Thak you Norms....so very much for sharing your feelings. My hubby has AD too, but has never been able to share the fears like you did. He just says "No, it is not" or "It won't XXXX." and that is the end of the conversation. It is also more difficult fo rus as he is German and my German is not so refined..You have made me feel as though he spoke to me..It breaks my heart for you and for your wife, as well as for us.

I wish you the very best...and take care of your heart. I too, have heart problems, but I am 75 and hubby in 79 in perfect health.

I send you a bucket full of love for you and your wonderful wife. I also send courage for you both. Ihope it is a lot that arrives on your front steps. Charlotte

Thak you Norms....so very much for sharing your feelings. My hubby has AD too, but has never been able to share the fears like you did. He just says "No, it is not" or "It won't XXXX." and that is the end of the conversation. It is also more difficult fo rus as he is German and my German is not so refined..You have made me feel as though he spoke to me..It breaks my heart for you and for your wife, as well as for us.

I wish you the very best...and take care of your heart. I too, have heart problems, but I am 75 and hubby in 79 in perfect health.

I send you a bucket full of love for you and your wonderful wife. I also send courage for you both. Ihope it is a lot that arrives on your front steps. Charlotte

Thank you Charlotte, i have been writing things like this for two years now and i hope to post more of what i have wrote so i can share with everybody my road so far. thank you for your kind words, i am both humbled and honoured to be your friend, best wishes, Norrms and family xxxxxxxxxxxx

Thank you Charlotte, i have been writing things like this for two years now and i hope to post more of what i have wrote so i can share with everybody my road so far. thank you for your kind words, i am both humbled and honoured to be your friend, best wishes, Norrms and family xxxxxxxxxxxx

Norrms, I want to thank you. I am sitting here with my morning coffee, I am about your age, and your story is amazing. It is an inspiration and frightening at the same time. As a professional working with Alzheimer's I have always done my best for the families, like your wife...and I can see that she loves you soooo much. But like you, I sometimes don't think it can happen to me...and it can!

I wish you both all the best in your fight, but there may come a time when you are further around the bend and, like you said, have to give up the computer, and few other things too. Then your wife will have much work ahead of her. I admire that you are living life to the fullest right now, but I encourage you both to use care managers and gerontologists, as they understand what is happening and can help your wife as she continues her care. I have some things that I can send you both to help with your planning. (tools of my trade).

If I can be of any help, it is yours for the asking. I am a gerontologist and a care manager - but I don't want this to be a self-serving note. I just wanted to thank you - you reminded me to live today to the fullest. God bless you. Donahue Vanderhider

Norrms, I want to thank you. I am sitting here with my morning coffee, I am about your age, and your story is amazing. It is an inspiration and frightening at the same time. As a professional working with Alzheimer's I have always done my best for the families, like your wife...and I can see that she loves you soooo much. But like you, I sometimes don't think it can happen to me...and it can!

I wish you both all the best in your fight, but there may come a time when you are further around the bend and, like you said, have to give up the computer, and few other things too. Then your wife will have much work ahead of her. I admire that you are living life to the fullest right now, but I encourage you both to use care managers and gerontologists, as they understand what is happening and can help your wife as she continues her care. I have some things that I can send you both to help with your planning. (tools of my trade).

If I can be of any help, it is yours for the asking. I am a gerontologist and a care manager - but I don't want this to be a self-serving note. I just wanted to thank you - you reminded me to live today to the fullest. God bless you. Donahue Vanderhider

Hi Donahue, I would like to see some of those tools as well. I have an MA in psychology and did a sort of minor in gerontology as I completed the MS, but that was eons ago...degree in 1971..My hubby is starting middle stage, I think...and since we are here in Germany, I have trouble with the language..would appreciate your input, any kind of input..Charlotte

Hi Donahue, I would like to see some of those tools as well. I have an MA in psychology and did a sort of minor in gerontology as I completed the MS, but that was eons ago...degree in 1971..My hubby is starting middle stage, I think...and since we are here in Germany, I have trouble with the language..would appreciate your input, any kind of input..Charlotte

Thank you so much Donahue and i am so pleased to make your aquaintence. i still think of myself as the "Luckiest Man Alive" as i have the most supportive family in the world and my wife Elaine has thirty years in the "Care Industry" herself before retiring to become my full time carer. i lost both my father and wonderful grandmother to this awful disease and my step brother (Same father ) is in the late stages of dementia and he is only 56yrs old so i am under no illusion of what (MIGHT!!) is yet to come unless they find a cure. And find a cure they will !!! I an certain of that !! best wishes, Norrms and family xxxxxxxx

Thank you so much Donahue and i am so pleased to make your aquaintence. i still think of myself as the "Luckiest Man Alive" as i have the most supportive family in the world and my wife Elaine has thirty years in the "Care Industry" herself before retiring to become my full time carer. i lost both my father and wonderful grandmother to this awful disease and my step brother (Same father ) is in the late stages of dementia and he is only 56yrs old so i am under no illusion of what (MIGHT!!) is yet to come unless they find a cure. And find a cure they will !!! I an certain of that !! best wishes, Norrms and family xxxxxxxx

Hi Charlotte, The best way to start is with my assessment form. You can get that for free at http://easycaregiving.com/DementiaAssessment/

I recently took the bread and butter 9-page assessment that I use when people hire me, and made it available for free to anyone. After getting a big response, I am in the process of recording a "how to" podcast that will also be free, explaining how to use the form, why its organized the way it is, and how to apply it to your circumstances.

other good materials can be found at http://www.easycaregiving.com Right now its a separate sign up. but this one has a stress management guided imagery recording on it and a couple of e-books on topics like wandering/sundowning and difficult behaviors like bathing resistance. Finally, I am responding to individual requests by emailing me at support@alzheimersecrets.com Good luck, I hope to hear from you soon.

Donahue

Hi Charlotte, The best way to start is with my assessment form. You can get that for free at http://easycaregiving.com/DementiaAssessment/

I recently took the bread and butter 9-page assessment that I use when people hire me, and made it available for free to anyone. After getting a big response, I am in the process of recording a "how to" podcast that will also be free, explaining how to use the form, why its organized the way it is, and how to apply it to your circumstances.

other good materials can be found at http://www.easycaregiving.com Right now its a separate sign up. but this one has a stress management guided imagery recording on it and a couple of e-books on topics like wandering/sundowning and difficult behaviors like bathing resistance. Finally, I am responding to individual requests by emailing me at support@alzheimersecrets.com Good luck, I hope to hear from you soon.

Donahue

I did download your assessment post but seem to have lost it..I am having trouble with my adobe flash thinga ma jig! will write to you directly and try again. Charlotte

I did download your assessment post but seem to have lost it..I am having trouble with my adobe flash thinga ma jig! will write to you directly and try again. Charlotte

Please do write me directly. the support@alzheimersecrets.com should work just fine.

Are you saying that if you go back to my first post and click on the link, it won't open? If so, then others wanting to download the assessment should also write,and I will re-post it.

I always worry, because these forums do not like people coming on and soliciting their products, lets it take away from the spirit of open communication. I am not trying to sell anything, just provide something of value to caregivers... good luck, Donahue

Please do write me directly. the support@alzheimersecrets.com should work just fine.

Are you saying that if you go back to my first post and click on the link, it won't open? If so, then others wanting to download the assessment should also write,and I will re-post it.

I always worry, because these forums do not like people coming on and soliciting their products, lets it take away from the spirit of open communication. I am not trying to sell anything, just provide something of value to caregivers... good luck, Donahue

Norman, I applaud your courage! My Aunt and Father died within 2 weeks of each other. My father & mother would never acknowledge my father's diease. I loved reading what you had to say and I wish my Dad could have done the same. It was very difficult on all of us because of his anger and fear. He & my mother hid so much from us for so long. Up until his death my siblings and I were playing catch-up and fix everything. It was a very difficult last year. I know that the possibility of me or my siblings having alzhimers is very real but I don't have the courage you have to find out. Bless you and your wife and children.

Norman, I applaud your courage! My Aunt and Father died within 2 weeks of each other. My father & mother would never acknowledge my father's diease. I loved reading what you had to say and I wish my Dad could have done the same. It was very difficult on all of us because of his anger and fear. He & my mother hid so much from us for so long. Up until his death my siblings and I were playing catch-up and fix everything. It was a very difficult last year. I know that the possibility of me or my siblings having alzhimers is very real but I don't have the courage you have to find out. Bless you and your wife and children.

Hello Norrms and Elaine, I am so saddened to learn of your plight, but I do wish to thank you and acknowledge your love, courage, and generosity in sharing your difficult though usually private journey with all of us. As someone who cares for a family member with Alzheimers, it is indeed helpful to read your story - it can only assist carers to do a better job in caring for our own loved ones. May God fill your loving hearts with peace and may you always recognise the spirit of connectedness between you.

Hello Norrms and Elaine, I am so saddened to learn of your plight, but I do wish to thank you and acknowledge your love, courage, and generosity in sharing your difficult though usually private journey with all of us. As someone who cares for a family member with Alzheimers, it is indeed helpful to read your story - it can only assist carers to do a better job in caring for our own loved ones. May God fill your loving hearts with peace and may you always recognise the spirit of connectedness between you.

I just read your eye-opening description of how you came to know your condition. I am 56 years old, and fear I too may have early onset. My friends say "oh, it happens to everyone, its just middle-age forgetfulness." I am not so sure. i am going to the website and take that test. Will let you know, good luck to you. You are fortunate you have a wonderful family and support system. Stacey

I just read your eye-opening description of how you came to know your condition. I am 56 years old, and fear I too may have early onset. My friends say "oh, it happens to everyone, its just middle-age forgetfulness." I am not so sure. i am going to the website and take that test. Will let you know, good luck to you. You are fortunate you have a wonderful family and support system. Stacey

Norrms ~ I can not thank you enough for your writing about your experience! I help look after a sweet lady in what I'd guess to be the middle stage of your dispised ailment. While not family, I have so wondered what is taking place in her sweet mind as she reacts each day. You help so much by sharing ~

On the plus side, and I realize, no two indiveduals is alike, a neighbor's husband too was pleagued with Alzheimers. To have to admit him to a facility was the most difficlut decision for the Mrs. Mr. was a people person ~ he accepted the admission without a problem. His facility mates, were his adoring public and he treasured their contact! Only occasionally, would he mention "home". Again, the decision was harder on the Mrs. Your family, I can tell, is blessed to have you in their lives. You will be okay ~ Know that the Man upstairs is looking after both you ~ and yours. . . . Take this, one day at a time ~ enjoy each other, as I am sure you are. Again, thanks soooo much for giving us ~ a part of you too!

Norrms ~ I can not thank you enough for your writing about your experience! I help look after a sweet lady in what I'd guess to be the middle stage of your dispised ailment. While not family, I have so wondered what is taking place in her sweet mind as she reacts each day. You help so much by sharing ~

On the plus side, and I realize, no two indiveduals is alike, a neighbor's husband too was pleagued with Alzheimers. To have to admit him to a facility was the most difficlut decision for the Mrs. Mr. was a people person ~ he accepted the admission without a problem. His facility mates, were his adoring public and he treasured their contact! Only occasionally, would he mention "home". Again, the decision was harder on the Mrs. Your family, I can tell, is blessed to have you in their lives. You will be okay ~ Know that the Man upstairs is looking after both you ~ and yours. . . . Take this, one day at a time ~ enjoy each other, as I am sure you are. Again, thanks soooo much for giving us ~ a part of you too!

Thanks Norms ..... hang in there. You are doing a great thing by keep us in the loop.

Thanks Norms ..... hang in there. You are doing a great thing by keep us in the loop.

Norm, thanks for sharing your story. My husband has been on excelon and namenda for about a year. He is doing more testing as we speak today. The exelon has made him very confused especially when he takes the higher doses. My husband is 54, he started a few years ago with confusion and memory lapses. The thing i noticed first with his memory issues, was i would talk to him and he seemed preoccupied. He started about 13 years ago with going to the wrong church in the wrong town for our daughter's wedding. The doctor's have told us he has a mild case of dementia. I have not seen any improvement with the excelon or namenda. My daughter says that you should take both medications together to get the full effects. Are you taking both? Thanks again for your story. Laurie

Norm, thanks for sharing your story. My husband has been on excelon and namenda for about a year. He is doing more testing as we speak today. The exelon has made him very confused especially when he takes the higher doses. My husband is 54, he started a few years ago with confusion and memory lapses. The thing i noticed first with his memory issues, was i would talk to him and he seemed preoccupied. He started about 13 years ago with going to the wrong church in the wrong town for our daughter's wedding. The doctor's have told us he has a mild case of dementia. I have not seen any improvement with the excelon or namenda. My daughter says that you should take both medications together to get the full effects. Are you taking both? Thanks again for your story. Laurie

Wow, I loved your testimony. Thank you for the insight. I care for my alzheimers parents and sometimes I wish I could know and feel exactly what they are going through... they dont know they have this illness and never wanted to know. Thank you so much for posting your story. If I should ever be diagnosed with AD I dont want to hide, but be like you. You are truely an inspiration.. Much love to you and your family.

Wow, I loved your testimony. Thank you for the insight. I care for my alzheimers parents and sometimes I wish I could know and feel exactly what they are going through... they dont know they have this illness and never wanted to know. Thank you so much for posting your story. If I should ever be diagnosed with AD I dont want to hide, but be like you. You are truely an inspiration.. Much love to you and your family.

Hi Donahue I had the same problem with the assessment. I could download it blank but i could not fill it out.

Hi Donahue I had the same problem with the assessment. I could download it blank but i could not fill it out.

Hey Norman, thank you so much for the insider's view of the early progression. When Dad has his stroke almost 3 years ago and began his hospice care for the cancer that he died from, I had to take over everything for Mom. I discovered that she hadn't balanced the checkbook in years,(among other things) and that I had never noticed because she had always been irritable and private about money. She is now 80 and in the late-middle stage, I'd guess. The hardest part was the paranoia stage, when she accused everyone she loved (brother and me) of stealing from her, because she could never remember where she had put anything. She is now living a kind of zen existence, because for her there is no past or future, and as long as she is comfortable now, she is happy. I admire your bravery since, as you say, it's a disease like any other. Shame has no part in this...it can attack anyone at any time. Fore-warned is fore-armed. And good luck to your wife and close-knit family. They will be there for you as long as you need them, as I am for my Mom. Peace and love to you all.

Hey Norman, thank you so much for the insider's view of the early progression. When Dad has his stroke almost 3 years ago and began his hospice care for the cancer that he died from, I had to take over everything for Mom. I discovered that she hadn't balanced the checkbook in years,(among other things) and that I had never noticed because she had always been irritable and private about money. She is now 80 and in the late-middle stage, I'd guess. The hardest part was the paranoia stage, when she accused everyone she loved (brother and me) of stealing from her, because she could never remember where she had put anything. She is now living a kind of zen existence, because for her there is no past or future, and as long as she is comfortable now, she is happy. I admire your bravery since, as you say, it's a disease like any other. Shame has no part in this...it can attack anyone at any time. Fore-warned is fore-armed. And good luck to your wife and close-knit family. They will be there for you as long as you need them, as I am for my Mom. Peace and love to you all.

Norman, It is so kind of you to share your story with all. My mother is stricken and I am amazed at how efficient your doctors moved you along in the diagnosis and assessment process. My mother was given the basic memory test in late fall of 2008. Then when things appeared dramatically worse in just a month or two, an MRI was given. But that is it.

We are STILL trying to get a full geriatric assessment, including a psych assessment. We are desperately trying to piece together services all the while my mother's primary care physician is less than helpful. She continues to prescribe medications without seeing her and consults with other doctors who will not schedule an appointment as well as they think the "consultation" has been enough! My mother has experienced overmedication that landed her into the ER a few weeks ago and the medications are still not right as she suffers from acute anxiety.

Not sure if you are in the British or Canadian health system, but it shows a stark contrast between those systems and the US HMO(insurance company) run system.

Best to you and your family

Norman, It is so kind of you to share your story with all. My mother is stricken and I am amazed at how efficient your doctors moved you along in the diagnosis and assessment process. My mother was given the basic memory test in late fall of 2008. Then when things appeared dramatically worse in just a month or two, an MRI was given. But that is it.

We are STILL trying to get a full geriatric assessment, including a psych assessment. We are desperately trying to piece together services all the while my mother's primary care physician is less than helpful. She continues to prescribe medications without seeing her and consults with other doctors who will not schedule an appointment as well as they think the "consultation" has been enough! My mother has experienced overmedication that landed her into the ER a few weeks ago and the medications are still not right as she suffers from acute anxiety.

Not sure if you are in the British or Canadian health system, but it shows a stark contrast between those systems and the US HMO(insurance company) run system.

Best to you and your family

dear norm,

my mom has alzheimer's and I am researching all manner of things at this point to learn and support her. She and I have never been closer. I have found that her emotional and kinsthetic intelligence is sharper than ever. Dancing improvisationally together, she and I are present. She says, "thank you, i feel like i am all here."

dear norm,

my mom has alzheimer's and I am researching all manner of things at this point to learn and support her. She and I have never been closer. I have found that her emotional and kinsthetic intelligence is sharper than ever. Dancing improvisationally together, she and I are present. She says, "thank you, i feel like i am all here."

Dear Norms, A great big HUG to you. As I was reading your post it was as if I was there with you. I could almost feel it. My dad has alzeihmers too and I too have begun feeling some memory problems and scares me so much cause like you said I think of my children and grandchildren. God bless you and take care.

Dear Norms, A great big HUG to you. As I was reading your post it was as if I was there with you. I could almost feel it. My dad has alzeihmers too and I too have begun feeling some memory problems and scares me so much cause like you said I think of my children and grandchildren. God bless you and take care.

I Just want to say such a big thank you to one and all. I am both honored and humbled by your kind words, i lok forward to sharing my journey with you for as long as i can. I am based in Britain and i now take Ebixa (memantine) which has stopped thr progression somewhat but i know its only a tempoary thing, still i do believe a cure will come one day and one daY SOON, BEST WISHES FROM OVER THE POND, NORRMS, ELAINE AND FAMILY XXXXXXXX

I Just want to say such a big thank you to one and all. I am both honored and humbled by your kind words, i lok forward to sharing my journey with you for as long as i can. I am based in Britain and i now take Ebixa (memantine) which has stopped thr progression somewhat but i know its only a tempoary thing, still i do believe a cure will come one day and one daY SOON, BEST WISHES FROM OVER THE POND, NORRMS, ELAINE AND FAMILY XXXXXXXX

Dear Norms, My daughter died of Alzheimers complications at age 50 in March. Thankfully, she was pretty with it until the last month or so of her life. The disease was named for Dr Alzheimer who noticed in a very young patient, the signs of dimentia usually found in older people -- so it is not at all unusual - My daughter was so brave and we had many good conversations on the 'phone and laughs and a few visits (she lived in Maine and I in Arizona). I am sure you will know your wife when you advance in dimentia as you sound very kind My husband died of early Alzheimers at age 56 and his sister at age 48 so it is rampant in our family. I only have a son - neither of my children had children for which I am grateful as this type is definitely heriditery. Enjoy every moment of your life - even if you don't remember it afterwards, you and your family will have had the joy. A greater life does await all of us .. Will pray for you. Kate

Dear Norms, My daughter died of Alzheimers complications at age 50 in March. Thankfully, she was pretty with it until the last month or so of her life. The disease was named for Dr Alzheimer who noticed in a very young patient, the signs of dimentia usually found in older people -- so it is not at all unusual - My daughter was so brave and we had many good conversations on the 'phone and laughs and a few visits (she lived in Maine and I in Arizona). I am sure you will know your wife when you advance in dimentia as you sound very kind My husband died of early Alzheimers at age 56 and his sister at age 48 so it is rampant in our family. I only have a son - neither of my children had children for which I am grateful as this type is definitely heriditery. Enjoy every moment of your life - even if you don't remember it afterwards, you and your family will have had the joy. A greater life does await all of us .. Will pray for you. Kate

Dear Norm, My heart goes out to you and your family. My mother was diagnosed with late stage Alzheimer's just in this past year (she refused to go to the doctor). my father could no longer care for her as she was getting very violent and sundowning so we had to put her in a nursing home. My father goes everyday to see her where he talks to her and holds her hand. She no longer can say any of our names or really talk - but somehow she knows we are "safe". I believe there is a comfort and calming effect to physical interaction so we do a lot of stroking and hand holding. We need to find a cure for this horrific disease - sooner rather than later. I have offered to be a " guinea pig" for some trials and so far they don't want me. (My mothers mothers died from some form of alzheimer's or dimentia)

I will pray for you and your family but Be assured that I will not give up on raising awareness any way I can so we may find a cure- maybe not for my generation hopefully for the next one. Tracy

Dear Norm, My heart goes out to you and your family. My mother was diagnosed with late stage Alzheimer's just in this past year (she refused to go to the doctor). my father could no longer care for her as she was getting very violent and sundowning so we had to put her in a nursing home. My father goes everyday to see her where he talks to her and holds her hand. She no longer can say any of our names or really talk - but somehow she knows we are "safe". I believe there is a comfort and calming effect to physical interaction so we do a lot of stroking and hand holding. We need to find a cure for this horrific disease - sooner rather than later. I have offered to be a " guinea pig" for some trials and so far they don't want me. (My mothers mothers died from some form of alzheimer's or dimentia)

I will pray for you and your family but Be assured that I will not give up on raising awareness any way I can so we may find a cure- maybe not for my generation hopefully for the next one. Tracy

Hi Norm,

Thank you for sharing your story. I take care of a woman with AD. I have known her all my life, so it has been a joy to be able to help her now. We recently switched her meds to the same patch that you are on and she is doing much better. I wish you the best and look foward to your future post.

Sincerely, Lindy

Hi Norm,

Thank you for sharing your story. I take care of a woman with AD. I have known her all my life, so it has been a joy to be able to help her now. We recently switched her meds to the same patch that you are on and she is doing much better. I wish you the best and look foward to your future post.

Sincerely, Lindy

Thank yiou, Norman, for sharing how you feel. My husband has short-term-memory, in the early phase, and he also has a good attitude about it, as you do. He was diagnosed one year and a half ago. He often tells me that he wishes I knew what is going on in his head, but can't explain it to me. He calls it light-headedness, different from headaches, which he also gets.. His doctor put him on Aricept, and then Exelon, but he had a bad reaction to them (He is allergic to many things.) He had terrible nightmares from Exelon, especially, so the Dr. took him off it. He also has 2 sisters who are afflicted with AD, as were his brother and father, who died of ti. So what we call "Short-Term-Memory", is very likely going into AD, with that many in one family having it. Reading your story, and expressing how you feel about the varioius things you experience, really helps me to understand what my husband also must be going through, so I am very appreciative that you are willing to share and write and let us know what is happening to you. Thank you SO much! May the Lord bless you and Elaine. "Readalot"

Thank yiou, Norman, for sharing how you feel. My husband has short-term-memory, in the early phase, and he also has a good attitude about it, as you do. He was diagnosed one year and a half ago. He often tells me that he wishes I knew what is going on in his head, but can't explain it to me. He calls it light-headedness, different from headaches, which he also gets.. His doctor put him on Aricept, and then Exelon, but he had a bad reaction to them (He is allergic to many things.) He had terrible nightmares from Exelon, especially, so the Dr. took him off it. He also has 2 sisters who are afflicted with AD, as were his brother and father, who died of ti. So what we call "Short-Term-Memory", is very likely going into AD, with that many in one family having it. Reading your story, and expressing how you feel about the varioius things you experience, really helps me to understand what my husband also must be going through, so I am very appreciative that you are willing to share and write and let us know what is happening to you. Thank you SO much! May the Lord bless you and Elaine. "Readalot"

Norman ~ I have been thinking about you since first reading your input earlier today. I have a question ~ Do you still enjoy your favorite foods ~ or, do you no longer really care about them? My little patient that I attend to is hard to please. When I find something she really enjoys, she may tell me the next time it is offered, "this tastes like. . . explitive!" LOL ! She is very sweet and I know, never would have said a bad word BA (before Alzheimers)! This 90 yr young lady wants her sweets! At this point, her family wants only to please her while I'm concerned about nutrition also. Other caretakers and I manage sometimes to get her to drink Ensure ~ eat oatmeal cookies laden with wheatgerm etc. I personally get "warm fuzzies" when I hit on something she eats well. Just curious.

Norman ~ I have been thinking about you since first reading your input earlier today. I have a question ~ Do you still enjoy your favorite foods ~ or, do you no longer really care about them? My little patient that I attend to is hard to please. When I find something she really enjoys, she may tell me the next time it is offered, "this tastes like. . . explitive!" LOL ! She is very sweet and I know, never would have said a bad word BA (before Alzheimers)! This 90 yr young lady wants her sweets! At this point, her family wants only to please her while I'm concerned about nutrition also. Other caretakers and I manage sometimes to get her to drink Ensure ~ eat oatmeal cookies laden with wheatgerm etc. I personally get "warm fuzzies" when I hit on something she eats well. Just curious.

My Mom eats only sweets. I buy asceptic-packed chocolate milk, and she drinks one every time I go to see her, 3 times a week. I keep them hidden, because she doesn't know what they are. I also bring her candy (lifesavers, so she won't choke), and cookies, but only dole out a small amount when I visit, otherwise she'd eat it all without realizing it would make her ill. She hates her bottom dentures, and can't chew very well since she removes them. She spits out food she doesn't like, but can sure remember how to use a spoon to reach her mouth when there's cake put on the table! I guess the sweet tooth is the last to go. And though she doesn't remember my name or why I visit her so often, she smiles when she sees me because I'm the nice lady who visits often and brings her sweets. It's something.

My Mom eats only sweets. I buy asceptic-packed chocolate milk, and she drinks one every time I go to see her, 3 times a week. I keep them hidden, because she doesn't know what they are. I also bring her candy (lifesavers, so she won't choke), and cookies, but only dole out a small amount when I visit, otherwise she'd eat it all without realizing it would make her ill. She hates her bottom dentures, and can't chew very well since she removes them. She spits out food she doesn't like, but can sure remember how to use a spoon to reach her mouth when there's cake put on the table! I guess the sweet tooth is the last to go. And though she doesn't remember my name or why I visit her so often, she smiles when she sees me because I'm the nice lady who visits often and brings her sweets. It's something.

Norman, I cannot thank you enough for your courage and humor; I can't imagine being honest and strong enough to post about your Alzheimer's, but I'm so glad you do! My mom has mid-AD, was diagnosed about 3 years ago. It is so painful to watch her fade, but we still have fun sometimes; she still loves jokes and anything that makes her laugh is good with me. It seems to "wake her up", and she definitely is brighter and more coherent after talking and laughing for awhile. She has started forgetting her grandchildren's names, but I tell my 2 kids that, no matter what Gramma may forget, deep inside her mind they are there and surrounded always by her love. I try to get them over to her as often as possible (harder now that they're back in school--all that homework!) so they can spend as much time enjoying her as possible. Thank you again for giving me some idea of what has been going on in her mind; she has forgotten now that she even has AD, and when I mentioned it yesterday, she got very upset and angry and denied it vehemently. I'll never mention it again; why should I when it worries her?? I hope that you and your lovely wife, and your loving extended family, do as well as is possible while enjoying life while you have it. Thank you again, God bless you and keep you all strong and in His hands; you are teaching all of us so many important things with your posts, you are helping all of us deal with a monstrous, destructive disease. I'm glad your sense of humor is so strong!! Laughter IS, after all, the best medicine.

Norman, I cannot thank you enough for your courage and humor; I can't imagine being honest and strong enough to post about your Alzheimer's, but I'm so glad you do! My mom has mid-AD, was diagnosed about 3 years ago. It is so painful to watch her fade, but we still have fun sometimes; she still loves jokes and anything that makes her laugh is good with me. It seems to "wake her up", and she definitely is brighter and more coherent after talking and laughing for awhile. She has started forgetting her grandchildren's names, but I tell my 2 kids that, no matter what Gramma may forget, deep inside her mind they are there and surrounded always by her love. I try to get them over to her as often as possible (harder now that they're back in school--all that homework!) so they can spend as much time enjoying her as possible. Thank you again for giving me some idea of what has been going on in her mind; she has forgotten now that she even has AD, and when I mentioned it yesterday, she got very upset and angry and denied it vehemently. I'll never mention it again; why should I when it worries her?? I hope that you and your lovely wife, and your loving extended family, do as well as is possible while enjoying life while you have it. Thank you again, God bless you and keep you all strong and in His hands; you are teaching all of us so many important things with your posts, you are helping all of us deal with a monstrous, destructive disease. I'm glad your sense of humor is so strong!! Laughter IS, after all, the best medicine.

Norms, my hug goes to your wife. Soon you wont remember anything but she will be there through thick and thin caring for you as I did for my husband. I dont know which is worse, being the patient or the caregiver.

Norms, my hug goes to your wife. Soon you wont remember anything but she will be there through thick and thin caring for you as I did for my husband. I dont know which is worse, being the patient or the caregiver.

Hi Norms, thank you so much for being so open and honest. I was really touched and moved by your courage to share your personal information. I am currently caring for my husband who has AD. I believe he is in the moderate stage. Sometimes I feel so bad for him because he was such an active person who has turned into a person who is totally depended upon me. I pray and trust that I will be able to continue to support him and care for him through this dreaded illness. My worry too is that one day he will look at me and do not know who I am. Once again thank you for allowing us to walk through this illness through your eyes. Be blessed and continued prayers for you and your lovely wife.

Hi Norms, thank you so much for being so open and honest. I was really touched and moved by your courage to share your personal information. I am currently caring for my husband who has AD. I believe he is in the moderate stage. Sometimes I feel so bad for him because he was such an active person who has turned into a person who is totally depended upon me. I pray and trust that I will be able to continue to support him and care for him through this dreaded illness. My worry too is that one day he will look at me and do not know who I am. Once again thank you for allowing us to walk through this illness through your eyes. Be blessed and continued prayers for you and your lovely wife.

Hi Norman: It will be 4 months Sept 24th since my wife died of Alzheimer's. It started showing in 2000 after her mother passed away in the nursing home. I kept her at home as she wanted. She stopped talking 2 years ago but understood everything we said to the end. I took her for a ride every day and she kept her mind stimulated with tv,reading books and with the computer until she developed contractures in her fingers,hands,arms and legs. She fell on March 24 while being cared for by a home health care aide became paraliyzed and went down hill fast.Died May 24th three months later. God bless you. Don't give up. Everyone is different as to how this horible disease affects them. I think that taking her out to eat when she was able to,for rides, pushing her through stores,tv,books and the computer helped my wife a lot. And she was always happy. I will pray for you and read your posts. RRC

Hi Norman: It will be 4 months Sept 24th since my wife died of Alzheimer's. It started showing in 2000 after her mother passed away in the nursing home. I kept her at home as she wanted. She stopped talking 2 years ago but understood everything we said to the end. I took her for a ride every day and she kept her mind stimulated with tv,reading books and with the computer until she developed contractures in her fingers,hands,arms and legs. She fell on March 24 while being cared for by a home health care aide became paraliyzed and went down hill fast.Died May 24th three months later. God bless you. Don't give up. Everyone is different as to how this horible disease affects them. I think that taking her out to eat when she was able to,for rides, pushing her through stores,tv,books and the computer helped my wife a lot. And she was always happy. I will pray for you and read your posts. RRC

Thank you so much RRC. yours and otthers replies always give me so much hope and inspiration, best wishes, Norrms and family xxxxxxxxxx

Thank you so much RRC. yours and otthers replies always give me so much hope and inspiration, best wishes, Norrms and family xxxxxxxxxx

Hi I would like to know if you could send me your tools of the trade for my mom who cares for my dad who has AD. Thank You Brendan

Hi I would like to know if you could send me your tools of the trade for my mom who cares for my dad who has AD. Thank You Brendan

I just read something in my German information paper about research in the USA and I am all excited..

The University of South Fl , my Alma Mater, has just found some exciting information about a protein, called Microliacells that seem to attack the plaque in the brain that can lead to AD. . and so to speak eat it up or kill it.

There is a machine translation of the report, which I received in German...below the ------------ line..I would call the University of Fl to see what exactly they found and get in on the research...if I lived in Fl still.

But it does sound a bit exciting. This protein GM -CSF is already available in a form of medicine that is now used for people suffering from Cancer...so it is available and the researchers are wanting to try it this year, (2010?? or early next year, not sure) on Alzheimer's patients. Oh, I pray that this is something that can help our loved ones, and that it is very quickly available.....especially for you younger folks in the early stages.

Scientists at the University of South Florida have found that rheumatoid arthritis patients have a reduced risk of Alzheimer's with. The reason for this is a cycle occurring in their blood protein.It seems that the ]Mi This protein is called "GM-CSF" and is in the body as a result of the inflammatory process in the joints are released. It called to speak the body's "garbage" on the plan, ie, special cells, the microglia are called to be active through this form of inflammation and plaques in the brain to the access, Alzheimer's disease can lead to one.

The good news is that the protein GM-CSF exists in at a cancer drug has proven form. Thus, the researchers this year attempts to Alzheimer's patients still lead. They hope that the performance of the brains of Alzheimer's patients can be improved by protein transfer.

I just read something in my German information paper about research in the USA and I am all excited..

The University of South Fl , my Alma Mater, has just found some exciting information about a protein, called Microliacells that seem to attack the plaque in the brain that can lead to AD. . and so to speak eat it up or kill it.

There is a machine translation of the report, which I received in German...below the ------------ line..I would call the University of Fl to see what exactly they found and get in on the research...if I lived in Fl still.

But it does sound a bit exciting. This protein GM -CSF is already available in a form of medicine that is now used for people suffering from Cancer...so it is available and the researchers are wanting to try it this year, (2010?? or early next year, not sure) on Alzheimer's patients. Oh, I pray that this is something that can help our loved ones, and that it is very quickly available.....especially for you younger folks in the early stages.

Scientists at the University of South Florida have found that rheumatoid arthritis patients have a reduced risk of Alzheimer's with. The reason for this is a cycle occurring in their blood protein.It seems that the ]Mi This protein is called "GM-CSF" and is in the body as a result of the inflammatory process in the joints are released. It called to speak the body's "garbage" on the plan, ie, special cells, the microglia are called to be active through this form of inflammation and plaques in the brain to the access, Alzheimer's disease can lead to one.

The good news is that the protein GM-CSF exists in at a cancer drug has proven form. Thus, the researchers this year attempts to Alzheimer's patients still lead. They hope that the performance of the brains of Alzheimer's patients can be improved by protein transfer.

Hi Charlotte I swear I read an article last week and that I cant find right now that said that they dont know if the plaque is a bad thing or not. They are beginning to think that the Plaque is being used by the body to stop the spread of the tangles. It seems that they have a long way to go to figure out what is going on.

Hi Charlotte I swear I read an article last week and that I cant find right now that said that they dont know if the plaque is a bad thing or not. They are beginning to think that the Plaque is being used by the body to stop the spread of the tangles. It seems that they have a long way to go to figure out what is going on.

Well, I have to agree, they sure have a long way to go...I had not heard that about plaque not being so bad...would like to know more. Not sure why, info is too late for my hubby anyway unless they start packaging it this week and it starts being available here in Germany the next week, and only takes a short time to do its job....I just hope they find something quickly anyway. Let us know if you find out more...

Well, I have to agree, they sure have a long way to go...I had not heard that about plaque not being so bad...would like to know more. Not sure why, info is too late for my hubby anyway unless they start packaging it this week and it starts being available here in Germany the next week, and only takes a short time to do its job....I just hope they find something quickly anyway. Let us know if you find out more...

Here are a few links for more info on that...

http://www.msnbc.msn.com/id/38956888/ http://www.sciencedaily.com/releases/2010/09/100901132144.htm http://insciences.org/article.php?article_id=9434 http://www.nytimes.com/2010/09/02/health/research/02alzheimer.html

There are more if you do a Google search on the words: cancer drug protein alzheimer

This info is from Maryland Gal..thanks to her...but I forgot to give her credit

Here are a few links for more info on that...

http://www.msnbc.msn.com/id/38956888/ http://www.sciencedaily.com/releases/2010/09/100901132144.htm http://insciences.org/article.php?article_id=9434 http://www.nytimes.com/2010/09/02/health/research/02alzheimer.html

There are more if you do a Google search on the words: cancer drug protein alzheimer

This info is from Maryland Gal..thanks to her...but I forgot to give her credit

Hey Norm,

You know I have a written you a few times, and it occurred to me today that you might be interested in trying a little hypnosis. Its popular in England. A while back, here in Los Angeles, a non-profit agency came to me (I am a gerontologists) and asked me to make a Stress Management CD for caregivers. Which I did.

(copies are for sell at www.healthyjourneys.com, but you don't need to pay for it)

I know you are not a caregiver, but you may enjoy the benefits. And its soooo relaxing it may make you feel better (and stimulate some memories - you'll see what I mean if you try it). You can get the first track for free at http://bil.ly/DBig4 Its about 15 minutes long, and you should not have any distractions (cell phone off, dogs in other room, etc.)

Let me know if you like it, I will send you a physical copy with all the tracks on it?

Hey Norm,

You know I have a written you a few times, and it occurred to me today that you might be interested in trying a little hypnosis. Its popular in England. A while back, here in Los Angeles, a non-profit agency came to me (I am a gerontologists) and asked me to make a Stress Management CD for caregivers. Which I did.

(copies are for sell at www.healthyjourneys.com, but you don't need to pay for it)

I know you are not a caregiver, but you may enjoy the benefits. And its soooo relaxing it may make you feel better (and stimulate some memories - you'll see what I mean if you try it). You can get the first track for free at http://bil.ly/DBig4 Its about 15 minutes long, and you should not have any distractions (cell phone off, dogs in other room, etc.)

Let me know if you like it, I will send you a physical copy with all the tracks on it?

Hi Brendan: I have tried to send you 2 long posts and both would not go through. Will keep trying. Hope this short one gets through. God bless. RRC

Hi Brendan: I have tried to send you 2 long posts and both would not go through. Will keep trying. Hope this short one gets through. God bless. RRC

Thank you all so much for your kind replies and thank you Donahueg for your kind offer. yes hypnosis is used in some places in the uk but its not something that me and my family would use,The English dont really go in for any of the the "Therapy " treatments as it seems to be very big in the states but not here, , but thank you for the offer anyway, best wishes, Norrms and family xxxxxx

Thank you all so much for your kind replies and thank you Donahueg for your kind offer. yes hypnosis is used in some places in the uk but its not something that me and my family would use,The English dont really go in for any of the the "Therapy " treatments as it seems to be very big in the states but not here, , but thank you for the offer anyway, best wishes, Norrms and family xxxxxx

Dear Norms - thank you for your courage in sharing! My hope is that someday we will look back at your journal and be grateful not only for you and Elaine, but also for the information you have shared which will lead to the healing of many. Someday there will be a prevention for what you and so many others suffer. You are so right about the statement 'the eroding of self confidence' - I see it in my mother regularly. Blessings on you and yours, Arlene

Dear Norms - thank you for your courage in sharing! My hope is that someday we will look back at your journal and be grateful not only for you and Elaine, but also for the information you have shared which will lead to the healing of many. Someday there will be a prevention for what you and so many others suffer. You are so right about the statement 'the eroding of self confidence' - I see it in my mother regularly. Blessings on you and yours, Arlene

Thank you so much for your kind comments, you give me hope to carry on,best wishes, Norrms and family xxxxxxxxxx

Thank you so much for your kind comments, you give me hope to carry on,best wishes, Norrms and family xxxxxxxxxx

Hi Norms, I have not been active in any of the forums for awhile due to my son. I will copy and paste here what I did in another forum...but again send my thanks to you for sharing and helping us understand spouses who do not have your ability to explain things...Charlotte

I am sorry that I have not posted lately. My heart has stayed with you all though.. My son Kenny, 51, had lung cancer. We had prayed that a clot would break lose and hit his heart so that the awful last stage of the lung cancer could be avoided/

Well, we got our wish. One did break lose, but it went to his brain and he had a stroke. Could not speak so well and was frustrated that he could not say what he wanted, but it did start improving. He was able to say that he did not want to live that way, that he knew it was his time and that he was ready to go. I spoke to him on the phone from here, Germany, and he knew it. The next day he had a really massive stroke, and needed a breathing tube , which did allow me to speak to him again....then since his lungs were filled with a lot of clots, the Dr. said he had no chance to live if he were not on the ventilator. So, we removed the ventilator...as he would have wanted. He died peacefully a few minutes later. I will travel to Fl now for his funeral. Life is hard....I am hoping that the nurse who will come twice a day to give hubby his medicine, and the man who will come every day to deliver dinner, and a friend who can come for a few minutes each day, will be enough to keep him OK while I am gone. He is not quite to second stage....but please send good wishes our way.

Hi Norms, I have not been active in any of the forums for awhile due to my son. I will copy and paste here what I did in another forum...but again send my thanks to you for sharing and helping us understand spouses who do not have your ability to explain things...Charlotte

I am sorry that I have not posted lately. My heart has stayed with you all though.. My son Kenny, 51, had lung cancer. We had prayed that a clot would break lose and hit his heart so that the awful last stage of the lung cancer could be avoided/

Well, we got our wish. One did break lose, but it went to his brain and he had a stroke. Could not speak so well and was frustrated that he could not say what he wanted, but it did start improving. He was able to say that he did not want to live that way, that he knew it was his time and that he was ready to go. I spoke to him on the phone from here, Germany, and he knew it. The next day he had a really massive stroke, and needed a breathing tube , which did allow me to speak to him again....then since his lungs were filled with a lot of clots, the Dr. said he had no chance to live if he were not on the ventilator. So, we removed the ventilator...as he would have wanted. He died peacefully a few minutes later. I will travel to Fl now for his funeral. Life is hard....I am hoping that the nurse who will come twice a day to give hubby his medicine, and the man who will come every day to deliver dinner, and a friend who can come for a few minutes each day, will be enough to keep him OK while I am gone. He is not quite to second stage....but please send good wishes our way.

hiya charlotte, sorry to hear your news and thank you so much for taking the time to post to me, best wishes, Norrms and family xxxxxxxxxxxx

hiya charlotte, sorry to hear your news and thank you so much for taking the time to post to me, best wishes, Norrms and family xxxxxxxxxxxx

My hubby was facing his AD by drinking heavily. One night he had a seizure.

The Dr. said it was a withdrawal seizure, but I doubted it. I have since learned that such seizures are not uncommon for dementia patients. The following week he had a TIA or mini stroke. He could not speak, no matter how hard he tried. Before this stroke he had been mean and angry in his speech...verbally aggressive all the time. He was sorely trying my patience and I was under a lot of stress, BUT after this mini stroke, his whole personality turned back to being like he was when we first married ..sweet, loving and considerate. I never thought I would be glad that hubby had a stroke, but I am. He even apologized for his prior behavior and said he could not do anything about it then. This great new-old attitude has been going on for 3 days now, and if it changes as his AD progresses, even if it reverts to the less than nice behavior, I am happy ..HAPPY !!for these days that I am now experiencing!

My hubby was facing his AD by drinking heavily. One night he had a seizure.

The Dr. said it was a withdrawal seizure, but I doubted it. I have since learned that such seizures are not uncommon for dementia patients. The following week he had a TIA or mini stroke. He could not speak, no matter how hard he tried. Before this stroke he had been mean and angry in his speech...verbally aggressive all the time. He was sorely trying my patience and I was under a lot of stress, BUT after this mini stroke, his whole personality turned back to being like he was when we first married ..sweet, loving and considerate. I never thought I would be glad that hubby had a stroke, but I am. He even apologized for his prior behavior and said he could not do anything about it then. This great new-old attitude has been going on for 3 days now, and if it changes as his AD progresses, even if it reverts to the less than nice behavior, I am happy ..HAPPY !!for these days that I am now experiencing!

Norms, I admire you for your courage and wanting for your illness to be out in the open. You are very lucky to have Elaine. I can tell by your description of her, that she adores you very much. You, Elaine and your family will be in my prayers.

Norms, I admire you for your courage and wanting for your illness to be out in the open. You are very lucky to have Elaine. I can tell by your description of her, that she adores you very much. You, Elaine and your family will be in my prayers.

Norrms, how wonderful to see your posting at Caring.com

I am also glad you post to other social media sites in order to keep your message alive.

You are truly a treasure to caregivers in deepening our understanding of what to expect and why someone may behave a particular way.

Thank you for taking time to share, enlighten, illuminate, and inspire.

Norrms, how wonderful to see your posting at Caring.com

I am also glad you post to other social media sites in order to keep your message alive.

You are truly a treasure to caregivers in deepening our understanding of what to expect and why someone may behave a particular way.

Thank you for taking time to share, enlighten, illuminate, and inspire.

Dear Norrms, Thank you for sharing your story. I was uplifted by your wonderful attitude regarding your illness and encouraged by the love and support of your wife and family; that is so important. I am 64 yrs old and occasionally have moments when I lose the thread of what I was about to say and I can't pull well-known trivia out of my head hardly at all anymore. I wonder sometimes if that is "normal" but time will tell. Your advice to get tested early was good for everyone. Thanks again and I'm sending you all my good thoughts for the future.

Dear Norrms, Thank you for sharing your story. I was uplifted by your wonderful attitude regarding your illness and encouraged by the love and support of your wife and family; that is so important. I am 64 yrs old and occasionally have moments when I lose the thread of what I was about to say and I can't pull well-known trivia out of my head hardly at all anymore. I wonder sometimes if that is "normal" but time will tell. Your advice to get tested early was good for everyone. Thanks again and I'm sending you all my good thoughts for the future.

Norms,

I also want to thank you for your frank, insightful post. You have such courage and I love your sense of humor in your fight against this disease I call a thief. I don't need to tell you that you're not in this alone. You have described a wonderful family and a devoted wife. These things will not change. I think you were most wise in telling your family and close friends as soon as you found out. You have looked "the beast" in the eyes and you won't back down!! You have such a wonderful outlook. My Mom has Alzhiemer's and is in late moderate to early severe. May God Bless you, your Elaine and the rest of your family. Many hugs to you Norms.

Tizzy

Norms,

I also want to thank you for your frank, insightful post. You have such courage and I love your sense of humor in your fight against this disease I call a thief. I don't need to tell you that you're not in this alone. You have described a wonderful family and a devoted wife. These things will not change. I think you were most wise in telling your family and close friends as soon as you found out. You have looked "the beast" in the eyes and you won't back down!! You have such a wonderful outlook. My Mom has Alzhiemer's and is in late moderate to early severe. May God Bless you, your Elaine and the rest of your family. Many hugs to you Norms.

Tizzy

Hello Norrms & Elaine,

I have been a subscriber to Caring.com for some time now. I have read many testimonials and learned from so many, but never replied until now. The tears began to flow as I read yours, not because of pity but of the beauty of your words. You have allowed us "in" and I for one am grateful. I along with my sisters care for our 87 years young mother. I am retired and her main caregiver as one sister is employed and my other sister has a very full schedule. Before our mother was taking namenda there were some very nervous moments. The namenda has "evened" things out tremendously which we are grateful for. I love our mother more than words can say and am committed to caring for her no matter what comes our way. From your words I can tell you also have a very loving and caring family that includes your life partner and children and grandchildren. You are blessed. Thank you again for a "glimpse". I feel like I know you and wish that I did.

Peace, Jerry

Hello Norrms & Elaine,

I have been a subscriber to Caring.com for some time now. I have read many testimonials and learned from so many, but never replied until now. The tears began to flow as I read yours, not because of pity but of the beauty of your words. You have allowed us "in" and I for one am grateful. I along with my sisters care for our 87 years young mother. I am retired and her main caregiver as one sister is employed and my other sister has a very full schedule. Before our mother was taking namenda there were some very nervous moments. The namenda has "evened" things out tremendously which we are grateful for. I love our mother more than words can say and am committed to caring for her no matter what comes our way. From your words I can tell you also have a very loving and caring family that includes your life partner and children and grandchildren. You are blessed. Thank you again for a "glimpse". I feel like I know you and wish that I did.

Peace, Jerry