Help Caring.com help other Alzheimer's caregivers
Are you a caregiver to a loved one with Alzheimer's? We at Caring.com are working to enhance our Alzheimer's content and tools over the next few months and we want to interview those most closely affected by this devastating disease.
We would like to talk to some of our members about their experiences and thoughts on what would be useful to them in dealing with the ups and downs of providing care for someone with Alzheimer's. We're hoping to speak with a range of people, including those whose loved one lives independently, those living with their loved one, those whose loved one is in a long-term care facility and those who are in a long-distance caregiving role. We're also interested in interviewing caregivers ranging from those dealing with the early stages of Alzheimer's through those in later stages.
If you're interested, we will be conducting a one-time phone interview that will last approximately one hour. Interviews will take place on May 14 and 17, 2010. The first twelve qualifying members who are interviewed will receive a $25 Amazon.com gift certificate in appreciation for their time and insight.
If you would like more information or are interested in participating, please send us an email at insight@caring.com as soon as possible, as the scheduling process for interviews is beginning immediately.
Thank you very much for your willingness to help shape our site for other caregivers to those with Alzheimer's, just like you!
Help Caring.com help other Alzheimer's caregivers
Are you a caregiver to a loved one with Alzheimer's? We at Caring.com are working to enhance our Alzheimer's content and tools over the next few months and we want to interview those most closely affected by this devastating disease.
We would like to talk to some of our members about their experiences and thoughts on what would be useful to them in dealing with the ups and downs of providing care for someone with Alzheimer's. We're hoping to speak with a range of people, including those whose loved one lives independently, those living with their loved one, those whose loved one is in a long-term care facility and those who are in a long-distance caregiving role. We're also interested in interviewing caregivers ranging from those dealing with the early stages of Alzheimer's through those in later stages.
If you're interested, we will be conducting a one-time phone interview that will last approximately one hour. Interviews will take place on May 14 and 17, 2010. The first twelve qualifying members who are interviewed will receive a $25 Amazon.com gift certificate in appreciation for their time and insight.
If you would like more information or are interested in participating, please send us an email at insight@caring.com as soon as possible, as the scheduling process for interviews is beginning immediately.
Thank you very much for your willingness to help shape our site for other caregivers to those with Alzheimer's, just like you!
I think will a useful for myself and others ib this situation Thank-You
I think will a useful for myself and others ib this situation Thank-You
I am interested in participating in the survey
I am interested in participating in the survey
I would like to see 12 or even 24 hour day centres so that carers can maintain a little social life.
Key workers assigned to resolve problems for new patients & their carers.
Also much more joined up thinking amidst hospitaL staff, social workers, charities & voluntary activities.
The present situation here in Denbighshire, N. Wales is a diabolic shambles.
Keith Hunt.
I would like to see 12 or even 24 hour day centres so that carers can maintain a little social life.
Key workers assigned to resolve problems for new patients & their carers.
Also much more joined up thinking amidst hospitaL staff, social workers, charities & voluntary activities.
The present situation here in Denbighshire, N. Wales is a diabolic shambles.
Keith Hunt.
Hello everyone! Please remember if you're interested in being interviewed, send us an email of interest to insight@caring.com. Thank you!
Hello everyone! Please remember if you're interested in being interviewed, send us an email of interest to insight@caring.com. Thank you!
I am the wife of a 68 year old Alzheimers patient. He was diagnosed 5 years ago, although I knew something was wrong 5 years prior to the diagnosis. The most difficult time was prior to the diagnosis,we thought he was suffering from stress, depression etc..he was misdiagnosed twice, until I went to the U of Chgo.and once I had a name for his behavior it was somewhat easier to deal with, even though it is not without hurdles at this time. I have lost a husband, friend and partner, he is a gentle soul, that wants to be left alone, spends 90% of his time in bed looking at the ceiling he has lost his past and future, he is just a physical shell He does not remember his children nor grandchildren or friends, nor does he remember his childhood or siblings. On day to day I do quite well, I have loving children (2) great friends, I enjoy sports, I am still able to do all these things due to the fact my husband does not ever leave the house, nor undertake anything other then stay in bed, eat ( I set up the meals) and his personal hygene (bathroom) Taking showers has become a big problem- which I solved for the time being. One final note, I take it one day at the time, otherwise it becomes depressing and overwhelming
Regards
Erna Burger
I am the wife of a 68 year old Alzheimers patient. He was diagnosed 5 years ago, although I knew something was wrong 5 years prior to the diagnosis. The most difficult time was prior to the diagnosis,we thought he was suffering from stress, depression etc..he was misdiagnosed twice, until I went to the U of Chgo.and once I had a name for his behavior it was somewhat easier to deal with, even though it is not without hurdles at this time. I have lost a husband, friend and partner, he is a gentle soul, that wants to be left alone, spends 90% of his time in bed looking at the ceiling he has lost his past and future, he is just a physical shell He does not remember his children nor grandchildren or friends, nor does he remember his childhood or siblings. On day to day I do quite well, I have loving children (2) great friends, I enjoy sports, I am still able to do all these things due to the fact my husband does not ever leave the house, nor undertake anything other then stay in bed, eat ( I set up the meals) and his personal hygene (bathroom) Taking showers has become a big problem- which I solved for the time being. One final note, I take it one day at the time, otherwise it becomes depressing and overwhelming
Regards
Erna Burger
yes, i'm interested in doing your survey.
yes, i'm interested in doing your survey.
Hi, I am a psychiatric nurse whose both parents had signs of dementia and Alzheimers Disease. They lived at home for years with part time supportive care until my father's medical condition required 24 hour care. They were able to live at home with 24 hour care for about 6 years until my father's death. We dealt with wandering and lethargy and the spacial perceptions that affect Alzheimers victims.
My mother was then placed in an assisted living memory unit where a urinary tract infection caused recurring falls and finally a move on to a nursing home. We had many problems with anxiety causing tooth grinding and crying. She passed away three months ago.
It is a dreadful disease but support and problem solving the day to day events brought our family closer and brought rewards as well as frustrations. We did good! And I'm sure they are floating around being proud of us.
Hi, I am a psychiatric nurse whose both parents had signs of dementia and Alzheimers Disease. They lived at home for years with part time supportive care until my father's medical condition required 24 hour care. They were able to live at home with 24 hour care for about 6 years until my father's death. We dealt with wandering and lethargy and the spacial perceptions that affect Alzheimers victims.
My mother was then placed in an assisted living memory unit where a urinary tract infection caused recurring falls and finally a move on to a nursing home. We had many problems with anxiety causing tooth grinding and crying. She passed away three months ago.
It is a dreadful disease but support and problem solving the day to day events brought our family closer and brought rewards as well as frustrations. We did good! And I'm sure they are floating around being proud of us.
My mother has dementia. We are have aging services coming to help bathe her three times a week. She often sends the person away. She tells us she can do this herself which of course this means bathing in the bathroom sink. She is 84 yrs old and her mobility is very limited. Any ideas to help her accept the help that we so desperately need?
My mother has dementia. We are have aging services coming to help bathe her three times a week. She often sends the person away. She tells us she can do this herself which of course this means bathing in the bathroom sink. She is 84 yrs old and her mobility is very limited. Any ideas to help her accept the help that we so desperately need?
I am varadarajan caring for my father. Indeed it is depressing is see your dear one suffering silently' as he or she is in no state of expressing pain, feelings or the desire. Yet it is more excruciatingly painful for the caregiver, whose loud agony of seeing the dear ones' unresponsive state often lapsed into depression. Yes, I am in a similar boat caring for my 90-year-old father in an acute statge of Alzheimer Dementia, whose once ebulliant and bright intellect was a matter of pride. Though I do not tire at iterating his glorious life, deep within me I feel the pang of deceptiveness for who will believe such a being becoming now avegetable'. Yet me and my family soldiered on trying to give the maximum comfort and peace until a few days ago when I had to give up my battle and admit him in a hospice. ( It is a new phenomenon in India). I do hope his paind and resentment will be less albeit the pangs of seperation from his kin will be a cause of concern for me and my family.
I am varadarajan caring for my father. Indeed it is depressing is see your dear one suffering silently' as he or she is in no state of expressing pain, feelings or the desire. Yet it is more excruciatingly painful for the caregiver, whose loud agony of seeing the dear ones' unresponsive state often lapsed into depression. Yes, I am in a similar boat caring for my 90-year-old father in an acute statge of Alzheimer Dementia, whose once ebulliant and bright intellect was a matter of pride. Though I do not tire at iterating his glorious life, deep within me I feel the pang of deceptiveness for who will believe such a being becoming now avegetable'. Yet me and my family soldiered on trying to give the maximum comfort and peace until a few days ago when I had to give up my battle and admit him in a hospice. ( It is a new phenomenon in India). I do hope his paind and resentment will be less albeit the pangs of seperation from his kin will be a cause of concern for me and my family.
My mother is living with me and is in the later stages of alzheimers, I am trying to care for her work a full time job, and have 3 grandchildren living in my home. The demands of watching your parent progress with the disease and trying to have a family is very stressful.
My mother is living with me and is in the later stages of alzheimers, I am trying to care for her work a full time job, and have 3 grandchildren living in my home. The demands of watching your parent progress with the disease and trying to have a family is very stressful.
I wish had seen this early I would of love to be part of the survey. I hope that after you collect the data of your survey you share. These days I find myself betterly keeping up with what has to be done on daily basic - a little overwhelm with taking care of my mother who has alzheimer/dementa - all of her affairs. I work full time - just became a grandma - still have a son in college - etc. just like everyone these days that is a caretaker has a overflowing plate. I do have a wonderful husband & kids that are so understanding with the whole situation. Any info on the subject is welcome.
I wish had seen this early I would of love to be part of the survey. I hope that after you collect the data of your survey you share. These days I find myself betterly keeping up with what has to be done on daily basic - a little overwhelm with taking care of my mother who has alzheimer/dementa - all of her affairs. I work full time - just became a grandma - still have a son in college - etc. just like everyone these days that is a caretaker has a overflowing plate. I do have a wonderful husband & kids that are so understanding with the whole situation. Any info on the subject is welcome.
I applied to participate But I guess I was not selected But I hope if someone reads this I hope they will give us some insight into what the survey entailed
I applied to participate But I guess I was not selected But I hope if someone reads this I hope they will give us some insight into what the survey entailed
You are very blessed to have lived thru such a difficult time with your parents, with the support of your siblings and family. My family has been torn apart by my Mother's dementia. There are 5 of us siblings, I am next to the youngest. We have always loved and supported each other, well some more than others. But the 2 sisters, whom I have always looked up too, loved, always been there for them, have turned against me. They are making it literally impossible for me to care for Mother. I still go down days or a week at a time, willing to go down every other week. But my sisters are so very mean to me in every way. I have tried everything to communicate with them. My mother and father appointed me their POA, Healthcare POA and Executor. I believe that this has caused a huge problem. At our last "sibling meeting", more like a yelling match, I made sure to tell them that I will not deny my parents wishes no matter how difficult this is going to be. I will not sign over the responsibility to the oldest sister. They chose me. I truly am grateful for every minute I can spend with my Mother. She is such a wonderful lady, even when she is very agitated or what they call mean. Please help me to know how to get past the "family problems" that I am confronted with while taking care of Mother. Any suggestions?
You are very blessed to have lived thru such a difficult time with your parents, with the support of your siblings and family. My family has been torn apart by my Mother's dementia. There are 5 of us siblings, I am next to the youngest. We have always loved and supported each other, well some more than others. But the 2 sisters, whom I have always looked up too, loved, always been there for them, have turned against me. They are making it literally impossible for me to care for Mother. I still go down days or a week at a time, willing to go down every other week. But my sisters are so very mean to me in every way. I have tried everything to communicate with them. My mother and father appointed me their POA, Healthcare POA and Executor. I believe that this has caused a huge problem. At our last "sibling meeting", more like a yelling match, I made sure to tell them that I will not deny my parents wishes no matter how difficult this is going to be. I will not sign over the responsibility to the oldest sister. They chose me. I truly am grateful for every minute I can spend with my Mother. She is such a wonderful lady, even when she is very agitated or what they call mean. Please help me to know how to get past the "family problems" that I am confronted with while taking care of Mother. Any suggestions?
I am somewhat in the predicament I am the P.O.A. and they all think that everything even her care is up to me Just they will not have to help But I have made up my mind I am going to do the best that I can for as long as I can They do not call to even check on her Afraid that I will ask for some help That is the way they want to do it So beit.
I am somewhat in the predicament I am the P.O.A. and they all think that everything even her care is up to me Just they will not have to help But I have made up my mind I am going to do the best that I can for as long as I can They do not call to even check on her Afraid that I will ask for some help That is the way they want to do it So beit.
Keen as I was to participate in the Survey, being in India and timing conflicts restrained me from proffering my wilingness. I hope the exercise went off fruitfully and I will get to know the useful tips as a caregiver for my 90-year-old father. Varadarajan Bangalore
Keen as I was to participate in the Survey, being in India and timing conflicts restrained me from proffering my wilingness. I hope the exercise went off fruitfully and I will get to know the useful tips as a caregiver for my 90-year-old father. Varadarajan Bangalore
Hello everyone,
Thank you so much for your interest and willingness to participate. All interviews have been conducted already, so I'm going to lock this thread.
Thank you again!
Missy, Caring.com Community Manager
Hello everyone,
Thank you so much for your interest and willingness to participate. All interviews have been conducted already, so I'm going to lock this thread.
Thank you again!
Missy, Caring.com Community Manager