as you can....and love her. yes at times i felt that everything was a waist of time.. but i was able to be there for my mom.. it has only been six months since she passed and i miss her every moment of my life...now taking care of my dad is important..it is hard but, with lots of love and prayer you will be able to pull though.we are here for you

almost 5 years ago
KCip said...

My Mother, 83 was diagnosed with lung cancer after passing out at the shore. She had a blood clot in the lung. Drs. said- Fluid around it, took out some fluid, found cancer. This is August 11th. August 13th, MRI----cancer in the brain. Started radiation to the brain, 15 treatments was the plan, then attack the lung. We told the dr's we wanted to fight, wanted more time. She was sooo tired and weak, hair gone. They tried to get her to rehab a bit so she could walk, passed out on several occasions. They told us she could not do therapy, I could have told them that after a week. She was soo mad at the therapists who kept pushing her.

She never did get the chemo. She was sent home on hospice card on September 12th, four hours later, she died peacefully. I'd never do it again to anyone.

almost 5 years ago
Terilynusa said...

Susan, I am sorry for your loss. I just buried my Dad this past Saturday due dying through Hospice with Liver Cancer. How are you doing? Terilyn

almost 5 years ago
Missy said...

Sorry to hijack this discussions, but Terilyn, I just wanted to say I'm sorry for your loss. My dad passed away a few months ago and I've been thinking about him like crazy today. :-(

almost 5 years ago
Terilynusa said...

I am sorry for your lost Missy. My dad was diagnosed in May with Stage IV Liver Cancer and he just passed away last Wednesday. We buried him Saturday and I am still so numb I can't think.

We moved him in our guest bedroom and had assistance visits with Hospice. The room was downstairs. Often (it felt like 1,000+ times)my Dad would, though weak, yell upstairs my name to come downstairs to ask me for something...some orange juice, romote control, a comb and I would always help do as he asked. I promise Missy, I could have sworn I have heard him call out my name a few times since his passing. This is so hard to go through. I am very numb and lost right now. How are you coping Missy?

Regards, Terilyn

almost 5 years ago
Missy said...

This sounds silly, but hold on to that sound of his voice in your ears. If I close my eyes, I can still "hear" my dad answering the phone when I call. I just teared up writing that. I remember the numbness well. That first two, or so, weeks after are filled with so many tasks.

I think the two biggest things I've learned about losing my dad are that time keeps ticking away on the clock no matter what happened to you and that people grieve quite differently. I'm the biggest advocate for grieving in a way that feels right to you, unless, of course, it's self-destructive. Cry if you want. Don't cry, if that works. Talk about your dad, or refrain for awhile. None of it is wrong. Just don't waste too much time. Don't deny yourself joy. Because as you well know, our time is limited. Don't miss an opportunity to be happy.

Those probably aren't the most profound words put together on the subject, but they pretty well sum up how I'm coping. It's still hard sometimes, I won't lie.

over 4 years ago
Susan-2 said...

just remember the good times.. and do not think about the bad times when he was sick..i think of the funny times when mom would try to put trash bags on as her pants. or she would try to put her shoes on the wrong feet. or going by after work to feed her to give my dad a break....i wish i had another 6 mths to be with her.don't be bitter...it will eat a hole in your heart and you can't allow that to happen..you need your heart whole and complete... love does make it better...

over 4 years ago
Susan-2 said...

Missy,\i think i'm still numb..i'm not even sure if i have grieved.. i do know i have a picture in my room where i get ready every morning..i get up around 3:45 and mom and i have our talks...my neighbor bought me a necklace when mom passed from james avery. and the front says "the heart never forgets" on the back i had the date of mom's passing engraved... i think it will always be hard. i never figured that mom would be gone one day. she would live on forever. this is going to be a very difficult time of year. this is our first thanksgiving, christmas and new years without mom.... what are we going to do. have no idea, i know that it will not be the same.... but, all in all, mom would want us to go on. she was from estonia. she came to the states when she was 17, and when she graduated from high school only one year she won a speech contest with an article in a magazine the title was "why should I live. she loved this country....oh i better stop.. the tears are coming.... love to all of you. i'm here if anyone needs me...lol...

over 4 years ago
Susan-2 said...

well, last night we lost my father-in-law. he passed away peacefully. we are just trying to cope... will write later....

over 4 years ago
LauraL said...

Ah, Susan, I'm so sorry for your loss. (((HUGS)))

over 4 years ago
Susan-2 said...

LauraL. Thanks... need all the hugs they really help... lol

over 4 years ago
Janice2215 said...

Both my husband and I are in hospice with cancer. We have loved so long that to be able to talk about cancer has been a God send. To us and our Friends, the hospice is such a blessing. I wonder why we were not given a chance to have this from the beginning. This is a part of life ...not living forever. But to have the help from hospice is a soothing part of living with dignity, while we are on this planet. Please let them know if you get the chance. benderjanice@gmail.com

over 4 years ago
agrace said...

Bernie, I wish I lived near you so I could hold you and help you through this journey with such a heavy burden. I will try to share with you a few things I've experienced with cancer and life. The most important thing I want to say is that those time estimates are just educated guesses. At the end of 2000, I learned that I had an incurable form of cancer, stage 4c, and the most aggressive cell type. Immediate radical surgery was expected to buy me a little time, "a couple of months", and the chemo was to back it up for the best shot at surviving a little longer. In a couple of months, I was in remission! The treatments were harsh, and I had allergic reactions to every one, but I just thought it was the usual side effects. Yes, I was horribly sick, weak, tired, with little hope of surviving some days. But I crawled back and gradually learned to live with what was left of me. I had a granddarling who wasn't quite 4 years old when I was diagnosed, and I wanted so much to live long enough that she would remember me. The cancer has recurred, and I have been on several types of chemo because of serious reactions. Next week I will begin a new one, as the one I was on was destroying my legs and would have soon made me unable to walk. These are drugs I have taken in the first round, 2001, but apparently my chemistry changed. Because there are only about 25,00 cases diagnosed each year, or because it's discovered only in advanced stages and half of that 25k die soon, or for whatever reason, there are few clinical trials for this type of cancer. But your mom has a cancer that is found in the hundreds of thousands, and there are numerous survivors all around. Breast cancer must be the highest profile type of women's cancers. Millions of dollars have gone into research for treatments and cure, and almost everyone you meet knows someone or is someone who is a survivor because of the focus on breast cancer treatments. The improvements in care and the hugely brightened outlook has happened in a relatively short time, and it gets better every day. Your mom is young, and has the benefit of an army of workers and survivors who have gone before her. Each case, each event along the way, is now going to help her doctors in performing their special magic. It looks a lot more hopeless than it is when the suffering is so hard, but I am living proof that things can turn around sooner than you would ever have believed. I hope you have been able to talk with a support group and hear the numerous stories or survival. Ask the nurses and doctors who treat your mom if they can help you find someone who has real knowledge of local people who are dealing with or have dealt with similar cancer and complications. Don't stop until you find a supportive friend. Then when you get really sad or your mom is especially sick, lean on them. Most people are anxious to be helpful, but most won't offer for fear of intruding. Reach out. You might be surprised. Oh, BTW, I looked and felt terrible in those earlier days, but it wasn't always a true indication of my state of health. Chemo makes us feel like we might die any minute, because it's killing cells. Just visualize a battleground, with a little avatar marching out - that would be the cancer cell. Now visualize a big army, carrying powerful weapons, marching against the cancer cell. That is your army, your mom's army. If it can make her so sick, just think what it's going to do to that puny little cell. Splat! We have to endure the pain and side effects, because at this time we have indiscriminate drugs that kill good and bad cells. Someday, probably soon, chemo will be able to target cancer cells better, and that's because people like your mom have been part of the process of using chemo and being observed, and people like you have said you want your loved one to suffer less and have more drugs available. Of major importance to you is the advice I hear all the time: caretakers and loved ones need to take care of themselves so they won't burn out when they are needed most. You are so young to be in this hotseat, and you must not stop living. Go out with your friends, have them over, be carefree a few hours each week, a little bit each day. If you haven't already done so, talk to a counselor at school or at your church or wherever you feel an adult might be able to help you. Regardless of what happens, you will need their help more than once. Line up a support team for yourself, people who genuinely want to help, and don't be shy about asking them to help you, as well as your mom. She will feel better when you are less stressed. A mother expects to care for her child all of its life, and it's so hard to see herself unable to be there for them. Your mood can transfer to her, so make it a good one! I never know how to get back to these posts, so I might not follow up, but I will try. I am vibing up good things for you and your beautiful mother. Now, wish me luck with my newest chemo next week, as well as the cataract surgery. Oh, and the blood clots and COPD, too! My granddarling is almost 13 now, but I find that, in my mind, she might still need me a few more years, so I have the best reason to keep being a survivor. You young ones are our greatest inspiration!

over 4 years ago
Janice2215 said...

You are correct in your disision. More and more people are needlessly sufering or dead by a zelous cancer doc. a Corener I knew said she noted after 20 years how many people Died from other causes rather than the cancer noticed post mortom. One chemo treatment had me run out of the cancer center. It takes more bravery to say NO to chemo try hospice first!!!! When you can get yourself in alert rather then alarmed panic before having such a serious life altering dissiion. .....Where is you spell check, I used to spell better before chemo too.

over 4 years ago
Vern said...

My Mom has lung cancer and has surpassed her Dr's projected time span. But she has panic attacks at the thought of being nauseated and is now refusing to eat more than miniscule bites. She is on an appetite stimulant and I don't see the benefit. She is getting weaker more from her refusal to eat than the cancer I feel. I have tried to reason with her but I am at a loss. She is also on Tarceva. She says she doesn't want hospice because she wants to keep taking the Tarceva. I am just at a loss and ready to stop bugging her about eating/drinking.

over 4 years ago
LauraL said...

Hi Vern,

I'm so sorry to hear about your mother! I'm not familiar with what Tarceva is; is it an anti-nausea med? If not, maybe one of those would help her peace of mind in order to eat more. Do discuss it with her doctor and see if maybe he or she can talk to her about it.

64px-hh6b80fd52d1
over 4 years ago

I'm sorry to hear you were not given better information about hospice sooner.I am making the choice not to have anymore chemo after the first try, 2 years ago, it put me in a tail spin that I still have not recovered from. Choices is what I wanted. I did not want chemo. But presssured that I should try. I was ready to go back to work after my 1/3 of lung surgery. I may still have cancer. I don't know and don't want to at the moment . I realize there maybe other uses for chemo but I would put that on my bottom list for an arsonal of cancer fighting tools.

over 4 years ago
Vern said...

Tarceva is referred to as "chemo in a pill". Which to me is not worth all the side effects but I realize it is her choice. But it is painful to watch since I am her caregiver.

over 4 years ago
anne4boys said...

Hi mom mother passed away on june 25,2009. My mother had small cell lung cancer. She was so tough 42 chemo treatments. 72 radiation treatments. In November of 2008 she cancer free. In March she was startingto feel bad again took her back to the doctors just to find out it spread to her brain at this point she moved back with me I am so thank full for those last months even though they were so hard on her but also me losing my best friend. They did radition on her brain but it was really bad this time she ebded up back in the hospital she could not walk or eat at first the doctors wanted to put her in rehab to gather her stronger but we new that was not going to happen the next day we put her into hospice we stayed with mom arround the clock so much pain she could not speak I never new if I did the right thing,there are lots of people that are in hospice most can talk and eat my mother couldnt do either, if you have someone dying from cancer please talk to them but please listen I wish my mom could tell me what she was feeling in those 3 long weeks till death, I have to think shes happy now but ther is still alot of guilt....let me clarify her total radiation was 72 ,57 was to the lung and 15 whole brain. sorry.

over 4 years ago
Gabriel said...

Have you requested a 2nd or 3rd opinion on her treatment? I am not a Dr. or Nurse, but the number of treatments your mother has received astounds me!

As to the memory loss, I am not too surprised. My mother had radiation to a blastoid tumor in her brain that resulted in her inability to respond to any stumuli.

My heart goes out to you. Live for the moment.

over 4 years ago
anne4boys said...

Gabriel thank you for your kind words. Let me clarify she had a total of 72 radiations, 57 to her lung and 15 to her whole brain. Hope all is going well with you, and your family.

Anne

almost 4 years ago
Jade1961 said...

I started out wanting to "reply" to Missy's 10 month old post, then I realized there are so many people here who have lost a loved one in the past year that I should "Reply" to all of you. My name is Jade & I am a two time cancer survivor as is my Dad. I decided to reach out in this forum as I am a leader of a LIVESTRONG Army, we are a grassroots fund raising organization connected to the Lance Armstrong Foundation. I wanted to let you know that I am here for anyone who may need a little help through their grief. In all honesty without scrolling back and forth, someone said we all grieve in different ways & that is very true. But, no matter how you do it you have to grieve for your own sanity's sake. I am here to help anyone who needs it. I can connect you with an Army that is close to where you live, or if you are more comfortable in e-mails or on the phone I will be happy to do that too. We are an army trying to help the 28Million people globally that are living with cancer as well as helping their caregivers & families. I am posting my e-mail so that you can reach me. I would appreciate if it does not get passed around. Jadetopp@gmail.com Please contact me if you or someone you know needs help. LIVESTRONG!

almost 4 years ago
LC060907 said...

My dad was diagnosed with Stage 4 Gastric CA in 3/09 and they started him on 5FU Chemo which is one of the strongest Chemo's out there in 4/09. He never hallucinated but I have read articles where others have up to year after Chemo. was complete. My dads main issues were burning when he ate and the mouth sores were horrible even with preventative measures before and after he went in for Chemo. My dad past away on Easter this year and the only hallucinations he ever had were the day before he died. We think he was seeing angels because he kept telling us there were other people in the room and their weren't. This could have also been from the Morphine. I wish you the best and it sounds like you've already got a lot of experience under your belt with this disease. The only thing I can think of is keep researching. You will find answers eventually or even holistic measures.

almost 4 years ago
octoman said...

Well It is so strange to me that with all the research into drugs to cure cancer. No one has ever shown any interest in me.No profit in god,I guess, Diagnosed with stomach nearly eight years ago,but here I am alive and well with no treatment at all,except diet, exercise and deep spirituality, A scan last October, shows my cancer is alive and still growing,and it has now grown a friend. The surgeons opinion is, the cancer has spread. I do not agree ,a year has past and I am still fit as a flea. I often think people die because of chemotherapy,and some people even die because they try so hard to live.taking every treatment they can. Yes these ideas are obscene,I know, but so many people dying,of cancer is obscene to me. Chemotherapy,is so demoralizing.A relative wanted to die,because of it causing her such misery, she got her wish.so close to god was she.such a pity.

almost 4 years ago
Jade1961 said...

@octoman ~ You say "No profit in God, I guess." Let me tell you a little more about how I survived cancer and have been clean now for coming up on 11 years. I used Kneel-Mail. You heard me I got down on my knees, which hurt like nothing anyone should ever feel, and I handed my cancer to God.

The doctors with all their Omnipotent science gave me 18months to live once I was diagnosed. They also told me that Chemo had a 60% chance of ending my life as did radiation as my cancer was stage 4.

Now I am not here to preach to anyone, however, utilizing Faith along with the Multitude of resources that are out there like The Lance Armstrong Foundation who will help you in a heartbeat. You have to take the first step ... go to their website or call them. The website can be reached by going to http://www.livestrong.org/. I have put my e-mail in my previous post for people just like yourself. We are here to help you. This is Your Life "This is no time to pull punches, You are in the fight of your life. We are about the Hard Stuff. Like finding the nerve to ask for a second opinion and a third, or a fourth, if that is what it takes"... "We're about the practical stuff ... It's knowing your rights. It's your life. Take no prisoners". (Taken from the Manifesto of The Lance Armstrong Foundation, Founded and inspired by one of the toughest cancer survivors on the planet.) LIVESTRONG, Write me I would be glad to help you, Jade

almost 4 years ago
rmtessier said...

Dear Susan, I found this site after doing some research on a type of leukemia from which my Mom died 24 years ago. Yes, Hospice workers are angels. We have had to use them a couple of times in the ensuing years. I hope you are healing from your terrific emotional pain. It does take time. I still have times when I cry, remembering Mom. Those patients are so brave. I truly believe what her doctor told her to be true, "Even if you cannot be cured yourself, what we learn may help your children or your grandchildren." So that is why my Mom went through the chemo and radiation. Selfless love. Know that when we suffer our loss, they gain peace and comfort. My sisters and I laugh a lot now, remembering the silly things Mom did. You will get there, too. Bless you.

over 3 years ago
Our Mom said...

Stacymsski and Susan2,

Our mother was diagnosed in April 2010 with lung, liver and bone cancer. She received about 5 or 6 rounds of chemotherapy and came through rather well. She is also diabetic, anemic and has a pacemaker. As you can see, she has many other health issues plus the cancer. In early September she was hospitalized and was in a nursing home facility for rehab and physical therapy. She came home mid-October and was doing really well. Her doctor suggested radiation (precautionary) and she received 10 treatments. Towards the end of the radiation, we began noticing mom was struggling with her memory and couldn't relay simple words. Her memory is terrible and she is constantly confused. She's physically weakened and can't do anything for herself, however, just a few short weeks ago, she was progressing and doing well. She had an appointment today with her oncologist (only after my sister called and insisted that mom was not well). He stated that the radiation was such a small dose and these side effects could not possibly be from that. He also stated it could possibly be due to a stroke and she is scheduled for a CAT scan tomorrow. He also prescribed a steroid for her today in case of brain swelling. Our mother is 67 years old and after reading your stories we were amazed at the similarities. Do either of you know of any knowledge or experience with steroid usage and if it helped? We are feeling lost and could use any guidance at this point.

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